Ethnicity & Health最新文献

{"title":"Substance use among U.S. Black young adults: examining the influence of nativity, racial stressors and societal concerns.","authors":"Wura Jacobs, Veronica Lowry, Ann Amuta-Jimenez, Maria Parker","doi":"10.1080/13557858.2025.2482619","DOIUrl":"10.1080/13557858.2025.2482619","url":null,"abstract":"<p><strong>Objective: </strong>There is increased ethnic diversity of Black Americans as a result of increasing migration. However, it is unclear whether the diverse sociocultural contexts and experiences of U.S.- and foreign-born Black young adults (YA) are similarly associated with substance use behaviors. With a rise in psychosocial stressors among YA in the U.S., this study examined whether there are nativity differences in the association of societal concern, experience of racist events, and discrimination with nicotine/tobacco, cannabis, and binge-drinking among U.S.- and foreign-born Black YA.</p><p><strong>Methods: </strong>This pilot study used data collected in 2023 from a nationwide, non-probability sample of 484 young adults (182 foreign-born and 302 U.S.-born) aged 18-25 years. Nativity differences in demographic characteristics, study predictors, and substance use were assessed using two sample t-tests and chi-squared tests. Multivariable logistic regression analyses were used to examine the association of societal concern, racism, and discrimination with nicotine/tobacco use, cannabis use, and binge drinking overall and stratified by nativity.</p><p><strong>Results: </strong>While foreign-born and U.S.-born Black YA had similar mean societal concern and racist experience scores, everyday discrimination was significantly higher among U.S.-born YA (<i>p</i> = 0.002). Societal concern was associated with reduced odds of nicotine/tobacco use in the overall sample (AOR<i> </i>= 0.90, 95% CI 0.83, 0.97) and among foreign-born Black YA (AOR = 0.79, 95% CI 0.66-0.94). Experience of racist events was consistently associated with increased odds of all substances assessed in the overall sample and among the sub-groups, with the exception of binge drinking among U.S.-born YA and cannabis and nicotine/tobacco use among foreign-born YA.</p><p><strong>Conclusions: </strong>Despite similarities among foreign- and U.S.-born Black YA, exposure to these psychosocial stressors is associated with some distinct substance use patterns. These findings highlight the nuanced relationships between societal and discriminatory stressors and substance use, varying by nativity among Black YA.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"491-506"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143702045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Addressing the knowledge and recruitment gap in Alzheimer's disease and precision medicine research among Native people: an innovative randomized controlled trial.","authors":"Luciana E Hebert, Cara Kulbacki-Fabisiak, Clemma Muller, Amanda Boyd, Marcia O'Leary, Erin Poole, Madison Ramos, Daniel Barker, Ka'imi Sinclair, Spero M Manson, Dedra Buchwald","doi":"10.1080/13557858.2025.2479456","DOIUrl":"10.1080/13557858.2025.2479456","url":null,"abstract":"<p><strong>Background: </strong>The American Indian and Alaska Native (AI/AN) population is increasing and AI/AN people are living longer than ever before. Although aging-related health issues such as cognitive impairment, dementia, and Alzheimer's disease (AD) are becoming more visible among this population, reliable data on AD prevalence and risk factors among AI/AN people are nearly nonexistent. Concurrently, precision medicine (PM) has demonstrated significant potential for detecting and treating diseases such as AD. For PM to promote health equity for underserved populations, it must not exacerbate existing health disparities and bias in research. There is also little information about preferences among AI/AN people for communicating information regarding AD, PM, or recruitment into clinical trials. Communication barriers and few known facilitators contribute to low rates of AI/AN research participation. This study seeks to address the gaps in AD and PM research among AI/AN communities and promote knowledge of, attitudes towards, and interest and participation in AD-related PM research efforts.</p><p><strong>Methods: </strong>We designed a three-armed RCT to determine the effect of a culturally tailored brochure and video compared to non-tailored recruitment materials. Participants were recruited in Rapid City, South Dakota and were required to meet the following eligibility criteria: 1) identify as AI/AN; 2) be able to speak, read, and understand English; 3) be aged 40 or older; and 4) have the cognitive and decisional capacity to consent and sign and date the informed consent document.</p><p><strong>Results: </strong>We enrolled 914 in the RCT and 812 have been randomized to a study condition. The mean age is 54 years (standard deviation = 10.3 years); 62% are female. Overall, 22% reported a parent, grandparent or sibling have been diagnosed with AD, and 22% reported a family member with an other type of dementia. One quarter (25%) of participants reported having an undiagnosed memory problem themselves, and 22% reported having a family member with undiagnosed memory problems. Of randomized participants, 743 (72%) enrolled in the research registry.