S. Abeysinghe, V. Amir, N. Huda, Fairuziana Humam, A.F. Lokopessy, Putri Viona Sari, Astri Utami, A. Suwandono
{"title":"Risk and responsibility: lay perceptions of COVID-19 risk and the ‘ignorant imagined other’ in Indonesia","authors":"S. Abeysinghe, V. Amir, N. Huda, Fairuziana Humam, A.F. Lokopessy, Putri Viona Sari, Astri Utami, A. Suwandono","doi":"10.1080/13698575.2022.2091751","DOIUrl":"https://doi.org/10.1080/13698575.2022.2091751","url":null,"abstract":"Abstract Lay constructions of risk impact upon public health activities and underpin social reactions to experiences and understandings of infectious diseases. In this article, we explore the social construction of COVID-19 risk and responsibility by citizens of Jakarta and the Greater Jakarta Area, Indonesia. We draw upon digital diaries produced each week by 37 participants across a 5-week period from April to June 2020, a time of substantial policy flux in Indonesia. Key findings reflect the everyday construction of risk within the context of changing government restrictions regarding physical distancing. In the context of perceived confusion around government activity, the participants narrated individualised accounts of risk production, as they reflected upon the transmission of COVID-19. Our findings indicate the emergence of the concept of the ‘ignorant imagined other’ as underpinning how lay persons locate risks in unknowledgeable others and see themselves as socially protected through their own perceived knowledgeability of COVID-19. Our findings contribute to the literature on the social perception of infectious disease through the examination of the understudied context of urban Indonesia and by demonstrating the social location of risk in relation to a generalised imagined other, within a wider context of public health governance.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"83 1","pages":"187 - 207"},"PeriodicalIF":2.1,"publicationDate":"2022-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83446601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sophie Lachapelle, Katarina Bogosavljević, J. Kilty
{"title":"In the name of health: affect theory and the role of public health risks in the creation of carceral spaces","authors":"Sophie Lachapelle, Katarina Bogosavljević, J. Kilty","doi":"10.1080/13698575.2022.2113508","DOIUrl":"https://doi.org/10.1080/13698575.2022.2113508","url":null,"abstract":"The discipline of public health is generally considered to advance a universal good and is often discussed as a moral and ethical mission that aims to empower individuals to take responsibility for their own health. However, the ardent promotion of public health discourses can also result in the hyper-policing and surveillance of marginalised communities, where the capital required to adhere to risk management is often systemically lacking or unobtainable. These consequences have become more visible during the COVID-19 pandemic, as many people who are unable to follow public health guidelines to mitigate risky behaviours – for example, due to homelessness – are punished in increasingly carceral ways. In this article, we propose the notion of colonial affect as a conceptual tool to understand the ways in which public health deploys the affective language of risk to justify the carceral management of citizens. We mobilise examples of strategies invoked to manage unhoused people during the COVID-19 pandemic in two Canadian cities, Vancouver, British Columbia and Kingston, Ontario, noting how public health uses the affective language of risk to carceral ends. Such an interdisciplinary analysis of public health and carcerality helps reveal the palpable, yet slippery, characteristics of carceral spaces in our current epoch.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"7 1","pages":"336 - 353"},"PeriodicalIF":2.1,"publicationDate":"2022-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89795761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘It touches my heart more when I see this…’: visual communication in the realisation of risk - the case of type 2 diabetes in Stockholm","authors":"Sinéad Plant, Karima Lundin, H. M. Alvesson","doi":"10.1080/13698575.2022.2104221","DOIUrl":"https://doi.org/10.1080/13698575.2022.2104221","url":null,"abstract":"Risk communication is increasingly recognised as an integral component of preventative medicine. However, only a limited number of studies have focused on the experience and understanding that an individual has on receiving personalised risk information in relation to Type 2 Diabetes. In this article we aim to fill one critical gap in our knowledge – how is this risk information being perceived by the receiver, and what differences exist when the format is numerical or visual? Type 2 Diabetes was used as the case disease, due to its increasing global prevalence and protracted asymptomatic period, which is shared with other non-communicable diseases. We conducted 15 semi-structured interviews in a socio-economically