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Journal of registry management最新文献

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Abstracting Head and Neck: A CTR's Perspective. 头部和颈部:一个CTR的视角。
Journal of registry management Pub Date : 2023-01-01
Melissa Chapman
{"title":"Abstracting Head and Neck: A CTR's Perspective.","authors":"Melissa Chapman","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 2","pages":"67-68"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10414193/pdf/jrm-50-67.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9991183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Harnessing the Power of Cancer Registries to Advance Our Understanding of Pediatric Cancer. 利用癌症注册中心的力量，促进我们对儿科癌症的理解。
Journal of registry management Pub Date : 2023-01-01
Stephanie M Hill, Fernanda Silva Michels, Karen Knight, Johanna L Goderre, Tina Terranova, Tiffany Hayes, Betsy Kohler
{"title":"Harnessing the Power of Cancer Registries to Advance Our Understanding of Pediatric Cancer.","authors":"Stephanie M Hill, Fernanda Silva Michels, Karen Knight, Johanna L Goderre, Tina Terranova, Tiffany Hayes, Betsy Kohler","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In 2020, the North American Association of Central Cancer Registries (NAACCR) was awarded a contract with the National Cancer Institute (NCI) to begin coordination of a new National Childhood Cancer Registry (NCCR), which would build on the existing infrastructure among both Surveillance, Epidemiology, and End Results (SEER) and National Program of Cancer Registries central registries. NCI and NAACCR planned to use the NCCR to securely match children across registries and with external data sources such as genomic data, medical and pharmacy claims, and other novel sources for residential history, financial toxicity and social determinants of health to build a robust database for pediatric cancer reporting and research. These linkages will enable researchers to address issues surrounding late effects of cancer treatment, recurrence, subsequent malignant neoplasms, and other critical outcomes.</p>","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 3","pages":"80-81"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10629798/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71522883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Replenishing the Reporting Field from Within: From Partnership to Internship. 从内部补充报告领域：从合作到实习。
Journal of registry management Pub Date : 2023-01-01
John LaDouceur, Michael Peyton, Nikkia Ray
{"title":"Replenishing the Reporting Field from Within: From Partnership to Internship.","authors":"John LaDouceur, Michael Peyton, Nikkia Ray","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 3","pages":"99-100"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10629805/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71522888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Description of the National Mortality Register of Panama. 巴拿马国家死亡率登记册》说明。
Journal of registry management Pub Date : 2023-01-01
Hedley Knewjen Quintana, Fernando Gutierrez, Fulvia Ibarra, Andy Ruiz, Cecilio Niño, Ilais Moreno Velásquez, Jorge Motta
{"title":"Description of the National Mortality Register of Panama.","authors":"Hedley Knewjen Quintana, Fernando Gutierrez, Fulvia Ibarra, Andy Ruiz, Cecilio Niño, Ilais Moreno Velásquez, Jorge Motta","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Introduction: </strong>The National Mortality Register (NMR) of Panama is a key element in demographic analysis and in acquiring an updated picture of population health in Panama. The main objectives of this study are to characterize the NMR and to enumerate its strengths and weaknesses.</p><p><strong>Methods: </strong>We describe the history, processes, and structure of the Vital Statistics Section of the National Institute of Statistics and Census (the curator of the NMR database). In addition, we discuss publication punctuality, underregistration of the data, the proportion of registered deaths certified by medical doctors, and the top 5 causes of death according to the 80 groups of the <i>International Classification of Diseases, Tenth Revision</i>. We also examine works derived from the register's data, from the first publication on its website (2002) until 2019.</p><p><strong>Results: </strong>The NMR procedures were described. The web reports of the NMR were performed with a delay of between 1 to 2 years. The underregistration of deaths in 2002-2019 was 14.7%, and the national yearly proportion of deaths certified by medical doctors was always above 90%. Hard-to-reach areas had higher underregistration proportions and fewer deaths certified by medical doctors. Information extracted from the NMR supports several national and international reports, geographic information systems, and studies. The most common causes of death between 2002 and 2019 were noncommunicable diseases.