</p><p><strong>Conclusions: </strong>This study will inform future recruitment efforts for ADRD-focused clinical trials. Enrollment of AI/AN participants in an Alzheimer's Disease-Precision Medicine (AD-PM) Registry will provide opportunity for future research on this topic in partnership with this population.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"471-490"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12126279/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144040176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adaptation of the Florida Cognitive Activities Scale for Latinx adults with chronic diseases.","authors":"Heather Cuevas, Elizabeth Muñoz, Shenell Wood, Jeeyeon Kim, Alexandra García","doi":"10.1080/13557858.2025.2458306","DOIUrl":"10.1080/13557858.2025.2458306","url":null,"abstract":"<p><strong>Background: </strong>Latinx adults experience disparately high rates of chronic diseases and cognitive dysfunction. Participating in cognitive-stimulating activities, such as reading, is thought to improve and preserve cognitive function. However, little is known about cognitively stimulating activities preferred by Latinx adults. In addition, surveys to measure participation in cognitively stimulating activities are not culturally sensitive to Latinx preferences and tend to feature activities that require financial resources and leisure time and may not include cognitively stimulating activities that are more accessible or preferable.</p><p><strong>Methods: </strong>We conducted an instrumentation study in three phases to adapt the Florida Cognitive Activities Scale (FCAS): Phase (1) revision and translation of the FCAS for Latinx adults with chronic diseases; Phase (2) feasibility testing; and Phase (3) reliability and validity testing.</p><p><strong>Results: </strong>Five experts provided input on existing items, with suggestions for changes or items to remove and for new items. The resulting 17 item FCAS-Latinx (FCAS-L) was translated into Spanish and back-translated and determined to be readable at the 6th grade level. The FACS-L was administered to 70 participants (mean age 62.17 years; 57% female; 51% Mexican American) with other surveys that measured cognitive functioning and chronic disease management. To select the final items, we analyzed the item discrimination index, item-to-total correlations, and participants' feedback. The final 20-item Spanish - and English versions of the FCAS-L are internally consistent (Cronbach alpha = 0.74 and 0.81, respectively), showed good construct validity (higher scores on cognitive functioning tests correlated with engaging in more frequent cognitively stimulating activities, <i>r</i> = 0.63, <i>P</i> < .01), and temporal reliability (the interclass correlation coefficient between test and retest times was 0.81).</p><p><strong>Conclusion: </strong>The FCAS-L is a valid and reliable updated measure of cognitively stimulating activities for Spanish- and English-speaking Latinx adults with chronic conditions.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"398-412"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Racial discrimination and depressive symptoms among Asian Americans: moderating effects of colorblind racial attitude and nativity.","authors":"Bongki Woo, Jungmi Jun, Joon Kyung Kim","doi":"10.1080/13557858.2024.2442311","DOIUrl":"10.1080/13557858.2024.2442311","url":null,"abstract":"<p><strong>Objectives: </strong>Anti-Asian American racism has negatively impacted Asian Americans' mental health. This study investigated how colorblind racial ideology moderates the relationship between COVID-19 racial discrimination and depressive symptoms among Asian Americans.</p><p><strong>Design: </strong>Data come from an online survey conducted among 794 Asian Americans. Multivariable logistic regression analyses were conducted to test the effects of racial discrimination and colorblind racial attitude on depressive symptoms among Asian Americans, stratified by nativity (451 US-born, 343 foreign-born).</p><p><strong>Results: </strong>We found that US-born Asian Americans than foreign-born Asian Americans had higher odds of depressive symptoms, whereas the foreign-born displayed higher levels of colorblind racial attitude. The results of multivariable logistic regression tests indicate that colorblind racial attitude moderates the relationship between racial discrimination and depressive symptoms among the US-born, but not among the foreign-born.</p><p><strong>Conclusion: </strong>Instead of claiming that race no longer matters, more racially conscious socialization and education that promote the awareness of race and racism are warranted to promote mental health of Asian Americans.