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EGEA Collection: A Biobank Devoted to Asthma and Asthma-related Phenotypes EGEA集合:一个致力于哮喘和哮喘相关表型的生物库
Open Journal of Bioresources Pub Date : 2017-04-04 DOI: 10.5334/OJB.24
R. Nadif, E. Bouzigon, N. Moual, V. Siroux
{"title":"EGEA Collection: A Biobank Devoted to Asthma and Asthma-related Phenotypes","authors":"R. Nadif, E. Bouzigon, N. Moual, V. Siroux","doi":"10.5334/OJB.24","DOIUrl":"https://doi.org/10.5334/OJB.24","url":null,"abstract":"The Epidemiological study on the Genetics and Environment of Asthma (EGEA) is a 20-year cohort including cases with asthma (n = 388), their first degree relatives (n = 1244) and population-based controls (n = 415) recruited in the early 90’s from five French cities. Participants were extensively characterized regarding environment and respiratory health, and a specific effort was made to trace and bank biological samples (ISO 9001 certification since 2006). Access to data and samples is opened to researchers wishing to develop new scientific collaborative programs. The survey has already led to more than a hundred papers with almost one third in collaboration with national and international teams.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2017-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42904001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 8
The Parelsnoer Institute: A National Network of Standardized Clinical Biobanks in the Netherlands parrelsnoer研究所:荷兰标准化临床生物银行的国家网络
Open Journal of Bioresources Pub Date : 2017-02-17 DOI: 10.5334/OJB.23
J. Manniën, T. Ledderhof, H. Verspaget, R. Snijder, E. Flikkenschild, Nicole P. C. van Scherrenburg, R. Stolk, G. Zielhuis
{"title":"The Parelsnoer Institute: A National Network of Standardized Clinical Biobanks in the Netherlands","authors":"J. Manniën, T. Ledderhof, H. Verspaget, R. Snijder, E. Flikkenschild, Nicole P. C. van Scherrenburg, R. Stolk, G. Zielhuis","doi":"10.5334/OJB.23","DOIUrl":"https://doi.org/10.5334/OJB.23","url":null,"abstract":"The Parelsnoer Institute (PSI) is a collaborative biobanking project of all eight University Medical Centers in the Netherlands which was launched in 2007. Basically, PSI consists of three dimensions: participating institutions, disease entities and a central organization. An executive board for operational management instigates collective strategic and tactic policies and a central team of PSI experts and advisors supports the researchers and the board in establishing and implementing standards and procedures. PSI offers researchers an infrastructure and standard procedures for the establishment, expansion and optimisation of clinical biobanks for scientific research. To ensure patient privacy clinical data is pseudomized and carefully stored in a central database. Human biomaterials are collected according to nationally agreed standards. Currently PSI covers fifteen large disease specific cohorts (the so-called ‘Parels’ or ‘Pearls’) and new ‘Pearls’ are being developed. The Parelsnoer Institute currently (December 2016) has stored more than 538,000 biospecimens with annotated clinical data of more than 30,000 patients. All these materials and data are available for anyone with a bona fide research proposal.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2017-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41980563","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 24
Biobank of Cells, Tissues and DNA from Patients with Neuromuscular Diseases: An Indispensable link between Clinical Centers and the Scientific Community 神经肌肉疾病患者的细胞、组织和DNA生物库：临床中心和科学界之间不可或缺的联系
Open Journal of Bioresources Pub Date : 2017-02-13 DOI: 10.5334/OJB.29
M. Mora, C. Bragato, S. Gibertini, S. Zanotti, M. Curcio, E. Canioni, F. Salerno, F. Blàsevich, S. Saredi, A. Ruggieri, M. Pasanisi, P. Bernasconi, L. Maggi, R. Mantegazza, F. Andreetta
