Ethnicity & Health最新文献

{"title":"Addressing the knowledge and recruitment gap in Alzheimer's disease and precision medicine research among Native people: an innovative randomized controlled trial.","authors":"Luciana E Hebert, Cara Kulbacki-Fabisiak, Clemma Muller, Amanda Boyd, Marcia O'Leary, Erin Poole, Madison Ramos, Daniel Barker, Ka'imi Sinclair, Spero M Manson, Dedra Buchwald","doi":"10.1080/13557858.2025.2479456","DOIUrl":"https://doi.org/10.1080/13557858.2025.2479456","url":null,"abstract":"<p><strong>Background: </strong>The American Indian and Alaska Native (AI/AN) population is increasing and AI/AN people are living longer than ever before. Although aging-related health issues such as cognitive impairment, dementia, and Alzheimer's disease (AD) are becoming more visible among this population, reliable data on AD prevalence and risk factors among AI/AN people are nearly nonexistent. Concurrently, precision medicine (PM) has demonstrated significant potential for detecting and treating diseases such as AD. For PM to promote health equity for underserved populations, it must not exacerbate existing health disparities and bias in research. There is also little information about preferences among AI/AN people for communicating information regarding AD, PM, or recruitment into clinical trials. Communication barriers and few known facilitators contribute to low rates of AI/AN research participation. This study seeks to address the gaps in AD and PM research among AI/AN communities and promote knowledge of, attitudes towards, and interest and participation in AD-related PM research efforts.</p><p><strong>Methods: </strong>We designed a three-armed RCT to determine the effect of a culturally tailored brochure and video compared to non-tailored recruitment materials. Participants were recruited in Rapid City, South Dakota and were required to meet the following eligibility criteria: 1) identify as AI/AN; 2) be able to speak, read, and understand English; 3) be aged 40 or older; and 4) have the cognitive and decisional capacity to consent and sign and date the informed consent document.</p><p><strong>Results: </strong>We enrolled 914 in the RCT and 812 have been randomized to a study condition. The mean age is 54 years (standard deviation = 10.3 years); 62% are female. Overall, 22% reported a parent, grandparent or sibling have been diagnosed with AD, and 22% reported a family member with an other type of dementia. One quarter (25%) of participants reported having an undiagnosed memory problem themselves, and 22% reported having a family member with undiagnosed memory problems. Of randomized participants, 743 (72%) enrolled in the research registry.</p><p><strong>Conclusions: </strong>This study will inform future recruitment efforts for ADRD-focused clinical trials. Enrollment of AI/AN participants in an Alzheimer's Disease-Precision Medicine (AD-PM) Registry will provide opportunity for future research on this topic in partnership with this population.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-20"},"PeriodicalIF":2.6,"publicationDate":"2025-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144040176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parent's experiences of the impact of ethnicity and skin pigmentation on perinatal care.","authors":"Frankie Fair, Amy Furness, Gina Higginbottom, Sam Oddie, Hora Soltani","doi":"10.1080/13557858.2025.2488893","DOIUrl":"https://doi.org/10.1080/13557858.2025.2488893","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to explore the perceived impact of ethnicity and race on perinatal care among parents from diverse ethnic minority backgrounds or who had a Black, Asian, or ethnic minority child born in the UK within the last five years to better understand areas of ethnic inequality within perinatal care.</p><p><strong>Design: </strong>This study employed a focused ethnography, recruiting a purposive sample through posters, professional organisations, and social media platforms. Efforts to ensure maximum phenomenon variation included diverse ethnic and geographical representation. Semi-structured interviews using the digital platform, Zoom, explored experiences of accessing and receiving care, with a focus on challenges and perceptions related to ethnicity, race or skin pigmentation. Interview schedules underwent stakeholder validation and pilot testing. NVivo software facilitated qualitative analysis, employing an inductive approach with rigorous coding and thematic analysis.</p><p><strong>Results: </strong>Ethnic minority parental experiences (<i>n</i> = 24) revealed significant systemic challenges within the healthcare system. Three major themes were observed: Parent's voices not being heard, Systemic factors and Discrimination. Participants expressed feelings of marginalisation and inadequate communication with healthcare providers. Instances where concerns were dismissed or belittled, coupled with issues related to consent, highlighted pervasive systemic shortcomings. Structural barriers such as difficulties in scheduling appointments and perceived organisational neglect further compounded these challenges. Discriminatory attitudes and racial stereotypes also influenced the quality of care received, contributing to disparities in health outcomes and maternal wellbeing. Participants noted feelings of social isolation, exacerbated by pandemic-related restrictions and a lack of tailored support networks.