Ethnicity & Health最新文献

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The interplay of social support and education on diabetes knowledge: a focus on Korean American women. 社会支持和教育对糖尿病知识的相互作用:以美籍韩裔妇女为重点。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-10-01 Epub Date: 2024-07-31 DOI: 10.1080/13557858.2024.2385109
Young Ji Yoon, Soonok An, Y Joon Choi, Hee Yun Lee
{"title":"The interplay of social support and education on diabetes knowledge: a focus on Korean American women.","authors":"Young Ji Yoon, Soonok An, Y Joon Choi, Hee Yun Lee","doi":"10.1080/13557858.2024.2385109","DOIUrl":"10.1080/13557858.2024.2385109","url":null,"abstract":"<p><strong>Objective: </strong>Although diabetes is one of the leading causes of death among Korean Americans, the levels and predictors of diabetes knowledge in this group have not been sufficiently reported. This study aimed to (1) describe the level of diabetes knowledge of Korean immigrant women in the U.S. and (2) examine whether there is an interaction effect between social support and education on diabetes knowledge.</p><p><strong>Design: </strong>This study conducted a cross-sectional survey design. The sample included 227 Korean immigrant women living in the southeast region of the U.S. The fourteen items of the Diabetes Knowledge Test were used to assess the diabetes knowledge level of Korean American women. A multiple linear regression analysis was conducted to examine the interaction effect between social support and education on diabetes knowledge.</p><p><strong>Results: </strong>Only 6% of the participants presented a good diabetes knowledge level, 12.5% had a poor level, and the majority (81.5%) had a moderate level. We found a significant interaction effect between social support and education on diabetes knowledge. The highest diabetes knowledge was observed when individuals with a lower education level had higher social support.</p><p><strong>Conclusion: </strong>Future health practices and policies may focus on increasing knowledge among Korean American women with lower education levels and lower social support. Implementing peer-led initiatives can enhance diabetes knowledge and encourage better self-care practices within the community.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"793-808"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141857053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Acculturation, acculturative stress, and tobacco/nicotine use of Latin American immigrants. 拉丁美洲移民的文化适应、文化压力和烟草/尼古丁使用情况。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-10-01 Epub Date: 2024-07-20 DOI: 10.1080/13557858.2024.2379489
Brian E McCabe, Jewel Scott, Shirnelle Wilks, Marcel de Dios, Rosa M Gonzalez-Guarda
{"title":"Acculturation, acculturative stress, and tobacco/nicotine use of Latin American immigrants.","authors":"Brian E McCabe, Jewel Scott, Shirnelle Wilks, Marcel de Dios, Rosa M Gonzalez-Guarda","doi":"10.1080/13557858.2024.2379489","DOIUrl":"10.1080/13557858.2024.2379489","url":null,"abstract":"<p><strong>Objective: </strong>US Hispanics have several health disparities, greater tobacco/nicotine-related illnesses, lower access to smoking cessation, and lower rates of cessation. Understanding cultural constructs linked to tobacco/nicotine use may provide a greater understanding of future cultural adaptations of cessation interventions. This study used a multidimensional acculturation framework, with cultural practices, identity, and values, to test links between measures of acculturation stress, multidimensional acculturation (language-based enculturation and acculturation, cultural identity, familism), and tobacco/nicotine use, and interactions with gender.</p><p><strong>Design: </strong>Participants were 391 adult Latin American immigrants (69% women); 12% self-reported tobacco/nicotine use in the past six months.</p><p><strong>Results: </strong>Path analysis showed acculturative stress, <i>β</i> = .16, and acculturation, <i>β</i> = .20, were positively related to tobacco/nicotine use. Enculturation, familism, and Hispanic cultural identity were not related to tobacco/nicotine use. There were no significant acculturation by enculturation or gender interactions, but women were less likely to use tobacco/nicotine than men, <i>β</i> = -.36.</p><p><strong>Conclusion: </strong>Findings suggest that tobacco/nicotine cessation interventions for Latino immigrants may be enhanced with an emphasis on the mitigation of acculturative stress, attention to the adoption of US cultural practices, and gender. Future research should examine specific sources of acculturative stress or social norms related to tobacco/nicotine use.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"880-891"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11410507/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Insights from a COVID-era health needs assessment of rural Midwestern Latinos. 从 COVID 时代对中西部农村地区拉美人的健康需求评估中获得的启示。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-10-01 Epub Date: 2024-08-04 DOI: 10.1080/13557858.2024.2385108
Melinda Grismer, Nathalie Duval-Couetil, Soohyun Yi, Austin Dukes
