{"title":"Interviewing people on sensitive topics: challenges and strategies","authors":"Heleen Westland, Sigrid Vervoort, Marijke Kars, Tiny Jaarsma","doi":"10.1093/eurjcn/zvae128","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae128","url":null,"abstract":"Interviewing participants on sensitive topics is challenging and requires carefully planned and executed strategies throughout the research process. Sensitive topics have the potential to cause distress to participants or researchers. In this methods paper, strategies for conducting interviews on sensitive topics are described, including choosing the appropriate interview approach, creating a safe and comfortable environment, building rapport, utilizing sensitive and open questioning, reflexivity of the researcher, and awareness of the potential therapeutic effect of the interviews on participants. The strategies are illustrated with experiences from research on sensitive topics.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142269513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ararso Baru Olani, Kathryn Eastwood, Judith Finn, Robyn A Clark, Janet E Bray
{"title":"Prehospital treatment-seeking for acute coronary syndrome in culturally and linguistically diverse immigrant populations: a scoping review","authors":"Ararso Baru Olani, Kathryn Eastwood, Judith Finn, Robyn A Clark, Janet E Bray","doi":"10.1093/eurjcn/zvae122","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae122","url":null,"abstract":"Aims Studies consistently report longer prehospital delays in culturally and linguistically diverse (CALD) patients experiencing acute coronary syndrome (ACS). A scoping review was conducted to describe terms and methods used to define and identify CALD populations and summarise available evidence on factors related to prehospital delays in ACS studies involving CALD populations. Methods and results We searched six electronic databases for published studies and Google Scholar for grey literature to identify studies on prehospital treatment-seeking in CALD immigrants experiencing ACS. We followed the Joanna Briggs Institute methodological framework for scoping review. Twenty-three studies met our eligibility criteria (quantitative n=17; qualitative n=6; mixed n=1). Terms like ethnicity, migrant or expatriate defined CALD populations. Most studies used a single indicator (e.g., country of birth) to identify CALD cohorts, and only two studies used a theoretical model related to treatment-seeking delays to guide data collection. Most factors affecting prehospital delays in CALD populations were similar to those reported in general populations. A unique finding was a difference in the language used to describe symptoms, which, when translated, changes their meaning and resulted in misinterpretation by healthcare providers (e.g., asfixiarse [translates as asphyxiate/suffocate] used for dyspnoea/shortness of breath in Hispanics). Conclusions Terms and methods used for defining and identifying CALD populations are inconsistent. Studies on factors affecting prehospital treatment-seeking in CALD ACS patients are limited. Future studies should use theoretical models related to treatment-seeking delays to comprehensively explore factors affecting prehospital delays. Additionally, researchers should consider self-reported or multiple indicators to determine CALD status.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
J Furtak, F Sawczak, D Gargula, J Garstka, A Szubarga, M Cierzniak, A Soloch, H Krzysztofiak, M Tomaszewska, M Dudek, E Straburzynska-Migaj, M Kaluzna-Oleksy
{"title":"Relationship between duration of heart failure and nutritional status in hospitalised patients - preliminary cross-sectional study","authors":"J Furtak, F Sawczak, D Gargula, J Garstka, A Szubarga, M Cierzniak, A Soloch, H Krzysztofiak, M Tomaszewska, M Dudek, E Straburzynska-Migaj, M Kaluzna-Oleksy","doi":"10.1093/eurjcn/zvae098.054","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.054","url":null,"abstract":"Introduction Heart failure (HF) is a chronic disease which is one of the most common causes of hospitalisation of elderly patients. Nutritional status has a crucial impact on the course of disease and survival. HF frequently occurs with nutritional deficits, which may lead to malnutrition and loss of skeletal mass, which makes the prognosis worse. Nutritional status depends also on the patient's economic status, ability to prepare meals, and availability of fresh vegetables and fruits. Knowledge of the connection between the duration of heart failure and nutritional status will enable selection of patients with a higher risk of malnutrition, for which nutritional support should be considered. Purpose The study aims to assess the variability of nutritional status in heart failure patients over the duration of the disease, using the Mini Nutritional Assessment (MNA) and Geriatric Nutritional Risk Index (GNRI). Methods The nutritional status of 134 patients with HF admitted to the cardiology department was assessed with the MNA questionnaire. Additionally, GNRI has counted from serum albumin concentration, weight and