PROGRESS IN PALLIATIVE CARE最新文献_第2页

Volunteer experiences at a hospice for homeless individuals during the COVID-19 pandemic 新冠肺炎大流行期间无家可归者收容所的志愿者体验

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2023-08-27 DOI: 10.1080/09699260.2023.2241791

A. Kamimura, S. Panahi, Ashley Kang, K. C. Whitesitt, Jeanie Ashby, Jill Olmsted

{"title":"Volunteer experiences at a hospice for homeless individuals during the COVID-19 pandemic","authors":"A. Kamimura, S. Panahi, Ashley Kang, K. C. Whitesitt, Jeanie Ashby, Jill Olmsted","doi":"10.1080/09699260.2023.2241791","DOIUrl":"https://doi.org/10.1080/09699260.2023.2241791","url":null,"abstract":"Context Volunteers provide important social support for homeless people. While motivations of the volunteer population for homeless people have been studied, little is known about volunteers for a hospice targeting the homeless population. Objectives The purpose of this study is to describe volunteer experiences and motivation at a hospice for homeless people during the COVID-19 pandemic. Methods This study was conducted at a hospice for homeless individuals in Fall 2021. Data were collected by six virtual focus groups in November and December 2021. There were 21 participants. The recordings of the focus groups were automatically transcribed via ZOOM. The data were analyzed based on themes. Results This study has highlighted three main findings. First, honoring a loved one and being engaged in the community were two main reasons individuals began volunteering at the hospice center. Second, volunteers faced many challenges during the COVID-19 pandemic, including a slow start, increased use of technology, and constant change in volunteers’ responsibilities due to safety reasons. During this time however, volunteers felt much support from the program staff. Third, interactions with staff, other volunteers and residents were the main reasons driving volunteer motivation. Conclusions This project examined the under-studied subject of volunteers’ experiences at a hospice for homeless people and provided insight in this topic. While the COVID-19 pandemic affected volunteering at a hospice for homeless people, support from the program staff and leadership helped sustain volunteer motivation.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"1 1","pages":""},"PeriodicalIF":1.7,"publicationDate":"2023-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44898577","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A comparison of symptom management and utilization of specialist palliative care in the early COVID-19 pandemic: A multi-site retrospective chart review COVID-19大流行早期症状管理和专科姑息治疗应用的比较:一项多地点回顾性图表综述

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2023-08-08 DOI: 10.1080/09699260.2023.2241784

Madelaine Baetz-Dougan, J. Guan, B. Henry, K. Stilos, Desmond D. Leung, Niren Shetty, Shruti Gupta, A. Chakraborty

{"title":"A comparison of symptom management and utilization of specialist palliative care in the early COVID-19 pandemic: A multi-site retrospective chart review","authors":"Madelaine Baetz-Dougan, J. Guan, B. Henry, K. Stilos, Desmond D. Leung, Niren Shetty, Shruti Gupta, A. Chakraborty","doi":"10.1080/09699260.2023.2241784","DOIUrl":"https://doi.org/10.1080/09699260.2023.2241784","url":null,"abstract":"Background: COVID-19 is associated with high rates of morbidity and mortality. Previous work has described symptom management provided by specialists in palliative care for COVID-19 patients. However, there is a paucity of literature describing primary level palliative care provided by general internal medicine teams or reasons for referral to specialists. Objective: Our aim was to describe and compare the following outcomes for patients dying of COVID-19: (1) symptom management by acute care providers and palliative care specialists, and (2) utilization of palliative care consultation across two acute care hospitals in Toronto, Ontario during the onset of the COVID-19 pandemic. Methods: We undertook a retrospective chart review of 45 adult inpatients diagnosed with COVID-19 between 23 January 2020 to 19 May 2020 who died, and/or those who had a palliative care consultation. Findings: Forty-one of the 45 patients died. Common symptoms were shortness of breath and agitation. For these symptoms, pharmacologic management was not significantly different for patients seen by palliative care compared to those without consultation. Most consultations were for end-of-life care. There were significantly more palliative care consults for COVID-19 patients at one hospital (P=.001). Conclusion: The findings highlight the significant discrepancy in involvement of specialist palliative care between settings. More research is needed to validate the initial findings from this small sample size, understand the needs of palliative care providers in this setting, and appreciate the factors influencing consultation.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2023-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46674142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Differences in patients accessing inpatient versus outpatient palliative care at time of referral at a cancer centre 患者在癌症中心转诊时获得住院与门诊姑息治疗的差异