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"337-347"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142856412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"<i>'Whose pain is real pain and whose pain is not':</i> an interpretative phenomenological analysis of the role of social support in help-seeking for perinatal mental illnesses in women from minoritised ethnicities.","authors":"Avneet Sandhu, Maria Raisa Jessica Aquino, Mei Yee Tang","doi":"10.1080/13557858.2024.2442332","DOIUrl":"10.1080/13557858.2024.2442332","url":null,"abstract":"<p><strong>Rationale and objectives: </strong>Perinatal mental illnesses (PMIs), such as depression and anxiety, affect 25% of mothers in England and occur during pregnancy or within the first year postpartum. PMIs have serious consequences for mothers, children, and families, additionally impacting minoritised ethnic women who experience higher mental health risks and diminished quality of life, stemming from systemic inequalities, socio-economic disadvantages, and limited access to quality care. Social support influences women's help-seeking intentions and behaviours for PMIs, yet its role remains unclear. The present study aimed to investigate minoritised ethnic women's experiences of PMIs to understand the role of social support in help-seeking intentions or behaviour for formal or informal support.</p><p><strong>Design: </strong>Semi-structured interviews were conducted with minoritised ethnic women (<i>n</i> = 6) in England. The interviews explored their experiences of PMIs, mental health, and views on social support during the perinatal period. The data was analysed using Interpretative Phenomenological Analysis.</p><p><strong>Results: </strong>Minoritised ethnic women held varied perspectives on what constituted social support, ranging from immediate social circles to broader professional networks. Social support was not the sole determinant of help-seeking behaviours; self-perceptions, cultural background, and prior experiences with maternity care were also crucial. Additionally, a need for non-intrusive, empathetic, and culturally sensitive perinatal mental health support for minoritised ethnic women was expressed. The women emphasised the importance of creating safe spaces for open discussions, expressing a desire for peer support to foster a sense of belonging amongst minoritised ethnic women.</p><p><strong>Conclusion: </strong>The role of social support in help-seeking for minoritised ethnic women is complex; functioning as both a facilitator and a barrier to help-seeking, contingent upon individual circumstances and subjective perceptions. The dissatisfaction expressed by women around the current perinatal care highlights the need for services in England to prioritise cultural humility and empathetic support to enhance outcomes for minoritised ethnic women.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"30 3","pages":"413-431"},"PeriodicalIF":2.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143755626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Racism, discrimination, medical mistrust, stigma, and lung cancer screening: a scoping review.","authors":"Sreekar Miriyala, Kirsten V Nguyen, Anika Park, Timothy Hwang, Melinda C Aldrich, Jennifer Richmond","doi":"10.1080/13557858.2025.2458303","DOIUrl":"10.1080/13557858.2025.2458303","url":null,"abstract":"<p><strong>Objective: </strong>Lung cancer screening can reduce lung cancer-specific mortality, but it is widely underutilized, especially among minoritized populations that bear a disproportionate burden of lung cancer, such as Black Americans. Racism, discrimination, medical mistrust, and stigma contribute to lower uptake of preventive screenings in general, but the role these factors play in lung cancer screening is unclear. We therefore conducted a scoping review to synthesize the literature regarding how racism, discrimination, medical mistrust, and stigma relate to lung cancer screening.</p><p><strong>Design: </strong>Informed by PRISMA-ScR guidelines, we searched five databases for relevant literature, and two trained researchers independently reviewed articles for relevance. We conducted a narrative, descriptive analysis of included articles.</p><p><strong>Results: </strong>A total of 45 studies met our inclusion criteria. Most articles reported on medical mistrust or one of its cognates (e.g. trust and distrust, <i>n</i> = 37) and/or stigma (<i>n</i> = 25), with several articles focusing on multiple constructs. Few articles reported on racism (<i>n</i> = 3), and <i>n</i> = 1 article reported on discrimination. Results from empirical studies suggest that medical mistrust, distrust, and stigma may be barriers to lung cancer screening, whereas trust in health care providers may facilitate screening. The articles reporting on racism were commentaries calling attention to the impact of racism on lung cancer screening in Black populations.</p><p><strong>Conclusions: </strong>Overall, novel interventions are needed to promote trust and reduce mistrust, distrust, and stigma in lung cancer screening initiatives. Dedicated efforts are especially needed to understand and address the roles that racism and discrimination may play in lung cancer screening.