height of patients. Patients were divided according to the duration of HF into two groups, one with patients with equal or less than five years of history of disease and the second with patients with HF lasting more than five years. Results The mean age was 52.4±16.9 years, 20.2% of patients were women, and the mean LVEF was 30.3±13.8%. The group of patients with HF lasting equal or less than five years was younger than patients with more than five years of the disease (49.5±16.9 years vs. 57.3 ±16.2 years, p=0.002). There were no significant differences in sex, LVEF and NYHA class between the two groups. According to MNA and GNRI scores, the nutritional status had no differences between the group of patients suffering from HF for more than five years compared with those with HF lasting 5 years or less (p=0.50; p=0.63, respectively). Moreover, the time of HF lasting was not correlated with scores of MNA and GNRI (p=0.33; p=0.22). Conclusions The study found no significant association between the nutritional status of patients and duration of heart failure. Therefore, monitoring nutritional status is crucial, irrespective of the duration of HF. It is necessary to analyse this issue in a larger group of patients with heart failure to identify specifically which patients are at risk of malnutrition and how nutritional status changes with the duration of the disease.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141744898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M Wleklik, M Lisiak, B Nowak, M Jedrzejczyk, K Mirkowski, I Uchmanowicz
{"title":"Bidirectional relationship between depression and frailty syndrome in Heart Failure patients","authors":"M Wleklik, M Lisiak, B Nowak, M Jedrzejczyk, K Mirkowski, I Uchmanowicz","doi":"10.1093/eurjcn/zvae098.098","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.098","url":null,"abstract":"Introduction Depression and frailty syndrome (FS) are frequently identified in patients with heart failure (HF) and reported in the literature. The co-occurrence of depression and FS has several pathophysiological mechanisms. Moreover, the two constructs overlap in patients with cardiovascular disease. Depression may be difficult to diagnose in patients with HF due to the co-occurrence of FS, and vice versa. It therefore becomes important to establish the direction of the relationship between the presence of depression and FS in patients with HF. Understanding the relationship and causality between these modifiable variables provides an opportunity to increase patient psychological well-being as well as improve clinical outcomes. Aim of the study Determining the direction of the relationship between depression and FS in patients with HF. Material and Methods The study included 250 patients with HF (69% male, 31% female, mean age: M±SD=72.32±6.73). Data were collected during hospitalization. 50% of patients with HFrEF and 50% of patients with HFpEF were included. Depression was assessed using PHQ-9 (The Patient Health Questionnaire-9). The frailty phenotype was determined using the FRIED criteria (weight loss, feelings of exhaustion, decreased physical activity, slowed gait speed, weakened handgrip strength). The diagnosis of frailty was established when a minimum of 3 criteria were met. Data were considered statistically significant at p-value < 0.05. Results FS was identified in 60% of patients with HF. Patients with FS were older (73.58 ± 6.80 vs. 70.39 ±6.16, p-value=0.0002). In HFrEF patients, the mean PHG-9 score was M±SD=5.97±5.65. In HFpEF patients M±SD=5.85±4.52. There were no differences between patients with preserved and reduced left ventricular fraction in terms of PHQ-9 score (p-value=0.585). Univariate analysis showed that each additional score on the PHQ-9 raised the FRIED score by an average of 0.072 points (0.072; 95% CI: 0.051-0.093, p-value< 0.001) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 2.124 points (2.124; 95% CI: 1.499-2.748, p-value<0.001). In the multivariate model, each additional score on the PHQ-9 raised the FRIED scale score by an average of 0.048 points. (0.048; 95% CI: 0.013-0.083, p-value=0.008) and each additional score on the FRIED scale raised the level of depression according to the PHQ-9 by an average of 0.68 points (0.68; 95% CI: 0.179-1.182, p-value=0.008). Conclusions The co-occurrence of FS and mild depression is identified in hospitalized with HF. There is a bidirectional relationship between frailty and depression in patients with HF: depression increases frailty and vice versa. Recognizing these two constructs during hospitalization should involve providing multidisciplinary continuity of care to prevent rehospitalizations.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
N Straiton, D Muller, P Macdonald, A Arriagada, D Roy, N Mills, S Middleton
