AJOB Empirical Bioethics最新文献

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Nature vs. Nurture in Precision Education: Insights of Parents and the Public. 精准教育中的先天vs后天:家长与公众的见解。
AJOB Empirical Bioethics Pub Date : 2022-04-01 DOI: 10.1080/23294515.2021.1983666
Maya Sabatello, Bree Martin, Thomas Corbeil, Seonjoo Lee, Bruce G Link, Paul S Appelbaum
{"title":"Nature vs. Nurture in Precision Education: Insights of Parents and the Public.","authors":"Maya Sabatello,&nbsp;Bree Martin,&nbsp;Thomas Corbeil,&nbsp;Seonjoo Lee,&nbsp;Bruce G Link,&nbsp;Paul S Appelbaum","doi":"10.1080/23294515.2021.1983666","DOIUrl":"https://doi.org/10.1080/23294515.2021.1983666","url":null,"abstract":"<p><strong>Background: </strong>The philosophical debate about the roles of nature versus nurture in human flourishing is not new. But the rise of precision education-a growing field of research that encourages the use of genetic data to inform educational trajectory and interventions to better meet student needs-has renewed historical and ethical concerns. A major worry is that \"genetic hype\" may skew public perceptions toward a deterministic perception of the child's educational trajectory, regardless of the child's capacities, and underestimation of environmental factors affecting educational outcomes. We tested this hypothesis with parents and adults from the general public in the US.</p><p><strong>Methods: </strong>A newly developed computerized implicit association test (IAT) to assess automatic associations between genetics or environments and student behaviors that are associated with educational achievement was administered to samples of parents of children below 21 years old (n = 450) and adults from the general public (n = 419). The samples were representative of the adult US population and adjusted to oversample Black/African American participants. An overall D score for participants' IATs (range: [-2, 2]) was calculated on the basis of the speed of participants' responses.</p><p><strong>Results: </strong>The mean IAT score for both samples indicated stronger association between the quality of being a good student and environment rather than genetics (parents: mean=-0.146, t = -6.56, p < 0.001; general public: mean = -0.249, t = -9.45, p < 0.0001). Younger participants from the general public showed a stronger association between genetics and educational success than middle-aged participants (β = -0.301, p = 0.006).</p><p><strong>Conclusion: </strong>The views of parents and the general public on behavioral genetics and education are complex but call for investment in creating educational environments that are supportive of student success. Future research is needed to understand differences across age groups and to explore views of other stakeholders involved in determining children's educational trajectories about the roles of nature versus nurture in precision education.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":"13 2","pages":"79-88"},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9083499/pdf/nihms-1766827.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9225722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Ethical Reasoning During a Pandemic: Results of a Five Country European Study. 流行病期间的伦理推理:一项欧洲五国研究的结果
AJOB Empirical Bioethics Pub Date : 2022-04-01 Epub Date: 2022-03-09 DOI: 10.1080/23294515.2022.2040645
S B Johnson, F Lucivero, B M Zimmermann, E Stendahl, G Samuel, A Phillips, N Hangel
{"title":"Ethical Reasoning During a Pandemic: Results of a Five Country European Study.","authors":"S B Johnson, F Lucivero, B M Zimmermann, E Stendahl, G Samuel, A Phillips, N Hangel","doi":"10.1080/23294515.2022.2040645","DOIUrl":"10.1080/23294515.2022.2040645","url":null,"abstract":"<p><p><b>Introduction:</b> There has been no work that identifies the hidden or implicit normative assumptions on which participants base their views during the COVID-19 pandemic, and their reasoning and how they reach moral or ethical judgements. Our analysis focused on participants' moral values, ethical reasoning and normative positions around the transmission of SARS-CoV-2.<b>Methods:</b> We analyzed data from 177 semi-structured interviews across five European countries (Germany, Ireland, Italy, Switzerland and the United Kingdom) conducted in April 2020.<b>Results:</b> Findings are structured in four themes: ethical contention in the context of normative uncertainty; patterns of ethical deliberation when contemplating restrictions and measures to reduce viral transmission; moral judgements regarding \"good\" and \"bad\" people; using existing structures of meaning for moral reasoning and ethical judgement.<b>Discussion:</b> Moral tools are an integral part of people's reaction to and experience of a pandemic. 'Moral preparedness' for the next phases of this pandemic and for future pandemics will require an understanding of the moral values and normative concepts citizens use in their own decision-making. Three important elements of this preparedness are: conceptual clarity over what responsibility or respect mean in practice; better understanding of collective mindsets and how to encourage them; and a situated, rather than universalist, approach to the development of normative standards.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":"13 1","pages":"67-78"},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7616684/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49102418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality Characteristics for Clinical Ethics Support in the Netherlands. 荷兰临床伦理支持的质量特征。
