American Journal of Health Education最新文献_第7页

Development of Efficacy-Enhanced Heart Failure Rehabilitation Patient Education Materials for Health Behavior Change 提高心力衰竭康复病人健康行为改变教育教材之开发

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American Journal of Health Education Pub Date : 2023-06-14 DOI: 10.1080/19325037.2023.2209751

A. Suhaimi, T. Chung

{"title":"Development of Efficacy-Enhanced Heart Failure Rehabilitation Patient Education Materials for Health Behavior Change","authors":"A. Suhaimi, T. Chung","doi":"10.1080/19325037.2023.2209751","DOIUrl":"https://doi.org/10.1080/19325037.2023.2209751","url":null,"abstract":"ABSTRACT Background Patient education materials (PEMs) are often used in health education programs to empower patients to self-manage their disease for better health outcomes. Heart failure (HF) patients wanted more information about self-management and educational materials that were easy to understand. Programs with self-efficacy as the core component have proven to be effective in improving patients’ self-management. Purpose To develop practical, efficacy-enhanced, tailored HF rehabilitation PEMs that satisfy our clients to drive long-lasting behavior change and evaluate the materials’ quality (readability, understandability, actionability, and acceptability). Methods Exploratory mixed methods study involving: i) semi-structured interviews; ii) evaluation of the PEMs; iii) revision and reevaluation of the PEMs; iv) publication. An appointed panel of experts evaluates content accuracy, understandability, and actionability. The Patient Education Material Assessment Tool assesses content understandability and actionability. The content readability was assessed using Flesch Kincaid Calculator. Clients’ acceptability was assessed using Educational Material Acceptability tool. Results The newly developed PEMs have good understandability, actionability, readability, and acceptance. Discussion Patient-centered PEMs have good acceptance and satisfaction among clients. However, the effectiveness of tailored efficacy-enhanced PEMs for behavior changes needs further evaluation. Translation to Health Education Practice All stakeholders should be included in developing PEMs. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"282 - 304"},"PeriodicalIF":1.0,"publicationDate":"2023-06-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44808520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adaptation Processes of Survivors and Informal Caregivers after Stroke: A Scoping Review through the Lens of Educational Sciences 脑卒中后幸存者和非正式照顾者的适应过程：教育科学视野下的回顾

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American Journal of Health Education Pub Date : 2023-06-02 DOI: 10.1080/19325037.2023.2209614

A. Moura, Patrícia Magalhães, S. Pais, E. Alves

{"title":"Adaptation Processes of Survivors and Informal Caregivers after Stroke: A Scoping Review through the Lens of Educational Sciences","authors":"A. Moura, Patrícia Magalhães, S. Pais, E. Alves","doi":"10.1080/19325037.2023.2209614","DOIUrl":"https://doi.org/10.1080/19325037.2023.2209614","url":null,"abstract":"ABSTRACT Background Systematic knowledge about stroke adaptation can be a useful tool to develop evidence-based policies and practices centered on survivors and informal caregivers. Purpose This scoping review summarizes the body of knowledge about the adaptation processes after stroke. Methods Based on PRISMA-ScR guidelines, databases were searched, in November 2021, and 14 studies were included. The qualitative findings were inductively synthesized. The quantitative results were included in the taxonomy of categories and themes of the qualitative analysis. Results The adaptation processes after stroke are constituted by psychosocial and structural adaptation. The emotional distress, the use of emotional-based coping strategies, the received social support, the role and relationship changes, and the social participation were central factors of the psychosocial adaptation. Regarding the structural adaptation, the use of problem-solving based coping strategies; the centrality of the caregiving role; the learning processes; and the changes in daily life activities were reported. Discussion Health education research and interventions after stroke should consider the role of adaptative coping strategies, social support networks and services, and long-term educational policies. Translation to Health Education Practice: This work will assist Health educators and researchers to deeper understand the adaptation after stroke, identify knowledge gaps, and define further research issues.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"305 - 316"},"PeriodicalIF":1.0,"publicationDate":"2023-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43885308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Inequalities in Communicating about Nutrition Information during Prenatal Care: The After-Visit Summary 产前护理期间营养信息沟通的不平等:访后总结

