Archives of Public Health最新文献

{"title":"The Explo'Santé mixed methods protocol: an interventional research school health promotion project in France.","authors":"Matteo Olivo, Adeline Darlington-Bernard, Corélie Salque, Laurie Fraticelli, Emmanuel Ricard, Florence Carrouel, Emily Darlington","doi":"10.1186/s13690-024-01487-y","DOIUrl":"10.1186/s13690-024-01487-y","url":null,"abstract":"<p><strong>Background: </strong>According to WHO, \"noncommunicable diseases (NCDs) kill 41 million people\" annually, as the primary cause of death globally. WHO's Global Action Plan for the prevention and control of NCDs 2013-2020 (extended) tackles this issue and its implications regarding inequalities between countries and populations. Based on combined behavioural, environmental and policy approaches, health promotion aims to reduce health inequities and address health determinants through 3 strategies: education, prevention and protection. It is a well-known fact that long-term efficiency in health promotion, that is to say the promotion of health and well-being, involves interventions and programmes which target / involve children [1]. As a focal point in communities and a key environment for children, school is an important setting to implement health promotion programmes, especially integrated approaches and interventions targeting Life Skills (LS). Indeed, LS contribute to health and well-being, particularly for pupils. This article presents the research protocol of a French integrated school-based health promotion interventional research programme which intends to support the health promoting schools (HPS) approach in France: Explo'Santé. It results from a partnership between the University of Lyon and the French League against Cancer.</p><p><strong>Methods: </strong>Explo'Santé is an observational study based on a mixed methods research design, which aims to evaluate the effects of a health promotion programme, to elicit its implementation process and identify contextual factors. This 3-year, complex programme targets primary school pupils aged 8 to 10. It incorporates health education sessions, to develop pupils' LS and health literacy (HL), and to promote healthy environments. Teachers and French League prevention officers are trained to support skill development and programme sustainability. Data collection includes quantitative data via questionnaires, to assess programme impact on approximately 700 pupils, as well as 36 teachers, and 6 prevention officers, as well as qualitative data collected via focus groups with pupils, and interviews with teachers, parents, prevention officers, and school heads, to understand the barriers and promoting factors to the implementation of the programme, the differences in process and effects in different contexts, and its potential for sustainability.</p><p><strong>Discussion: </strong>Explo'Santé was designed to contribute to school-based health promotion strategies, by including key players, promoting partnerships, targeting multiple levels of impact and effect, and to ensure every step is research-based and informed. Finally, this study aims to identify the elements which would enable Explo'Santé to become a model in France and internationally.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"26"},"PeriodicalIF":3.2,"publicationDate":"2025-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11780862/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Syndemic, mental health and living with dependent persons in Latin America and Spain: a study with a gender perspective.","authors":"Natalia López-Contreras, Tomás López-Jiménez, Laura Medina-Perucha, Brenda Biaani León-Gómez, Alessandra Queiroga Gonçalves, Olivia Janett Horna-Campos, Maria Sol Anigstein, Jakeline Ribeiro Barbosa, Mariana Pastorello Verotti, Olga Bardales-Mendoza, Karen M Arteaga-Contreras, Anna Berenguera, Andrés Peralta, Constanza Jacques-Aviñó","doi":"10.1186/s13690-024-01480-5","DOIUrl":"10.1186/s13690-024-01480-5","url":null,"abstract":"<p><strong>Objective: </strong>To analyze the sociostructural determinants associated with mental health problems during the lockdown period among populations residing in Brazil, Chile, Ecuador, Mexico, Peru, and Spain who lived with minors or dependents, approached from a gender perspective.</p><p><strong>Methods: </strong>A cross-sectional study was conducted in six participating countries via an adapted, self-managed online survey. People living with minors and/or dependents were selected. Multivariate logistic regression models were estimated to assess the associations between sociostructural variables and mental health problems (anxiety (GAD-7) and/or depression (PHQ-9)). The analyses were stratified by sex and country.