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Cicely Saunders and the Literary and Cultural Heritage of "Total Pain". 西塞莉-桑德斯与 "全面疼痛 "的文学和文化遗产
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935834
Joe Wood
{"title":"Cicely Saunders and the Literary and Cultural Heritage of \"Total Pain\".","authors":"Joe Wood","doi":"10.1353/lm.2024.a935834","DOIUrl":"https://doi.org/10.1353/lm.2024.a935834","url":null,"abstract":"<p><p>In this article, I present some of the literary and cultural influences behind hospice pioneer Cicely Saunders's idea of \"total pain,\" a term she used from the 1960s onwards to promote the holistic approach which has since become palliative care. Existing studies imply \"total pain\" emerged from Saunders's own mixed career experiences and her attention to patient narratives. However, I explore how the term originates not only in Saunders's direct encounters with her patients but also in her readings of literary, philosophical, and theological texts from a range of European post-war contexts, from Viktor Frankl and Simone de Beauvoir to Martin Buber and Ladislaus Boros. Examining \"total pain\" in light of Saunders's reading reveals the particular intellectual milieu-often ignored-from which palliative care emerged.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"65-87"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Introduction: A "Totalizing" View of Palliative Care. 导言：姑息关怀的 "全面化 "观点。
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935833
Anna M Elsner, Steven Wilson
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引用次数: 0
Knowing Black Afterlives. 了解黑人的余生
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935825
Kimberly Bain
{"title":"Knowing Black Afterlives.","authors":"Kimberly Bain","doi":"10.1353/lm.2024.a935825","DOIUrl":"https://doi.org/10.1353/lm.2024.a935825","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"7-9"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Last Narratives: Life Writing Palliative Praxis. 最后的叙述：生命书写姑息实践。
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935838
Franziska Gygax
{"title":"Last Narratives: Life Writing Palliative Praxis.","authors":"Franziska Gygax","doi":"10.1353/lm.2024.a935838","DOIUrl":"https://doi.org/10.1353/lm.2024.a935838","url":null,"abstract":"<p><p>Research on palliative care emphasizes the crucial role of narratives in the encounter with suffering and dying patients because we need to learn from the dying in order to improve care for them. Autobiographical narratives by terminally ill writers contribute to a more encompassing understanding of what it means to be dying as they often thematize dying and death, besides theorizing all kinds of implications of terminal illness. Among such autothanatographers are well-known writers such as Gillian Rose, Jenny Diski, and Tom Lubbock. The process of writing about the last stage of their lives is palliative narrative praxis because the narrative act alleviates suffering. Exploring dying and death in philosophical, literary, and often highly poetic terms needs to be read and interpreted within a more complex web of meaning-making.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"157-173"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Holes in the Protective Cloak of Palliative Care: Mathieu Simonet's La maternité and Eduardo Berti's An Ideal Presence. 姑息治疗保护外衣上的漏洞：马蒂厄-西蒙内（Mathieu Simonet）的《母性》（La maternité）和爱德华多-贝尔蒂（Eduardo Berti）的《理想的存在》（An Ideal Presence）。
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935837
Julia Pröll
{"title":"Holes in the Protective Cloak of Palliative Care: Mathieu Simonet's <i>La maternité</i> and Eduardo Berti's <i>An Ideal Presence</i>.","authors":"Julia Pröll","doi":"10.1353/lm.2024.a935837","DOIUrl":"https://doi.org/10.1353/lm.2024.a935837","url":null,"abstract":"<p><p>In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight \"holes\" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"137-156"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Love, Death, and-No Hospital!: Assisted Dying, "Liebestod," and Existential Suffering. 爱、死亡和医院！：辅助死亡、"Liebestod "和存在主义的痛苦。
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI: 10.1353/lm.2024.a935836
Marc Keller
{"title":"Love, Death, and-No Hospital!: Assisted Dying, \"Liebestod,\" and Existential Suffering.","authors":"Marc Keller","doi":"10.1353/lm.2024.a935836","DOIUrl":"https://doi.org/10.1353/lm.2024.a935836","url":null,"abstract":"<p><p>Contemporary literature about assisted dying in Germany, Switzerland, and France repeatedly explores the impact of illness on romantic relationships. Faced with the imminent or experienced death of their loved one, the healthy partner is affected by existential suffering and refuses to outlive the other. This dynamic leads to (joint) suicide, echoing the literary tradition of the Liebestod, where lovers prefer death over separation. This paper examines three contemporary texts on this theme. It illustrates that while the Liebestod is depicted as a romantic death, it inherently rejects a medicalized end of life. Despite overlaps between palliative care and the notion of a \"good death,\" palliative care is absent, as the focus is on avoiding the existential suffering from losing a beloved partner, making suicide the only viable option.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"112-136"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"The Shock Which the Sound Produced": Bodies, Trauma, and the Audible World in Charles Brocken Brown's Wieland.
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01
Kristie A Schlauraff
{"title":"\"The Shock Which the Sound Produced\": Bodies, Trauma, and the Audible World in Charles Brocken Brown's <i>Wieland</i>.","authors":"Kristie A Schlauraff","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Charles Brockden Brown's Wieland (1798), considered the first American novel, represents the emergent nation's social, political, and architectural landscape as fundamentally shaped by sound. Yet, while voice has garnered much critical attention in regards to American identity, the significance of sound more broadly has been overlooked. This article argues that Brown presents sound as an opportunistic infection that alters physiological function as it circulates between speakers and listeners. In fact, Wieland's soundscape embodies the very qualities scholars like Cathy Caruth associate with traumatic experience: it resists boundaries of place and time; defies linguistic expression; and subjects bodies to shocking, repetitive events that haunt them. Ultimately, I argue that Brown's representation of the audible world generates new understandings of how trauma moves between and within bodies.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 2","pages":"371-390"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Contributors.
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01
{"title":"Contributors.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 2","pages":"468-470"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Addressing Legion: On What Can Be Known.
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01
Geraldine Gorman
{"title":"Addressing Legion: On What Can Be Known.","authors":"Geraldine Gorman","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 2","pages":"268-273"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Contagious Sympathies in The Last Man.
IF 0.2 4区 文学
LITERATURE AND MEDICINE Pub Date : 2024-01-01
Darby Wood Walters
{"title":"Contagious Sympathies in <i>The Last Man</i>.","authors":"Darby Wood Walters","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In The Last Man, Mary Shelley relies on theories of Romantic medicine that give her an unconventional way to conceptualize and narrate time and space. For the Romantics, organs, bodies, and communities were all intimately connected through \"sympathy.\" The Last Man carefully employs the connection between biological sympathy and contagious disease to consider how suffering inhabits space. Lionel's individual suffering intertwines with the global suffering from the fictional plague of the novel, which threatens the boundaries of both Europe and the white, European body much as its non-fictional counterpart, cholera, does. As time and history grind to a halt, space is disconcertingly reconfigured by shrinking geographical distances between Black and white bodies, which threatens the cohesion of white identity even as it reinforces its sovereignty.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 2","pages":"321-345"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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