AJOB Empirical Bioethics Pub Date : 2022-01-01 Epub Date: 2021-07-16 DOI: 10.1080/23294515.2021.1925776
Laura Hartman, Eva Van Baarle, Marielle Diepeveen, Guy Widdershoven, Bert Molewijk
{"title":"Quality Characteristics for Clinical Ethics Support in the Netherlands.","authors":"Laura Hartman,&nbsp;Eva Van Baarle,&nbsp;Marielle Diepeveen,&nbsp;Guy Widdershoven,&nbsp;Bert Molewijk","doi":"10.1080/23294515.2021.1925776","DOIUrl":"https://doi.org/10.1080/23294515.2021.1925776","url":null,"abstract":"<p><p><b>Background:</b> This article presents a set of quality characteristics of clinical ethics support (CES) in the Netherlands.<b>Methods:</b> The quality characteristics were developed with a large group of stakeholders working with CES, participating in the Dutch Network for Clinical Ethics Support (NEON).<b>Results:</b> The quality characteristics concern the following domains: (1) goals of CES, (2) methods of CES, (3) competences of CES practitioners, and (4) implementation of CES. <b>Conclusions:</b> We discuss suggestions for how to use the quality characteristics, discuss some aspects that stand out about these quality characteristics, and reflect on the method and the status of the quality characteristics. The quality characteristics are meant as a heuristic instrument, helping CES practitioners to explore and improve the quality of CES in a health care organization, but at the same time they can be improved based on experiences during their application to CES practices.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":" ","pages":"22-32"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/23294515.2021.1925776","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39191396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants' Views from an HIV-TB Genomics Research Project in Botswana. 非洲基因组学是否应该将个人结果反馈纳入同意过程?博茨瓦纳HIV-TB基因组学研究项目参与者的观点。
AJOB Empirical Bioethics Pub Date : 2022-01-01 Epub Date: 2021-07-01 DOI: 10.1080/23294515.2021.1941414
Dimpho Ralefala, Mary Kasule, Ambroise Wonkam, Mogomotsi Matshaba, Jantina de Vries
{"title":"Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants' Views from an HIV-TB Genomics Research Project in Botswana.","authors":"Dimpho Ralefala,&nbsp;Mary Kasule,&nbsp;Ambroise Wonkam,&nbsp;Mogomotsi Matshaba,&nbsp;Jantina de Vries","doi":"10.1080/23294515.2021.1941414","DOIUrl":"https://doi.org/10.1080/23294515.2021.1941414","url":null,"abstract":"<p><p><b>Background</b>Whilst informed consent is a key component of considering whether individual genomic research results could or should be fed back to research participants, little is known about the views of African research participants on its role.<b>Methods</b>We carried out a qualitative study to explore views of adolescents and parents or caregivers regarding informed consent for feedback of individual results from a genomics research project in Botswana. We conducted 24 deliberative focus group discussions with 93 participants (44 adolescents and 49 parents or caregivers) and 12 in-depth interviews (6 adolescents and 6 parents).<b>Results</b>Our findings revealed that most participants would like to be informed about the possibility of discovering individual genetic results during the consent process and that consent be obtained for feedback during the enrollment process. They further expressed that in cases where prior consent to feedback was not obtained, then participants should be re-contacted where life-saving genetic information is discovered. Participants emphasized the need for researchers to ensure that participants' decisions regarding feedback of results are well-informed. Autonomy, transparency, and communication were identified as key values to uphold during the consent process.<b>Conclusion</b>In conclusion, obtaining participants' consent for feedback of results is important to ensure that their rights and wellbeing are protected in research. This is critical in building trust relationships between participants and researchers.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":" ","pages":"48-56"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/23294515.2021.1941414","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39150094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Ethics Consultation in U.S. Hospitals: Adherence to National Practice Standards. 美国医院的伦理咨询:遵守国家实践标准。
AJOB Empirical Bioethics Pub Date : 2022-01-01 Epub Date: 2021-11-18 DOI: 10.1080/23294515.2021.1996118
Anita Tarzian, Ellen Fox, Marion Danis, Christopher C Duke
