L. Phillipson, M. Hevink, C. McAiney, M. Gresham, E. Conway, M. Mackowiak, D. Szczesniak, L. Smith, H. Brodaty, L. F. Low
{"title":"The Utility of Researcher-Driven Projective and Enabling Techniques to Support Engagement in Research About Dementia Diagnosis and Post-Diagnostic Support","authors":"L. Phillipson, M. Hevink, C. McAiney, M. Gresham, E. Conway, M. Mackowiak, D. Szczesniak, L. Smith, H. Brodaty, L. F. Low","doi":"10.1177/16094069231203131","DOIUrl":"https://doi.org/10.1177/16094069231203131","url":null,"abstract":"Research involving people with dementia has highlighted the need to improve engagement in the conduct of interviews and focus groups. Projective and enabling techniques may be useful and avoid some of the drawbacks associated with direct questioning. However, researcher-driven projective techniques have not been extensively tested in research with people with dementia. In 2019, researchers in Australia, Canada, the Netherlands and Poland received training and trialled projective and enabling techniques to collect data about dementia diagnostic and early post-diagnostic experiences. The techniques were used with a total of thirty people with dementia (aged 67–97 years) in online and face-to-face individual and dyadic interviews and a focus group. Word association activities supported brainstorming about the concepts of ‘dementia’ and ‘support’. A researcher-driven photo elicitation technique was utilised to seek responses concerning a hypothetical couple at four time points: during a diagnostic conversation, and at 1, 6 and 12-month post-diagnosis. Discussions were audio recorded and transcribed and interviewers created ‘meta’ mind maps of word associations and made reflective notes regarding participant engagement. Deductive content analysis was used to assess the value of the techniques to support a manageable, comprehensible and meaningful research experience. Word associations supported free-flowing conversations around the key research concepts. Photo elicitation techniques promoted empathy and supported personal reflections on the probable experiences and needs of the hypothetical couple. The techniques were also useful in eliciting reflections on personal experiences, societal responses to dementia, and recommendations for improving the diagnostic conversation and supports for the post-diagnostic period. Overall, the techniques appeared to lessen some of the demands of direct questioning but were not manageable or meaningful for all participants. Further research should explore the vast array of projective techniques and engage in greater co-design and tailoring of research approaches to enhance the toolkit of dementia researchers.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136008519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mar Vallès-Poch, Iris Parra Jounou, Ramón Ortega-Lozano, Janet Delgado, María Victoria Martínez-López, Silvia M. Sánchez Garrido, Maria Isabel Tamayo-Velázquez, Rosana Triviño-Caballero, David Rodríguez-Arias
{"title":"End-of-Life Narratives of Patients who Request Medical Assistance in Dying: A Qualitative Study Protocol","authors":"Mar Vallès-Poch, Iris Parra Jounou, Ramón Ortega-Lozano, Janet Delgado, María Victoria Martínez-López, Silvia M. Sánchez Garrido, Maria Isabel Tamayo-Velázquez, Rosana Triviño-Caballero, David Rodríguez-Arias","doi":"10.1177/16094069231202196","DOIUrl":"https://doi.org/10.1177/16094069231202196","url":null,"abstract":"Many groups (healthcare professionals, lawyers, philosophers, non-governmental organisations, bioethics committees, journalists, religious groups, etc.) participate in the bioethical debate about medical assistance in dying (MAiD). Bioethics literature on the topic involve different approaches (analytic, empirical, policy oriented, activist) and various normative perspectives (discourses based on deontological premises as the sanctity of life and human dignity, or on utilitarianism, libertarianism, etc.), some of which are at times irreconcilable. Regarding empirical studies, some voices (e.g., healthcare professionals) have been widely considered but the voice of people who request MAiD has been neglected. Understanding the personal and medical circumstances that lead to MAiD, which can only be achieved by listening to the phenomenological discourse of those involved, is key. This study aims to provide knowledge from the testimonies and experiences of patients who have initiated a MAiD request. We believe this research protocol can increase our understanding of a social and academic controversy that lacks important information to be complete. By doing so, this type of research could inform and improve end-of-life public policies, and particularly the health care of individuals who request a MAiD. We propose a qualitative phenomenological study using semi-structured interviews of people in the process of requesting MAiD, as outlined in the Ley Orgánica 3/2021, de regulación de la eutanasia (LORE), the Spanish Law on the Regulation of Euthanasia. The study is conducted nationally using a convenience sampling. The number of interviews is determined sequentially and cumulatively, depending on the richness of the narratives and the saturation of the information that has been collected. For the purposes of analysis, the interviews are transcribed verbatim and pseudonymised afterwards. Data analysis is conducted at the same time as data collection. The proposed study has received a favourable report from the Coordinating Committee on Biomedical Research Ethics of Andalusia (CCEIBA).","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135496311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lynn Sheridan, Lynere Wilson, Dennis Alonzo, Rebekkah Middleton