</p><p><strong>Conclusion: </strong>These findings underscore the urgent need for systemic reforms aimed at ensuring culturally safe and anti-racist practice, addressing communication barriers, and reducing discriminatory practices to enhance healthcare experiences and outcomes for ethnic minority parents. This includes training all healthcare staff around cultural safety.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-21"},"PeriodicalIF":2.6,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144038706","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Knowledge and awareness of healthcare systems and the uptake of diabetic services among Chinese people diagnosed with type 2 diabetes in the UK.","authors":"Tarnjit Sehmbi, Ran Cao, Raju Sapkota, Shahina Pardhan","doi":"10.1080/13557858.2025.2496188","DOIUrl":"https://doi.org/10.1080/13557858.2025.2496188","url":null,"abstract":"<p><strong>Objectives: </strong>Diabetes poses a significant public health challenge. The Chinese community has unique cultural characteristics that can influence their understanding of the diabetes healthcare system and engagement with services. This study aims to explore the knowledge and awareness of the diabetes healthcare system and the uptake of healthcare services in the UK Chinese population.</p><p><strong>Design: </strong>This study adopted a qualitative design. Three focus group discussions (FGDs) were conducted on Zoom with 22 Chinese participants with self-reported type 2 diabetes living in the UK. Participants ranged from 24 to 85 years (mean age = 66 years, SD = 17.1). A purposive sample was recruited through study adverts in Chinese community centres and snowball sampling. Data were analysed using Braun and Clarke's thematic analysis (TA).</p><p><strong>Results: </strong>This paper discusses 4 themes: Awareness and understanding of diabetes, healthcare access and utilisation, attitudes towards diabetes prevention programmes and Chinese medicine vs. Western medicine. Limited knowledge and awareness of diabetes was highlighted, with cultural factors impacting this. Factors which impacted healthcare access and utilisation were linguistic/ communication challenges, and trust and perception of the NHS. Participants were unaware of diabetes prevention programmes and highlighted that these were culturally inappropriate. Generational preferences were noted in the way participants wished to receive diabetes education. The western medical system was viewed as medication focused, therefore the older Chinese community trusted familiar natural methods of illness management.</p><p><strong>Conclusion: </strong>These findings highlight the importance of ensuring diabetes education is culturally appropriate. Generational differences in education preference should be recognised by healthcare professionals to increase healthcare engagement. These findings demonstrate the important need to educate UK healthcare professionals with the unique sociocultural contexts for this ethnic group. This study uncovers gaps in awareness and service uptake, highlighting the need for co-development of interventions that promote health equity and improve diabetes management within this population.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-18"},"PeriodicalIF":2.6,"publicationDate":"2025-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144065029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the intersectionality of the rural Hispanic/Latino Veteran population: a scoping review of health-related challenges.","authors":"Kelsea LeBeau, Janet Lopez, Melanie Orejuela, Nathaniel Eliazar-Macke, I Magaly Freytes","doi":"10.1080/13557858.2025.2486413","DOIUrl":"https://doi.org/10.1080/13557858.2025.2486413","url":null,"abstract":"<p><strong>Introduction: </strong>The rural Veteran population is becoming more racially and ethnically diverse, with Hispanic/Latino (H/L) Veterans representing a growing proportion of rural Veterans. Despite experiencing similar challenges to those of other rural Veteran populations, rural H/L Veterans face additional health-related challenges due to sociocultural factors. A gap in knowledge for rural H/L Veterans exists; thus, research on this population is warranted.</p><p><strong>Objective: </strong>We conducted a scoping review to examine literature on rural H/L Veterans. We synthesized health-related issues, needs, and services for rural H/L Veterans, including health disparities, tailored interventions to address health disparities, and whether studies employed an intersectional approach to understand and address challenges for rural H/L Veterans.</p><p><strong>Methods: </strong>We followed Arksey and O'Malley's framework. Inclusion criteria were limited to English language articles published between 2007-2024 focusing on rural H/L Veterans in the United States and U.S. state equivalents. Two reviewers assessed selected articles.</p><p><strong>Results: </strong>Sixteen articles were included. Most articles (75%) were retrospective cohort or retrospective cross-sectional studies. Studies examined health disparities related to diabetes, suicide, depression, traumatic brain injury, PTSD, chronic pain, COVID-19 vaccination, primary care access, goals of care documentation, and multimorbidity. 