{"title":"Ethics Consultation in U.S. Hospitals: Adherence to National Practice Standards.","authors":"Anita Tarzian,&nbsp;Ellen Fox,&nbsp;Marion Danis,&nbsp;Christopher C Duke","doi":"10.1080/23294515.2021.1996118","DOIUrl":"https://doi.org/10.1080/23294515.2021.1996118","url":null,"abstract":"<p><p><b>Background</b>Adherence to widely accepted practice standards is a frequently used measure of healthcare quality. In the U.S., the most widely recognized authoritative source of practice standards for ethics consultation (EC) is the second edition of the American Society for Bioethics and Humanities' <i>Core Competencies for Healthcare Ethics Consultation</i> report.<b>Methods</b>To determine the extent to which EC practices in U.S. hospitals adhere to these practice standards, we developed and analyzed 12 evaluative measures from a national survey.<b>Results</b>Only three of the 12 standards achieved over 75% adherence with reported EC practices: allowing anyone involved in a case to request an EC (100%), not requiring an attending physician's permission to conduct an EC (97.6%), and having at least one person on the ethics consultation service (ECS) with advanced level EC proficiency (79.3%).<b>Conclusions</b>Implications are discussed for achieving consensus on EC standards as they continue to evolve.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":" ","pages":"10-21"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39888727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 12
Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects' Recall of Informed Consent and Motivations for Participation. 术中神经科学研究中的伦理问题:评估受试者对知情同意的回忆和参与动机。
AJOB Empirical Bioethics Pub Date : 2022-01-01 DOI: 10.1080/23294515.2021.1941415
Anna Wexler, Rebekah J Choi, Ashwin G Ramayya, Nikhil Sharma, Brendan J McShane, Love Y Buch, Melanie P Donley-Fletcher, Joshua I Gold, Gordon H Baltuch, Sara Goering, Eran Klein
{"title":"Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects' Recall of Informed Consent and Motivations for Participation.","authors":"Anna Wexler,&nbsp;Rebekah J Choi,&nbsp;Ashwin G Ramayya,&nbsp;Nikhil Sharma,&nbsp;Brendan J McShane,&nbsp;Love Y Buch,&nbsp;Melanie P Donley-Fletcher,&nbsp;Joshua I Gold,&nbsp;Gordon H Baltuch,&nbsp;Sara Goering,&nbsp;Eran Klein","doi":"10.1080/23294515.2021.1941415","DOIUrl":"https://doi.org/10.1080/23294515.2021.1941415","url":null,"abstract":"<p><p><b>Background</b>An increasing number of studies utilize intracranial electrophysiology in human subjects to advance basic neuroscience knowledge. However, the use of neurosurgical patients as human research subjects raises important ethical considerations, particularly regarding informed consent and undue influence, as well as subjects' motivations for participation. Yet a thorough empirical examination of these issues in a participant population has been lacking. The present study therefore aimed to empirically investigate ethical concerns regarding informed consent and voluntariness in Parkinson's disease patients undergoing deep brain stimulator (DBS) placement who participated in an intraoperative neuroscience study.<b>Methods</b>Two semi-structured 30-minute interviews were conducted preoperatively and postoperatively via telephone. Interviews assessed participants' motivations for participation in the parent intraoperative study, recall of information presented during the informed consent process, and participants' postoperative reflections on the research study.<b>Results</b>Twenty-two participants (mean age = 60.9) completed preoperative interviews at a mean of 7.8 days following informed consent and a mean of 5.2 days prior to DBS surgery. Twenty participants completed postoperative interviews at a mean of 5 weeks following surgery. All participants cited altruism or advancing medical science as \"very important\" or \"important\" in their decision to participate in the study. Only 22.7% (<i>n</i> = 5) correctly recalled one of the two risks of the study. Correct recall of other aspects of the informed consent was poor (36.4% for study purpose; 50.0% for study protocol; 36.4% for study benefits). All correctly understood that the study would not confer a direct therapeutic benefit to them.<b>Conclusion</b>Even though research coordinators were properly trained and the informed consent was administered according to protocol, participants demonstrated poor retention of study information. While intraoperative studies that aim to advance neuroscience knowledge represent a unique opportunity to gain fundamental scientific knowledge, improved standards for the informed consent process can help facilitate their ethical implementation.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":"13 1","pages":"57-66"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/23294515.2021.1941415","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10455286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
Employer-Sponsored Egg Freezing: Carrot or Stick? 雇主赞助的冷冻卵子:胡萝卜还是大棒?
