Jessica A Wojtalik, Anju Kotwani, Rochanne L Honarvar, Shaun M Eack, Lori D'Angelo, Chrissy Whiting-Madison, Wilson J Brown
{"title":"Confirmatory factor analysis of the 12-item World Health Organization Disability Assessment Schedule 2.0 (WHODAS-2.0) within the clubhouse model of psychosocial rehabilitation for serious mental illness.","authors":"Jessica A Wojtalik, Anju Kotwani, Rochanne L Honarvar, Shaun M Eack, Lori D'Angelo, Chrissy Whiting-Madison, Wilson J Brown","doi":"10.1037/prj0000594","DOIUrl":"10.1037/prj0000594","url":null,"abstract":"<p><strong>Objective: </strong>The Clubhouse model (CM) for serious mental illness is a recovery-oriented and member-driven program that aims to facilitate functional recovery. Efficacy evaluation of the CM is limited by lack of uniform functional disability assessment. The World Health Organization Disability Assessment Schedule 2.0 (WHODAS-2.0) is a widely accepted measure of functional disability, but its psychometric properties have yet to be examined within the CM.</p><p><strong>Method: </strong>This research sought to confirm the generic six-factor structure of the 12-item WHODAS-2.0 using retrospective administrative data from 339 adults with serious mental illness from an accredited Clubhouse. A second-order confirmatory factor analysis was conducted, followed by secondary known-groups analyses to examine whether the WHODAS-2.0 differentiates between subgroups with varying degrees of disability.</p><p><strong>Results: </strong>The WHODAS-2.0 demonstrated good overall reliability. The generic six-factor structure produced nonsignificant loadings due to lack of independence between the \"participation\" and \"getting along\" factors. The items of these two factors were combined into a five-factor model, which displayed excellent fit, with all significant paths and adequate-to-strong loadings, and no correlation among errors. The WHODAS-2.0 significantly differentiated members by receipt of public assistance, employment status, and number of medical comorbidities, supporting construct validity.</p><p><strong>Conclusions and implications for practice: </strong>These results provide initial support for the use of the 12-item WHODAS-2.0 as a CM-related outcome measure and encourage future research of the full 36-item version. The intentional community approach of the CM is unique and may require adjustments to the factor structure of the WHODAS-2.0 by merging the \"participation\" and \"getting along\" domains. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"229-239"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138811644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joy Agner, Adriana Botero, Tiffany Cha, Lisa Nakamura, Tyra Mahealani Kaukau, Maileen Liu
{"title":"A conceptual model of how mental health clubhouses impact health and quality of life among individuals with serious mental illness.","authors":"Joy Agner, Adriana Botero, Tiffany Cha, Lisa Nakamura, Tyra Mahealani Kaukau, Maileen Liu","doi":"10.1037/prj0000579","DOIUrl":"10.1037/prj0000579","url":null,"abstract":"<p><strong>Objective: </strong>People with serious mental illness (PWSMI) experience dramatic disparities in health, quality of life, and longevity. Mental health Clubhouses are a community-based treatment model that can positively affect health and quality of life among PWSMI. However, few studies investigate the <i>processes</i> within Clubhouses and what factors are related to the improvement of health and quality of life among members. To address this gap, this research offers a conceptual model of how Clubhouses contribute to health and quality of life.</p><p><strong>Method: </strong>This conceptual model was created using participatory qualitative methods, combining Photovoice and grounded theory. Forty-two participants (37 Clubhouse members and six staff) from four Clubhouses in Hawai'i were engaged in 22 sessions over the course of 2 years.</p><p><strong>Results: </strong>The conceptual model begins with quality of participation in Clubhouse activities, which refers not only to being present in the Clubhouse but being actively and meaningfully engaged in Clubhouse activities. Engagement in Clubhouse activities and working side-by-side with members and staff led to reciprocal social support. As members were supported and supported others, they gained a sense that they mattered, and they perceived themselves as more capable, more efficacious, and less stigmatized over time. They became a contributing member of a community, which supported health and quality of life directly and indirectly.</p><p><strong>Conclusions and implications for practice: </strong>This work offers a novel conceptual framework of Clubhouse processes that highlights the importance and potential of empowering psychosocial treatment models. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"249-259"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736455","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Expanding community-based participatory action research practices to clubhouses through sustainable research activities.","authors":"Kevin Rice, Rachel Hand, Betty Diop, Aida Mejia, Oneil Mahoney, Joshua Seidman","doi":"10.1037/prj0000607","DOIUrl":"10.1037/prj0000607","url":null,"abstract":"<p><strong>Objective: </strong>There is growing utilization and acknowledgement of the benefits of community-based participatory action research (CBPAR) in advancing health practices and equity. However, the sustainability and full impact of CBPAR in health care settings faces many obstacles and limitations. The present article examines the synergies between CBPAR and Clubhouse programs, presents the demonstration and ongoing implementation of sustainable CBPAR practices at Fountain House in New York City, and offers lessons learned for other Clubhouses and similar programs seeking to integrate CBPAR.