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"372-397"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11961322/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of Black-led community organisations in supporting Black mental health: a Black emancipatory action research project.","authors":"Stephanie Ejegi-Memeh, Robert Berkeley, David Bussue, Wilster Mafoti, Allia Mohamad, Ursula Myrie, Shirley Samuels","doi":"10.1080/13557858.2024.2442323","DOIUrl":"10.1080/13557858.2024.2442323","url":null,"abstract":"<p><strong>Objective: </strong>To explore the role of Black-led community organisations in supporting Black mental health and wellbeing in the UK.</p><p><strong>Design: </strong>A qualitative, Black Emancipatory Action Research Framework was adopted. Framework application involved adequately compensating community organisations for their consultancy role; having 'research conversations' rather than interviewing participants; and focusing outputs on community benefit. Eight individual and group research conversations took place with nine Black directors, employees and volunteers working with Black-led community organisations, aged between 19 and 62, living in the UK. Reflexive thematic analysis was used to analyse conversations.</p><p><strong>Results: </strong>Three themes were developed in relation to what Black-led community organisations do for Black mental health. These are: identify and respond to mental health needs; selectively build relationships with mainstream services; and drive social and systemic improvements. Findings revealed that Black-led community organisations uniquely identify and address mental wellbeing by offering respite from racism, hosting activities, and meeting urgent needs. They navigate and facilitate access to health and social systems, protect communities from harmful services, and advocate for social and systemic change. Drawing on the study design, findings, and the broader literature, we propose three key changes to current funding, community, and research practices. These are a reconsideration of how Black-led organisations' work is valued and measured, a forging of greater collaboration between these organisations, and bolder consideration of how research practice can benefit Black communities.</p><p><strong>Conclusions: </strong>Black-led organisations play multiple roles in supporting individual and collective mental health, crucial for mediating the effects of racism and mitigating ethnic inequalities. To our knowledge, this is the first study to both illuminate the critical role of community organisations in promoting Black mental health in the UK and to prioritise participant, and community, benefit throughout the research process.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"432-451"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Racism and ethnic discrimination among Indigenous Arctic populations: methods, data, definitions. A scoping review.","authors":"Tobias Poggats, Per Axelsson","doi":"10.1080/13557858.2025.2459766","DOIUrl":"10.1080/13557858.2025.2459766","url":null,"abstract":"<p><strong>Objectives: </strong>Racism and ethnic discrimination are global health issues, but the extent and effects on Indigenous Peoples in the Arctic region are still poorly understood. By investigating the methods, data sources, and definitions used in articles examining racism and ethnic discrimination among Indigenous peoples in the Arctic between 2008 and 2021 this review aims to create a solid foundation for future research.</p><p><strong>Design: </strong>We conducted a search across multiple databases, including PubMed, PsycInfo, Web of Science, Scopus, and the Cochrane Review. Our search criteria included: Indigenous groups, racism or ethnic discrimination, and Arctic regions. After removing off-topic articles, two researchers reviewed the remaining articles against predefined eligibility criteria.</p><p><strong>Results: </strong>The research field is expanding, but a significant portion of Arctic Indigenous peoples remains underrepresented. Predominant research methods include questionnaires, interviews, and case studies, often derived from large cross-sectional studies. Self-reported responses to questions about ethnic discrimination and racism are the primary research method, while some articles involve researchers subjectively evaluating data to determine what qualifies as racism or ethnic discrimination. Reaching a consensus on the definitions of ethnic discrimination and racism is challenging, with definitions ranging from negative, unfair, or differential treatment to broader, structural perspectives. Approximately half of the articles lack clear definitions.</p><p><strong>Conclusion: </strong>There is a notable difference in terminology, where racism as a term is more used in Canada/US while, ethnic discrimination is more predominant in the Nordic countries. Despite these differences, the scales used to measure racism or ethnic discrimination show significant similarities. A large part of the investigated articles emphasize interpersonal discrimination. An emerging perspective after 2016 views racism/ethnic discrimination as something that produces inequalities between racial or ethnic groups and upholds or creates systems of privilege and oppression. Research consistently highlights the importance of considering local contexts of racism, ethnic discrimination and oppression.