'Hispanic' and/or 'Latino' terms were often used as descriptive characteristics and/or covariates and lacked clear definitions. Few studies thoroughly highlighted the intersectionality of geographic location and H/L ethnicity for Veterans. Additionally, limitations in data were noted by some studies.</p><p><strong>Conclusions: </strong>Increased research on health-related challenges experienced by rural H/L Veterans is needed. Of specific importance is research that emphasizes the intersectionality of rural H/L Veterans, acknowledges intra-ethnic diversity and cultural influence, prioritizes culturally relevant interventions, addresses data limitations, and focuses on providing equitable care. Knowledge gained can inform the development of Veteran-centric and culturally appropriate policies and practices to improve the health outcomes of rural H/L Veterans and achieve health equity.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-28"},"PeriodicalIF":2.6,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143774849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adaptation of the Florida Cognitive Activities Scale for Latinx adults with chronic diseases.","authors":"Heather Cuevas, Elizabeth Muñoz, Shenell Wood, Jeeyeon Kim, Alexandra García","doi":"10.1080/13557858.2025.2458306","DOIUrl":"10.1080/13557858.2025.2458306","url":null,"abstract":"<p><strong>Background: </strong>Latinx adults experience disparately high rates of chronic diseases and cognitive dysfunction. Participating in cognitive-stimulating activities, such as reading, is thought to improve and preserve cognitive function. However, little is known about cognitively stimulating activities preferred by Latinx adults. In addition, surveys to measure participation in cognitively stimulating activities are not culturally sensitive to Latinx preferences and tend to feature activities that require financial resources and leisure time and may not include cognitively stimulating activities that are more accessible or preferable.</p><p><strong>Methods: </strong>We conducted an instrumentation study in three phases to adapt the Florida Cognitive Activities Scale (FCAS): Phase (1) revision and translation of the FCAS for Latinx adults with chronic diseases; Phase (2) feasibility testing; and Phase (3) reliability and validity testing.</p><p><strong>Results: </strong>Five experts provided input on existing items, with suggestions for changes or items to remove and for new items. The resulting 17 item FCAS-Latinx (FCAS-L) was translated into Spanish and back-translated and determined to be readable at the 6th grade level. The FACS-L was administered to 70 participants (mean age 62.17 years; 57% female; 51% Mexican American) with other surveys that measured cognitive functioning and chronic disease management. To select the final items, we analyzed the item discrimination index, item-to-total correlations, and participants' feedback. The final 20-item Spanish - and English versions of the FCAS-L are internally consistent (Cronbach alpha = 0.74 and 0.81, respectively), showed good construct validity (higher scores on cognitive functioning tests correlated with engaging in more frequent cognitively stimulating activities, <i>r</i> = 0.63, <i>P</i> < .01), and temporal reliability (the interclass correlation coefficient between test and retest times was 0.81).</p><p><strong>Conclusion: </strong>The FCAS-L is a valid and reliable updated measure of cognitively stimulating activities for Spanish- and English-speaking Latinx adults with chronic conditions.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"398-412"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The association of discrimination, inflammation, and coping style on self-rated health among South Asian individuals in the MASALA Study.","authors":"Raji Pillai, Sahiti Myneni, Constance M Johnson, Nilay S Shah, Alka M Kanaya, Jennifer E S Beauchamp","doi":"10.1080/13557858.2025.2484581","DOIUrl":"https://doi.org/10.1080/13557858.2025.2484581","url":null,"abstract":"<p><strong>Objectives: </strong>South Asian individuals (SAs) may have heightened levels of inflammatory markers, such as C reactive protein (CRP), Tumor Necrosis Factor-α (TNF-α), leptin, and resistin, and decreased levels of anti-inflammatory adiponectin, contributing to higher cardiovascular disease (CVD) incidence. Social determinants of health, like discrimination, are also associated with risks for CVD in SAs. This study examined the associations between discrimination and inflammation and whether coping styles moderated the association between discrimination and self-rated health (SRH) among SAs in the United States.</p><p><strong>Design: </strong>Secondary analysis of data obtained from 1164 SAs (mean age = 57 years, SD = 9.4, 48% women) enrolled in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) study was conducted. Discrimination was measured using the Everyday Discrimination Scale (EDS). Inflammatory markers (CRP, TNF-α, leptin, resistin) and anti-inflammatory adiponectin were measured from blood samples. SRH was self-reported by participants. Coping styles were defined as problem-focused or emotion-focused. Multiple regression with bootstrapping was used to examine associations between discrimination and inflammatory markers and adiponectin. Moderation analysis assessed whether coping styles moderated the association between discrimination and SRH.