{"title":"Are We There Yet? A Narrative of Firsthand Interpreter Experiences in the Medical Field and Insights to Aid Language Access Compliance.","authors":"Hilda Sanchez-Herrera","doi":"10.1353/nib.2024.a947850","DOIUrl":"https://doi.org/10.1353/nib.2024.a947850","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 3","pages":"154-156"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Don't Mute the Messenger.","authors":"Nilsa Ricci","doi":"10.1353/nib.2024.a947857","DOIUrl":"https://doi.org/10.1353/nib.2024.a947857","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 3","pages":"171-174"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Moral Inequity in Organ Donation: An Examination of Age-Based Denial.","authors":"Tayyab S Diwan, Lindsay R Beaman","doi":"10.1353/nib.2024.a947863","DOIUrl":"10.1353/nib.2024.a947863","url":null,"abstract":"<p><p>The decision to donate an organ is often the decision to save a loved one's life. Frequently recognized as an ultimate act of altruism, a person's choice to donate is embedded in their right to make decisions about their own body and well-being, free of coercion. To ensure donors are truly acting out of altruism, transplant professionals will not allow someone to donate if there are concerns of duress or inability to consent. Although the evaluation of potential donors is well-intentioned and necessary, stigma and assumptions about young adults can sometimes lead to their being denied the opportunity to donate based on age rather than evidence, thus infringing upon their bodily autonomy. This case examines the narrative of a young man trying to save his sister through kidney donation, and the ramifications of denying him the opportunity to do so, and how the transplant community can re-envision their role in protecting young adult donors.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 3","pages":"219-228"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"More Than Words: Communicating for the Quality of Care.","authors":"Elaine Hsieh","doi":"10.1353/nib.2024.a947852","DOIUrl":"https://doi.org/10.1353/nib.2024.a947852","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 3","pages":"159-161"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Who Tells the Story.","authors":"Cindy Bitter","doi":"10.1353/nib.2024.a945340","DOIUrl":"https://doi.org/10.1353/nib.2024.a945340","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 2","pages":"87-88"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144062524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"Do We Have to Tell Him He Hasn't Been Getting Ativan?\": Truth Telling for a Patient with Nonepileptic Seizures.","authors":"Lexi C White, Hilary Mabel","doi":"10.1353/nib.2024.a944474","DOIUrl":"https://doi.org/10.1353/nib.2024.a944474","url":null,"abstract":"<p><p>The authors present a case study involving truth telling responsibilities in the setting of nonepileptic seizures. Specifically, over the course of several suspected nonepileptic seizures, a patient's seizures stopped after he received a saline flush meant to precede the administration of anti-seizure medication. The patient and his surrogate believed he had received the medication each time, and the team wondered whether they should disclose the truth. Some worried that disclosure would reinforce the suspected psychogenic behavior, exacerbating the patient's condition. In this way, the case study presents a twist on the traditional truth telling archetype. While most truth telling cases center on navigating cultural differences or worries about emotional harm, this case presented concerns about medical harm in the form of exacerbating the patient's condition. The authors describe the complex patient-family-team dynamic that preceded this ethical dilemma, describe the case, analyze the ethical issue, and describe the outcome.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 2","pages":"133-141"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144049944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Fault Lines.","authors":"Laura A Katers","doi":"10.1353/nib.2024.a934183","DOIUrl":"10.1353/nib.2024.a934183","url":null,"abstract":"","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 1","pages":"26-28"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Withdrawing Life Support After Attempted Suicide: A Case Study and Review of Ethical Considerations.","authors":"David A Oxman, Benjamin Richter","doi":"10.1353/nib.2024.a934174","DOIUrl":"https://doi.org/10.1353/nib.2024.a934174","url":null,"abstract":"<p><p>Ethical questions surrounding withdrawal of life support can be complex. When life support therapies are the result of a suicide attempt, the potential ethical issues take on another dimension. Duties and principles that normally guide clinicians' actions as caregivers may not apply as easily. We present a case of attempted suicide in which decisions surrounding withdrawal of life support provoked conflict between a patient's family and the medical team caring for him. We highlight the major unresolved philosophical questions and contradictory normative values about suicide that underlie this conflict. Finally, we show how these considerations were practically applied to this particular case.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 1","pages":"51-57"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ethical Tensions in the Role of the Medical Interpreter.","authors":"Evan Goler, Jennifer W Mack","doi":"10.1353/nib.2024.a947860","DOIUrl":"https://doi.org/10.1353/nib.2024.a947860","url":null,"abstract":"<p><p>Medical interpreters play central roles in the care of patients with limited English proficiency, many of whom are vulnerable to challenges in care. Yet ethical tensions arise in the care of these patients, including tensions between translating with fidelity to spoken words versus ensuring understanding; supporting values of beneficence versus autonomy; reacting with passivity versus advocacy; and interacting with patients with neutrality versus compassion. These tensions reflect the commitment of interpreters featured in narratives to providing patient-centered care through challenging circumstances. Yet interpreters are often poorly supported, with low wages, multiple stressors, and vicarious trauma as a result of witnessing difficult medical encounters and interpreting during them in the first person. Interpreters should be recognized as valued, integral care team members who recognize patients as individuals deserving of the best care.</p>","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"14 3","pages":"189-193"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}