{"title":"Insights from a COVID-era health needs assessment of rural Midwestern Latinos.","authors":"Melinda Grismer, Nathalie Duval-Couetil, Soohyun Yi, Austin Dukes","doi":"10.1080/13557858.2024.2385108","DOIUrl":"10.1080/13557858.2024.2385108","url":null,"abstract":"<p><p>Latino health and well-being are crucial to the growth and vibrancy of rural areas across the United States, particularly at a time when the demographics of many rural communities are transitioning from minority Latino to majority Latino populations. This manuscript details the findings of a study that explored the health and healthcare benefit status of 524 Latino households in rural Indiana during the COVID-19 pandemic. Via 20-minute, door-to-door interviews conducted by bilingual researchers, survey participants answered questions about access to healthcare services and benefits, dietary and safety habits, medical issues, and vaccination status. The study found that slightly more than half of those surveyed were enrolled in healthcare benefit plans; approximately a third were unsatisfied with their health/health status; almost two-thirds had not received a flu shot and were eating fast food/processed food on a daily basis. Top health concerns reported included: stress (52%), vision problems (34%), neck and back pain (30%), headaches/migraines (28%), anxiety and depression (28%) and weight problems (26%). The study also discovered that half of the respondents could not identify a primary healthcare provider (PCP) by name and that pregnant women faced a lack of resources for maternal health in the county where the study was conducted. The results indicate that Latinos in rural communities continue to endure significant health issues and barriers to healthcare. The study provides an excellent model of how a rural community can monitor the health of its residents, which can inform health interventions for underserved populations.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"828-845"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interactions among neighborhood conditions, sleep quality, and episodic memory across the adult lifespan. 邻里关系、睡眠质量与成年人一生中的外显记忆之间的相互作用。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-10-01 Epub Date: 2024-07-23 DOI: 10.1080/13557858.2024.2379116
Emily Hokett, Patrick Lao, Justina Avila-Rieger, Indira C Turney, Paris B Adkins-Jackson, Dayna A Johnson, Per Davidson, Ruijia Chen, Ari Shechter, Ricardo S Osorio, Adam M Brickman, Priya Palta, Jennifer J Manly
{"title":"Interactions among neighborhood conditions, sleep quality, and episodic memory across the adult lifespan.","authors":"Emily Hokett, Patrick Lao, Justina Avila-Rieger, Indira C Turney, Paris B Adkins-Jackson, Dayna A Johnson, Per Davidson, Ruijia Chen, Ari Shechter, Ricardo S Osorio, Adam M Brickman, Priya Palta, Jennifer J Manly","doi":"10.1080/13557858.2024.2379116","DOIUrl":"10.1080/13557858.2024.2379116","url":null,"abstract":"<p><strong>Objectives: </strong>On average, adults racialized as non-Hispanic Black and Hispanic sleep more poorly than adults racialized as non-Hispanic White (hereafter, Black, Hispanic, White), but associations between factors that may moderate sleep-memory associations in these groups, such as neighborhood conditions, are unclear. Poorer neighborhood conditions (e.g. lower neighborhood cohesion) may be negatively associated with sleep quality and multiplicatively influence sleep-memory associations. We hypothesized lower ratings of neighborhood conditions would be associated with poorer sleep quality and moderate the association between sleep quality and episodic memory, especially in Black and Hispanic adults, who are disproportionately situated in poor neighborhood conditions.</p><p><strong>Design: </strong>Seven-hundred-thirty-six adults across the adult lifespan (27-89 years) were recruited from the northern Manhattan community as a part of the Offspring Study of Racial and Ethnic Disparities in Alzheimer's disease. Sleep quality was assessed using a modified version of the Pittsburgh Sleep Quality Index, and episodic memory was evaluated with the Buschke Selective Reminding Test. With multiple regression models, we measured associations between perceived neighborhood conditions and sleep quality and the interaction between sleep quality and neighborhood conditions on episodic memory stratified by racial/ethnic and gender identity groups.</p><p><strong>Results: </strong>Overall, poorer neighborhood conditions were associated with poorer sleep quality. In Black and Hispanic women, the sleep-memory association was moderated by neighborhood conditions. With more favorable neighborhood conditions, Black women showed an association between higher sleep quality and higher memory performance, and Hispanic women showed a protective effect of neighborhood (higher memory even when sleep quality was poor).</p><p><strong>Conclusion: </strong>Poorer neighborhood experiences may contribute to poorer sleep quality across groups. In Black and Hispanic women, the association between sleep quality and episodic memory performance was dependent upon neighborhood conditions. These findings may inform tailored, structural level sleep interventions, aimed to improve neighborhood experiences and thereby sleep quality and episodic memory.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"809-827"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11410512/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effects of smartphone addiction on the body in young adults in Turkey. 土耳其年轻人沉迷智能手机对身体的影响。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-10-01 Epub Date: 2024-07-09 DOI: 10.1080/13557858.2024.2376040