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American Journal of Health Education Pub Date : 2023-06-02 DOI: 10.1080/19325037.2023.2209625

M. JaKa, Maren S. G. Henderson, Jennifer M. Dinh, R. Rivard, Julia Andersen, Corinne Brown-Robinson, T. Kottke, J. Ziegenfuss

{"title":"Inequalities in Communicating about Nutrition Information during Prenatal Care: The After-Visit Summary","authors":"M. JaKa, Maren S. G. Henderson, Jennifer M. Dinh, R. Rivard, Julia Andersen, Corinne Brown-Robinson, T. Kottke, J. Ziegenfuss","doi":"10.1080/19325037.2023.2209625","DOIUrl":"https://doi.org/10.1080/19325037.2023.2209625","url":null,"abstract":"ABSTRACT Background Though prenatal nutrition information is critical, it is not known whether information is shared equitably by patient race, financial security, or English proficiency. Purpose To evaluate whether delivery or receipt of ChooseYourFish.org nutrition information in the first prenatal visit differed by patient demographics. Methods Analysis of clinician-document electronic health record (EHR) or patient-reported surveys compared delivery and receipt of fish-related nutrition information in the first prenatal visit. Inferential statistics were used to compare delivery or receipt and race, ethnicity, payor, or interpreter use. Results EHR analysis (n = 2,329) revealed Medicaid patients who used an interpreter were half as likely to have the fish nutrition message in their after-visit summary compared to those with Medicaid who did not use an interpreter (OR = 0.54, 95% CL: 0.35–0.84). The same was not true for non-Medicaid patients. Survey analysis (n = 52) showed respondents identifying as Black or African American were 25% less likely to report receiving the after-visit summary compared to respondents who identified as white (p < .01). Discussion The results presented here illustrate how nutrition communication in the prenatal period can differ by patient race, financial security, and language. Translation to Health Education Practice: Culturally humble efforts to understand drivers of healthcare communication are needed to eliminate inequalities. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"275 - 281"},"PeriodicalIF":1.0,"publicationDate":"2023-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46357712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

The Mango Model: Best Practices in the Creation of a COVID-19 Open Data Project Through a Partnership with Google Health and the Non-Profit FinMango 芒果模式:通过与b谷歌Health和非营利组织FinMango合作创建COVID-19开放数据项目的最佳实践

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American Journal of Health Education Pub Date : 2023-06-01 DOI: 10.1080/19325037.2023.2209620

O. Wahltinez, Scott Glasgow, Aurora Cheung, James F. Glasgow, Martin Noguera, James W. Glasgow, P. Hoalt

{"title":"The Mango Model: Best Practices in the Creation of a COVID-19 Open Data Project Through a Partnership with Google Health and the Non-Profit FinMango","authors":"O. Wahltinez, Scott Glasgow, Aurora Cheung, James F. Glasgow, Martin Noguera, James W. Glasgow, P. Hoalt","doi":"10.1080/19325037.2023.2209620","DOIUrl":"https://doi.org/10.1080/19325037.2023.2209620","url":null,"abstract":"ABSTRACT This article addresses the issue of accessibility related to collecting and publishing Open Data for COVID-19, and suggestions for using the finalized project data in addressing lifestyle behaviors that will inform Health Educators in differing agencies when developing programs for prevention and management of COVID-19. The Mango Model, based on evidence from a COVID-19 Open Data Project was funded by Google Health in partnership with the nonprofit FinMango. First, the purpose and background for the creation of the Open Data Project are provided. Second, outreach to various agencies is addressed. Third, differing methodologies used by agencies for collecting, organizing, automating, and publishing subnational were observed. Fourth, implications for organizations regarding practice, policy and research are discussed. The Google Health and FinMango COVID-19 Open Data Project reinforces the need for a universal standard for publishing open data with consistent reporting. Through the creation of the project, the Mango-Model offers best practices and solutions for universally releasing types of data to assist public health professionals, researchers, policymakers, and others in health-related fields in understanding and managing the virus, and in the mobilization of resources in future responses to local and global need.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"259 - 264"},"PeriodicalIF":1.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46561414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Examining Health Promotion Theories, Limitations, and Lessons Learned for HPV Vaccination Interventions among College Students in the United States: A Systematic Literature Review 美国大学生HPV疫苗接种干预的健康促进理论、局限性和经验教训:系统文献综述