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2023-08-08 DOI: 10.1080/09699260.2023.2241798

David Marco, A. Collins, B. Le, J. Philip

{"title":"Differences in patients accessing inpatient versus outpatient palliative care at time of referral at a cancer centre","authors":"David Marco, A. Collins, B. Le, J. Philip","doi":"10.1080/09699260.2023.2241798","DOIUrl":"https://doi.org/10.1080/09699260.2023.2241798","url":null,"abstract":"Outpatient palliative care clinics are a new and developing area of service delivery that can respond to increasing demand and facilitate earlier contact in the illness trajectory. Work is needed to standardise the criteria for referral to outpatient palliative care services and clarify which patients are likely to benefit the most from this mode of support. This study aimed to describe the demographic, clinical and symptom profile, and survival of patients referred to a newly established hospital-based integrated palliative care program. Comparisons were made between patients initially seen as outpatients versus those seen as inpatients. A retrospective population was identified from routinely collected hospital admitted inpatient and ambulatory databases comprising adult cancer patients receiving a new referral to the service during a 6-month period. Patients were grouped into two cohorts according to the setting of their first palliative care assessment and followed to death or study censor date. During the study period, 473 new referrals were made comprising 229 (48%) patients initially seen as outpatients and 244 (52%) initially seen as inpatients. The outpatient cohort had higher performance status, experienced higher symptom burden, lived longer, had fewer inpatient admissions, and received earlier referral to palliative care resulting in greater palliative care involvement up to their death (all p < .05). Early palliative care can be effectively delivered by an outpatient palliative care service for cancer patients who are experiencing symptom burden but are otherwise functional. These cases lived longer and had fewer subsequent inpatient visits, demonstrating the preliminary effectiveness of this integrated service.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"293 - 299"},"PeriodicalIF":1.7,"publicationDate":"2023-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43978192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurses’ challenges in the end-of-life care of patients with COVID-19: A qualitative study 护士在COVID-19患者临终关怀中的挑战:一项定性研究

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2023-08-03 DOI: 10.1080/09699260.2023.2241785

Hadiseh Monadi Ziarat, M. Mardani-Hamooleh, N. Seyedfatemi, Akram Salamat

{"title":"Nurses’ challenges in the end-of-life care of patients with COVID-19: A qualitative study","authors":"Hadiseh Monadi Ziarat, M. Mardani-Hamooleh, N. Seyedfatemi, Akram Salamat","doi":"10.1080/09699260.2023.2241785","DOIUrl":"https://doi.org/10.1080/09699260.2023.2241785","url":null,"abstract":"The coronavirus disease 2019 (COVID-19) pandemic has brought rapid changes in end-of-life care for nurses and patients. The aim of this study was to explain the Iranian nurses’ perception of challenges in providing end-of-life care for patients with COVID-19. The present study is a qualitative research with content analysis approach. A total of 32 nurses participated in this study. Semi-structural and individual interviews were conducted. Nurses’ narratives indicated that, the challenges of end-of-life care of patients with COVID-19 can be classified in two categories of undesirable care and problems with family support. The category of undesirable care had two subcategories of low quality care and futile care. The category of problems with family support also had two subcategories of lack of family support at the time of hospitalization and lack of a support system for family after the patient's death. The health system, and in particular nursing managers, should strive to formulate clear rules and regulations and design the necessary protocols that are effective in addressing the nurses’ challenges in end-of-life care of COVID-19 patient.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"287 - 292"},"PeriodicalIF":1.7,"publicationDate":"2023-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47671976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Referral patterns and consultation locations for a novel palliative care telehealth service 新型姑息治疗远程医疗服务的转诊模式和咨询地点

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2023-01-07 DOI: 10.1080/09699260.2022.2160084