Aysun Yağci Şentürk, Ali Ceylan, Elif Okur
{"title":"The effects of smartphone addiction on the body in young adults in Turkey.","authors":"Aysun Yağci Şentürk, Ali Ceylan, Elif Okur","doi":"10.1080/13557858.2024.2376040","DOIUrl":"10.1080/13557858.2024.2376040","url":null,"abstract":"<p><strong>Objectives: </strong>The frequency of smartphone usage is increasing day by day in Turkey. This study was planned to reveal the level of smartphone addiction and the factors affecting smartphone addiction in young adults in Turkey.</p><p><strong>Design: </strong>In the study, how long the young people had been using the smartphone and their daily usage times were recorded. The Smartphone Addiction Scale (SAS), Neck Disability Index (NDI), Body Awareness Scale (BAS), and Sedentary Behavior Questionnaire (SBQ) scales were employed as data collection tools.</p><p><strong>Results: </strong>The study was conducted with 1000 participants aged 18-45, and 807 were female. 85.6% of the participants have been using smartphones for at least 3 years and 77.3% of all participants use smartphones for more than 4 hours a day. According to the SAS scale, 34.8% of the participants had smartphone addiction. Smartphone addiction is higher especially in those who have a sedentary life or individuals with neck disabilities (<i>p</i> = 0.005; <i>p</i> < 0.001 respectively). No significant difference was found between body awareness and smartphone addiction (<i>p</i> = 0.380). However, body awareness scores were higher in the group without smartphone addiction. There was a significant difference between the groups in terms of the SAS, BAS, NDI, and SBQ scores in the participants classified by smartphone usage time.</p><p><strong>Conclusion: </strong>Female gender, daily usage of a smartphone for more than 4 hours a day, having a smartphone for at least 3 years, presence of sedentary behavior, and neck disability were the factors affecting smartphone addiction in young people. No relationship was found between body awareness and smartphone addiction. Further studies on the awareness of the effects of intensive smartphone usage on the body should be conducted among young people in Turkey.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"745-755"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141565080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cultural tailoring advance care planning for an American Indian community: make your wishes about you. 为美国印第安人社区的预先护理规划进行文化定制:让你的愿望与你有关。
IF 3.1 3区 医学
Ethnicity & Health Pub Date : 2024-09-18 DOI: 10.1080/13557858.2024.2401830
R Turner Goins,Emily A Haozous,Elizabeth Anderson,Blythe Winchester
{"title":"Cultural tailoring advance care planning for an American Indian community: make your wishes about you.","authors":"R Turner Goins,Emily A Haozous,Elizabeth Anderson,Blythe Winchester","doi":"10.1080/13557858.2024.2401830","DOIUrl":"https://doi.org/10.1080/13557858.2024.2401830","url":null,"abstract":"BACKGROUNDAdvance care planning empowers people by allowing them some control over certain healthcare decisions in the event they are unable. Yet, advance care planning rates in the American Indian and Alaska Native populations are low. Thus, we culturally tailored the Make Your Wishes About You (MY WAY), an intervention to improve advance care planning access and completion for American Indian peoples.METHODSIn partnership with an American Indian Tribe, the project took a community-based participatory orientation and relied on a Community Advisory Board and a Professional Advisory Board. The culturally tailoring was a 15-step process. These steps allowed us to ensure that the tailoring reflects community-specific norms and preferences, greater reliance on visual images and local idioms of expression, more appropriate attention to family roles, and inclusion of spiritual elements.RESULTSA four-phase cultural tailoring framework emerged with each phase centering around listening, learning, and analyzing with tailoring occurring between each phase. A culturally tailored MY WAY was created, which was delivered in a manner that reflected Tribal citizenss' preferences. Materials included Tribal language, local idioms of expression, attention to family roles, and appropriate inclusion of spiritual elements. The materials were rated high on a content validity index by the advisory board members.CONCLUSIONThere is a growing interest in tailoring existing evidence-based programs with relatively little in the literature offering guidance. By sharing our efforts and experiences in culturally tailoring an advance care planning program for an American Indian Tribe, we hope that it will serve useful for future efforts in ensuring that evidence-based programming reaches those in greatest need. While this project was rooted in the core Indigenous values of community, ceremony or spirituality, language, and place it also lends itself to broader translation across different populations.","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"64 1","pages":"1-16"},"PeriodicalIF":3.1,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142266790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities. 有疑似或确诊发育障碍幼儿的移民家庭在服务和诊断方面的经验。