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American Journal of Health Education Pub Date : 2023-04-10 DOI: 10.1080/19325037.2023.2187486

Lea Sacca, George Doumat, Alaa Rihan, Jonathan Maroun, C. Ejezie

{"title":"Examining Health Promotion Theories, Limitations, and Lessons Learned for HPV Vaccination Interventions among College Students in the United States: A Systematic Literature Review","authors":"Lea Sacca, George Doumat, Alaa Rihan, Jonathan Maroun, C. Ejezie","doi":"10.1080/19325037.2023.2187486","DOIUrl":"https://doi.org/10.1080/19325037.2023.2187486","url":null,"abstract":"ABSTRACT Background Despite the availability of health resources such as immunizations on campus, HPV vaccination rates in college students remain low with existing gender disparities in HPV vaccine uptake. Purpose The purpose of this systematic review was to identify common limitations to HPV vaccination interventions among college students, utilized health promotion theories that have been reported to improve HPV vaccination rates among the population of interest, and lessons learned from intervention outcomes. Methods The review team consisted of a group of researchers with medical and/or public health backgrounds who are experts in the assessment, development, implementation, and evaluation of HPV vaccination interventions for US college students. The Arksey and O’Malley framework methodology guided the review. Results Out of the 21 included studies, only 16 utilized health promotion theories and/or models to disseminate and implement the research intervention, with the most common theory being the Health Belief Model (HBM) (n = 7). A total of 50 limitations were identified from 19 studies and classified accordingly. Discussion Results may contribute to a broader understanding of major limitations to consider when designing HPV vaccination initiatives in college settings. Translation to Health Education Practice Different NCHEC areas were applied in the design and administration of this study.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"179 - 197"},"PeriodicalIF":1.0,"publicationDate":"2023-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47571073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Financial and Demographic Factors Associated with Cooking Self-Efficacy Among College Students from Three Minority Groups 经济和人口因素与三个少数民族大学生烹饪自我效能感的关系

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American Journal of Health Education Pub Date : 2023-04-10 DOI: 10.1080/19325037.2023.2187485

J. Enríquez, D. Ader

{"title":"Financial and Demographic Factors Associated with Cooking Self-Efficacy Among College Students from Three Minority Groups","authors":"J. Enríquez, D. Ader","doi":"10.1080/19325037.2023.2187485","DOIUrl":"https://doi.org/10.1080/19325037.2023.2187485","url":null,"abstract":"ABSTRACT Background There are many socio-environmental factors that can limit cooking self-efficacy among university students, where minorities are usually neglected. Purpose To identify the dynamics of income source and money expenditure with cooking self-efficacy of three university minority groups. Methods For this cross-sectional study, recruitment was between October and November 2019, via online survey through Qualtrics platform. A total of 2817 participants completed the survey online which provided data from cooking self-efficacy (20 points scale), money expenditure and financial issues. Results An average of 13.5 was found as cooking self-efficacy. Four of the independent variables: first generation, internationals, age, and employment status show significative relationship (<0.01) with cooking self-efficacy. Discussion This study supports the importance of prioritizing university minority groups, helping to understand their financial support and how they distribute it when managing and prioritizing their finances. Moreover, each group faces different limitations in terms of what the construction of these skills encompasses. Translation to Health Education Practice The findings present in this study are significant for health education specialist focused on identifying factors that impact priority populations.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"169 - 178"},"PeriodicalIF":1.0,"publicationDate":"2023-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48555644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of a Behavior-and Age-Specific Nutrition Education Intervention to Promote Nutrition Knowledge and Preference for Fruits and Vegetables among Elementary School Children 行为和年龄特异性营养教育干预对小学生营养知识和水果蔬菜偏好的影响