</p><p><strong>Results: </strong>Out of a total of 39,006 people, 18,040 reported living with minors and/or dependents (73% women). In all countries, women reported worse mental health, with Spain having a lower prevalence. The risks of mental health problems in women in most countries are associated with poor housing conditions and performing care work. University education was associated with a protective factor. For men, risks were related to being younger, worsening working conditions and concerns about living together at home.</p><p><strong>Conclusions: </strong>Women in Latin America who lived with dependents had worse outcomes than those in Spain did. It is necessary to develop intersectoral and social determinants strategies to prevent, protect and support the mental health of those who live with dependents and minors.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"24"},"PeriodicalIF":3.2,"publicationDate":"2025-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11765925/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143042589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Modeling the determinants of cigarette consumption in Iranian households with children under 5 years of age using the Income and Expenditure Survey 2021.","authors":"Shakila Bagheri, Naser Kamyari, Saeed Hesam, Maryam Seyedtabib","doi":"10.1186/s13690-024-01496-x","DOIUrl":"10.1186/s13690-024-01496-x","url":null,"abstract":"<p><strong>Background: </strong>Cigarette smoking remains a significant public health concern, with detrimental effects on both smokers and those exposed to secondhand smoke. This study investigates the factors influencing smoking behaviors in Iranian households, focusing on households with children under five years old.</p><p><strong>Methods: </strong>We conducted a cross-sectional analysis of 8751 Iranian households using data from the Iranian Household Income and Expenditure Survey (HIES) collected by the Statistical Center of Iran (SCI) in 2021. A variety of count regression models were examined, including Poisson (P), Negative Binomial (NB), Generalized Poisson (GP) and their zero-inflated counterparts. The best fitting model was selected based on goodness-of-fit indices.</p><p><strong>Results: </strong>Approximately 87% of households were non-smokers, with a mean daily cigarette consumption of 14.29 (SD = 8.64) among smokers. The three-level Zero-Inflated Generalized Poisson (TL-ZIGP) model was considered a suitable model for the interpretation of the data. Key predictors of smoking included older age, male gender, lower education, higher income, and larger homes. Homeownership was negatively associated with smoking. Considerable geographic variation in smoking prevalence was observed.</p><p><strong>Conclusions: </strong>Socioeconomic and demographic factors, including lifestyle and geographic regions, are associated with smoking behavior among Iranian households. A three-level ZIGP regression model is appropriate for analyzing these complex relationships. This study reveals different patterns of smoking prevalence in different population subgroups and emphasizes the need for targeted interventions to effectively reduce smoking rates.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"25"},"PeriodicalIF":3.2,"publicationDate":"2025-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11765938/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of an information system for tuberculosis in healthcare facilities in Indonesia: evaluation of its effectiveness and challenges.","authors":"Rita Dian Pratiwi, Bachti Alisjahbana, Yanri Wijayanti Subronto, Sigit Priyanta, Suharna Suharna","doi":"10.1186/s13690-025-01507-5","DOIUrl":"10.1186/s13690-025-01507-5","url":null,"abstract":"<p><strong>Background: </strong>Tuberculosis (TB) surveillance in Indonesia is currently supported by the recording and reporting technology Tuberculosis Information System (Sistem Informasi Tuberkulosis [SITB]). SITB is used by all health workers responsible for TB programs in health facilities or hospitals throughout Indonesia. The satisfaction and ease of use of SITB affect the speed and accuracy of TB case reporting. Therefore, evaluating the information system's quality is crucial. SITB utilization is comprehensively assessed using the End-User Computing Satisfaction (EUCS) method, which considers the dimensions of content, accuracy, timeliness, and ease of use. Furthermore, the effectiveness of the user interface using heuristic evaluation methods is critical. The primary objective of this study is to conduct a comprehensive evaluation of the System for Information on Tuberculosis (SITB) focusing on its usability and user satisfaction.