{"title":"Frailty response in patients with aortic stenosis undergoing transcatheter aortic valve implantation: protocol for a pilot, cluster randomised controlled trial (FRAIL-AS Response Trial)","authors":"N Straiton, D Muller, P Macdonald, A Arriagada, D Roy, N Mills, S Middleton","doi":"10.1093/eurjcn/zvae098.039","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.039","url":null,"abstract":"Background Three in ten severe aortic stenosis patients undergoing transcatheter aortic valve implantation (TAVI) are frail. Frailty correlates with adverse post-procedure patient outcomes, such as higher 1-year mortality, increased adverse events, prolonged hospital stays, and diminished quality of life. Despite the urgency for evidence-based frailty management in this population, research in this area is limited. Methods A pilot, cluster randomised controlled trial to assess the feasibility of implementing a Frailty Response Program intervention in 10 hospital TAVI programs for frail patients with aortic stenosis undergoing valve replacement. The intervention includes an implementation strategy and a Frailty Response Clinical Protocol, focused on malnutrition identification, patient education, general practitioner notification, comprehensive geriatric assessment, and cardiac rehabilitation. Eligible hospitals will be randomised (1:1) to either the intervention or control (standard care). Primary outcome: proportion of patients receiving nutritional assessment upon frailty identification. Secondary outcomes include mortality and hospital admissions, frailty improvement, quality of life, and evidence-based frailty management. Implementation outcomes will be evaluated through a process assessment. Discussion The trial aims to bridge the gap between the recognition of frailty in patients with aortic stenosis undergoing TAVI and the implementation of evidence-based frailty management practices to improve patient outcomes and care quality.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
N Vouri, M Kyriakou, K Hadjiyiasemi, A Malaktou, K Philippou, P Sourtzi, E Lambrinou
{"title":"The effectiveness of supportive management programs in caregivers of patients with heart failure: a systemartic review","authors":"N Vouri, M Kyriakou, K Hadjiyiasemi, A Malaktou, K Philippou, P Sourtzi, E Lambrinou","doi":"10.1093/eurjcn/zvae098.021","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.021","url":null,"abstract":"Introduction Supportive management programs involving caregivers of heart failure (HF) patients may be beneficial not only for the patient, but also for the caregiver. This study aims to investigate the effectiveness of supportive management programs for caregivers in terms of quality of life (QoL), depressive and/or anxiety symptoms and caregivers’ burden. Methods A systematic review was conducted in order to identify interventional studies delivering supportive management programs to dyads and evaluating the effectiveness for caregivers in terms of their QoL, depressive symptoms and burden. A systematic search in PubMed, CINAHL, and the Cochrane Library was performed. Inclusion and exclusion criteria and the Preferred Reporting Items (PRISMA) statement checklist were used. Fourteen randomized (RCT’s) and interventional studies were included. Results Fourteen articles were included in the review from a pool of thirty-five papers. A large heterogeneity was observed among the studies regarding several aspects; the intervention as such (e.g psychological support, cognitive behavioral therapy), the duration of the follow- up period and the method that the intervention was delivered (e.g telephone conducts, home visits). Another striking feature was the variety of outcomes that were studied. The most common outcomes were: anxiety and depressive symptoms, burden and impaired quality of life. Conclusions Supportive care management programs are beneficial for both, the patients and the caregivers. It provides the supporting environment for the best possible results and outcomes and most importantly quality of life of the patients and the caregivers.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluation of secondary prevention knowledge in patients with coronary syndrome","authors":"G Balint, Z Slezakova","doi":"10.1093/eurjcn/zvae098.068","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.068","url":null,"abstract":"Background/introduction Patient education is a crucial component in the care of patients with coronary syndrome. Nursing has an important role in disease prevention and health promotion. More than half of patients with coronary artery disease have limited knowledge which is associated with low commitment to lifestyle modification, increased hospitalizations and higher risk of mortality. The core competencies of the nurses is to promote, maintain, and restore the health of individuals in preventive care. Knowledge assessment can support nurses to plan educational strategies to address the information needs of their patients, providing effective support in secondary prevention. Purpose (1) To assess secondary prevention knowledge in patients with coronary syndrome and (2) to compare knowledge levels among groups of patients aged <60 years and aged >60 years. Methods This was a cross-sectional study of hospitalised patients with coronary syndrome. The Coronary Artery Diseases Education Questionnaire (CADE-Q II) was used to evaluate knowledge. CADE-Q II has 31 items with 4 