disadvantaged area of Stockholm. The interviews incorporated a ‘think-aloud’ discussion of participants’ responses to their ‘Finnish Diabetes Risk Score’ (FINDRISC) and self-developed visual aids that illustrated this score. The theme ‘Incorporating Self in the Realisation of Risk’ was developed, informed by three categories that captured a transition from: Risk as interpreted as separate to; related to; and finally, part of the self. The findings suggest that visuals, in addition to numerical information, add a heightened sense of emotion to perceptions of risk, which gave participants a heightened sense of their susceptibility to disease. The data highlight how simple illustrations, as an adjunct to numbers, may engage both cognitive and emotive stems of thought to ‘incorporate self’ in the realisation of risk.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"28 1","pages":"258 - 275"},"PeriodicalIF":2.1,"publicationDate":"2022-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74327022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Risk and the importance of absent symptoms in constructions of the ‘cancer candidate’","authors":"C. Dobson, A. Russell, S. Brown, G. Rubin","doi":"10.1080/13698575.2022.2104222","DOIUrl":"https://doi.org/10.1080/13698575.2022.2104222","url":null,"abstract":"Cancer is a disease that is imbued with notions of risk, with individuals expected to avoid ‘risky’ behaviours and act swiftly when symptoms indicating a risk of cancer emerge. Cancer symptoms, however, are often ambiguous and indicative of a number of other conditions, making it difficult for people to assess when symptoms may, or may not, be the result of cancer. Here, we discuss interview data from a study examining the symptom appraisal and help-seeking experiences of patients referred for assessment of symptoms suspicious of a lung or colorectal cancer in the North-East of England. We explore how individuals draw upon ideas about cancer risks to assess whether cancer may be a possible explanation for their symptoms and to inform their decisions about help-seeking. In our analysis, we applied the concept of candidacy to the data, to highlight how lay epidemiology shapes people’s perceptions of cancer risk, and their subsequent responses to it. We found that participants appraised their symptoms, and the likelihood that they may have cancer, in light of relevant information on risk. These sources of information related to lifestyle factors, family history of cancer, environmental factors, and importantly, the symptomatic experience itself, including the absence of symptoms that participants associated with cancer. The importance of experienced, and absent, symptoms was a core element of participants’ everyday constructions of the ‘cancer candidate’, which informed symptom appraisal and subsequent help-seeking decision-making.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"6 1","pages":"225 - 240"},"PeriodicalIF":2.1,"publicationDate":"2022-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86179400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘If you know the person, there are no risks’: ‘in-between’ strategies for reducing HIV sexual risk among young sub-Saharan migrants living in Switzerland","authors":"Laura Mellini, Francesca Poglia Mileti","doi":"10.1080/13698575.2022.2105309","DOIUrl":"https://doi.org/10.1080/13698575.2022.2105309","url":null,"abstract":"In the past decade, theoretical essays have criticised the dichotomy of rational and irrational strategies for managing risk as neglecting an entire range of strategies that individuals mobilise in everyday life. Neither completely rational nor irrational, ‘in-between’ strategies rely on the use of knowledge and previous experiences, as well as trust, intuition, and emotion. Drawing on data from a multidisciplinary (sociology and sociolinguistics) and multimethod (in-depth interviews and focus-group discussions) qualitative research conducted in 2016–2018 among young sub-Saharan migrants living in Switzerland, this article explores the potential of, and provides empirical relevance for, the concept of in-between strategies in HIV/AIDS research. We argue that strategies for managing HIV sexual risk may not be fully rational, because individuals mobilise them in their social interactions. Indeed, from a sociological perspective sexual activity is a social experience that involve attitudes, practices, intimate relationships, and emotions. Strategies for managing HIV sexual risk depend on power relations between partners, as well as on the social competences and resources of each partner. We found that young sub-Saharan migrants use in-between strategies, which involve rationalisation, knowledge, experience, feelings, and emotions. Our findings highlighted five types of HIV sexual risk-reduction strategies: consistent condom use, HIV testing before discontinuing condom use, selection of partners and investigation of their sexual history, the feeling of familiarity with a partner, and commitment and trust in intimate relationships. Our analysis showed that the in-between strategies concept is particularly useful for capturing the complexity of social processes involved in individuals’ HIV sexual risk management.