The American Journal of Bioethics最新文献

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Employment-Related Risks and Ethical Enrollment of Military Personnel in Psychedelics Research 军人致幻剂研究的就业风险与伦理招募
The American Journal of Bioethics Pub Date : 2026-09-18 DOI: 10.1080/15265161.2026.2717098
Shajuana D. McMillan,Leslie A. Morland,Jake Earl
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引用次数: 0
Beyond the Reasonable Person Standard for Providing Informed Consent in Neurodiversity Research 在神经多样性研究中提供知情同意的超越理性人标准
The American Journal of Bioethics Pub Date : 2026-09-18 DOI: 10.1080/15265161.2026.2717116
Hana Abbasian,J. Wesley Boyd
{"title":"Beyond the Reasonable Person Standard for Providing Informed Consent in Neurodiversity Research","authors":"Hana Abbasian,J. Wesley Boyd","doi":"10.1080/15265161.2026.2717116","DOIUrl":"https://doi.org/10.1080/15265161.2026.2717116","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"52 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148993915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Engaging Employees and Employers to Better Manage Employment Risk in Clinical Trials 让雇员和雇主参与进来,更好地管理临床试验中的雇佣风险
The American Journal of Bioethics Pub Date : 2026-09-18 DOI: 10.1080/15265161.2026.2717128
Amanda M. Wilson,Benjamin S. Wilfond
{"title":"Engaging Employees and Employers to Better Manage Employment Risk in Clinical Trials","authors":"Amanda M. Wilson,Benjamin S. Wilfond","doi":"10.1080/15265161.2026.2717128","DOIUrl":"https://doi.org/10.1080/15265161.2026.2717128","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"81 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148993896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Overburdening Informed Consent 知情同意负担过重
The American Journal of Bioethics Pub Date : 2026-09-18 DOI: 10.1080/15265161.2026.2717120
Leslie Pickering Francis,John G. Francis
{"title":"Overburdening Informed Consent","authors":"Leslie Pickering Francis,John G. Francis","doi":"10.1080/15265161.2026.2717120","DOIUrl":"https://doi.org/10.1080/15265161.2026.2717120","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"150 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148993909","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Situating Personal Utility Amidst Creeping Concerns: Response to Open Peer Commentaries on “The Concept of Personal Utility in Genomic Testing: Three Ethical Tensions” 在隐隐隐现的担忧中定位个人效用:对“基因组测试中的个人效用概念:三种伦理紧张关系”公开同行评论的回应
The American Journal of Bioethics Pub Date : 2026-08-18 DOI: 10.1080/15265161.2026.2718379
Gabriel John Watts, Ainsley J. Newson
{"title":"Situating Personal Utility Amidst Creeping Concerns: Response to Open Peer Commentaries on “The Concept of Personal Utility in Genomic Testing: Three Ethical Tensions”","authors":"Gabriel John Watts, Ainsley J. Newson","doi":"10.1080/15265161.2026.2718379","DOIUrl":"https://doi.org/10.1080/15265161.2026.2718379","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"12 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148767307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Clear by Design: Consensus-Based Transparency Practices to Foster Trust in Health AI. 设计清晰:基于共识的透明度实践促进对卫生人工智能的信任。
The American Journal of Bioethics Pub Date : 2026-07-21 DOI: 10.1080/15265161.2026.2699626
Lisa Soleymani Lehmann,Shauna Overgaard,Suchi Saria,Robert Jenders,Agustina Saenz,Ysabel Duron,Richard Moreno,Tracey Brereton,Farhana Ferdousi Liza,Brenton Hill,Paul Lukac,Joycee Berin,Shannon Ridge,Anton Van Der Vegt,Matthew Elmore,Nicoleta Economou-Zavlanos
{"title":"Clear by Design: Consensus-Based Transparency Practices to Foster Trust in Health AI.","authors":"Lisa Soleymani Lehmann,Shauna Overgaard,Suchi Saria,Robert Jenders,Agustina Saenz,Ysabel Duron,Richard Moreno,Tracey Brereton,Farhana Ferdousi Liza,Brenton Hill,Paul Lukac,Joycee Berin,Shannon Ridge,Anton Van Der Vegt,Matthew Elmore,Nicoleta Economou-Zavlanos","doi":"10.1080/15265161.2026.2699626","DOIUrl":"https://doi.org/10.1080/15265161.2026.2699626","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"53 1","pages":"1-5"},"PeriodicalIF":0.0,"publicationDate":"2026-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148539061","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Safety-First Approach to Health AI. 安全第一的健康人工智能方法。
The American Journal of Bioethics Pub Date : 2026-07-21 DOI: 10.1080/15265161.2026.2699622
Nicoleta J Economou-Zavlanos,Elisabeth R Garwood,Suchi Saria,David Bates,An-Kwok Ian Wong,Matthew Elmore,Rachael Weir,Tom Ford,Kevin Gormley,Chris Jackson,Hou-Cheng Yang,Ilya Laufer,Leigh Hanes,Stan Huff,Aditya Kotecha,Rich G Kenny,Tara Montgomery,Lee Fleisher