{"title":"Biobank of Cells, Tissues and DNA from Patients with Neuromuscular Diseases: An Indispensable link between Clinical Centers and the Scientific Community","authors":"M. Mora, C. Bragato, S. Gibertini, S. Zanotti, M. Curcio, E. Canioni, F. Salerno, F. Blàsevich, S. Saredi, A. Ruggieri, M. Pasanisi, P. Bernasconi, L. Maggi, R. Mantegazza, F. Andreetta","doi":"10.5334/OJB.29","DOIUrl":"https://doi.org/10.5334/OJB.29","url":null,"abstract":"The Biobank was established in 1986 as part of the routine diagnostic activity of the Division of Neuromuscular Diseases and Neuroimmunology, of the Carlo Besta Neurological Institute. It stores muscle tissue, cells and DNA from patients with neuromuscular diseases. The biobank provides samples as a service to the scientific community conducting research on neuromuscular disorders. Samples are from patients affected by different forms of muscular dystrophy, including the severe congenital and Duchenne muscular dystrophies, as well as limb girdle muscular dystrophies, congenital myopathies, distal and myofibrillar myopathies, inflammatory myopathies, and metabolic myopathies. Different types of biomaterials are frequently available from a single patient. The Biobank is founding partner of the EuroBioBank network, the first operating network of biobanks for rare diseases in Europe, and of the Italian Telethon Network of Genetic Biobanks. The involvement of the biobank into both networks has been instrumental for standardization of procedures and activities, implementation of sample access policies, and compliance with ELSI requirements. The biobank, with about 13000 biospecimens stored in total at the time of writing, constitutes a key source of biological samples for researchers worldwide.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2017-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47087846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
SDN Biobank: Bioresource of Human Samples Associated with Functional and/or Morphological Bioimaging Results for the Study of Oncological, Cardiological, Neurological, and Metabolic Diseases SDN生物库:与肿瘤、心脏病、神经和代谢疾病研究的功能和/或形态生物成像结果相关的人类样本的生物资源
Open Journal of Bioresources Pub Date : 2017-02-13 DOI: 10.5334/OJB.26
P. Mirabelli, M. Incoronato, L. Coppola, T. Infante, C. Parente, E. Nicolai, A. Soricelli, M. Salvatore
{"title":"SDN Biobank: Bioresource of Human Samples Associated with Functional and/or Morphological Bioimaging Results for the Study of Oncological, Cardiological, Neurological, and Metabolic Diseases","authors":"P. Mirabelli, M. Incoronato, L. Coppola, T. Infante, C. Parente, E. Nicolai, A. Soricelli, M. Salvatore","doi":"10.5334/OJB.26","DOIUrl":"https://doi.org/10.5334/OJB.26","url":null,"abstract":"SDN Biobank is a not-for-profit service unit. Initially, it was established by the IRCCS SDN in 2012 as a collection of serum and plasma samples from patients who underwent advanced bioimaging exams, such as those performed with Positron Emission Tomography with integrated Magnetic Resonance Imaging (PET/MRI). In July 2015, SDN Biobank was approved by the local ethics committee to collect human samples from patients affected by oncological, cardiological, neurological, and metabolic diseases when performing diagnostic exams at the IRCCS SDN. All samples are coded and associated with clinical and iconographic documentation related to the performed functional or morphological bioimaging exams. SDN Biobank procedures are carried out according to the ISO 9001 Quality Management System with internal and external audits.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2017-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48111180","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 18
The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis. 英国肌痛性脑脊髓炎/慢性疲劳综合症（ME/CFS）和多发性硬化症生物医学研究数据库。
Open Journal of Bioresources Pub Date : 2017-01-01 Epub Date: 2017-02-20 DOI: 10.5334/ojb.28
Eliana M Lacerda, Erinna W Bowman, Jacqueline M Cliff, Caroline C Kingdon, Elizabeth C King, Ji-Sook Lee, Taane G Clark, Hazel M Dockrell, Eleanor M Riley, Hayley Curran, Luis Nacul