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American Journal of Health Education Pub Date : 2023-04-05 DOI: 10.1080/19325037.2023.2186982

S. Saha, M. Murimi, W. Oldewage-Theron

{"title":"Effectiveness of a Behavior-and Age-Specific Nutrition Education Intervention to Promote Nutrition Knowledge and Preference for Fruits and Vegetables among Elementary School Children","authors":"S. Saha, M. Murimi, W. Oldewage-Theron","doi":"10.1080/19325037.2023.2186982","DOIUrl":"https://doi.org/10.1080/19325037.2023.2186982","url":null,"abstract":"ABSTRACT Background Lack of nutrition knowledge, low preference for fruits and vegetables (F&V), and underdeveloped taste are recognized as modifiable influencers of children’s F&V intake. Purpose To assess the effectiveness of a behavior-and age-specific nutrition education intervention to improve nutrition knowledge and preference for F&V among elementary school children. Methods In a quasi-experimental pre-and posttest assessment designed study, a six-week nutrition education intervention (including class-based nutrition education, hands-on activities, cooking demonstrations, and tasting) was implemented at four elementary schools. Nutrition knowledge and preference for F&V were evaluated at baseline and after the intervention. Wilcoxon signed-rank test was carried out to examine the differences between baseline and post-assessment. Results A total of 115 children (3rd- 5th grade) completed both baseline and post-assessment. After the intervention, participants showed a significant improvement in nutrition knowledge (mean [± sd] change score: 7.6 ± 3.7, P < .001). A significant improvement in F&V preference (Ps < .001) was found among the participants after the intervention. Discussion An age-and behavior-focused nutrition education intervention can improve children’s nutrition knowledge and F&V preference. Translation to Health Education Practice: This nutrition education curriculum can be implemented for the child population (age-specific groups) by adapting cultural priorities in nutrition lessons and cooking recipes. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"198 - 208"},"PeriodicalIF":1.0,"publicationDate":"2023-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47805175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Experience of Spanish-Speaking Latinos in Maintaining Dietary and Physical Activity Changes after the National Diabetes Prevention Program 西班牙语拉丁美洲人在国家糖尿病预防计划后保持饮食和体育活动变化的经验

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American Journal of Health Education Pub Date : 2023-04-05 DOI: 10.1080/19325037.2023.2187487

Taynara Formagini, Jarron M. Saint Onge, M. O’Brien, M. Ramírez, J. Brooks

{"title":"The Experience of Spanish-Speaking Latinos in Maintaining Dietary and Physical Activity Changes after the National Diabetes Prevention Program","authors":"Taynara Formagini, Jarron M. Saint Onge, M. O’Brien, M. Ramírez, J. Brooks","doi":"10.1080/19325037.2023.2187487","DOIUrl":"https://doi.org/10.1080/19325037.2023.2187487","url":null,"abstract":"ABSTRACT Background The impact of the National Diabetes Prevention Program (N-DPP) for Latinos post-program participation is uncertain. Purpose We examine the experiences of Latinos who participated in the N-DPP in continuing the dietary and physical activity changes learned in the program. Methods This is a qualitative descriptive interview study. We recruited 19 Latino adults who participated in a culturally and linguistically adapted N-DPP. Thematic analysis was used to analyze the data and report emerging themes. Results Participants discussed how the program improved their knowledge about healthier lifestyles, and shared specific tools and strategies that they used to maintain learned program behaviors. Factors related to discontinuation of behaviors included missing the group social support, losing commitment over time, and avoiding family conflict. Maintenance of behaviors was mainly facilitated by family support. Discussion Our study suggests that Latinos who participated in the N-DPP gained useful knowledge on healthier behaviors and learning strategies for implementation into their lifestyle, but barriers remain. Translation to Health Education Practice Adaptations of the program for Latinos should consider the important roles of family and social support to improve N-DPP outcomes for this group and better support Latinos in preventing diabetes.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"224 - 232"},"PeriodicalIF":1.0,"publicationDate":"2023-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45663950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Can We Make the Collegiate Personal Health Course More Relevant and Applicable? 我们能让大学个人健康课程更具相关性和适用性吗？