</p><p><strong>Methods: </strong>This study employed a multi-method design approach. First, a heuristic evaluation was conducted by three expert user experience designers. Second, a cross-sectional survey of 115 SITB users was carried out across all health facilities in the Special Region of Yogyakarta, Indonesia, for reporting TB cases, using the EUCS method. Finally, in-depth interviews were conducted in 10 health facilities, focusing on identifying specific attributes that needed improvement to enhance user satisfaction.</p><p><strong>Results: </strong>The evaluation indicated that user convenience and timeliness require improvement, as well as the match between the system and the real world and error prevention, as shown in the heuristic evaluation of the SITB user interface. These findings were confirmed through interviews that identified the need for user manuals, server repairs, and information and SITB forms that are suitable for TB management in the field. The overarching assessment of the SITB reveals persistent challenges in data entry, attributed to the functionality of the application, thereby potentially impacting user satisfaction.</p><p><strong>Conclusions: </strong>SITB application requires \"major\" improvements to make recording, reporting, and tracing activities more efficient and precise. Moreover, the integration of existing information systems in healthcare facilities is essential to support the tuberculosis surveillance reporting system in Indonesia.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"22"},"PeriodicalIF":3.2,"publicationDate":"2025-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11761181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility, acceptability and preliminary effects of a social network-based, peer-led HIV self-testing intervention among men in two Ugandan fishing communities, 2022.","authors":"Joseph Kb Matovu, Aisha Twahiri Namwama, Linda Kemigisha, Geoffrey Taasi, Jennipher Nakabugo, Julius Wandabwa, Laura M Bogart, Nuraan Fakier, Rhoda K Wanyenze, Peter Olupot-Olupot, Joshua Musinguzi, David Serwadda","doi":"10.1186/s13690-025-01511-9","DOIUrl":"10.1186/s13690-025-01511-9","url":null,"abstract":"<p><strong>Background: </strong>Social network-based interventions can improve uptake of health interventions. However, limited evidence exists on their feasibility and acceptability in fishing community settings. We assessed the feasibility, acceptability and preliminary effects of a social network-based, peer-led HIV self-testing (HIVST) intervention among men in Uganda.</p><p><strong>Methods: </strong>The PEer-led HIVST intervention for MEN (PEST4MEN) is a pilot intervention conducted among men in Kalangala and Buvuma districts. Baseline data were collected in July 2022 and follow-up data in September 2022. The intervention was implemented through 22 trained lay men (\"peer-leaders\") who received training in HIVST use and distribution processes and requested to refer at least 20 male members from their social networks for study eligibility screening. To be eligible, men had to be aged 15 years or older with unknown or HIV-negative status. After the baseline interview, men were requested to pick two oral fluid-based HIVST kits from their peer-leaders. The intervention was deemed feasible if peer-leaders gave-out > 80% of the kits and acceptable if > 80% of the kits' recipients used them to self-test for HIV. At the follow-up interview, newly diagnosed HIV-positive men were asked if they had linked to HIV care. Data were descriptively analyzed using STATA version 16.0.</p><p><strong>Results: </strong>Of 475 screened men, 400 (84.2%) met the eligibility criteria and completed the baseline interview. Of these, 56.7% (n = 227) were engaged in fishing or fishing-related activities. At follow-up, 361 men (90.2%) were interviewed; 98.3% (n = 355) received at least one kit from their peer-leaders. Nearly all (99.1%, n = 352) kits' recipients used them to self-test for HIV. Of the 352 HIV self-testers, 51 men (14.5%) had reactive (positive) HIV self-test results. Nearly one-third of the HIV self-tested men (31.4%, n = 16) were first-time HIV-positive testers. Of these, 87.5% (n = 14) went for confirmatory HIV testing, 50.0% (n = 7) were confirmed as HIV-positive and 71.4% (n = 5) were linked to HIV care.</p><p><strong>Conclusion: </strong>Our peer-led HIVST intervention was feasible and acceptable and identified newly diagnosed HIV-positive men who were linked to HIV care. However, while these results are promising, we recommend additional research in a randomized controlled trial prior to the eventual roll-out of this intervention.</p><p><strong>Trial registration: </strong>ClinicalTrials.Gov: NCT05685498 (retrospectively registered on January 17, 2023).