{"title":"Tribal IRBs: A Framework for Understanding Research Oversight in American Indian and Alaska Native Communities.","authors":"Deana Around Him, Temana Andalcio Aguilar, Anita Frederick, Heather Larsen, Michaela Seiber, Jyoti Angal","doi":"10.5820/aian.2602.2019.71","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.71","url":null,"abstract":"<p><p>Tribal Institutional Review Boards (IRBs) and other entities that oversee research for American Indians and Alaska Natives are important and unique. They reflect and respond to community needs, changes in research, and revisions to research policy. We provide a framework to capture this dynamism by building on existing work and offering a way to describe the scope of entities that oversee tribal research. As federal research regulations are revised, and policies are developed in response to a rapidly advancing research landscape, it is critical that policy makers, IRB professionals, researchers, and tribal communities have clarity regarding the Tribal IRB.</p>","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"26 2","pages":"71-95"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139404734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Francene Larzelere, L. Tingey, Allison Ingalls, Feather Sprengeler, S. Parker, S. Rosenstock, L. Jennings, Mariddie J Craig, V. O’Keefe, A. Barlow
{"title":"Evaluation of an Entrepreneurship Education Intervention for American Indian Adolescents: Trial Design and Baseline Sample Characteristics.","authors":"Francene Larzelere, L. Tingey, Allison Ingalls, Feather Sprengeler, S. Parker, S. Rosenstock, L. Jennings, Mariddie J Craig, V. O’Keefe, A. Barlow","doi":"10.5820/aian.2603.2019.1","DOIUrl":"https://doi.org/10.5820/aian.2603.2019.1","url":null,"abstract":"Entrepreneurship education is a strength-based approach and holds promise for promoting health equity for American Indian youth. Arrowhead Business Group (ABG) was developed by a tribal-academic research partnership and is being rigorously evaluated for impacts on psychosocial, behavioral, educational, and economic outcomes. This article describes: 1) the trial design and conceptual model under-girding the ABG program; 2) the sociodemographic, sociocultural, and family/household characteristics of participants at baseline; and 3) the baseline differences in key outcome indicators between study groups. Results demonstrate participants have baseline characteristics appropriate for study aims and are compared and contrasted with other youth from the participating tribal community and state in which the tribe resides. Findings inform future analyses to explore how baseline characteristics are associated with primary and secondary outcomes of the evaluation.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"20 1","pages":"1-20"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74853396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
J. Gray, Lisa T Schrader, Devon S Isaacs, Megan K Smith, N. M. Bender
{"title":"Wac'inyeya: Hope Among American Indian Youth.","authors":"J. Gray, Lisa T Schrader, Devon S Isaacs, Megan K Smith, N. M. Bender","doi":"10.5820/aian.2602.2019.151","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.151","url":null,"abstract":"This article examines what gives American Indian youth hope. The project included 56 rural tribal youth in focus groups across a Northern Plains reservation. The participants completed a Youth Personal Balance Tool to provide perspective on the balance according to a medicine wheel model of their lives. The focus groups asked questions from a strengths-based perspective about what gives them hope and how they could show others they were hopeful. The project culminated with the youth developing creative representations of hope and presenting these projects to family and community.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"6 1","pages":"151-171"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77893935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa Buffalo, Jessica E. Heinzmann, D. Kenyon, Kathryn Blindman, S. Bordeaux, Anita Frederick, Erin Garrison, C. Greensky, Heather Larsen, Tonya Kjerland, Victoria Grey Owl
{"title":"Not a One-Size-Fits-All Approach: Building Tribal Infrastructure for Research Through CRCAIH.","authors":"Melissa Buffalo, Jessica E. Heinzmann, D. Kenyon, Kathryn Blindman, S. Bordeaux, Anita Frederick, Erin Garrison, C. Greensky, Heather Larsen, Tonya Kjerland, Victoria Grey Owl","doi":"10.5820/aian.2602.2019.42","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.42","url":null,"abstract":"The Collaborative Research Center for American Indian Health (CRCAIH) was created to foster tribal partnerships in the Minnesota, North Dakota, and South Dakota regions to increase capacity for tribal research. Since 2013, through community engagement and technical assistance from CRCAIH's cores and divisions, seven tribal partners have expanded research infrastructure and recognize the benefits of an established tribal research office. This manuscript showcases the unique approaches individual CRCAIH tribal partners have taken to build tribal research infrastructure. The unique experiences of the CRCAIH tribal partnership holds valuable lessons for other tribes interested in increasing research capacity through research review, regulation, and data management.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"17 1","pages":"42-70"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84443894","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