</p><p><strong>Methods: </strong>Alignment in practice and principles between CBPAR and Clubhouse programs are presented. The innovation and ongoing sustainable CBPAR practices in the Fountain House Clubhouse program are examined with a contribution of practice guidance for other Clubhouse and similar programs in further adopting and learning CBPAR into participatory health practices.</p><p><strong>Results: </strong>Clubhouse psychosocial rehabilitation programs present structurally conducive settings for the success and sustainability of CBPAR activities and projects. The Fountain House examination and demonstration of integrating CBPAR sustainably into core Clubhouse programming presents opportunities for further integration, research, and practice guidance in uniquely leveraging features of the Clubhouse model to advance health equity and rehabilitative outcomes through CBPAR.</p><p><strong>Conclusions and implications for practice: </strong>The opportunity for incorporating structural CBPAR activities within Clubhouse programs can be informed by the experience, processes, and lessons applied in the Fountain House example. Further research into the rehabilitation, program, and equity benefits of Clubhouse and CBPAR integration could uniquely contribute to the advancement of sustainable participatory research practices across the mental health field generally. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 3","pages":"219-228"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kati Mäntysaari, Melisa Stevanovic, Elina Weiste, Jenny Paananen, Camilla Lindholm
{"title":"Ideals of joint decision making in clubhouse communities.","authors":"Kati Mäntysaari, Melisa Stevanovic, Elina Weiste, Jenny Paananen, Camilla Lindholm","doi":"10.1037/prj0000626","DOIUrl":"10.1037/prj0000626","url":null,"abstract":"<p><strong>Objective: </strong>This article explores the ideological dilemmas of decision making identified in members' and staff's talk in Clubhouse communities.</p><p><strong>Method: </strong>The data are drawn from a corpus of 10 video-recorded focus group interviews with Clubhouse members and staff, which were collected at five Finnish Clubhouses in 2020. The method used is discursive psychology, and the analysis identifies interpretative repertoires and ideological dilemmas.</p><p><strong>Results: </strong>Clubhouse members and staff express diverse opinions regarding decision making at the Clubhouse. We identified six interpretative repertoires and three ideological dilemmas between these repertoires. The first dilemma deals with participation and efficiency, advancing the idea that everybody should be allowed to participate in decision making, but the decision making should be efficient. The second dilemma regards the passivity or activity of the participants, suggesting that decision-makers should be allowed to be themselves, but participation in decision making requires activity. The third dilemma is associated with power structures in decision making, proposing that joint decision making requires active resistance against power structures, but these structures are both inexorable and partially necessary.</p><p><strong>Conclusions and implications for practice: </strong>In introducing a discursive perspective to joint decision making in the Clubhouse community, this study makes visible the conflicting ideals of decision making. The acknowledgment of these dilemmas can guide interventions aiming at improving genuinely participatory joint decision-making practices at the Clubhouse. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 3","pages":"240-248"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337054","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The growth and diversity of the evidence base for the clubhouse model.","authors":"Colleen E McKay","doi":"10.1037/prj0000628","DOIUrl":"10.1037/prj0000628","url":null,"abstract":"<p><p>The Clubhouse Model is a long-standing form of psychosocial rehabilitation that has been in existence for over 75 years. Today, over 350 Clubhouse programs in 33 countries affiliate with Clubhouse International and operate as nonclinical community-based recovery centers for adults and young adults living with mental illness. Clubhouses provide a strengths-based approach to recovery and offer participants, referred to as members, a variety of supports and services including assistance with obtaining and maintaining community-based employment, education, housing, social integration, outreach and advocacy, wellness and health promotion activities, and linkages to medical and psychiatric services. There is evidence and support for the Clubhouse Model in improving quality of life and social functioning, reducing hospitalization(s) and/or psychiatric symptoms, and promoting employment. This special issue has nine articles that highlight ongoing research collaborations from across the globe that examine the impact of the Clubhouse Model on a variety of novel outcomes. While more research is needed, the articles in this special issue reflect the growth and diversity of the evidence base for the Clubhouse Model. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 3","pages":"189-192"},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337055","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patrick W Corrigan, Miranda Twiss, Katherine Nieweglowski, Lindsay Sheehan