</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"23"},"PeriodicalIF":3.2,"publicationDate":"2025-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11761786/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143029953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"School principals' proposals for preventive actions to improve mental health.","authors":"Roger Persson, Ulf Leo, Inger Arvidsson, Kerstin Nilsson, Kai Österberg, Carita Håkansson","doi":"10.1186/s13690-024-01481-4","DOIUrl":"10.1186/s13690-024-01481-4","url":null,"abstract":"<p><strong>Background: </strong>School principals face a demanding work situation that puts them at risk for stress-related poor mental health. Ideally, preventive actions should be based on knowledge about the underlying notions that motivate action. However, knowledge about prevention areas and suitable initiatives for school principals is scarce or lacking, leaving key stakeholders without the overview necessary for effectively engaging in preventive actions.</p><p><strong>Objective: </strong>To describe school principals' proposals for suitable target areas and preventive actions that may decrease their workload and improve their mental health.</p><p><strong>Methods: </strong>An aggregated analysis was conducted using data from a larger project involving two national surveys (N = 2871), nine group interviews (N = 39), and eleven workshops (N = 270). The project was designed a priori to examine multiple questions, including identifying target areas and collecting proposals for preventive actions.</p><p><strong>Results: </strong>Forty-four proposals for preventive actions spanning various levels and six major themes were identified: Role demands and role conflicts (8 proposals); Organizational support (6 proposals); Resources and resource allocation (3 proposals); Continued professional development and coaching (2 proposals); The principal as a coworker (6 proposals); Personal actions (19 proposals).</p><p><strong>Conclusions: </strong>The considerable number of proposals and their content reveal that preventive actions are needed at all levels of the educational system and that the school principals' personal resources matter for improving their work situation and mental health. The pattern of results also underscores the importance of having a deep understanding of what problems to address, and in which context they unfold, before engaging in preventive actions.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"19"},"PeriodicalIF":3.2,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11756030/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of underlying diseases and complications on COVID-19 mortality in South Korea: analysis of national health insurance service data.","authors":"Kyunghee Lee, Jieun Hwang","doi":"10.1186/s13690-025-01509-3","DOIUrl":"10.1186/s13690-025-01509-3","url":null,"abstract":"<p><strong>Background: </strong>Comorbidities or complications significantly influence coronavirus disease-2019 (COVID-19) severity and mortality risk. Therefore, this study aimed to compare treatment outcomes of COVID-19 inpatients by underlying diseases or complications.</p><p><strong>Method: </strong>Data on COVID-19 patients from the National Health Insurance Service customized research database were analyzed while focusing on eight underlying diseases and complications: diabetes, hypertension, heart disease, kidney disease, liver disease, dementia, depression, and respiratory disease.</p><p><strong>Results: </strong>Of the 377,812 COVID-19 patients in 2021, 51.47% were male and 48.53% were female, and post-diagnosis mortality was 2.04%; 68.7% (n = 259,560) of patients had at least one underlying condition, with the following frequency: respiratory disease (78.88%), heart disease (33.84%), hypertension (30.29%), liver disease (21.38%), depression (9.32%), kidney disease (4.89%), and dementia (3.87%). Among patients without any underlying diseases, 19.8% (n = 74,925) were treated for post-diagnosis complications, with the following frequency: respiratory disease (89.21%), liver disease (19.12%), heart disease (14.90%), diabetes (10.37%), hypertension (8.22%), depression (3.86%), kidney disease (2.04%), and dementia (0.64%). Except for liver disease, all underlying diseases were associated with mortality. COVID-19 patients with diabetes exhibited a 1.42-fold higher mortality risk (95% confidence interval [CI ]1.35-1.50). All complications were associated with death, with kidney-related complications conferring a 4.84-fold higher mortality risk (95% CI 3.62-6.48).