Narrative inquiry in bioethics最新文献

Moral Distress in Pediatric Residents: Mapping Experiences, Ethical Guidance, and Challenges in Navigating Ethical Conflicts. 儿科住院医师的道德困扰：在导航伦理冲突中绘制经验、伦理指导和挑战。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a989499

Aymen Mirza, Terri Major-Kincade, Nicola Harris, Margarita Ortiz, Madelene Ottosen, Chinyere O'Connor

{"title":"Moral Distress in Pediatric Residents: Mapping Experiences, Ethical Guidance, and Challenges in Navigating Ethical Conflicts.","authors":"Aymen Mirza, Terri Major-Kincade, Nicola Harris, Margarita Ortiz, Madelene Ottosen, Chinyere O'Connor","doi":"10.1353/nib.2026.a989499","DOIUrl":"10.1353/nib.2026.a989499","url":null,"abstract":"Introduction: Physicians frequently experience moral distress. Research on this issue among pediatric trainees is lacking. Our objective was to examine the characteristics of pediatric trainees' moral distress.Methods: We conducted a descriptive qualitative study of pediatric residents' experience of moral distress. Over a six-month period, residents participated in reflective exercises followed by a mapping of their moral distress using a case involving a terminally ill patient. Data was coded and thematically analyzed.Results: Residents described five recurring moral challenges: balancing appropriate clinical care against concern for the patient's perceived poor quality of life; carrying the emotional burden of conveying distressing news to families; navigating the tension between parental or family expectations and clinical realities; managing personal emotions while maintaining professional boundaries; and working with limited collaboration from other clinical teams. Common emotions included sadness and frustration.Conclusion: This study explored moral distress among pediatric trainees. The findings provide valuable insight for pediatric programs and educators seeking to better support residents during training.","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"16 1","pages":"59-78"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147869884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Unsung Healthcare Heroes for Children. 默默无闻的儿童医疗英雄。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a989497

Jason G Newland

引用次数: 0

Substacks and Sunshine. 子栈和阳光。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a1002123

Melinda Manning

引用次数: 0

Navigating Ambivalence: What It Means to Share Your Health Story Online. 导航矛盾心理：在线分享你的健康故事意味着什么。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a1002103

Emily K Vraga

{"title":"Navigating Ambivalence: What It Means to Share Your Health Story Online.","authors":"Emily K Vraga","doi":"10.1353/nib.2026.a1002103","DOIUrl":"https://doi.org/10.1353/nib.2026.a1002103","url":null,"abstract":"With increasing frequency, personal medical journeys are shared online. While online platforms can provide life-saving community, emotional validation, and practical \"lived expertise,\" they may also expose users to harassment, misinformation, and emotional exhaustion. This commentary analyzes the experiences of 12 people who have shared their personal health journeys on social media. Overall, the narrative authors show deep ambivalence toward sharing. I observe three core tensions in the narratives: (a) community versus critics, where the authors find comfort, support, and solidarity online, but also risk harassment and cruel comments; (b) empowerment versus exploitation, whereas patients use social media to both reclaim agency and fill gaps left by healthcare systems but also resent platforms and algorithms that profit from their vulnerability and attention; and (c) expertise, as healthcare workers who share their own health journeys gain unique credibility but also must navigate heightened responsibility, blurred professional boundaries, and intensified targeting. These conflicts are shaped by social media's design, which enables and encourages certain behaviors, and the uncertainty of the imagined audience, which can include both silent beneficiaries and simultaneously, coordinated harassers.","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"16 2","pages":"127-131"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sharing Health Stories in a World of Privacy Risk. 在隐私风险的世界里分享健康故事。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a1002102

Neil Richards, Megumi Suzuki

{"title":"Sharing Health Stories in a World of Privacy Risk.","authors":"Neil Richards, Megumi Suzuki","doi":"10.1353/nib.2026.a1002102","DOIUrl":"https://doi.org/10.1353/nib.2026.a1002102","url":null,"abstract":"This commentary examines a collection of narratives published in Narrative Inquiry in Bioethics by individuals who chose to \"go public\" with sensitive health experiences on social media. The authors' stories offer rich qualitative insights into the benefits and harms of online self-disclosure. In the stories, three themes emerge. First, the desire to share is not opposed to privacy; rather, privacy makes meaningful sharing possible. Second, social media platforms' promises of user control largely fail in practice, leaving people who share personal information online vulnerable to algorithmic amplification, contextual collapse, and unintended consequences. Third, social media platform design powerfully shapes behavior, often in ways that serve corporate interests, rather than users' well-being. Drawing these narratives into conversation with privacy theory and empirical research, this commentary argues that current privacy protections are inadequate in an environment defined by limited choice and abundant risk. It concludes by suggesting that health-related social media use calls for stronger legal and design-based reforms, including duties that better protect vulnerable users.","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"16 2","pages":"121-126"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"How Can I Not!?" “我怎么能不！？”

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a989486

Jennifer Jacobs

引用次数: 0

K-12 Independent School Sees Entire Team of Nurses Leave After Nurses Endure Years of Understaffing: Ethical Implications and Lessons Learned. K-12独立学校看到整个护士团队在护士忍受多年人手不足后离开：道德影响和经验教训。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a989483

Elizabeth Blanton

引用次数: 0

Editors' Note. 编者注。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a1002101

引用次数: 0

Seizures, Cultural Beliefs, and Ethical Tensions. 癫痫、文化信仰和伦理紧张。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a1002106

Kristin Furfari

{"title":"Seizures, Cultural Beliefs, and Ethical Tensions.","authors":"Kristin Furfari","doi":"10.1353/nib.2026.a1002106","DOIUrl":"10.1353/nib.2026.a1002106","url":null,"abstract":"This case narrative explores the ethical challenges that arise when culturally rooted surrogate decision-making conflicts with standard biomedical care. A 20-year-old Somali man presented with suspected autoimmune encephalitis requiring urgent immunosuppressive treatment to prevent permanent brain injury. Lacking decisional capacity due to encephalopathy, his mother served as his surrogate.Guided by religious and cultural beliefs, his family attributed his condition to demonic possession and declined medical treatment in favor of a spiritual healing ritual. This decision generated profound moral distress among the healthcare team and underscored the need for structured ethical support. This case illuminates the intersection of cultural pluralism, surrogate decision-making, and the moral boundaries of medical authority.The ethics consultation centered on the question of whose morality should guide care when a patient lacks capacity and cultural worldviews diverge. Drawing on Kleinman's explanatory model, principles of cultural humility, and Fadiman's framework of \"collision of systems,\" the ethics team reframed the conflict through cross-cultural moral negotiation (Kleinman, 1988; Fadiman, 1997). Ultimately, this case calls for a shift from moral certainty to moral accompaniment, an ethic of care that prioritizes understanding across differences when consensus cannot be reached.","PeriodicalId":37978,"journal":{"name":"Narrative inquiry in bioethics","volume":"16 2","pages":"157-162"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ethical Dilemmas in School Nursing: Advocating for a Student in Crisis. 学校护理中的伦理困境：为处于危机中的学生倡导。

Narrative inquiry in bioethics Pub Date : 2026-01-01 DOI: 10.1353/nib.2026.a989485

Gloria E Barrera

引用次数: 0