Journal of registry management最新文献

{"title":"The Value of NCRA Conference Posters.","authors":"Cari Vida","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 1","pages":"11"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11200808/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141461543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Journey to my Love of Writing.","authors":"Vonetta L Williams","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 1","pages":"10"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11178118/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Letter from the Editor.","authors":"Nadine R Walker","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 1","pages":"4"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11178111/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cancer Registrar Workload and Staffing Study: Guidelines for Hospital Cancer Registry Programs.","authors":"Laurie Hailer, Jacqueline Miller, Susan Chapman","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 4","pages":"175-176"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11917977/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143664950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Statewide Linkage Study of <i>Salmonella</i> Infection and Colorectal Cancer Incidence in Michigan, United States.","authors":"Ikuko Kato, Geogia Spivak, Jim Collins, Seongho Kim, Jeffrey Duncan, Jun Sun","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objective: </strong>Nontyphoidal <i>Salmonella</i> infection is one of the most common foodborne illnesses, and its oncogenic potential has been documented in animal models. The primary goal of this study was to examine whether individuals who were exposed to enteric <i>Salmonella</i> infection are more likely to develop colorectal cancer (CRC) than the general population through the linkage of 2 statewide public health surveillance databases.</p><p><strong>Materials and methods: </strong>We designed a 2-stage probabilistic linkage, starting with 17,587 records of enteric salmonellosis reported to Michigan Department of Health and Human Services between 1992 and 2020. These records did not include unique identifiers (such as Social Security number [SSN]). The initial linkage to LexisNexis address history was conducted to obtain information to calculate each person's time in Michigan as well as SSN for the second linkage. The linkage to the state cancer registry was performed to obtain the observed number of CRC cases, while the expected number of CRC cases was calculated according to corresponding state CRC incidence by age, sex, and calendar year.</p><p><strong>Results: </strong>Ninety-three percent of the initially identified salmonellosis records were sent to LexisNexis linkage, which returned address history, death, and SSN for 97% of the records. Further linkage to the statewide cancer registry identified 98 incident CRC cases. Overall, the observed-to-expected (O/E) ratio was not different from unity (0.833; 95% CI, 0.627-1.003).</p><p><strong>Conclusions: </strong>While the new linkage strategy was found effective and should be applicable to other health conditions, we cannot rule out bias due to incomplete or underreporting of the infection in estimating the risk of CRC.</p>","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 2","pages":"62-68"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11343435/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142056855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reflections on the Journal of Registry Management in Celebration of NCRA's 50th Anniversary.","authors":"Reda Wilson","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 1","pages":"9"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11178110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332113","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cancer Incidence in Persistent Poverty Areas of California by Race/Ethnicity.","authors":"Ani S Movsisyan Vernon, Frances B Maguire, Brenda M Hofer, Arti Parikh-Patel, Theresa H M Keegan","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 4","pages":"177-179"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11917979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143664948","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Value of Registry Data.","authors":"Danette Clark","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 1","pages":"11"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11178115/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing Data Quality in a Statewide Birth Defects Registry: Insights from an Ongoing Quality Improvement Initiative.","authors":"Rebecca Howell, Rachel Allred, Dayana Betancourt, Caitlyn Yantz, A J Agopian, Charles Shumate","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Since 1999, the Texas Birth Defects Registry (TBDR) has conducted active statewide surveillance of congenital anomalies in Texas. The TBDR has established quality assurance procedures and protocols. With the aim of supplementing these existing procedures with a new approach to proactively identify operational issues impacting data quality, we sought to implement a survey to identify procedural and operational challenges and develop strategies to mitigate the effects of practices (eg, changes in reporting practices at hospitals), external events (eg, pandemics), and other issues that may impact data quality.</p><p><strong>Methods: </strong>An open-text, anonymous survey was developed and distributed to TBDR staff. The survey elicited responses from staff related to TBDR operations, partnerships, and communication with external health care facilities. In years 2 and 3, the survey was abbreviated from 9 to 3 questions.</p><p><strong>Results: </strong>Completion rates were 45%, 74%, and 49% in years 1, 2, and 3, respectively. Thematic analysis across all 3 years identified 7 primary themes: (1) data timeliness, (2) data quality improvements, (3) workflow optimization, (4) fundamental training needs, (5) specialized or technical training needs, (6) system challenges, and (7) internal communication and coordination.</p><p><strong>Conclusions: </strong>This project provides a proof-of-concept that active surveillance birth defects registries can collect information on data quality-related staff experiences in a real-time, systematic manner and implement short- and long-term strategies to address data quality. The survey results prompted internal strategic planning, additional employee training initiatives, and data system enhancements. Additional work is needed to monitor the long-term improvements resulting from these strategic actions. The data quality survey results and implemented strategies may be useful to other surveillance programs.</p>","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 3","pages":"109-119"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11781287/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Moving the Needle with Electronic Reporting.","authors":"Raeann Robinson","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":39246,"journal":{"name":"Journal of registry management","volume":"51 2","pages":"91-92"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11343429/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142056852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}