</p><p><strong>Conclusion: </strong>Underlying diseases and complications in COVID-19 patients were associated with death. Even with the same disease, the timing of onset, before or after COVID-19 diagnosis, induced a difference in the mortality risk. Both underlying diseases and complications should be considered for more proactive medical interventions.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"20"},"PeriodicalIF":3.2,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11755852/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding excess mortality during COVID in Belgium: the influence of pre-existing health status and social factors.","authors":"Laura Van den Borre, Brecht Devleesschauwer, Sylvie Gadeyne, Katrien Vanthomme, Didier Willaert","doi":"10.1186/s13690-025-01499-2","DOIUrl":"10.1186/s13690-025-01499-2","url":null,"abstract":"<p><strong>Background: </strong>This study aims to investigate how pre-existing health status and social background contribute to excess mortality during the COVID-19 crisis in Belgium.</p><p><strong>Methods: </strong>The study population consists of almost 1.4 million adult members of Solidaris, the second largest health insurance fund in Belgium. Pre-existing health status was identified using health care reimbursement data, including medication use. Social characteristics included a proxy for low socio-economic status, nationality of origin, and living arrangement. Excess mortality during the COVID-19 crisis was measured by computing the relative difference between all-cause mortality in 2020 or 2021 and the average yearly mortality in 2015-2019. Directly Standardised Mortality Rates (DSMRs) were calculated to investigate absolute mortality inequalities. Mortality Rate Ratios (MRRs) were computed using Poisson regression analyses to investigate relative mortality inequalities.</p><p><strong>Results: </strong>DSMRs show that persons with no previous disease experienced significant excess mortality in 2020, like men with one, two or three diseases and women with various numbers of pre-existing diseases. Results by specific disease show heterogenous results. After adjusting for age, sex and social characteristics, persons with cancer experienced a significant mortality deficit of 17% in 2020 and of 9% in 2021. For persons with cancer and asthma or COPD, significant mortality deficits of 10% and  3% were observed in 2020 and 2021, respectively.</p><p><strong>Conclusion: </strong>The study provides insights into the complex dynamics of mortality during the COVID-19 crisis, emphasising the need to consider individual-level information on pre-existing health and social background jointly.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"18"},"PeriodicalIF":3.2,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11756169/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using peer narrative support to promote return to work for cancer survivors: a protocol study of action research.","authors":"Wenqian Que, Xiaoyun Hu, Tingting Wu, Haiyin Zhang, Yue Shi, Jingyi Zhao, Xiaoqin Su, Benxin Kuai, Yujie Guo","doi":"10.1186/s13690-024-01498-9","DOIUrl":"10.1186/s13690-024-01498-9","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Chinese cancer survivors are not doing well in returning to work. Peer support, as an external coping resource to help cancer survivors return to work, brings together members of the lay community with similar stressors or problems for mutual support. Peer volunteers have not received systematic training, so inappropriate language in the support process can often cause secondary damage to both the peer and the cancer survivor. High-quality narrative support can help both parties gain positive meaning in communication. Therefore, we draw on narrative-related theoretical techniques to construct a model of peer narrative support to facilitate cancer survivors' return to work.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;This study is a participatory action research, including three phases: (i) Construction: Construct a peer narrative support model through literature review, theoretical research, and expert meetings. A peer narrative competence training program and a peer narrative support implementation program are constructed on this basis. (ii) Intervention: Firstly, two rounds of training actions will be carried out for 8 weeks. Second, after the peers have passed the training assessment, cancer survivors will be recruited to carry out two rounds of peer narrative support for six months. The model framework will be revised in conjunction with observation and reflection during the action. (iii) Evaluation: A combination of quantitative and qualitative methods will be used to assess the feasibility and scientific validity of the peer narrative support model and to evaluate the effectiveness of the intervention. The research methods used include theoretical research, literature review, expert meeting method, participatory observation method, interview method, and questionnaire survey method.