{"title":"Recovery and trauma among urban African Americans with serious mental illness.","authors":"Patrick W Corrigan, Miranda Twiss, Katherine Nieweglowski, Lindsay Sheehan","doi":"10.1037/prj0000602","DOIUrl":"10.1037/prj0000602","url":null,"abstract":"<p><strong>Objective: </strong>Traumatic experiences are prevalent among people with serious mental illness and can significantly worsen outcomes. This study aimed to identify an urban cluster of trauma types, compare continuous distress ratings versus categorical experience of trauma for predicting outcomes such as depression and quality of life, and investigate the mediating role of recovery orientation in the impact of trauma exposure on outcomes.</p><p><strong>Method: </strong>Data came from an intervention study on African Americans with serious mental illness living in a large urban area; 212 participants completed baseline self-report measures of past trauma experiences, related distress levels, recovery, depression, and quality of life. Data were assessed using correlations and regressive path modeling.</p><p><strong>Results: </strong>Overall, 56.6% of participants reported experiences with trauma. Analyses suggested an urban cluster of trauma types that was self-reported by over 25% of participants. Distress due to trauma strongly correlated with greater depression as well as reduced quality of life and recovery. Interestingly, the categorical presence of trauma history (yes/no) had no significant relationship with any outcomes. Path analyses revealed that recovery mediated the impact of trauma distress on depression and quality of life, specifically implicating the recovery subfactor of hope.</p><p><strong>Conclusions and implications for practice: </strong>Results suggested that cognitive reframing focused on positive appraisals of overall recovery, and the hope subfactor can have a positive influence on trauma outcomes. The study supported the role of recovery in posttraumatic growth and suggests that hope can be used to help patients process trauma healthily. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"157-166"},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139736458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lieke Zomer, Yolande Voskes, Jaap van Weeghel, Guy Widdershoven, Jos Twisk, Lisette van der Meer
{"title":"Recovery-oriented care in long-term mental health settings: Relationship between the active recovery triad (ART) model, recovery-oriented care, and recovery of service users.","authors":"Lieke Zomer, Yolande Voskes, Jaap van Weeghel, Guy Widdershoven, Jos Twisk, Lisette van der Meer","doi":"10.1037/prj0000622","DOIUrl":"10.1037/prj0000622","url":null,"abstract":"<p><strong>Objective: </strong>The active recovery triad (ART) model provides guidelines for recovery-oriented care in long-term mental health care. The aim of this study is to evaluate whether compliance to the principles of the ART model is related to recovery-oriented care, service user recovery and satisfaction.</p><p><strong>Method: </strong>A prospective study was conducted including two measurements, in which we investigated compliance to the principles of the ART model (ART fidelity), recovery-oriented care as measured by the Recovery-Oriented Practices Index-Revised (ROPI-R) at team level (n = 18) and outcome measures on service user level (n = 101) related to personal recovery, social roles, level of functioning, clinical recovery, transition, and satisfaction. We used multilevel modeling to evaluate these relationships.</p><p><strong>Results: </strong>There was a significant association between active recovery triad (ART) fidelity and the ROPI-R. We did not find a significant association between overall ART fidelity and service user outcomes. Yet, we did find that higher ART fidelity in the domains \"cooperation in the triad,\" \"professionalization of staff,\" and \"team structure\" were related to improved clinical recovery, functioning, social roles, and performance of activities. However, higher ART fidelity in the domain \"healing environment\" was related to poorer functioning, and a higher score in the domain \"safety and prevention of coercion\" was related to poorer social roles and performance of activities.</p><p><strong>Conclusions and implications for practice: </strong>We can conclude that compliance to the principles of the ART model is related to recovery-oriented care, measured with the ROPI-R. In addition, the findings suggest that in particular elements in the ART model are related to meaningful recovery outcomes. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 2","pages":"129-141"},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Samuel Law, Vicky Stergiopoulos, Juveria Zaheer, Arash Nakhost