</p><p><strong>Conclusions: </strong>The NMR is a robust official information system. However, hard-to-reach areas require improvement in terms of the NMR. The NMR is used for publishing official reports, writing studies, and updating reports on the current health status of Panama in a timely fashion following international guidelines.</p>","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 4","pages":"155-164"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10945919/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140176909","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementation of New and Emerging Biomarker Data Collection: The Colorado Experience. 实施新的和新兴的生物标志物数据收集:科罗拉多州的经验。
Journal of registry management Pub Date : 2023-01-01
John Arend
{"title":"Implementation of New and Emerging Biomarker Data Collection: The Colorado Experience.","authors":"John Arend","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 1","pages":"38-39"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10414198/pdf/jrm-50-38.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9990511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Journal of Registry Management Continuing Education Quiz-SUMMER 2023: ASSESSING COMPLETENESS OF CANCER TREATMENT DATA FROM AN ACADEMIC MEDICAL CENTER'S TUMOR REGISTRY THROUGH COMPARISON TO THE CENTRAL REGISTRY. 注册管理杂志- 2023年夏季继续教育测验:通过与中央注册表的比较，评估来自学术医疗中心肿瘤注册表的癌症治疗数据的完整性。
Journal of registry management Pub Date : 2023-01-01
{"title":"<i>Journal of Registry Management</i> Continuing Education Quiz-SUMMER 2023: ASSESSING COMPLETENESS OF CANCER TREATMENT DATA FROM AN ACADEMIC MEDICAL CENTER'S TUMOR REGISTRY THROUGH COMPARISON TO THE CENTRAL REGISTRY.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"<p><p><b>After reading the educational posters and completing the quiz, participants will be able to:</b> Describe the completeness of treatment information at an academic tumor registryUnderstand how data completeness at the hospital level affects researchDescribe the variables utilized in conducting this study.</p>","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 2","pages":"74"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10414197/pdf/jrm-50-74.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9995769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using the Incidence of Cervical Cancer Precursors to Assess the Impact of HPV Vaccination Efforts in Kentucky. 利用宫颈癌前兆的发病率评估肯塔基州 HPV 疫苗接种工作的影响。
Journal of registry management Pub Date : 2023-01-01
Thomas C Tucker, Eric B Durbin, Bin Huang, Kelly Pictor
{"title":"Using the Incidence of Cervical Cancer Precursors to Assess the Impact of HPV Vaccination Efforts in Kentucky.","authors":"Thomas C Tucker, Eric B Durbin, Bin Huang, Kelly Pictor","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 1","pages":"34-35"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10414209/pdf/jrm-50-34.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9990515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hitting a Growth Spurt: Working to Improve the Collection of Pediatric Staging Systems. 刺激增长：努力改进儿科分期系统的收集。
Journal of registry management Pub Date : 2023-01-01
Angela Costantini
{"title":"Hitting a Growth Spurt: Working to Improve the Collection of Pediatric Staging Systems.","authors":"Angela Costantini","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 3","pages":"92-95"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10629801/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71522884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients Will Benefit if We Expand Cancer Registries to Capture Method of Detection. 如果我们扩大癌症登记范围，采集检测方法，患者将从中受益。
Journal of registry management Pub Date : 2023-01-01
Peter R Eby
{"title":"Patients Will Benefit if We Expand Cancer Registries to Capture Method of Detection.","authors":"Peter R Eby","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 4","pages":"113-115"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10945917/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140178712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Letter from the Editor. 编辑来信。
Journal of registry management Pub Date : 2023-01-01
Nadine Walker
{"title":"Letter from the Editor.","authors":"Nadine Walker","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"50 1","pages":"3"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10414204/pdf/jrm-50-3.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9990510","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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