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"12 1","pages":"277 - 296"},"PeriodicalIF":2.1,"publicationDate":"2022-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88866875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What is more dangerous – the disease, the vaccine or the government? Using governmentality theory to understand vaccine hesitancy among Israeli citizens in times of corona","authors":"Yael Keshet, Ariela Popper-Giveon","doi":"10.1080/13698575.2022.2104223","DOIUrl":"https://doi.org/10.1080/13698575.2022.2104223","url":null,"abstract":"The Covid-19 pandemic and the introduction of the Covid-19 vaccine presented a rare opportunity to study risk perceptions that underline vaccine hesitancy and refusal (VHR). Drawing on Foucault’s governmentality theory, we aimed at studying the risk perceptions that underlie VHR in Israel by ascertaining why people decided not to be vaccinated against Covid-19. At the beginning of 2021, we conducted 20 semi-structured in-depth interviews with Israelis who decided not to be vaccinated against Covid-19. The interviews reveal a pervasive resistance to biopower. The interviewees believe that the Israeli government is driven by political interests and mistrust its collaboration with the big pharma companies that are suspected of furthering their own financial interests. Their mistrust manifests in allegations that the government conceals and manipulates data, and makes decisions in a non-transparent manner. The interviewees resist the Israeli government’s dangerous coercion and mistrust of its risk discourse. They express inverse risk considerations, perceiving the vaccine to be potentially dangerous, and the disease as less dangerous. Covid-19 VHR in Israel in particular, can be seen as resistance to perceived biopower, biopolitics, and bioeconomy, alongside a deconstruction of experts’ calculated risk that leads one back into uncertainty. In general, examining risk perceptions associated with vaccines through the lens of governmentality theory can help to better understand VHR, as well as other reactions to situations of risk, and to illustrate how people’s bodies become an arena for exercising power and negotiating risks.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"22 1","pages":"208 - 224"},"PeriodicalIF":2.1,"publicationDate":"2022-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81855984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Situating HIV risk in barbershops: accounts of knowledge and practices from barbers in Nigeria","authors":"Ediomo-ubong E. Nelson, O. Umoh","doi":"10.1080/13698575.2022.2091752","DOIUrl":"https://doi.org/10.1080/13698575.2022.2091752","url":null,"abstract":"This study explores the contextual factors mediating HIV transmission risk in barbershops using qualitative data from in-depth interviews with barbers (n = 16) in Nigeria. Barbers were aware of individual-level risk factors for HIV transmission. Accounts highlighted individualisation of risk responsibility, wherein the decisions and actions of individual barbers were seen as primary determinants of risk, while overlooking the role of factors beyond the individual in the production of risk. The implementation of HIV prevention measures (such as sterilisation of barbering equipment) was impeded by social and structural factors such as income insecurity and pressure and demands from clients. These exogenous factors interacted with individual-behavioural ones (fatigue, delay in restocking disinfectants) to create a risk environment for HIV transmission in barbershops. Barbers chose between competing risks when making decisions about HIV prevention. Concerns about maximising income by serving more clients often trumped HIV prevention through sterilisation of equipment. These findings contribute further insights and nuances to an existing literature which shows that risk is a highly contextualised phenomenon that reflects the different impacts of structural forces on lived experiences. The findings highlight a need for models that bridge cognitive and lived dimensions of risk understanding to optimise HIV prevention in barbershops.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"32 1","pages":"241 - 257"},"PeriodicalIF":2.1,"publicationDate":"2022-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87953340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katie Margavio Striley, Kelly E. Tenzek, Kimberly Field-Springer