</p><p><strong>Results: </strong>No significant associations were found between discrimination and inflammation. Discrimination was inversely associated with SRH (OR = 0.969, <i>p</i> = 0.005). Emotion-focused coping moderated the association between discrimination and SRH (OR = 0.969, 95% CI = 0.940-0.999, <i>p</i> = 0.044). Among participants who used emotion-focused coping strategies, an increase in self-reported discriminatory experiences was associated with lower odds of having good or excellent SRH. Problem-focused coping did not moderate the association between discrimination and SRH.</p><p><strong>Conclusion: </strong>The unknown magnitude and duration, and the lack of variability in discrimination among participants could explain the null findings between discrimination and inflammation. Gaining a better understanding of the ways in which SAs appraise and cope with discriminatory experiences may help to develop future interventions targeted to reduce the adverse health consequences of discrimination among SAs.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-21"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Racial discrimination and depressive symptoms among Asian Americans: moderating effects of colorblind racial attitude and nativity.","authors":"Bongki Woo, Jungmi Jun, Joon Kyung Kim","doi":"10.1080/13557858.2024.2442311","DOIUrl":"10.1080/13557858.2024.2442311","url":null,"abstract":"<p><strong>Objectives: </strong>Anti-Asian American racism has negatively impacted Asian Americans' mental health. This study investigated how colorblind racial ideology moderates the relationship between COVID-19 racial discrimination and depressive symptoms among Asian Americans.</p><p><strong>Design: </strong>Data come from an online survey conducted among 794 Asian Americans. Multivariable logistic regression analyses were conducted to test the effects of racial discrimination and colorblind racial attitude on depressive symptoms among Asian Americans, stratified by nativity (451 US-born, 343 foreign-born).</p><p><strong>Results: </strong>We found that US-born Asian Americans than foreign-born Asian Americans had higher odds of depressive symptoms, whereas the foreign-born displayed higher levels of colorblind racial attitude. The results of multivariable logistic regression tests indicate that colorblind racial attitude moderates the relationship between racial discrimination and depressive symptoms among the US-born, but not among the foreign-born.</p><p><strong>Conclusion: </strong>Instead of claiming that race no longer matters, more racially conscious socialization and education that promote the awareness of race and racism are warranted to promote mental health of Asian Americans.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"337-347"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142856412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"<i>'Whose pain is real pain and whose pain is not':</i> an interpretative phenomenological analysis of the role of social support in help-seeking for perinatal mental illnesses in women from minoritised ethnicities.","authors":"Avneet Sandhu, Maria Raisa Jessica Aquino, Mei Yee Tang","doi":"10.1080/13557858.2024.2442332","DOIUrl":"10.1080/13557858.2024.2442332","url":null,"abstract":"<p><strong>Rationale and objectives: </strong>Perinatal mental illnesses (PMIs), such as depression and anxiety, affect 25% of mothers in England and occur during pregnancy or within the first year postpartum. PMIs have serious consequences for mothers, children, and families, additionally impacting minoritised ethnic women who experience higher mental health risks and diminished quality of life, stemming from systemic inequalities, socio-economic disadvantages, and limited access to quality care. Social support influences women's help-seeking intentions and behaviours for PMIs, yet its role remains unclear. The present study aimed to investigate minoritised ethnic women's experiences of PMIs to understand the role of social support in help-seeking intentions or behaviour for formal or informal support.</p><p><strong>Design: </strong>Semi-structured interviews were conducted with minoritised ethnic women (<i>n</i> = 6) in England. The interviews explored their experiences of PMIs, mental health, and views on social support during the perinatal period. The data was analysed using Interpretative Phenomenological Analysis.</p><p><strong>Results: </strong>Minoritised ethnic women held varied perspectives on what constituted social support, ranging from immediate social circles to broader professional networks. Social support was not the sole determinant of help-seeking behaviours; self-perceptions, cultural background, and prior experiences with maternity care were also crucial. Additionally, a need for non-intrusive, empathetic, and culturally sensitive perinatal mental health support for minoritised ethnic women was expressed. The women emphasised the importance of creating safe spaces for open discussions, expressing a desire for peer support to foster a sense of belonging amongst minoritised ethnic women.</p><p><strong>Conclusion: </strong>The role of social support in help-seeking for minoritised ethnic women is complex; functioning as both a facilitator and a barrier to help-seeking, contingent upon individual circumstances and subjective perceptions. The dissatisfaction expressed by women around the current perinatal care highlights the need for services in England to prioritise cultural humility and empathetic support to enhance outcomes for minoritised ethnic women.