IF 3.1 3区 医学
Ethnicity & Health Pub Date : 2024-09-17 DOI: 10.1080/13557858.2024.2402537
Emma Pearson,Maxwell Peprah Opoku
{"title":"Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities.","authors":"Emma Pearson,Maxwell Peprah Opoku","doi":"10.1080/13557858.2024.2402537","DOIUrl":"https://doi.org/10.1080/13557858.2024.2402537","url":null,"abstract":"OBJECTIVESWhile early diagnosis is fundamental to the development of children with developmental disabilities (DD), limited attention has been paid to immigrant parents' experience of early encounters with systems when they begin seeking supports for their children with DD. This study aimed to contribute to better understanding of immigrant parents' experiences of early encounters with services for families and children with suspected or diagnosed DD.DESIGNA longitudinal, qualitative approach was adopted. Over 12 months, multiple interviews were conducted with four immigrant families with children aged between two and four years who were attending a mobile playgroup offering early learning supports for children with suspected or diagnosed DD in communities with low access to formal supports. During the first three months of the study, families were accompanied by the first author on weekly visits to the playgroup. Participant observations and informal discussions with staff delivering early intervention supports via the playgroup provided further insight into families' initial and on-going encounters with services and supports. During the remaining nine months, multiple interviews were conducted with participating families, to document their on-going experiences and encounters with medical practitioners and therapists.RESULTSThematic analysis of data generated four key themes: Initial encounters with medical professionals, Confusion and 'missed' diagnosis, Gaps in understanding, collaboration and communication, and Families' desire to learn and implement strategies.CONCLUSIONFamilies made concerted efforts to locate appropriate supports. They also faced barriers including a lack of openness and genuine consultation, particularly in their encounters with health professionals. These barriers resulted in a level of mistrust and detachment from formalised supports. Results highlight the critical importance for health professionals of 'tuning into' family concerns through relationship-based approaches, in order to establish shared understanding and mutual respect between professionals and families, particularly for immigrant families seeking support for their young children.","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"35 1","pages":"1-18"},"PeriodicalIF":3.1,"publicationDate":"2024-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142266791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Looking out across the front yard: aboriginal peoples’ views of frailty in the community – A qualitative study 眺望前院:原住民对社区中体弱问题的看法--定性研究
IF 3.1 3区 医学
Ethnicity & Health Pub Date : 2024-09-15 DOI: 10.1080/13557858.2024.2402527
Ebony T. Lewis, Leanne Howard, Uncle Robert Carroll, Adam Howie, Gail Kenning, Adrienne Withall, Kenneth Rockwood, Magnolia Cardona, Kylie Radford, Katherine Schreyenberg, Ruth Peters
{"title":"Looking out across the front yard: aboriginal peoples’ views of frailty in the community – A qualitative study","authors":"Ebony T. Lewis, Leanne Howard, Uncle Robert Carroll, Adam Howie, Gail Kenning, Adrienne Withall, Kenneth Rockwood, Magnolia Cardona, Kylie Radford, Katherine Schreyenberg, Ruth Peters","doi":"10.1080/13557858.2024.2402527","DOIUrl":"https://doi.org/10.1080/13557858.2024.2402527","url":null,"abstract":"Frailty is one of the most significant challenges to healthy ageing. Aboriginal Australians experience some of the highest levels of frailty worldwide, and despite this, no studies have explored fr...","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"55 1","pages":""},"PeriodicalIF":3.1,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142266789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
When I can be my whole authentic self, I feel safe and know that I belong: a photovoice study exploring what culturally safe pregnancy care is to Karen women of refugee background in Victoria, Australia. 当我能做完整真实的自己时,我感到安全,并知道我属于这里:一项摄影选择研究,探索对澳大利亚维多利亚州有难民背景的卡伦妇女而言,什么是文化安全的孕期保健。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-08-01 Epub Date: 2024-06-12 DOI: 10.1080/13557858.2024.2359388
Rowena Coe, Shadow Toke, Heather Wallace, Elisha Riggs, Stephanie J Brown, Josef Szwarc, Laura J Biggs