{"title":"A Safety-First Approach to Health AI.","authors":"Nicoleta J Economou-Zavlanos,Elisabeth R Garwood,Suchi Saria,David Bates,An-Kwok Ian Wong,Matthew Elmore,Rachael Weir,Tom Ford,Kevin Gormley,Chris Jackson,Hou-Cheng Yang,Ilya Laufer,Leigh Hanes,Stan Huff,Aditya Kotecha,Rich G Kenny,Tara Montgomery,Lee Fleisher","doi":"10.1080/15265161.2026.2699622","DOIUrl":"https://doi.org/10.1080/15265161.2026.2699622","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"122 1","pages":"1-6"},"PeriodicalIF":0.0,"publicationDate":"2026-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148539062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Coercive Sterilization: Ethical Concerns on the Complex Overlap of Sickle Cell Disease and Reproductive Health. 强制绝育:镰状细胞病和生殖健康复杂重叠的伦理问题。
The American Journal of Bioethics Pub Date : 2026-07-09 DOI: 10.1080/15265161.2026.2692313
Shameka Poetry Thomas
{"title":"Coercive Sterilization: Ethical Concerns on the Complex Overlap of Sickle Cell Disease and Reproductive Health.","authors":"Shameka Poetry Thomas","doi":"10.1080/15265161.2026.2692313","DOIUrl":"https://doi.org/10.1080/15265161.2026.2692313","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"39 1","pages":"1-3"},"PeriodicalIF":0.0,"publicationDate":"2026-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148415922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Double Binds of Reproductive Injustice: A Response to Kuczewski et al. (2026) 生殖不公平的双重约束:对库切夫斯基等人(2026)的回应
The American Journal of Bioethics Pub Date : 2026-07-09 DOI: 10.1080/15265161.2026.2692311
Lauren Freeman, Avery Kolers, Amy Reed-Sandoval
{"title":"Double Binds of Reproductive Injustice: A Response to Kuczewski et al. (2026)","authors":"Lauren Freeman, Avery Kolers, Amy Reed-Sandoval","doi":"10.1080/15265161.2026.2692311","DOIUrl":"https://doi.org/10.1080/15265161.2026.2692311","url":null,"abstract":"","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"39 1","pages":"1-3"},"PeriodicalIF":0.0,"publicationDate":"2026-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148415982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability as Mere-Difference and What It Means for Randomized Controlled Trials 残疾仅仅是差异及其对随机对照试验的意义
The American Journal of Bioethics Pub Date : 2026-07-09 DOI: 10.1080/15265161.2026.2691941
Andrew J. Barnhart, Matthias Braun
{"title":"Disability as Mere-Difference and What It Means for Randomized Controlled Trials","authors":"Andrew J. Barnhart, Matthias Braun","doi":"10.1080/15265161.2026.2691941","DOIUrl":"https://doi.org/10.1080/15265161.2026.2691941","url":null,"abstract":"People with disabilities are systematically excluded from randomized controlled trials (RCTs). Recent evidence indicates that a substantial proportion of trials contain explicit disability-related exclusion criteria, while nearly half use implicit criteria (e.g., broad comorbidity bans or investigator discretion) that effectively screen out participants with disabilities. Crucially, the vast majority of these explicit exclusions could be overcome through reasonable design adaptations. This article argues that such exclusion reflects not only methodological oversight but also ableist assumptions embedded in research design, regulatory frameworks, and the concept of clinical equipoise. Drawing on Elizabeth Barnes's mere-difference view, which holds that disability represents value-neutral variation in human embodiment rather than an inherent deficit in well-being, we develop three principal contributions. First, we advance an original critique of mere-difference grounded in power relations and standpoint epistemology, arguing that value-neutrality claims require an explicit anti-ableist commitment to avoid obscuring structural injustice. Second, we present a comparative analysis of clinical trial regulations across 10 countries and regions (the United States, the European Union, the United Kingdom, Canada, Japan, Singapore, China, Kenya, Nigeria, and Brazil), demonstrating that unlike gender, age, and race/ethnicity, disability is not subject to mandatory inclusion reporting or exclusion justification requirements. Third, we show how the mere-difference view, appropriately modified, can reshape clinical equipoise by expanding the relevant expert community to include disabled voices and by establishing genuine uncertainty where the standard view forecloses it. We conclude that clinical trial protocols should require explicit justification for disability-based exclusions and that global harmonization efforts, particularly the ICH E6(R3) guidelines, should incorporate explicit language on disability inclusion.","PeriodicalId":501008,"journal":{"name":"The American Journal of Bioethics","volume":"250 1","pages":"1-12"},"PeriodicalIF":0.0,"publicationDate":"2026-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148416287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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