AJOB Empirical Bioethics Pub Date : 2022-01-01 DOI: 10.1080/23294515.2021.1941413
Molly Johnston, Giuliana Fuscaldo, Nadine Maree Richings, Stella May Gwini, Sally Catt
{"title":"Employer-Sponsored Egg Freezing: Carrot or Stick?","authors":"Molly Johnston,&nbsp;Giuliana Fuscaldo,&nbsp;Nadine Maree Richings,&nbsp;Stella May Gwini,&nbsp;Sally Catt","doi":"10.1080/23294515.2021.1941413","DOIUrl":"https://doi.org/10.1080/23294515.2021.1941413","url":null,"abstract":"<p><p><b>Background</b>Since 2014, many companies have followed the lead of Apple and Facebook and now offer financial support to female employees to access egg freezing. Australian companies may soon make similar offers. Employer-sponsored egg freezing (ESEF) has raised concerns and there is academic debate about whether ESEF promotes reproductive autonomy or reinforces the 'career vs. family' dichotomy. Despite the growing availability of ESEF and significant academic debate, little is known about how ESEF is perceived by the public. The aim of this study was to explore women's attitudes toward ESEF.<b>Methods</b>Women aged 18-60<b> </b>years who resided in Victoria, Australia were invited to complete an online, cross-sectional survey investigating views toward egg freezing. Associations between participant demographics and their views about ESEF were assessed using multinominal logistic regression, adjusted for age and free text comments were analyzed using thematic analysis.<b>Results</b>The survey was completed by 656 women, median age 28<b> </b>years (range: 18-60<b> </b>years). Opinions on the appropriateness of employers offering ESEF were divided (Appropriate: 278, 42%; Inappropriate: 177, 27%; Unsure: 201, 31%). There was significantly less support for ESEF among older participants and those employed part-time (p<b> </b><<b> </b>0.05). While some participants saw the potential for ESEF to increase women's reproductive and career options, others were concerned that ESEF could pressure women to delay childbearing and exacerbate existing inequities in access to ARTs.<b>Conclusions</b>Our analysis revealed that while some women identified risks with ESEF, for many women ESEF is not viewed as theoretically wrong, but rather it may be acceptable under certain conditions; such as with protections around reproductive freedoms and assurances that ESEF is offered alongside other benefits that promote career building <i>and</i> family. We suggest that there may be a role for the State in ensuring that these conditions are met.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":"13 1","pages":"33-47"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/23294515.2021.1941413","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9683887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Ethics Consultation in U.S. Hospitals: New Findings about Consultation Practices. 美国医院伦理咨询:关于咨询实践的新发现。
AJOB Empirical Bioethics Pub Date : 2022-01-01 Epub Date: 2021-11-17 DOI: 10.1080/23294515.2021.1996117
Ellen Fox, Marion Danis, Anita J Tarzian, Christopher C Duke
{"title":"Ethics Consultation in U.S. Hospitals: New Findings about Consultation Practices.","authors":"Ellen Fox,&nbsp;Marion Danis,&nbsp;Anita J Tarzian,&nbsp;Christopher C Duke","doi":"10.1080/23294515.2021.1996117","DOIUrl":"https://doi.org/10.1080/23294515.2021.1996117","url":null,"abstract":"<p><p><b>Background</b>While previous research has examined various aspects of ethics consultation (EC) in U.S. hospitals, certain EC practices have never been systematically studied.<b>Methods</b>To address this gap, we surveyed a random stratified sample of 600 hospitals about aspects of EC that had not been previously explored.<b>Results</b>New findings include: in 26.0% of hospitals, the EC service performs EC for more than one hospital; 72.4% of hospitals performed at least one non-case consultation; in 56% of hospitals, ECs are never requested by patients or families; 59.0% of case consultations involve conflict; the usual practice is to visit the patient in all formal EC cases in 32.5% of hospitals; 56.6% of hospitals do not include a formal meeting in most EC cases; 61.1% of hospitals do not routinely assess ethics consultants' competencies; and 31.6% of hospitals belong to a bioethics network. We estimate the total number of non-case consultations performed in U.S. hospitals to be approximately one half the number of case consultations; we estimate the total number of ECs performed in U.S. hospitals, including both case and non-case consultations, to be just over 100,000 per year.<b>Conclusions</b>These findings expand our current understanding of EC in U.S. hospitals, and raise several concerns that suggest a need for further research.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":" ","pages":"1-9"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39631162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