{"title":"Difficult dialogues about death: applying risk orders theory to analyse chaplains’ provision of end-of-life care","authors":"Katie Margavio Striley, Kelly E. Tenzek, Kimberly Field-Springer","doi":"10.1080/13698575.2022.2056582","DOIUrl":"https://doi.org/10.1080/13698575.2022.2056582","url":null,"abstract":"Understandings of risk permeate end-of-life (EOL) care contexts. In addition to the risk of bodily death, patients, family and healthcare providers face spiritual and communication risks during EOL care. The Western biomedical healthcare model is an objectivist, curative framework focusing on fixing the body; this cultural notion limits communication regarding physical illness. Existing work argues that Americans’ reticence to discuss EOL can be considered a public health issue, due to high financial and relational costs, lack of education about treatment options, and avoidance of EOL discussions until decisions must be made during health crises. The current study applied risk orders theory in analysing chaplains’ experiences of EOL care in the US, where medical practice is dominated by biomedical health models. Risk orders theory is used to examine risk discourses from a social constructionist perspective in response to dominant objectivist approaches to risk. The current study expands conceptions of third-order risks through exploration of the chaplaincy profession. Analysis of chaplain qualitative interviews and focus groups, totalling 48 participants across the US, suggest chaplains possess the potential to reframe cultural discourses about death and reinvigorate cultural imagination surrounding EOL care.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"67 1","pages":"167 - 185"},"PeriodicalIF":2.1,"publicationDate":"2022-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80898631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Problematising older motherhood in Canada: ageism, ableism, and the risky maternal subject","authors":"F. Scala, Michael Orsini","doi":"10.1080/13698575.2022.2057453","DOIUrl":"https://doi.org/10.1080/13698575.2022.2057453","url":null,"abstract":"This article examines how older motherhood and older mothers are problematised and represented in key Canadian policy texts on ‘delayed childbearing’ and ‘advanced maternal age’. Drawing on critical disability studies and feminist scholarship on motherhood, we identify three kinds of representations of older mothers in these texts: as risk-producing subjects, as unnatural mothers, and as irresponsible reproductive citizens. We argue that dominant discourses of older motherhood are structured by both ageism and ableism, which undergird policy documents. These discourses frame older women as disabled by the ‘burden’ of late parenthood and cast them as risky subjects who might give birth to ‘abnormal’ offspring. Within this discursive terrain, older women are not only othered: they are held responsible for their infertility and for their reduced propensity to reproduce ‘healthy,’ non-disabled offspring.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"4 1","pages":"149 - 166"},"PeriodicalIF":2.1,"publicationDate":"2022-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78340951","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"‘The ones who die are lost and the survivors are what we have’: neoliberal governmentality and the governance of Covid-19 risk in social media posts in Turkey","authors":"S. Atalay","doi":"10.1080/13698575.2022.2056583","DOIUrl":"https://doi.org/10.1080/13698575.2022.2056583","url":null,"abstract":"Abstract This study focuses on understanding and explaining the technologies that affect the governance of the risk of Covid-19 in Turkey. To assess how this risk is governed by individuals, the study focuses on discussions around this disease within a Turkish Facebook group. The aim is to understand how individuals conduct themselves and establish norms of conduct against the risk of illness that, in this case of an infectious disease, involves governing the self while managing others. The results show that the discourse created around the governance of infection risk is very much in line with notions of neoliberal governmentality, individual responsibility, citizens as consumers, and individuals as entrepreneurs. Governing the risk of Covid-19 is related to prevalent ways of prioritising or recognising economic explanations, and cost calculation and assessment of successful governance using quantifiable variables, such as the number of new cases and deaths. Concepts like herd immunity and natural selection are open to discussion. Individuals who believe that the government is primarily responsible for risk governance assert that they are paying taxes and advocate that, disciplinary measures should be taken by the government, whereas the opposing view states that individuals are responsible for the governance of Covid-19 risk. We interpret both these opposing views as illustrating neoliberal governmentality and representing contractual and familial state–citizen relationships.","PeriodicalId":47341,"journal":{"name":"Health Risk & Society","volume":"53 1","pages":"127 - 148"},"PeriodicalIF":2.1,"publicationDate":"2022-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78167842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}