Taylan Gurgenci, Luke Nicholls, Sangitha Mensingh, A. Broadbent, Graham Grove

{"title":"Referral patterns and consultation locations for a novel palliative care telehealth service","authors":"Taylan Gurgenci, Luke Nicholls, Sangitha Mensingh, A. Broadbent, Graham Grove","doi":"10.1080/09699260.2022.2160084","DOIUrl":"https://doi.org/10.1080/09699260.2022.2160084","url":null,"abstract":"Background\u0000 The optimal location to conduct telehealth consultations for rural Australian palliative patients was unclear prior to starting a novel palliative telehealth service in Queensland. The present study sought to collect data which may suggest the best location for such consultations so that future service provision can be planned accordingly. \u0000 Methods\u0000 A retrospective review of the referral patterns and demographic data between March 2020 and November 2020 was undertaken with a focus on the number of referrals, location of consultations, and the source of referrals. \u0000 Results\u0000 153 referrals resulted in 526 unique consultations. All referrals in the first month came from the local public hospital. After 4 months, public hospital referrals and private family doctor referrals accounted for 30% and 50% respectively. The proportion of telehealth consultations delivered in the patient’s home increased throughout the eight-month period. There was no obvious relationship between referral source and consultation location. \u0000 Conclusion\u0000 The patient’s home was the preferred location for all specialist telehealth care and patient preference was the main determinant of consult location. Further research should involve qualitative analysis of these factors to optimize the delivery of this service and the design of other similar services.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"95 - 99"},"PeriodicalIF":1.7,"publicationDate":"2023-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47480543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative care needs assessment in patients with metastatic and locally advanced oesophageal cancer 转移性和局部晚期食管癌患者的姑息治疗需求评估

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2022-12-30 DOI: 10.1080/09699260.2022.2158287

Prarthna Jayaseelan, J. Deodhar, A. Ashok, S. Jiwnani, Jyothsna Kuriakose, Shamali Poojary

{"title":"Palliative care needs assessment in patients with metastatic and locally advanced oesophageal cancer","authors":"Prarthna Jayaseelan, J. Deodhar, A. Ashok, S. Jiwnani, Jyothsna Kuriakose, Shamali Poojary","doi":"10.1080/09699260.2022.2158287","DOIUrl":"https://doi.org/10.1080/09699260.2022.2158287","url":null,"abstract":"Background Palliative care plays an important role in improving symptom burden and quality of life for patients with incurable oesophageal cancers. There is a dearth of studies regarding palliative care needs in advanced oesophageal cancer patients. Aim To understand the unmet palliative care needs and the associated factors in advanced oesophageal cancer patients. Design We conducted a cross-sectional observational study. Study/Participants We recruited 50 patients in the Thoracic Oncology OPD in a tertiary cancer centre in Mumbai, India, who were newly diagnosed with locally advanced, unresectable, or metastatic Oesophageal Cancer. The recruited patients’ concerns were assessed using Needs Assessment Tool-Progressive Disease Cancer (NAT-PDC) and symptom burden was assessed using Edmonton Symptom Assessment Score (ESAS). A Chi-square test was performed for correlating different factors with some or significant concerns, considering p ≤ 0.05 as statistically significant. Results Oesophageal cancer patients had concerns in physical (94%), financial (94%), psychological (82%), sociocultural (76%), activities of daily living (70%) and spiritual (58%) domains. They had a high symptom burden, most common symptoms being dysphagia, pain and tiredness. Anxiety and depression were associated with higher psychological and spiritual concerns. Older age, female gender and low financial income were associated with higher levels of concerns. Caregivers were most concerned about their patients’ physical symptoms (94%) and financial issues (92%). Conclusion Patients with advanced oesophageal cancer have significant burden of unmet palliative care needs. This should trigger referrals to specialist palliative care for comprehensive care of patients and their caregivers.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"145 - 153"},"PeriodicalIF":1.7,"publicationDate":"2022-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42117390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Engagement and attitudes towards advanced care planning in primary care during COVID-19: A cross-sectional survey of older adults COVID-19期间初级保健对高级护理计划的参与和态度:一项针对老年人的横断面调查

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2022-12-30 DOI: 10.1080/09699260.2022.2152987

Matthew Bzura, H. Kubba, Steve West, Lori Schramm, A. Clay, Solveig Nilson

引用次数: 0

Parents’ experiences with prognosis communication in advanced pediatric cancers 父母在晚期儿童癌症预后沟通方面的经验

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2022-12-28 DOI: 10.1080/09699260.2022.2152169

A. Ghoshal, M. Muckaden, C. Garg, J. Iyengar, K. Ganpathy, A. Damani, J. Deodhar, T. Vora, G. Chinnaswamy

引用次数: 0

Open and structured assessment in addressing hospitalized cancer-related problems: The perception of patients and nurses in Indonesia 解决住院癌症相关问题的开放和结构化评估:印度尼西亚患者和护士的看法