possible answers. Questions are related to health status, risk factors, exercise, nutrition, and psychosocial risk. The maximum score is 93, with higher scores indicating greater knowledge. Descriptive analysis of the CADE-Q II was performed. SPSS Version 22 was used for analysis, and the level of significance was set at 0.05 for all tests. No items were missing. Results We included 155 patients; mean age 58,26±8,37; 22 % female; 78 % male; 56 % < 60 years old; 44 % > 60 years old; 71 % hypertension; 22 % diabetes; 32 % smokers. Mean knowledge score of participants was 61,4/93. Patients obtained values of completely correct answers in the following areas: health status 55 %; risk factors 47 %; exercise 64 %; nutrition 50 %; psychosocial risk 64 %. The level of knowledge based on the scores obtained: great 0 %; good 37 %; acceptable 55 %; poor 7 %; inadequate 1 %. Within the age groups, we obtained statistically significant results, patients aged <60 years got score 63,2/93; patients aged >60 years got score 59,0/93 (p=0.012); in the exercise domain, patients aged <60 years got score 16,5/21; patients aged >60 years got score 13,9/21 (p=0.001); in the psychosocial domain, patients aged <60 years got score 10,9/15; patients aged >60 years got score 9,7/15 (p=0.034). Conclusion The results of study point to a lower of knowledge of patients with coronary syndrome regarding their disease and factors affecting cardiovascular risk in all studied domains. The use of an assessment tool in patients with coronary syndrome allows nurses to plan educational process, providing effective support in prevention. Adequate information, promotion of health literacy of patients are an essential part of prevention and minimization of risk factors. Nurses during the nursing process by using CADE-Q II ought to promote knowledge and atti","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E B Kolarczyk, D Kohanova, A Witkowska, M Szymiczek, A Mlynarska
{"title":"The associationof quality of life and the functioning in the chronic disease among patients after myocardial infarction","authors":"E B Kolarczyk, D Kohanova, A Witkowska, M Szymiczek, A Mlynarska","doi":"10.1093/eurjcn/zvae098.060","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.060","url":null,"abstract":"Background The importance of health-relatedquality of life (HRQoL) and improving functional status in reducing risk factors of myocardial infarction (MI) has also been increasingly recognized. Purpose This study aimed to examine the level of quality of life (QoL) in patients after myocardial infarction (MI) in relation to the degree of functioning in chronic disease. Methods This was a cross-sectional, single-centre study. The study was conducted among 231 patients who were hospitalized for myocardial infarction (MI) after percutaneous coronary intervention (PCI). The WHO Quality of Life Questionnaire (WHOQOL BREF) andthe Chronic Disease Functioning Scale(FCIS) were used. Results The Spearman's correlation coefficient showed a statistically significant correlation (coefficient value 0.5 < |r/rho| ≤ 0.7) between general functioning in chronic disease and the average QoL (rho = 0.56;p < 0.001)and somatic QoL levels(rho = 0.52;p < 0.001), as well as a moderately strong positive correlation with the QoL level on the psychological domain (rho = 0.50;p < 0.001), social domain (rho = 0.48;p < 0.001) and environmental domain (rho = 0.43;p < 0.001). Conclusion Identifying the chronic disease functioning indicator in post-MI patients in relation to HRQoL allows for targeted counseling and secondary prevention of ischemic heart disease (IHD), which translates into a reduced risk of further cardiovascular events and related rehospitalization.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A pan-Europe comparative review of allied profession roles in cardiac science","authors":"N Stain, S Bayne, D Bruce, J Malcolmson","doi":"10.1093/eurjcn/zvae098.118","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.118","url":null,"abstract":"Introduction Over the last 75 years, Cardiac Science (CS) has evolved into a widely practised Allied Profession (AP) throughout Europe. Despite this prominence, there are limited comparative works on AP titles, regulation, scope of practice (SoP) and training routes. The recognition of CS as a profession in the United Kingdom dates from 1948 when the Society for Cardiac Science and Technology (SCST) was established. In the UK, the AP role has evolved into Cardiac Physiologists with education at bachelor’s degree level and Clinical Scientists at master’s level. The SoP has also developed over time, leading to more advanced training and practice. Similar progression in professional titles, SoP, education and training routes also occurred in other European countries. Purpose To compare Allied Professions in Cardiac Science (APCS) including professional nomenclature, regulation, education, SoP, and pan-European identity. Methods Data were collected from November 2023 to January 2024. European and country databases were scrutinised to determine nomenclature, professional status, regulation, and educational