{"title":"The UK ME/CFS Biobank for biomedical research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis.","authors":"Eliana M Lacerda, Erinna W Bowman, Jacqueline M Cliff, Caroline C Kingdon, Elizabeth C King, Ji-Sook Lee, Taane G Clark, Hazel M Dockrell, Eleanor M Riley, Hayley Curran, Luis Nacul","doi":"10.5334/ojb.28","DOIUrl":"10.5334/ojb.28","url":null,"abstract":"<p><p>The UK ME/CFS Biobank was launched in August 2011 following extensive consultation with professionals and patient representatives. The bioresource aims to enhance research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), related to pathophysiology, biomarkers and therapeutic approaches. The cohort includes 18-60 year olds, encompassing 284 clinically-confirmed ME/CFS cases, 60 neurologist-diagnosed multiple sclerosis (MS) cases, and 135 healthy individuals. The Biobank contains blood samples, aliquoted into serum, plasma, peripheral blood mononuclear cells (PBMC), red blood cells/granulocyte pellet, whole blood, and RNA (totalling 29,863 aliquots). Extensive dataset (700 clinical and socio-demographic variables/participant) enables comprehensive phenotyping. Potential reuse is conditional to ethical approval.</p>","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2017-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5482226/pdf/nihms849968.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35118560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Biobank Lodz – DNA Based Biobank at the University of Lodz, Poland 罗兹生物库-波兰罗兹大学的DNA生物库
Open Journal of Bioresources Pub Date : 2016-11-30 DOI: 10.5334/OJB.22
D. Strapagiel, M. Sobalska-Kwapis, M. Słomka, B. Marciniak
{"title":"Biobank Lodz – DNA Based Biobank at the University of Lodz, Poland","authors":"D. Strapagiel, M. Sobalska-Kwapis, M. Słomka, B. Marciniak","doi":"10.5334/OJB.22","DOIUrl":"https://doi.org/10.5334/OJB.22","url":null,"abstract":"The Biorepository in Department of Molecular Biophysics of the University of Lodz was established in 2010 as an internal bioresource to collect and store Polish population-based biospecimens. In 2014 biorepository started to act as Biobank Lab of University of Lodz (BLUL/Biobank Lodz). The Biobank Lodz joined the BBMRI_PL (consortium of Polish biobanks) in 2014 and in 2016 BLUL became a member of the BCNet (Biobank and Cohort Building Network) and ESBB (European and Middle Eastern Society for Biopreservation and Biobanking). The BLUL stores over 12.200 samples and their data, including section of formalin fixed paraffin embedded (FFPE) and fluid samples (serum, full blood, saliva). Biobank Lodz is expanding the collections to include some important human diseases as well and is open for the international scientific community for the purpose research projects.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 16
The Prostate Cancer Research Consortium Bioresource (Ireland) 前列腺癌研究联盟生物资源(爱尔兰)
Open Journal of Bioresources Pub Date : 2016-11-15 DOI: 10.5334/OJB.12
A. Wekesa, W. Watson
{"title":"The Prostate Cancer Research Consortium Bioresource (Ireland)","authors":"A. Wekesa, W. Watson","doi":"10.5334/OJB.12","DOIUrl":"https://doi.org/10.5334/OJB.12","url":null,"abstract":"The Prostate Cancer Research Consortium (PCRC) is a co-ordinated group of researchers and clinicians from universities and hospitals in Ireland whose aim is to improve the diagnosis and treatment of prostate cancer by engaging in biomarker discovery and validation research. The PCRC has established a prostate cancer bioresource that collects biological samples and comprehensive clinical information collected at time of recruitment and subsequent follow from prostate cancer patients undergoing Transurethral resection of the prostate (benign disease) or radical prostatectomy (indolent, significant and aggressive, Gleason Score 4–10). This disease based bioresource with potential for reuse has recruited ~900 patients and collected >10000 tissue, serum, plasma, urine, DNA and RNA samples.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Biobank Graz: The Hub for Innovative Biomedical Research 格拉茨生物银行:创新生物医学研究中心
Open Journal of Bioresources Pub Date : 2016-07-22 DOI: 10.5334/OJB.20
B. Huppertz, Michaela Bayer, T. Macheiner, K. Sargsyan