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"348-371"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143257318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A paradox of white privilege: race, psychological resilience, and mental well-being during a public health crisis.","authors":"Harris Hyun-Soo Kim, Yool Choi","doi":"10.1080/13557858.2024.2430296","DOIUrl":"10.1080/13557858.2024.2430296","url":null,"abstract":"<p><strong>Objectives: </strong>The present study sheds novel light on the so-called 'racial paradox in mental health,' i.e., the phenomenon that Blacks, despite their relative socioeconomic disadvantages are mentally healthier than their more privileged White counterparts in the US. Evidence from prior research has been largely based on non-probability or regional surveys fielded during 'ordinary' times. In contrast, we analyze probability data on American adults collected during the extraordinary period of the COVID-19 pandemic across the country.</p><p><strong>Design: </strong>Data came from the Census Household Pulse Survey (CHPS). The CHPS sampled community-dwelling U.S. adults across 50 States and the District of Columbia using the Master Address File (MAF). Data collection began on April 23 2020 and was carried out on a biweekly basis. We used three phases of data covering 21 weeks in total (with the week ending on February 1, 2021). Mixed-effects (multilevel) modeling was employed to analyze the data.</p><p><strong>Results: </strong>Statistical results show that compared to their Black counterparts Whites fared worse mentally during the pandemic. We also found that the magnitude of the focal association is stronger with greater vulnerability operationalized at the individual level, i.e., in the context of lower income, job insecurity, and food shortage. Additionally, significant cross-level interactions emerged: the effect of race was more pronounced in geographic regions with higher coronavirus infection, greater ethnic heterogeneity, and higher structural disadvantage.</p><p><strong>Conclusion: </strong>Our research supports existing studies that Blacks vis-à-vis Whites are psychologically more resilient. We add to the literature by shedding novel light on the mental health paradox during the extraordinary times brought about by the COVID-19-induced public health crisis. Ironically, there is a mental cost involved with the 'White privilege' in the US.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"173-196"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Barriers to breast cancer care and recommendations for improving services: findings from a UK qualitative study with an Asian Women's Cancer Support Group.","authors":"Daksha Trivedi, Claire Thompson, Rohini Patel, Nasim Panjwani, Jai Jayaraman","doi":"10.1080/13557858.2024.2429417","DOIUrl":"10.1080/13557858.2024.2429417","url":null,"abstract":"<p><strong>Objectives: </strong>Breast cancer is the most common cancer in the UK, accounting for 15% of all new cases in women. Evidence still points to disparities in outcomes linked to ethnicity and screening uptake is overall lower in South Asians than the White population. We investigated the experiences and perceptions of Gujarati Hindu community members on their 'cancer journeys'.</p><p><strong>Design: </strong>This study took a participatory approach, involving participants in generating and refining recommendations to improve treatment based on their cohort's experiences and perceptions. Data were collected through two focus groups in 2022, followed by a feedback workshop session, where participants helped refine the research team's initial analysis and agree recommendation. Data were analysed thematically.</p><p><strong>Results: </strong>14 women participated in this study from the same support group. They had experienced breast cancer or were undergoing breast cancer treatment at the time of data collection and lived in Greater London. Barriers to engaging in the three key stages of their 'cancer journey' (screening, diagnosis, and treatment) were identified. These centred around language difficulties, not knowing what to expect, and not knowing who to ask for information. Suggestions for improvements included recruiting community champions, having diverse representation on educational materials, and referrals to support groups.</p><p><strong>Conclusion: </strong>This study adds to the growing literature on the need for culturally tailored and sensitive approaches to cancer treatment. It reinforces the need for health professionals' training around effectively communicating with diverse groups and normalising referral to support groups.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"306-315"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}