{"title":"Australian and New Zealand Nurses: Social and Emotional Attributes and Work Engagement","authors":"Lynn Sheridan, Lynere Wilson, Dennis Alonzo, Rebekkah Middleton","doi":"10.1177/16094069231202660","DOIUrl":"https://doi.org/10.1177/16094069231202660","url":null,"abstract":"The COVID-19 pandemic presented significant job engagement challenges for the nursing workforce with increased pressures and workplace changes. Nursing staff shortages have increased nurse anxiety, burnout, fear, low morale and intentions to leave the profession. Nursing care is inherently stressful and at times complex, with stress often due to work inconsistencies, a lack of role clarity, workloads and time pressures. This study explores nurses job engagement, by looking specifically at nurses social-emotional attributes – Occupational Commitment, Self-efficacy Beliefs, Collective Efficacy Beliefs, Resilience, Adaptability and Emotional Labour. This protocol describes a mixed methods convergent parallel study, incorporating a survey questionnaire. The survey comprised of quantitative and qualitative questions, with data collected simultaneously, analysed separately, and integrated in the final analysis step. The survey design used validated social-emotional items, sorting and ranking questions and short answer responses. Analysis will involve individual and comparative analysis of the two participants groups, they are: Australian nurses ( n = 86) and New Zealand Nurses ( n = 275). Data collection was conducted during two different time periods – Australian pilot (2020-21) and in New Zealand (2022–2023). Recruitment involved the use of professional and personal nursing networks, newsletters and social media communications. Ethics approval was obtained through participating universities in both countries. Results will be disseminated through peer-reviewed publications, conferences, blogs, newsletters and reports to nursing networks. The study will provide valuable insights into nurses’ social-emotional attributes and the role they play in job engagement.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":"41 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135263548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leah Hamilton, Desha Elliott, Aaron Quick, Simone Smith, Victoria Choplin
{"title":"Exploring the Use of AI in Qualitative Analysis: A Comparative Study of Guaranteed Income Data","authors":"Leah Hamilton, Desha Elliott, Aaron Quick, Simone Smith, Victoria Choplin","doi":"10.1177/16094069231201504","DOIUrl":"https://doi.org/10.1177/16094069231201504","url":null,"abstract":"This study explores the potential of the AI chatbot ChatGPT to supplement human-centered tasks such as qualitative research analysis. The study compares the emergent themes in human and AI-generated qualitative analyses of interviews with guaranteed income pilot recipients. The results reveal that there are similarities and differences between human and AI-generated analyses, with the human coders recognizing some themes that ChatGPT did not and vice versa. The study concludes that AI like ChatGPT provides a powerful tool to supplement complex human-centered tasks, and predicts that such tools will become an additional tool to facilitate research tasks. Future research could explore feeding raw interview transcripts into ChatGPT and incorporating AI-generated themes into triangulation discussions to help identify oversights, alternative frames, and personal biases.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45036451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Novel Approach to Support the Use of Visual Methods when Researching with People Living with Dementia","authors":"S. Smith, Gail Ann Mountain, R. Hawkins","doi":"10.1177/16094069231184122","DOIUrl":"https://doi.org/10.1177/16094069231184122","url":null,"abstract":"Accepted methods of enquiry to address qualitative research questions are focus groups and interviews, enabling access to the experiences, opinions, and perspectives of participants. However use of these methods with people with dementia is problematic because this condition can impair verbal communication in addition to other domains. These challenges can have a significant impact when trying to obtain insight from an