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Discussion: &lt;/strong&gt;China currently has cancer rehabilitation associations in most provinces, cities, and counties, and peer volunteers in these organisations use their personal experience to help other cancer patients. Currently, the content of their help is mostly limited to disease recovery and financial condolences, and there is a lack of scientific training for peer volunteers. This study aims to help patients cope with their suffering and eventually return to work by narrating the stories of role models. The narrative support covers three aspects: focusing on recovery, rebuilding effectiveness, and adjusting planning. In addition, this study relies on the methodology of action research to develop a peer narrative support model, training program, and implementation plan, which are more applicable to the national context of peer support for cancer patients in China. This will provide scientific guidance for the Chinese Cancer Rehabilitation Association to develop peer narrative support and guide cancer survivors back to work.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Trial registration: &lt;/strong&gt;This study has been registered at the Chinese Clinical Tr","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"21"},"PeriodicalIF":3.2,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11755956/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cultural adaptation of ENABLE (Educate, Nurture, Advise, Before Life Ends) an early palliative care model for Iranian patients with heart failure and their caregivers: a qualitative study protocol.","authors":"Arvin Mirshahi, Ali Khanipour-Kencha, Marie Bakitas, J Nicholas Odom, Rachel Wells, Arpi Manookian","doi":"10.1186/s13690-025-01505-7","DOIUrl":"10.1186/s13690-025-01505-7","url":null,"abstract":"<p><strong>Background: </strong>ENABLE (Educate, Nurture, Advise, Before Life Ends) is a model of nurse-led, early palliative care that was originally developed for U.S. patients with advanced cancer and their family caregivers and then adapted for patients with heart failure. ENABLE coaching topics include problem-solving, communication, advance care planning, symptom management, and self-care. The purpose of this paper is to detail a qualitative study protocol to assess the cultural acceptability of ENABLE among heart failure patients and their family caregivers in Iran.</p><p><strong>Methods: </strong>This qualitative study employs reflexive thematic analysis (RTA) to guide the cultural adaptation of the ENABLE model. The study is conducted in two phases. In Phase 1, the ENABLE content will be translated and validated into Persian using a forward-backward translation process and expert panel review to ensure linguistic and cultural appropriateness. In Phase 2, semi-structured interviews will be conducted with individuals living with HF, their caregivers, and healthcare providers at Tehran University of Medical Sciences. The one-on-one semi-structured interviews will explore three main areas: (1) the primary needs and challenges faced by individuals with heart failure and their family caregivers, (2) the extent of patients' involvement in healthcare decision-making, and (3) participants' preferences for content and delivery method of ENABLE. Maximum variation sampling will be employed to ensure diverse representation, and data collection will continue until saturation is achieved. Interview audio recordings will be transcribed verbatim and analyzed using Braun and Clarke's reflexive thematic analysis approach. The analysis will involve iterative coding to identify patterns and the development of themes that align with the core components of the ENABLE model while ensuring cultural relevance. Trustworthiness and rigor will be ensured through reflexivity, peer debriefing, and data triangulation, ensuring credible and robust findings to guide the cultural adaptation of the ENABLE model for Iran.</p><p><strong>Discussion: </strong>This study will develop a framework for adapting the ENABLE model to Iran, offering insights into cultural and contextual factors influencing palliative care. The adapted model aims to enhance the quality of life for individuals with HF and their caregivers while addressing gaps in palliative care delivery in Iran.</p>","PeriodicalId":48578,"journal":{"name":"Archives of Public Health","volume":"83 1","pages":"17"},"PeriodicalIF":3.2,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11749334/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}