Isto Huvila, K. Eriksson-Backa, Noora Hirvonen, Heidi P. K. Enwald
{"title":"Classifying Health Information Interactions and their Motivations: A Study with Older Adults and Electronic Patient Portals","authors":"Isto Huvila, K. Eriksson-Backa, Noora Hirvonen, Heidi P. K. Enwald","doi":"10.15626/ishimr.2020.10","DOIUrl":"https://doi.org/10.15626/ishimr.2020.10","url":null,"abstract":"Current research on electronic patient portals and electronic health records shows a broad range of benefits to patients, healthcare professionals and healthcare when patients are allowed to take part of their medical record information. There are, however, shortcomings in the current knowledge about patients’ and other stakeholders’ information interactions with electronic health record systems and what motivates them to use these. We present a tentative classification of information interactions with an electronic patient portal, the stakeholders involved in the interactions and reasons that motivate patients to interact with electronic health record information. The purpose of the classification scheme is 1) to inform the design of useful health information access systems, and simultaneously to 2) contribute to the broader information interaction research by acting as a first step in developing a more generic classification that brings together information interactions, their stakeholders and stakeholder motivations to engage with information.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"41 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130620601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Electronic Health Records: Non-Swedish Speaking Refugee’s Perspective","authors":"Duaa Abdulrazak Kadhim, S. Iqbal, P. Jokela","doi":"10.15626/ishimr.2020.16","DOIUrl":"https://doi.org/10.15626/ishimr.2020.16","url":null,"abstract":"Electronic health record (EHR) is a ubiquitous e-health tool that includes both Electronic Medical Record (EMR) and personal health record (PHR). EHR is aimed to be a versatile digital tool that can benefit both caregivers and patients through Quick and easy access to medical information at any time from hospitals or primary care. However, the fact that the bulk of core records, including self-service data for patients, is only available in Swedish may limit the scope, availability and feasibility of self service through EHRs access for refugee patients who are non-Swedish speakers. Research results suggest that the EHRs should be meaningful, modified, and improved based on patient’s needs, by actively involving patients in their healthcare. The issues such as EHRs an information sharing communication System, lack of Information about using EHR, language barrier a hinderance in using EHR, EHRs as medical recommendation system, better instructions about EHRs, presenting medical information in diagnosis part in EHRs in other languages and presenting medical information in diagnosis part in EHRs by sound are very important to address non-Swedish speaking refugee patients’ needs to use EHRs.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"51 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124425397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Designing an App for Maternity Care: Improving Communication between Swedish Midwives and Arabic-speaking Women","authors":"Jean E. Stevenson, G. Byrman","doi":"10.15626/ishimr.2020.08","DOIUrl":"https://doi.org/10.15626/ishimr.2020.08","url":null,"abstract":"Good communication is essential for good healthcare. In maternity care, inadequate communication may contribute to poorer outcomes in pregnancy. A large number of Syrian, Arabic-speakingimmigrants arrived in Sweden in 2015-2016. A trans-disciplinary team acted as intermediariesbetween midwives and a technical company to develop a Swedish-Arabic communication app for usein antenatal care. An earlier study describes the creation of the content and the development of theprototype. This paper describes the next phase of the study, i.e., testing the prototype, refining thestructure and content, and development of the next version. A user-centred approach with a normcritical perspective was applied. Workshops and observations were performed for interaction betweenthe midwives and the research group, facilitating development from a user perspective. A final versionof the app was developed. Future plans are to evaluate the app and produce a Swedish-Englishversion.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124512360","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patients’ view on information about medications: a pharmacy-based survey focusing on perceptions of pharmacists using a clinical decision support system","authors":"Tora Hammar, M. Zetterholm","doi":"10.15626/ishimr.2020.15","DOIUrl":"https://doi.org/10.15626/ishimr.2020.15","url":null,"abstract":"The aim of this study was to describe patients’ view on information regarding their medication with focus on community pharmacists’ use of the clinical decision support system EES (electronic expert support system). This study was performed as a survey among patients who were collecting prescription medication at seven Swedish community pharmacies, with 281 respondents (response rate of 68%). Results show that patients receive information regarding their medication from many different sources with differences related to age, gender and native language. In general, most patients seemed satisfied with the information they had about their medicines, and with the information they got from pharmacists. Results show that awareness of how pharmacists work to improve medication safety, and knowledge about EES is low. However, results indicate that many patients have high trust in pharmacists, expect them to check for potential DRPs and are positive to pharmacists using EES more.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122852017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Diane Golay, Å. Cajander, Deman Hussein, Ali H. Azeez, S. Bonacina
{"title":"Communication Breakdowns between Nurses and IT Department: Why Hospitals Fail at Improving the Usability of Health Information Technology","authors":"Diane Golay, Å. Cajander, Deman Hussein, Ali H. Azeez, S. Bonacina","doi":"10.15626/ishimr.2020.01","DOIUrl":"https://doi.org/10.15626/ishimr.2020.01","url":null,"abstract":"Often, Health Information Technology (HIT) in hospitals consists of off the shelf systems that are configured and implemented by IT department workers. This means that these employees have a significant impact of the usability of HIT systems. Nonetheless, we currently do not know how IT department workers work. This prevents us from formulating educated recommendations aimed at improving HIT usability, known to be poor, especially from nurses’ perspective. In this paper, we hence present the results from an interview study, shedding light on 1) the communication channels that exist between nurses and IT department at a large public hospital in Sweden, and 2) the problems that undermine system-related communication between these two groups. Our findings stress the need for successful two-way communication between nurses and IT department in order to improve the usability of HIT in use.