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2022-12-05 DOI: 10.1080/09699260.2022.2148196

C. Effendy, M. S. Kristanti

{"title":"Open and structured assessment in addressing hospitalized cancer-related problems: The perception of patients and nurses in Indonesia","authors":"C. Effendy, M. S. Kristanti","doi":"10.1080/09699260.2022.2148196","DOIUrl":"https://doi.org/10.1080/09699260.2022.2148196","url":null,"abstract":"Purpose\u0000 Although the concept of ‘cancer-related problems’ is complex, few studies compare nurses’ and caregivers’ perspectives on cancer-related problems, particularly in eastern cultures. The study aimed to identify the perceptions of patients and nurses concerning to what extent the problems of patients with cancer were assessed and addressed during hospitalization in Indonesia. \u0000 Method\u0000 A descriptive correlational study with cross-sectional comparisons was conducted in three major cities in Indonesia. With a convenience sample of 119 patients (response rate = 79.3%) with cancer and 147 nurses (response rate = 71%). The domains of validated Problems and Needs of Palliative Care – short version were used to measure the perceptions of the patients and nurses regarding the assessing and addressing of patients’ problems. \u0000 Results\u0000 The patients stated that their physical and psychological problems were very often assessed (>84%) and addressed (>90%). Patients who reported difficulties spontaneously had a lower prevalence of problems than patients who reported problems to a professional, except for the psychological subscale (P-value 0.05). The open assessment reported that the problems exhibited lower frequency than structure assessment, while nurses addressed all sub-scale problems (P-value < 0.005). Patients’ educational status, age, gender, and time of diagnosis had positive correlations with their perceptions of cancer-related problems, which they voluntarily stated. \u0000 Conclusion\u0000 These findings indicate essential similarities and incongruities between patients with cancer and nurses perceive cancer-related problems. The results highlight the complex technical directions of cancer nursing care in Indonesia.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"161 - 168"},"PeriodicalIF":1.7,"publicationDate":"2022-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47841472","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Initial screening of compassion fatigue in a hospice palliative care team: validation of the silencing response scale 安宁疗护缓和疗护团队对同情疲劳的初步筛选:沉默反应量表的验证

IF 1.7

PROGRESS IN PALLIATIVE CARE Pub Date : 2022-10-20 DOI: 10.1080/09699260.2022.2122316

Jiyoung Chun, Ye-Jean Kim, Kyung-Ah Kang

{"title":"Initial screening of compassion fatigue in a hospice palliative care team: validation of the silencing response scale","authors":"Jiyoung Chun, Ye-Jean Kim, Kyung-Ah Kang","doi":"10.1080/09699260.2022.2122316","DOIUrl":"https://doi.org/10.1080/09699260.2022.2122316","url":null,"abstract":"Aims and Objectives: This study aimed to validate a silencing response scale (SRS) for the initial screening of compassion fatigue in hospice palliative care teams (HPCT) members. Background: The silencing response is a defense mechanism that diverts caregivers’ attention from painful and difficult situations. This is an early stage of compassion fatigue. During the silencing response stage, the ability of HPCTs to listen to patients’ requests for assistance decreases, and their professional performance related to tasks and care provision weakens. Design: This study with psychometric evaluation was designed to validate the SRS for the initial screening of compassion fatigue among HPCTs. Methods: After translation-back translation and content validity indexing, 236 HPCT members working in hospice agencies designated by the Korean Ministry of Health and Welfare participated in this survey. The data were analyzed using SPSS and AMOS software. Results: The SRS developed in this study is a self-evaluation tool that employs a five-point Likert scale with 16 items: eight for disinterest, four for situation avoidance, and four for fear. The SRS met the criteria for construct, convergent, and criterion validity. The Cronbach's α for the full SRS was .87. Conclusions: To ensure HPCT well-being, prevention rather than burnout recovery should be prioritized. The SRS developed in this study can be used to screen for compassion fatigue at an early stage to prevent burnout and severe compassion fatigue among HPCT members.","PeriodicalId":45106,"journal":{"name":"PROGRESS IN PALLIATIVE CARE","volume":"31 1","pages":"37 - 44"},"PeriodicalIF":1.7,"publicationDate":"2022-10-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42322106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0