Through the patient lens: exploring the lived experiences of African American and Latinx adults with Chronic Kidney Disease.

Abstract

Objective: Chronic Kidney Disease (CKD) disproportionately impacts African American and Latinx populations in the United States. This study utilized a participatory photo-elicitation approach to explore how African American and Latinx individuals with CKD perceive and navigate their disease journeys.

Method: In this qualitative study, remote semi-structured interviews were conducted with a total of 20 African American and Latinx individuals with CKD, and the data were analyzed using reflexive thematic analysis.

Results: Participants' ages ranged from 30 to 67, with 60% identifying as women and 30% reporting annual incomes <$20,000. Data analysis uncovered four key themes: (1) 'The Burden of CKD,' highlighting the physical, social, and emotional toll on patients; (2) 'Navigating CKD with Positivity and Support,' showcasing strategies to cultivate psychological well-being; (3) 'Systemic Difficulties,' addressing barriers within the healthcare system; and (4) 'Building Bridges in the Kidney Community,' illustrating advocacy efforts to combat CKD.

Discussion: This study highlights the nuanced experiences of African American and Latinx individuals with CKD, highlighting their challenges and resilience. These findings emphasize the need for inclusive healthcare strategies that address these racially/ethnically diverse populations' unique needs to improve health outcomes.