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"34 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127705896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of a computer-assisted algorithm for onsite screening of diabetic retinopathy from retinal photographs at diabetic outpatient clinics","authors":"S. John, S. Srinivasan, K. Ram, M. Sivaprakasam","doi":"10.15626/ishimr.2020.03","DOIUrl":"https://doi.org/10.15626/ishimr.2020.03","url":null,"abstract":"Purpose: To examine the effectiveness of a computer-assisted algorithm for onsite screening for diabetic retinopathy (DR) at diabetic outpatient clinics. Methods: 1263 patients were examined over two years. Undilated fundus photographs were acquired at the clinic. Photographs were independently assessed by an ophthalmologist and optometrist in a darkened room in a masked fashion and also processed through the algorithm. DR was defined per the International Clinical Diabetic Retinopathy Disease Severity Scale and severity of diabetic retinopathy. Results: 2526 eyes of 1263 patients were assessed. The algorithm successfully graded 2153 (85%) images with 63.04% sensitivity and 79.63% specificity compared to an ophthalmologist; in comparison to an optometrist, sensitivity and specificity were 60.87% and 79.05%, respectively. The agreement between ophthalmologist and optometrist was kappa=0.835 for presence of DR, 0.835 for severity of DR. Conclusion: This algorithm may be a utilized in a diabetic clinic for a quick screening with only the retinal photographs.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128579915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A novel sensor-based architecture using 5G and Blockchain for remote and continuous health monitoring","authors":"Adelina Basnolli, H. Cana","doi":"10.15626/ishimr.2020.11","DOIUrl":"https://doi.org/10.15626/ishimr.2020.11","url":null,"abstract":"The healthcare sector strives to improve the quality of care delivered to patients, especially considering new digital technologies, such as sensor-based networks (SBN). The application of SBN can help to provide remote and continuous monitoring for patients that need continuous treatment and management. In this context, this research proposed a novel sensor-based architecture for healthcare monitoring including 5G as a recent technology for low latency data communication. Blockchain is another component that is integrated to prevent forgery, tampering and enable more secure transmission. Furthermore, this study proposed a unique data architecture that is based on a new protocol that aims to transmit gathered sensor data over existing network architecture (for example, routers) without the need for intermediate devices such as mobile phones, PDAs or tablets. The proposed data architecture is discussed for its application in healthcare through two case scenarios, continuous monitoring of chronic diseases and back pain.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"31 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123405941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The sustainability of non-12-step alcohol online support groups: views from group users","authors":"S. Sanger, P. Bath, Jo Bates","doi":"10.15626/ishimr.2020.13","DOIUrl":"https://doi.org/10.15626/ishimr.2020.13","url":null,"abstract":"Online support groups for people with health issues are important digital sources of information for their users, and this includes alcohol online support groups (AOSGs) which provide help to problem drinkers. It is vital that these groups are sustainable as otherwise their usefulness and contribution to patient self-care and wellbeing is limited. The aim of the study drawn upon in this paper was to explore the impact of AOSGs’ discussion forums on users’ beliefs about problem drinking. The study involved semi-structured interviews with twenty-five users of online support groups for people who do not follow the 12-step programme for recovery of Alcoholics Anonymous. This paper focuses on users’ perspectives on sustainability, and the findings suggest that the general approach of the group to recovery and its social dynamics are especially important. It provides a useful contribution to the literature in offering a rare insight into the voices of users of non-12-step groups.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"127 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114999780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Edith Maier, Pascale Baer-Baldauf, P. Jaeschke, U. Reimer, Tom Ulmer
{"title":"Continuous real-time remote monitoring of severely or chronically ill children","authors":"Edith Maier, Pascale Baer-Baldauf, P. Jaeschke, U. Reimer, Tom Ulmer","doi":"10.15626/ishimr.2020.12","DOIUrl":"https://doi.org/10.15626/ishimr.2020.12","url":null,"abstract":"Compared to parents of healthy children, parents of severely or chronically ill children have significantly worse physical and mental health and a lower quality of life, e.g. because of lack of sleep. The proposed solution aims at assisting caregivers by means of a remote monitoring service run by professional nursing staff which should allow parents to get a good night’s sleep. A smart algorithm has been developed to detect if a particular parameter (heart rate, respiration rate or oxygen saturation) has exceeded a pre-defined threshold and thus may imply an emergency. Parents are only alerted after a professional nurse in the monitoring centre has cross-checked vital parameter trends and carried out an audio-visual inspection. The quality and accuracy of the system has been validated through iterative testing including a test performed in a children’s hospital to ensure that the monitoring system is not inferior to a hospital set-up.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130442819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nomie Eriksson, Eva Söderström, Rose-Mharie Åhlfeldt
{"title":"Patient Empoverment and its Connection to Trust","authors":"Nomie Eriksson, Eva Söderström, Rose-Mharie Åhlfeldt","doi":"10.15626/ishimr.2020.06","DOIUrl":"https://doi.org/10.15626/ishimr.2020.06","url":null,"abstract":"Patient Empowerment (PE) allows patients to be more active in managing their own health and quality of life. The aim of this paper is to analyze how trust affects PE, in the context of healthcare information systems. An interview study was conducted concerning patients’ online access to electronic healthcare records. Results show that PE requires that patients trust the information that healthcare professionals and their electronic health record systems provide. Without trust, patients cannot control their own participation in relation to the healthcare professionals. This may result in a diminished ability to participate in the healthcare processes regarding their own care. Practical implications include acquired knowledge about and awareness of how trust influences PE, with particular emphasis on healthcare professionals. A trust model is presented that illustrates the trustor-trustee dimensions of PE. This model has both theoretical and practical implications in its illustration of how trust and PE connect.","PeriodicalId":404498,"journal":{"name":"Proceedings of the 18th international symposium on health information management research","volume":"20 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126701006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}