individual through conversation and discussion. As researchers, we should be creating alternative methods that place equal importance on behaviour that is non-verbal as well as verbal. This contribution highlights the need for the advancement of creative qualitative methods drawing on lessons learned of the benefits and challenges during the development of a novel approach to support the use of visual methods in dementia research. By focussing on all that is retained and done well, emphasising individual strengths and abilities, offers an increasingly prevalent alternative to existing loss-deficit models that have characterised dementia research in the past. This approach highlights the importance and appropriateness of visual methods in enabling meaning and transparency throughout the research process from ethical approval and consent procedures through to the collection, analysis, dissemination, and impact of the research data.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45127500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Community-Based Participatory Gender and Sexualities Research With LGBTQ+ People With Intellectual and/or Developmental Disabilities","authors":"Oscar E. Hughes, A. Santinele Martino","doi":"10.1177/16094069231173779","DOIUrl":"https://doi.org/10.1177/16094069231173779","url":null,"abstract":"In this article, we discuss practical lessons for promoting meaningful collaboration in inclusive and community-based participatory gender and sexualities research with LGBTQ+ people with intellectual and/or developmental disabilities. First, we describe the historical and ongoing exclusion from research engagement of people with intellectual and/or developmental disabilities and the importance of including LGBTQ+ people with intellectual and/or developmental disabilities in inclusive and community-based research projects that address gender and sexuality. Then, we provide reflections on how we are striving to embrace core principles of community-based participatory research in our current gender and sexualities research projects. Finally, we end with a call to action for future meaningful and collaborative research that addresses gender and sexuality in the lives of people with intellectual and/or developmental disabilities.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42284610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Combining Worlds: A Mixed Method for Understanding Learning Spaces","authors":"Luke McCrone, Martyn Kingsbury","doi":"10.1177/16094069231173781","DOIUrl":"https://doi.org/10.1177/16094069231173781","url":null,"abstract":"Understanding student interaction in learning spaces is an ongoing challenge. The move away from didactic lecture delivery towards more active and hybrid learning renders this challenge ever more difficult. Researching pedagogic use of informal learning space, which is not formally timetabled or controlled, is always challenging because it is interacted with only transiently by both students and teachers. This paper introduces a mixed methods, phenomenological approach used in recent research to investigate campus learning spaces in face-to-face learning contexts. The full mixed methods approach combined space occupancy monitoring data with naturalistic ethnographic observation, field interviews and, where appropriate, more formal in-depth interviews to provide an effective way of understanding student and teacher engagement with learning spaces. Convergent use of these qualitative and quantitative methods yielded data which informed the application of subsequent methods, and the investment of researcher, pedagogic and infrastructural resource. In this paper we argue that as learning outside of formal teaching spaces increases, these mixed methods enable better, more efficient monitoring of pedagogic use of informal learning spaces. The mixed method can be adapted depending on the question being addressed and has the potential to inform resource allocation and investment into pedagogic and infrastructural change.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43431966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth Flannery, K. Peters, G. Murphy, E. Halcomb, Lucie M. Ramjan
{"title":"Bringing Trauma Home: Reflections on Interviewing Survivors of Trauma while Working from Home","authors":"Elizabeth Flannery, K. Peters, G. Murphy, E. Halcomb, Lucie M. Ramjan","doi":"10.1177/16094069231175445","DOIUrl":"https://doi.org/10.1177/16094069231175445","url":null,"abstract":"In response to the COVID-19 pandemic, working from home became the new normal for many professionals. While this was beneficial in managing the rapidly spreading virus, it had varying impacts on the mental health of those previously not accustomed to remote work. This paper provides a critical reflection of the researcher’s experience of conducting interviews with survivors of trauma while working from home. The research aimed to understand the experiences of significant others supporting patients with severe burn injury in the Intensive Care Unit (ICU). As an experienced ICU nurse, the researcher has well developed personal coping strategies for dealing with complex trauma and in working with significant others of patients with severe burn injury in hospital settings. Due to the pandemic, data collection moved from face-to-face in the hospital, as originally intended, to phone or videoconference interviews. 