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American Journal of Health Education Pub Date : 2023-03-31 DOI: 10.1080/19325037.2023.2186983

Kristen Brewer, R. Mcdermott, Kadi Bliss, J. McDaniel, Mallory Gary, Peter J. Fadde

{"title":"Can We Make the Collegiate Personal Health Course More Relevant and Applicable?","authors":"Kristen Brewer, R. Mcdermott, Kadi Bliss, J. McDaniel, Mallory Gary, Peter J. Fadde","doi":"10.1080/19325037.2023.2186983","DOIUrl":"https://doi.org/10.1080/19325037.2023.2186983","url":null,"abstract":"ABSTRACT Background Many institutions offer introductory personal health courses to fulfill a general requirement; however, gaps may exist regarding health education and information students receive and what they find relevant to their lives. Purpose Identification of topics of salience/relevance to college students in introductory personal health courses, including delivery improvement recommendations. Methods We interviewed students (ages 18–25) who completed an introductory personal health course. MAXQDA© was used for organizing codes and themes responsive to research questions. Results Emergent themes related to mental health, exercise, nutrition, stress, sexual health, and alcohol substance use were uncovered. Students preferred interactive learning and harm reduction approaches to passive learning. Discussion A disconnect exists between students’ interests and what is taught. Formats for presenting topics alienated students, making them feel judged if pursuing questions. The gap between the product desired and that delivered occurred across delivery platforms, syllabi, and textbooks. Translation to Health Education Practice: We heard praise for examples of active, skills-based learning. Students were eager to improve content and delivery and enumerated examples of how to make courses more relevant and applicable. Instructors may need to be better prepared in content, pedagogy, and health-based philosophy to accommodate the diverse student population at collegiate institutions. A AJHE Self-Study quiz is online for this article via the SHAPE America Online Institute (SAOI) http://portal.shapeamerica.org/trn-Webinars.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"209 - 223"},"PeriodicalIF":1.0,"publicationDate":"2023-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43853010","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers 部分图片，没有框架:测量囊性纤维化护理者的生活质量

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American Journal of Health Education Pub Date : 2023-03-31 DOI: 10.1080/19325037.2023.2186984

W. Nesser, Eun-Hye Grace Yi, Amy J. Wotring, M. Hutchins, Scott W. Snyder

{"title":"A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers","authors":"W. Nesser, Eun-Hye Grace Yi, Amy J. Wotring, M. Hutchins, Scott W. Snyder","doi":"10.1080/19325037.2023.2186984","DOIUrl":"https://doi.org/10.1080/19325037.2023.2186984","url":null,"abstract":"ABSTRACT Background Significant advances in the treatment of Cystic Fibrosis (CF) have extended life expectancy, increasing the number of CF caregivers who deliver demanding daily treatment regimens and manage uncertainty. With the impact these changes have on CF caregivers, it is critical to understand CF caregiver quality of life (QoL). Purpose To examine how QoL is measured in CF caregiver research and identify which QoL domains from the World Health Organization (WHO) framework are represented in CF caregiver QoL outcomes. Methods Literature published from 2003 to the present was searched to identify all relevant articles in online academic databases related to measurement of CF caregiver QoL. Results Findings suggest there is inconsistency within QoL measurement with CF caregivers and no existing scale accounts for all aspects of CF caregiver QoL from the WHO’s framework. Discussion The disconnect between how CF caregiver QoL is measured and how it is defined presents a challenge in utilizing information gleaned to best provide targeted and relevant services and resources to CF caregivers. Translation to Health Education Practice: A better understanding of caregiver QoL across all WHO domains will allow development of targeted programs to adequately address challenges for CF caregivers.","PeriodicalId":46846,"journal":{"name":"American Journal of Health Education","volume":"54 1","pages":"233 - 241"},"PeriodicalIF":1.0,"publicationDate":"2023-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44844092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1