R. O'Leary, L. McCormack, Corrine Huber, C. Hockett, Alli Moran, J. Pesicka
{"title":"Developing the Tribal Resource Guide and the Poverty and Culture Training: The We RISE (Raising Income, Supporting Education) Study.","authors":"R. O'Leary, L. McCormack, Corrine Huber, C. Hockett, Alli Moran, J. Pesicka","doi":"10.5820/aian.2602.2019.134","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.134","url":null,"abstract":"The We RISE Study aimed to support young American Indian mothers on a tribal reservation by addressing social determinants of health at an individual and community-wide level. To address community-based barriers, the study developed the Tribal Resource Guide, a comprehensive list of available resources that was created through partnerships with community programs and staff. In addition to the guide, the study also developed the Poverty and Culture Training in order to train program staff at numerous community programs to better understand and serve lower socioeconomic and/or Native clients. The two projects facilitated collaboration between community programs and provided tools for programs to address barriers and ultimately better serve their target audience. Despite challenges, the transdisciplinary approach used with the local community maximized potential for success. This process and model could be duplicated in communities with similar demographics, resources, and barriers.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"108 1","pages":"134-150"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85330353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Transdisciplinary Approach is Essential to Community-based Research with American Indian Populations.","authors":"Jessica E. Heinzmann, Anna C. Simonson, D. Kenyon","doi":"10.5820/aian.2602.2019.15","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.15","url":null,"abstract":"Social determinants of health and their effects on health outcomes create a complex system, with interaction between social, economic, physical, and biological factors necessitating research take a holistic approach. Transdisciplinary research, one of the three core values of the Collaborative Research Center for American Indian Health, seeks to go beyond methods of knowledge production occurring solely within disciplinary boundaries, because real-world societal problems do not adhere to such restrictions. Community involvement is an essential component for successful research partnerships with American Indian and Alaska Native (AI/AN) communities. We posit that transdisciplinary approaches, which considers community-level expertise as an equitable component on the research team, show great potential for advancing research in AI/AN communities.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"64 1","pages":"15-41"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83454456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Commentary: A Movement to Reclaim American Indian Health through Tribal Sovereignty, Community Partnerships, and Growing Tribally-Driven Health Research.","authors":"V. O’Keefe","doi":"10.5820/aian.2602.2019.172","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.172","url":null,"abstract":"Indigenous peoples have been engaged in resistance against the destructive effects of colonialism on Indigenous land, lives, all living things, and its impacts on the health and wellbeing of Native peoples since the first arrival of settlers in the Americas. This resistance, at its core, has been a movement to preserve Indigenous peoples, lands, identity, and ways of knowing, learning, respecting, and living harmoniously with the world. In the past half century, the spirit of Indigenous resistance has found its way to the field of health research. Starting with thoughtleaders like Vine Deloria Jr. in 1969, Indigenous scholars have pointed to problematic and harmful research practices that have taken place on tribal lands, and that have sought to expand the Western canon of scientific knowledge without providing solutions to, with, and for Indigenous communities. Since that time, a narrative around collective protection, collaborative research partnerships (i.e., community-based participatory research in all its forms), and tribal sovereignty over research is increasing rapidly. This special issue of American Indian and Alaska Native Mental Health Research takes a giant step forward – beyond a collective resistance against harmful research practices – to a reclamation of collaboration, Indigenous knowledge, strengths, and tribal sovereignty within health research. This group of articles highlights a diverse coalition of tribal communities, transdisciplinary health researchers, academic institutions, community organizations, service providers, and federal agencies that comprise the Collaborative Research Center for American Indian Health (CRCAIH; Kenyon et al., this issue). CRCAIH goals include improving AI health through strategic development of tribal research infrastructure and sustainability of health research with a focus on social determinants (Kenyon et al., this issue). Supported by the National Institutes of Health, the CRCAIH provides a promising pathway to eliminate health disparities among AI communities—Oglala Sioux Tribe, Turtle Mountain Band of Chippewa Indians, Fond du Lac Band of Lake Superior Chippewa, Sisseton-Wahpeton Oyate, Rosebud Sioux Tribe, Cheyenne River Sioux Tribe, and Spirit Lake Nation—in the Northern Plains and Upper Midwest regions.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"44 1","pages":"172-176"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89643811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