{"title":"<i>When I can be my whole authentic self, I feel safe and know that I belong:</i> a photovoice study exploring what culturally safe pregnancy care is to Karen women of refugee background in Victoria, Australia.","authors":"Rowena Coe, Shadow Toke, Heather Wallace, Elisha Riggs, Stephanie J Brown, Josef Szwarc, Laura J Biggs","doi":"10.1080/13557858.2024.2359388","DOIUrl":"10.1080/13557858.2024.2359388","url":null,"abstract":"<p><strong>Objectives: </strong>Inequitable pregnancy care experiences and outcomes disproportionately affect refugee background women in Australia. Culturally safe care is essential for achieving health equity, however, cultural safety can only be determined by the person receiving care. To our knowledge, women of refugee background in Australia are yet to be asked what culturally safe pregnancy care is to them. Specifically, this study aimed to explore what culturally safe pregnancy care is to Karen women (from Burma) of refugee background.</p><p><strong>Design: </strong>A photovoice study founded on community-based participatory research principles was undertaken with a Karen community of refugee background living in Victoria, Australia. A community advisory group was established, guiding study design and conduct. Five S'gaw Karen-speaking women with experience of pregnancy care in Australia were invited to take photos within their community. Participants shared their photos and stories with each other in four online discussion groups.</p><p><strong>Results: </strong>Reflexive thematic analysis guided by a critical constructionist lens developed three themes: Building foundations for belonging; cultivating reciprocal curiosity; and storytelling as an expression of self and shared power. These themes sit within the overarching theme <i>When I can be my whole authentic self, I feel safe and know that I belong.</i></p><p><strong>Conclusion: </strong>When Karen women can embrace their cultural and spiritual identity without fear of discrimination, including racism, culturally safe pregnancy care is possible. This study contributes to the design and delivery of maternity services by providing insights that can enhance equitable and culturally safe pregnancy care for Karen women of refugee background.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"720-744"},"PeriodicalIF":2.6,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141312224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Capturing the perspectives of African American informal dementia caregivers: a phenomenological study. 捕捉非裔美国人非正式痴呆症照护者的视角:一项现象学研究。
IF 2.6 3区 医学
Ethnicity & Health Pub Date : 2024-08-01 Epub Date: 2024-06-27 DOI: 10.1080/13557858.2024.2367986
Araya Dimtsu Assfaw, Kerstin M Reinschmidt, Thomas A Teasdale, Lancer Stephens, Keith L Kleszynski, Kathleen Dwyer
{"title":"Capturing the perspectives of African American informal dementia caregivers: a phenomenological study.","authors":"Araya Dimtsu Assfaw, Kerstin M Reinschmidt, Thomas A Teasdale, Lancer Stephens, Keith L Kleszynski, Kathleen Dwyer","doi":"10.1080/13557858.2024.2367986","DOIUrl":"10.1080/13557858.2024.2367986","url":null,"abstract":"<p><p>Dementia can be overwhelming to families and their caregivers. Informal caregiving is a widespread mode of providing dementia care in African American communities, yet impact of caregiving on informal or family caregivers in African American communities is burdensome. This study aimed to describe the lived experiences of informal caregivers of African American People Living with Dementia (PLWD) to understand their perceptions of dementia and dementia care, caregiver support needs, and service needs. Interpretive phenomenological qualitative inquiry guided this study to understand caregivers' experiences and needs. Ten family caregivers of African American PLWD in the community participated in this study. Data were collected through in-depth interviews and a diary study approach to document and interpret caregivers' experiences. The data analysis was based on procedures of content analysis. Four major themes emerged from the in-depth interviews: caregiver burden, familism, lack of information and community-based resources, and desire and need for culturally appropriate community-based resources. Triangulated diary entry data complemented the in-depth interviews with similar themes. This study highlights how African American informal caregivers of PLWD face various caregiving needs and challenges in dementia care including lack of culturally appropriate community resources and information. The study illustrates that African American cultural beliefs of familism are significant aspects of their caregiving experience and their coping strategies. These study results provide a useful foundation for various stakeholders to develop culturally targeted interventions and programs to support African American informal caregivers and their family members with dementia.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"579-596"},"PeriodicalIF":2.6,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141472386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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