Variation in COVID-19 Resource Allocation Protocols and Potential Implementation in the Chicago Metropolitan Area. 2019冠状病毒病资源分配协议的差异及其在芝加哥大都会地区的潜在实施。
AJOB Empirical Bioethics Pub Date : 2021-10-01 DOI: 10.1080/23294515.2021.1983667
Rupali Gandhi, Gina M Piscitello, William F Parker, Kelly Michelson
{"title":"Variation in COVID-19 Resource Allocation Protocols and Potential Implementation in the Chicago Metropolitan Area.","authors":"Rupali Gandhi,&nbsp;Gina M Piscitello,&nbsp;William F Parker,&nbsp;Kelly Michelson","doi":"10.1080/23294515.2021.1983667","DOIUrl":"https://doi.org/10.1080/23294515.2021.1983667","url":null,"abstract":"<p><strong>Background: </strong>Scarce resource allocation policies vary across the United States. Little is known about regional variation in resource allocation protocols and variation in their application. We sought to evaluate how Covid-19 scarce resource allocation policies vary throughout the Chicago metropolitan area and whether there are differences in policy application within hospitals when prioritizing hypothetical patients who need critical care resources.</p><p><strong>Methods: </strong>Two cross-sectional surveys were distributed to Chicago metropolitan area hospital representatives and triage officers. Survey responses and categorical variables are described by frequency of occurrence. Intra- and interhospital variation in ranking of hypothetical patients was assessed using Fleiss's Kappa coefficients.</p><p><strong>Results: </strong>Eight Chicago-area hospitals responded to the survey assessing scarce resource allocation protocols (N = 8/18, response rate 44%). For hospitals willing to describe their ventilator allocation protocol (N = 7), most used the sequential organ failure assessment (SOFA) score (N = 6/7, 86%) and medical comorbidities (N = 4/7, 57%) for initial scoring of patients. A majority gave priority in initial scoring to pre-defined groups (N = 5/7, 71%), all discussed withdrawal of mechanical ventilation for adult patients (N = 7/7, 100%), and a minority had exclusion criteria (N = 3/7, 43%). Forty-nine triage officers from nine hospitals responded to the second survey (N = 9/10 hospitals, response rate 90%). Their rankings of hypothetical patients showed only slight agreement amongst all hospitals (Kappa 0.158) and fair agreement within two hospitals with the most respondents (Kappa 0.21 and 0.25). Almost half used tiebreakers to rank patients (N = 23/49, 47%).</p><p><strong>Conclusions: </strong>Although most respondents from Chicago-area hospitals described policies for resource allocation during the COVID-19 pandemic, the substance and application of these protocols varied. There was little agreement when prioritizing hypothetical patients to receive scarce resources, even among people from the same hospital. Variations in resource allocation protocols and their application could lead to inequitable distribution of resources, further exacerbating community distrust and disparities in health.</p><p><p>Supplemental data for this article is available online at https://doi.org/10.1080/23294515.2021.1983667.</p>","PeriodicalId":38118,"journal":{"name":"AJOB Empirical Bioethics","volume":"12 4","pages":"266-275"},"PeriodicalIF":0.0,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9648102/pdf/nihms-1762842.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39479069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Perceptions of Medical Providers on Morality and Decision-Making Capacity in Withholding and Withdrawing Life-Sustaining Treatment and Suicide. 医疗服务提供者在拒绝和退出维持生命治疗和自杀的道德和决策能力的看法。
AJOB Empirical Bioethics Pub Date : 2021-10-01 Epub Date: 2021-03-15 DOI: 10.1080/23294515.2021.1887961
Thomas D Harter, Erin L Sterenson, Andrew Borgert, Cary Rasmussen
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引用次数: 1
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