{"title":"\"It feels terrible that people are making decisions for me\": Reflections and experiences of individuals with psychiatric disability who have substitute decision makers for treatment.","authors":"Samuel Law, Vicky Stergiopoulos, Juveria Zaheer, Arash Nakhost","doi":"10.1037/prj0000592","DOIUrl":"10.1037/prj0000592","url":null,"abstract":"<p><strong>Objective: </strong>In Canada and elsewhere, making treatment decisions for a person with serious mental illness (SMI) who was found incapable for treatment decisions via a substitute decision maker (SDM) is the norm. This practice is often called into question from a rights-based perspective. The literature on the views of affected individuals is limited. We explore the experiences of adults with SMI who have had SDMs to gain more in-depth understanding.</p><p><strong>Method: </strong>We conducted semistructured interviews with 11 consumers of psychiatric services who have had experiences with SDM (range 1-12 years) at an urban hospital in Toronto, Canada.</p><p><strong>Results: </strong>Thematic analysis showed five main themes and related subthemes, including: (1) strong dissatisfaction with and rejection of the SDM's role and purpose; (2) pervasive sense of stigma associated with having a SDM; (3) ongoing struggles to gain autonomy; (4) mixed changes in relationship with and views about SDM; and (5) views on how to improve SDM process.</p><p><strong>Conclusion and implications for practice: </strong>Our study highlights substantial dissatisfaction with the current SDM system and approaches among adults with SMI who have had SDMs. Issues of stigma and struggles to regain autonomy are prevalent. We discuss the personal, clinical, and social-legal contexts in which they occur, particularly in light of the United Nations' Convention on the Rights of Persons with Disabilities that calls for replacing SDMs with supported decision making. Rights-based approaches to care carry substantial practice implications and call for thoughtful change management. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"117-128"},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136399802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Family-centered decision making: A culturally responsive collaborative approach among Asians living in the United States.","authors":"Sang Qin, Patrick Corrigan, Eun-Jeong Lee","doi":"10.1037/prj0000603","DOIUrl":"10.1037/prj0000603","url":null,"abstract":"<p><strong>Objective: </strong>Compared to Western cultures, self-determination needs are expressed and pursued differently in Asian cultures, where interdependence and achieving greater good for the group are prioritized. To accommodate these needs, we propose the use of family-centered decision making (FCDM) to complement the shared decision-making (SDM) practice, fostering collaborative psychiatric care for Asian individuals residing in the United States.</p><p><strong>Method: </strong>This article synthesizes various literature to outline the similarities and differences between SDM and FCDM, discuss implementation steps, challenges associated with implementation, potential solutions, and future research considerations.</p><p><strong>Results: </strong>Our review suggests that FCDM is more responsive to and inclusive of Asian cultural experience, better reflecting these cultures' expression of self-determination. We propose a five-step framework for FCDM implementation in psychiatric rehabilitation for Asian and Asian American individuals, while identifying three further practical considerations: logistical difficulties, intrafamilial differences, and making the decision to use FCDM or not.</p><p><strong>Conclusions and implications for practice: </strong>Given the heterogeneity of Asian individuals in the United States, we urge providers to allow flexibility in practicing FCDM. We outline the important components for providers to help individuals with psychiatric disabilities distinguish between the characteristics of FCDM and SDM, evaluate the potential pros and cons of utilizing FCDM, and then initiate FCDM if appropriate or requested by the individuals. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":" ","pages":"94-105"},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139974035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Collaborative approaches in psychiatric rehabilitation: Innovations in practice.","authors":"Elizabeth C Thomas","doi":"10.1037/prj0000624","DOIUrl":"10.1037/prj0000624","url":null,"abstract":"<p><strong>Objective: </strong>This special section is dedicated to collaborative approaches in psychiatric rehabilitation, which are rooted in foundational values such as service user involvement and self-determination.</p><p><strong>Methods: </strong>Five articles featuring collaborative approaches are included and briefly reviewed here.</p><p><strong>Results: </strong>These articles highlight innovations in collaborative approaches, addressing existing limitations in research and practice and advancing understanding of collaborative psychiatric care among diverse populations.</p><p><strong>Conclusions and implications for practice: </strong>They underscore the ongoing need for research and policy reform to promote more routine and widespread implementation. (PsycInfo Database Record (c) 2024 APA, all rights reserved).</p>","PeriodicalId":47875,"journal":{"name":"Psychiatric Rehabilitation Journal","volume":"47 2","pages":"91-93"},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}