D. Kenyon, Melissa Buffalo, Jessica E. Heinzmann, M. Seiber, Dorothy M. Castille, A. Elliott
{"title":"The Collaborative Research Center for American Indian Health's Partnership River of Life: Special Issue Introduction.","authors":"D. Kenyon, Melissa Buffalo, Jessica E. Heinzmann, M. Seiber, Dorothy M. Castille, A. Elliott","doi":"10.5820/aian.2602.2019.1","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.1","url":null,"abstract":"In 2012, the National Institutes of Health funded the Collaborative Research Center for American Indian Health (CRCAIH) to work toward two broad goals: 1) to build tribal research infrastructure, and 2) to increase research on social determinants of health in American Indian communities. As the introduction to this special issue of American Indian and Alaska Native Mental Health Research, we highlight results from the Partnership River of Life evaluation tool in order to provide broader context for the other manuscripts presented here. Insights were gained during the Partnership River of Life group discussion and evaluation process of combining the groups' rivers to create one representation of the CRCAIH partnership. Detailed results underscore insights for similar transdisciplinary groups.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"9 1","pages":"1-14"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79383158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Developing an Indigenous Measure of Overall Health and Well-being: The Wicozani Instrument.","authors":"Heather J. Peters, Teresa R. Peterson","doi":"10.5820/aian.2602.2019.96","DOIUrl":"https://doi.org/10.5820/aian.2602.2019.96","url":null,"abstract":"A Native community developed the Wicozani Instrument, a 9-item self-report measure, to assess overall health and well-being from an Indigenous epistemology. The Wicozani Instrument measures mental, physical, and spiritual health and their importance to an individual's quality of life. The instrument's validity and reliability was examined through two studies. Study 1 utilized standardized measures from Native (i.e., Awareness of Connectedness Scale) and Western (i.e., Psychological Sense of School Membership and Suicide Ideation Questionnaire) epistemologies with Native and non-Native youth. Study 2 utilized a community created measure (i.e., Indigenous Healing Strategies Scale) with Dakota women. Results suggest the Wicozani Instrument is valid and reliable. The development of an Indigenous measure of overall health and well-being addresses Western atomistic frameworks, which often perpetuate the perception of Native identity as a risk factor for poor health, and works to disrupt the Cycle of Native Health Disparities.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"282 1","pages":"96-122"},"PeriodicalIF":1.3,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77119408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
C. Sawchuk, J. Russo, P. Roy-Byrne, J. Goldberg, R. Forquera, D. Buchwald
{"title":"Changes in Physical Activity Barriers among American Indian Elders: A Pilot Study.","authors":"C. Sawchuk, J. Russo, P. Roy-Byrne, J. Goldberg, R. Forquera, D. Buchwald","doi":"10.5820/aian.2401.2017.127","DOIUrl":"https://doi.org/10.5820/aian.2401.2017.127","url":null,"abstract":"The objective of the present study was to assess whether selfreported physical activity barriers could be reduced among American Indian elders who participated in a 6-week randomized physical activity trial that compared the use of a pedometer only to that of pedometers with step-count goal setting. Elders (N = 32) were compared on the Barriers to Being Physically Active Quiz after participating in a pilot physical activity trial. Elders were classified into high- and low-barrier groups at baseline and compared on self-reported physical activity, health-related quality of life, pedometer step counts, and 6-minute walk performance. At the conclusion of the 6-week trial, only the lack of willpower subscale significantly decreased. The low-barrier group reported significantly higher physical activity engagement and improved mental health quality of life than the high-barrier group. The groups did not differ on daily step counts or 6-minute walk performance. Additional research is needed with a larger sample to understand relevant activity barriers in this population and assess whether they can be modified through participation in structured physical activity and exercise programs.","PeriodicalId":46147,"journal":{"name":"American Indian and Alaska Native Mental Health Research","volume":"31 1","pages":"127-140"},"PeriodicalIF":1.3,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75093428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}