F. Rodríguez-Florido, Juan Pablo Castañeda-González, M. C. Cortés-Osma, A. Rojas-Villarraga, G. Rodríguez-Vargas, J. Rubio-Rubio, Pedro Santos-Moreno
{"title":"Correlation analysis of outcomes assessed by patients and healthcare professionals: Exploration in adherence and education in Rheumatoid Arthritis","authors":"F. Rodríguez-Florido, Juan Pablo Castañeda-González, M. C. Cortés-Osma, A. Rojas-Villarraga, G. Rodríguez-Vargas, J. Rubio-Rubio, Pedro Santos-Moreno","doi":"10.46856/grp.10.et195","DOIUrl":"https://doi.org/10.46856/grp.10.et195","url":null,"abstract":"Rheumatoid arthritis (RA) is a chronic disease that compromises multiple patient issues. Patient education is essential for pursuing an active participation in compliance with treatment objectives.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":" 73","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141374750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fernando Rodríguez-Florido, Juan Pablo Castañeda-González, María Camila Cortes-Osma, Adriana Rojas-Villarraga, Gabriel-Santiago Rodríguez-Vargas, Jaime-Andrés Rubio-Rubio, Pedro Santos-Moreno
{"title":"Análise de correlação dos resultados avaliados por pacientes e profissionais de saúde: Exploração da adesão e educação na Artrite Reumatoide","authors":"Fernando Rodríguez-Florido, Juan Pablo Castañeda-González, María Camila Cortes-Osma, Adriana Rojas-Villarraga, Gabriel-Santiago Rodríguez-Vargas, Jaime-Andrés Rubio-Rubio, Pedro Santos-Moreno","doi":"10.46856/grp.10.ept195","DOIUrl":"https://doi.org/10.46856/grp.10.ept195","url":null,"abstract":"A artrite reumatoide (AR) é uma doença crônica que compromete vários aspectos do paciente. A educação do paciente é essencial para alcançar uma participação ativa em cumprimento com os objetivos do tratamento.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":" 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141371506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fernando Rodríguez-Florido, Juan Pablo Castañeda-González, María Camila Cortes-Osma, Adriana Rojas-Villarraga, G. Rodríguez-Vargas, J. Rubio-Rubio, Pedro Santos-Moreno
{"title":"Análisis de correlación de desenlaces evaluados por pacientes y profesionales de la salud: Exploración en adherencia y educación en Artritis Reumatoide","authors":"Fernando Rodríguez-Florido, Juan Pablo Castañeda-González, María Camila Cortes-Osma, Adriana Rojas-Villarraga, G. Rodríguez-Vargas, J. Rubio-Rubio, Pedro Santos-Moreno","doi":"10.46856/grp.10.e195","DOIUrl":"https://doi.org/10.46856/grp.10.e195","url":null,"abstract":"La artritis reumatoide (AR) es una enfermedad crónica que compromete múltiples aspectos del paciente, siendo la educación de este esencial para lograr una participación activa en el cumplimiento de los objetivos del tratamiento.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":" 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141370750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, Fernández Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila
{"title":"Evaluation of the Expert Patient PANLAR self-management program in rheumatoid arthritis. A pilot study in Argentina, Colombia and Panamá","authors":"Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, Fernández Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila","doi":"10.46856/grp.10.et194","DOIUrl":"https://doi.org/10.46856/grp.10.et194","url":null,"abstract":"Education is a cornerstone of the comprehensive management of patients living with rheumatic and musculoskeletal diseases (RMSDs). It allows them to optimize their self-care for health maintenance. The objective of this study was to assess the effectiveness of the PANLAR Patient Expert (PE) program in optimizing self-care skills for physical activity, healthy eating, communication with professionals, therapeutic adherence and decision making.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"46 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141381799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, Fernández Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila
{"title":"Avaliação do programa de autogestão do Paciente Especialista PANLAR na artrite reumatóide. Um estudo piloto na Argentina, Colômbia e Panamá","authors":"Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, Fernández Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila","doi":"10.46856/grp.10.ept194","DOIUrl":"https://doi.org/10.46856/grp.10.ept194","url":null,"abstract":"A educação é um pilar do manejo integral de pacientes que convivem com doenças reumáticas e musculoesqueléticas (RD&MEs). Ela permite que a otimização do autocuidado para manutenção da saúde. O objetivo deste estudo foi avaliar a eficácia do programa PANLAR Patient Expert (PE) na otimização das habilidades de autocuidado para atividade física, alimentação saudável, comunicação com profissionais, adesão terapêutica e tomada de decisão","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"52 s40","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141382920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, F. Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila
{"title":"Evaluación del programa en autocuidado paciente experto Panlar para personas que conviven con enfermedades reumáticas. Un estudio piloto en Argentina, Colombia y Panamá.","authors":"Arrighi Emilia, León Aguila Ana Paula, Caballero-Uribe Carlo V, Soriano Enrique R, Cabrera Correal María Carolina, Vazquez Natalia, Pereira Dora, Giraldo Enrique, Ferreyra Garrot Leandro, Moreno Del Cid Ilsa Yosmar, Leal María Olga, Salas Siado José A., Rodríguez Sotomayor Jorge Jesús, F. Andrés, Torres Priscila, Gómez Stella Maris, Vilches Sandra, Jordán María Cristina, Pinzón Enma, Ochoa G Gina Sicilia, Suárez Dalila","doi":"10.46856/grp.10.e194","DOIUrl":"https://doi.org/10.46856/grp.10.e194","url":null,"abstract":"La educación es un pilar del manejo integral del paciente que convive con enfermedades reumáticas y musculoesqueléticas (ERyMEs), permitiendo optimizar su autocuidado para el mantenimiento de la salud. El objetivo de este estudio fue valorar la efectividad del programa Paciente Experto (PE) PANLAR en optimizar las habilidades de autocuidado para actividad física, alimentación saludable, comunicación con profesionales, adherencia terapéutica y toma de decisiones.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"43 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141385736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Trajectories","authors":"Alberto A. Palacios Boix","doi":"10.46856/grp.22.et183","DOIUrl":"https://doi.org/10.46856/grp.22.et183","url":null,"abstract":"The decades I have traversed have taught me greater humility and a better quality of listening, which results in emotional support in the face of pain and moderation in the use of anti-inflammatories and biological drugs. While immunosuppression has been the therapeutic substrate for autoimmune phenomena, as is obvious, its excess leads to catastrophic results and undesirable effects that make the path more daunting.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"6 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140244465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Trayectorias","authors":"Alberto A. Palacios Boix","doi":"10.46856/grp.22.e183","DOIUrl":"https://doi.org/10.46856/grp.22.e183","url":null,"abstract":"Las décadas recorridas me han enseñado mayor humildad y mejor calidad de escucha, lo que redunda en cobijo afectivo frente al dolor y mesura en el uso de antiinflamatorios y fármacos biológicos. Si bien la inmunosupresión ha sido el sustrato terapéutico de los fenómenos autoinmunes, como resulta obvio, su exceso conlleva resultados catastróficos y efectos indeseables con los que la cuesta se hace más azarosa.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"17 6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140244159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Trajectórias","authors":"Alberto A. Palacios Boix","doi":"10.46856/grp.22.ept183","DOIUrl":"https://doi.org/10.46856/grp.22.ept183","url":null,"abstract":"As décadas que percorri me ensinaram maior humildade e uma melhor qualidade de escuta, o que resulta em apoio emocional diante da dor e moderação no uso de anti-inflamatórios e medicamentos biológicos. Embora a imunossupressão tenha sido o substrato terapêutico dos fenômenos autoimunes, como é óbvio, seu excesso leva a resultados catastróficos e efeitos indesejáveis que tornam o caminho mais assustador.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"22 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140242653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The girl who talked to the train whistle","authors":"Fernando Neubarth","doi":"10.46856/grp.22.et180","DOIUrl":"https://doi.org/10.46856/grp.22.et180","url":null,"abstract":"Advances in science allow for better prospects for those with rheumatic diseases. A different reality from that experienced by artist Maud Lewis, who transformed her horizons through art.","PeriodicalId":486635,"journal":{"name":"Global rheumatology","volume":"46 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135092620","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}