{"title":"Biobank Graz: The Hub for Innovative Biomedical Research","authors":"B. Huppertz, Michaela Bayer, T. Macheiner, K. Sargsyan","doi":"10.5334/OJB.20","DOIUrl":"https://doi.org/10.5334/OJB.20","url":null,"abstract":"Biobank Graz was established in 2007 as publicly funded, non-profit central research facility of Medical University of Graz, Austria. Biobank Graz is ISO 9001:2008 certified and stores about 7.5 million samples and their associated data, including formalin fixed paraffin embedded (FFPE) and fresh frozen tissues plus fluid samples (serum, plasma, full blood, urine and cerebrospinal, follicular and seminal fluids, etc.) covering 30 years of collection. Samples are handled and stored in semi or fully automated systems to optimally maintain sample quality and retrieval rates. With its broad informed consent, Biobank Graz distributes samples worldwide to ethically and scientifically approved research projects from academia, industry, and cooperative studies in biomedical sciences. This is why Biobank Graz can be viewed as a central hub for biomedical research.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 15
The SEARCHBreast portal: a virtual bioresource to facilitate the sharing of surplus animal materials derived from breast cancer studies SEARCHBreast门户网站:一个虚拟生物资源，以促进分享来自乳腺癌研究的剩余动物材料
Open Journal of Bioresources Pub Date : 2016-07-22 DOI: 10.5334/OJB.21
Phil Carter, K. Blyth, I. Holen, L. Jones, Bethny Morrissey, V. Speirs, C. Chelala
{"title":"The SEARCHBreast portal: a virtual bioresource to facilitate the sharing of surplus animal materials derived from breast cancer studies","authors":"Phil Carter, K. Blyth, I. Holen, L. Jones, Bethny Morrissey, V. Speirs, C. Chelala","doi":"10.5334/OJB.21","DOIUrl":"https://doi.org/10.5334/OJB.21","url":null,"abstract":"The SEARCHBreast portal (https://searchbreast.org/) provides access to a virtual bioresource enabling researchers to access and share material derived from breast cancer related animal studies on a collaborative basis. By registering as members of SEARCHBreast, researchers can browse the SEARCHBreast platform for relevant tissue and models, and request access to these to help answer their specific biological question(s). SEARCHBreast mediates the collaborations formed from requests for these materials. As of July 2016, the virtual bioresource has received 8 requests for tissue and has sent hundreds of tissue samples saving approximately 400 animals. SEARCHBreast is currently developing a bioinformatics pipeline, enabling users to access and mine published data on animal models of breast cancer, potentially helping to reduce experimental redundancy further, prioritising new relevant research.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Biobank of Psychiatric Diseases Mannheim – BioPsy 曼海姆精神疾病生物库-活检
Open Journal of Bioresources Pub Date : 2016-07-08 DOI: 10.5334/OJB.18
S. Witt, H. Dukal, C. Hohmeyer, Slavica Radosavljevic-Bjelic, D. Schendel, J. Frank, M. Lang, F. Streit, J. Strohmaier, J. Treutlein, M. Rietschel
{"title":"Biobank of Psychiatric Diseases Mannheim – BioPsy","authors":"S. Witt, H. Dukal, C. Hohmeyer, Slavica Radosavljevic-Bjelic, D. Schendel, J. Frank, M. Lang, F. Streit, J. Strohmaier, J. Treutlein, M. Rietschel","doi":"10.5334/OJB.18","DOIUrl":"https://doi.org/10.5334/OJB.18","url":null,"abstract":"High quality biomaterial from patients and controls is a core prerequisite for research into the biological causes of mental disorder. BioPsy is the biobank of the Department of Genetic Epidemiology in Psychiatry at the Central Institute of Mental Health in Mannheim, Germany, and one of the largest psychiatric disorder biobanks worldwide. Here, ongoing collection is in progress for blood, DNA, mRNA, plasma, serum, saliva, urine, hair, and other biomaterials. Reuse of samples is permitted in a collaboration-based context. BioPsy operates according to German and European quality and data privacy standards.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
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