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"30 3","pages":"413-431"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143755626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Racism, discrimination, medical mistrust, stigma, and lung cancer screening: a scoping review.","authors":"Sreekar Miriyala, Kirsten V Nguyen, Anika Park, Timothy Hwang, Melinda C Aldrich, Jennifer Richmond","doi":"10.1080/13557858.2025.2458303","DOIUrl":"10.1080/13557858.2025.2458303","url":null,"abstract":"<p><strong>Objective: </strong>Lung cancer screening can reduce lung cancer-specific mortality, but it is widely underutilized, especially among minoritized populations that bear a disproportionate burden of lung cancer, such as Black Americans. Racism, discrimination, medical mistrust, and stigma contribute to lower uptake of preventive screenings in general, but the role these factors play in lung cancer screening is unclear. We therefore conducted a scoping review to synthesize the literature regarding how racism, discrimination, medical mistrust, and stigma relate to lung cancer screening.</p><p><strong>Design: </strong>Informed by PRISMA-ScR guidelines, we searched five databases for relevant literature, and two trained researchers independently reviewed articles for relevance. We conducted a narrative, descriptive analysis of included articles.</p><p><strong>Results: </strong>A total of 45 studies met our inclusion criteria. Most articles reported on medical mistrust or one of its cognates (e.g. trust and distrust, <i>n</i> = 37) and/or stigma (<i>n</i> = 25), with several articles focusing on multiple constructs. Few articles reported on racism (<i>n</i> = 3), and <i>n</i> = 1 article reported on discrimination. Results from empirical studies suggest that medical mistrust, distrust, and stigma may be barriers to lung cancer screening, whereas trust in health care providers may facilitate screening. The articles reporting on racism were commentaries calling attention to the impact of racism on lung cancer screening in Black populations.</p><p><strong>Conclusions: </strong>Overall, novel interventions are needed to promote trust and reduce mistrust, distrust, and stigma in lung cancer screening initiatives. Dedicated efforts are especially needed to understand and address the roles that racism and discrimination may play in lung cancer screening.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"372-397"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11961322/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of Black-led community organisations in supporting Black mental health: a Black emancipatory action research project.","authors":"Stephanie Ejegi-Memeh, Robert Berkeley, David Bussue, Wilster Mafoti, Allia Mohamad, Ursula Myrie, Shirley Samuels","doi":"10.1080/13557858.2024.2442323","DOIUrl":"10.1080/13557858.2024.2442323","url":null,"abstract":"<p><strong>Objective: </strong>To explore the role of Black-led community organisations in supporting Black mental health and wellbeing in the UK.</p><p><strong>Design: </strong>A qualitative, Black Emancipatory Action Research Framework was adopted. Framework application involved adequately compensating community organisations for their consultancy role; having 'research conversations' rather than interviewing participants; and focusing outputs on community benefit. Eight individual and group research conversations took place with nine Black directors, employees and volunteers working with Black-led community organisations, aged between 19 and 62, living in the UK. Reflexive thematic analysis was used to analyse conversations.</p><p><strong>Results: </strong>Three themes were developed in relation to what Black-led community organisations do for Black mental health. These are: identify and respond to mental health needs; selectively build relationships with mainstream services; and drive social and systemic improvements. Findings revealed that Black-led community organisations uniquely identify and address mental wellbeing by offering respite from racism, hosting activities, and meeting urgent needs. They navigate and facilitate access to health and social systems, protect communities from harmful services, and advocate for social and systemic change. Drawing on the study design, findings, and the broader literature, we propose three key changes to current funding, community, and research practices. These are a reconsideration of how Black-led organisations' work is valued and measured, a forging of greater collaboration between these organisations, and bolder consideration of how research practice can benefit Black communities.</p><p><strong>Conclusions: </strong>Black-led organisations play multiple roles in supporting individual and collective mental health, crucial for mediating the effects of racism and mitigating ethnic inequalities. To our knowledge, this is the first study to both illuminate the critical role of community organisations in promoting Black mental health in the UK and to prioritise participant, and community, benefit throughout the research process.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"432-451"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}