requirements. Online translation was used when information was not available in English. Results The analysis of databases revealed 15 APCS roles (Table 1). In 60% of the countries, the role is officially recognised by a professional body that provides advocacy, education, training, and defines SoP (Figure 1). Moreover, 47% of countries operate a mandatory licensing or registration scheme. In 33% of countries, APCS roles are incorporated within the Biomedical Science profession. In the remaining countries, nine alternate titles are used to describe the discipline. In most cases (66%), education is at bachelor’s level, while in others, particularly where recognition is more limited, it is at a vocational level. In four countries (Austria, Ireland, Iceland, and The Netherlands), SoP is broadly in line with the UK, covering electrocardiography, echocardiography, haemodynamics for invasive procedures, implantable devices, and electrophysiology. Conversely, in other countries SoP varies and can include nuclear medicine (Sweden and Denmark) or perfusion and respiratory (Italy and Portugal). Some countries restrict SoP to defined roles such as pacemaker or echo technicians (Spain, Luxembourg, and Switzerland). Notably, Finland, France, and Norway, as well as most Eastern European countries do not recognise APCS roles. Conclusion While APCS roles are widely acknowledged in Europe, they lack visibility compared to other health professions. The variability in professional titles, education, and SoP constrain the development of a unified identity. Collaborative works connecting APCS roles across Europe may enhance identity, improve quality of care and raise the profile of this discipline.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A Durante, J S Grant, L Abbott, E Bassi, A Dal Molin, L J Graven
{"title":"Rural dyadic collaboration in heart failure","authors":"A Durante, J S Grant, L Abbott, E Bassi, A Dal Molin, L J Graven","doi":"10.1093/eurjcn/zvae098.091","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.091","url":null,"abstract":"Background Dyads (patient/care partner) living with heart failure have shared responsibility for patient care. While theoretical and empirical literature regarding heart failure dyadic care is evolving rapidly, sociocultural contexts are unique and affect relationship dynamics. Yet, dynamics and underlying structures of rural dyadic collaboration in heart failure remains unknown. Purpose The purpose of this secondary analysis was to describe the dynamics and underlying structures of dyadic collaboration in heart failure among rural dyads. Methods A semi-structured interview was used to evaluate the acceptability and usefulness of a 12-week problem-solving intervention in addressing dyadic heart failure-related issues and the development of effective management strategies in week 5. Initially, in the qualitative analysis, an adjusted matrix analysis for each rural dyad was used to identify these dyadic issues and strategies. Subsequently, dynamics and underlying structures of collaboration occurring within these dyads in addressing these issues and strategies were analyzed and thematic codes generated. Finally, a multiple correspondence analysis of dyadic collaboration was performed within these thematic codes and a Benzécri equation used to normalize results, helping to determine the underlying structure and variance explained by the model on a Cartesian graph. Results Twenty-eight living in the rural southeastern U.S. were included. Patients were mostly Caucasian (73.3%), female (60%), married (70%), and college-educated (43%), with an average age of 67.7 years. Care partners were primarily women (n = 50%), Caucasian (82.1%), married (89.3%), and high school-educated (46.4%), with an average age of 64.5 years. Using inductive coding, four codes emerged regarding dyadic relational and collaborative aspects between dyads: role awareness, requesting or receiving help, and improving dyadic communication. XLStat was used for a multiple correspondence analysis (Fig. 1), with checking and then normalizing results using the Benzécri equation on R (Fig.2). There were two gender-determined patterns within dyads. In dyads in which the patient was female and the care partner male, communication improved, requests for assistance were verbalized, and there was an improvement in collaborative orientation. However, partners were unaware of their collaborative role. In contrast, when the care partner was a woman and the patient a man, communication and requests for help were implied, and there was no improvement in collaborative orientation. In this situation, partners had full role awareness. Conclusion(s) These findings suggest gender constitutes a key element in communication, verbalization of needs, and collaborative orientation within rural dyads living with heart failure. The importance of gender roles may be useful in designing future dyadic interventions for rural individuals with heart failure and their informal care partners.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141744897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}