17 participants were recruited, with all participants given the option of videoconference ( n = 3) or telephone interviews ( n = 14). Interviews had an average length of 55 minutes. This paper discusses the strategies adopted to cope with the sharing of significant others’ experiences of trauma while in the home environment. Careful consideration was needed for the researcher, the participants and those within the homes of both researcher and participant, in terms of psychological safety, ethical considerations and rapport building.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42394426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Performing Qualitative Content Analysis of Video Data in Social Sciences and Medicine: The Visual-Verbal Video Analysis Method","authors":"Sahar Fazeli, Judith Sabetti, M. Ferrari","doi":"10.1177/16094069231185452","DOIUrl":"https://doi.org/10.1177/16094069231185452","url":null,"abstract":"Videos are ubiquitous and have significantly impacted our communication and information consumption. The video, as data, has helped researchers understand how human interactions and relationships develop and change, and how patterns emerge in various circumstances and interpretations. Given the expanding relevance of video data in social science and medical research and the constant introduction of new formats and sources, it is critical to be able to conduct a thorough analysis of this multimodal data. However, the few methodologies (e.g., Actor Network Theory, Picture Theory) appropriate to video data analysis lack detailed guidelines on how to select, organize, and examine the multimodality of video data. This article aims to overcome this practice or methodological gap by proposing and demonstrating the Visual-Verbal Video Analysis (VVVA) method, a six-step framework adapted from Multimodal Theory and Visual Grounded Theory for organizing and evaluating video material according to the following dimensions: general characteristics of the video; multimodal characteristics; visual characteristics; characteristics of primary and secondary characters; and content and compositional characteristics including the transmission of messages, emotions, and discourses. This article also looks at the theories underlying video data analysis, focusing on Grounded Theory and Multimodality Theory, and provides multiple examples of coding and interpretive processes to deepen understanding and comprehension. The VVVA data extraction matrices provide a systematic coding approach for verbal, visual, and textual content, allowing for structured, coherent extraction that supports the discovery of patterns and links among disparate types of information. The VVVA method may be applied to a wide range of video data in social and medical sciences that vary in length and originate from different sources (e.g., open access web sources, pre-recorded organizational videos and recordings created for research purposes). The VVVA method effectively tracks the ongoing research process, and can manage data sets of various sizes.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42468382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mapping the Judicialization of Politics: A Reflection on Methodological Issues in Writing a Social Science Review Paper","authors":"L. Kawar","doi":"10.1177/16094069231160981","DOIUrl":"https://doi.org/10.1177/16094069231160981","url":null,"abstract":"The research process of authoring a review paper constitutes a uniquely important context for interrogating tacit premises and presuppositions, especially when the review aspires to synthesize a methodologically diverse field of research. This article presents a reflexive recounting of a research experience with mixed methods team-based review paper authorship, showing how the function of a review paper may be differently conceptualized by scholars situated in methodological traditions that place their emphasis on drawing-together knowledge about the social world versus those situated in methodological traditions whose primary aim is to unpack accepted categories. The analysis thus offers insights into dimensions of methodological difference as they operate in practice, while underscoring the significance of reflexivity in the review paper context for purposes of advancing meaningfully inclusive maps of an intellectual community’s self-understanding(s).","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":" ","pages":""},"PeriodicalIF":5.4,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45753564","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}