Open Journal of Bioresources最新文献

{"title":"“CRYOSTEM Biobank: A National Prospective, Standardized Collection to Better Characterize Allogeneic Hematopoietic Stem Cell Transplantation Complications”","authors":"Emilie Robert, Claire Fontenille, J. Dalle, R. P. D. Latour, B. Calmels","doi":"10.5334/ojb.58","DOIUrl":"https://doi.org/10.5334/ojb.58","url":null,"abstract":"CRYOSTEM was initiated in 2010 to create a multicenter biobank in the field of Hematopoietic Stem Cell Transplantation (HSCT). After initially concentrating on Graft-versus-Host Disease, CRYOSTEM has broadened its focus to all HSCT complications. Thanks to a network of 33 transplant units and 23 Biological Resources Centers, CRYOSTEM has established a standardized collection of high-quality biological samples associated with well-annotated clinical data from donors and patients pre- and post-HSCT. Plasma, dried pellets and viable cells in DMSO are isolated and cryopreserved from blood samples. Currently, the collection has reached almost 200,000 available samples coming from nearly 5,800 patients. Since 2015, CRYOSTEM has provided the national and international scientific community with these samples for large-scale research to improve the knowledge of HSCT complications. Funding statement: CRYOSTEM has been funded by the French government’s “National Investment Program” (call for proposals “COHORTES”, agreement ANR-10-COHO-008) and has also received financial support from INCa (call for proposals “BCB”, agreement 2013-192) and patient associations.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42834145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Integrated Research Biobank of the University Medicine Greifswald","authors":"T. Winter, N. Friedrich, S. Lamp, C. Schäfer, M. Schattschneider, S. Bollmann, Diana Brümmer, K. Riemann, A. Petersmann, M. Nauck","doi":"10.5334/ojb.64","DOIUrl":"https://doi.org/10.5334/ojb.64","url":null,"abstract":"The Integrated Research Biobank (IRB) at the Institute of Clinical Chemistry and Laboratory Medicine (IKCL) is the central biobank resource of the University Medicine Greifswald (UMG) for all biological materials collected within the framework of clinical and experimental studies carried out by internal and external researchers. The IRB is a core unit of the UMG and focuses on collection, processing and storage of mainly liquid biomaterials, e.g. blood, urine, saliva or swaps in established workflows and thereby securing highest quality standards. Aliquots are usually stored at –80°C in one of the two fully automated LiCONiC biorepositories or, if necessary, in one of the –80°C freezers. Up to now, the IRB stores more than 1.1 million liquid aliquots and the collection grows continuously. Currently, the storage capacity of the IRB is limited to 3 million aliquots. Funding statement: European Fond for Regional Development (EFRE) funded by the European Union (grant INZ-EFRE 1503). Study of Health in Pomerania (SHIP) is part of the Community Medicine Research net (CMR) of the University of Greifswald, Germany, which is funded by the Federal Ministry of Education and Research (grants no. 01ZZ9603, 01ZZ0103 and 01ZZ0403), the Ministry of Cultural Affairs as well as the Social Ministry of the Federal State of Mecklenburg-West Pomerania. German Centre for Cardiovascular Research (DZHK) funded by the Federal Ministry of Education and Research (grant 81Z7400173). German Biobank Alliance (GBA) funded by the Federal Ministry of Education and Research (grant 01EY1705). National Cohort (NAKO) funded by the Federal Ministry of Education and Research (grant 01ER1301/18).","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44231466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Interdisciplinary Research on Aortic Valve Stenosis: A Longitudinal Collection of Biospecimens and Clinical Data of Patients Undergoing Transcatheter Aortic Valve Replacement","authors":"B. E. Beuthner, R. Topci, Mareike Derks, Thomas Franke, Sandra Seelke, M. Puls, A. Schuster, K. Toischer, M. Valentova, L. Cyganek, E. Zeisberg, C. Jacobshagen, G. Hasenfuss, S. Nussbeck","doi":"10.5334/ojb.65","DOIUrl":"https://doi.org/10.5334/ojb.65","url":null,"abstract":"The bioresource (>265 patients with >27,600 biospecimens until December 2019; recruitment ongoing) on severe aortic stenosis is of vital importance to improve the still incomplete understanding of its etiology as well as its transition to heart failure. The bioresource contains various biospecimens, standardised clinical and imaging data sets including transthoracic echocardiography, computed tomography and magnetic resonance imaging of the heart. Biospecimen sampling follows the SOP-driven collection scheme of the German Center for Cardiovascular Research (DZHK) for venous blood and urine [1]. In addition, left-ventricular endomyocardial biopsies, rectal swabs and skin biopsies (for subsequent generation of induced pluripotent stem cells) are collected. Data management includes the use of a professional biospecimen management system as well as a Picture Archiving and Communication System (PACS) for imaging data. A Good Clinical Practice (GCP)-conform software for the management of clinical data and a trusted third party for the management of patient identifying data and pseudonyms are in place. Given these conditions, there is a high reuse-potential for biospecimens and data. Funding statement: Parts of the bioresource were financed by the German Research Foundation (DFG) within the Collaborative Research Center (SFB) 1002.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43746020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The ICAReB Platform: A Human Biobank for the Institut Pasteur and Beyond","authors":"P. Esterre, Amina Ait-Saadi, L. Arowas, S. Chaouche, N. Corre-Catelin, Christine Fanaud, H. Laude, Vesna Mellon, V. Monceaux, G. Morizot, Imène Najjar, C. Ottone, B. Perlaza, B. Rimbault, Linda Sangari, M. Ungeheuer","doi":"10.5334/ojb.66","DOIUrl":"https://doi.org/10.5334/ojb.66","url":null,"abstract":"The ICAReB platform of Institut Pasteur provides access to human bio-resources for academic and private research teams worldwide, essentially in the fields of infection, immunity and neurosciences. More than 134,000 human quality controlled, duly annotated samples (mainly whole-blood derived products, but also stool, urine, saliva, swabs….), from both healthy and diseased cohorts with open, regulated access, are available upon request. Both clinical investigation and biobanking activities are certified following ISO 9001:2015 and NF S96-900:2011 standards, respectively. ICAReB is a member of PIBnet (Pasteur International Biobanking network), BIOBANQUES and BBMRI, the French and pan-european biobanking networks, respectively. Funding statement: Funds come from IP (facilities and staff), and from various funding organisms or agencies (for specific projects): ANR (French National Research funding Agency): OH!Ticks project (see https://www.ohticks.fr/ 2017–2020) AP/HP (Assistance Publique/Hopitaux de Paris): MonaLisa (Multicentric Observational National Analysis on Listeriosis and Listeria) and ListeriaGEN projects, 2009–2022 and 2015–2024, respectively AVIESAN (French National alliance for Life Sciences and Health). Study of the innate immunity and the microbial flora during aplasia (PAMPA project, 2013–2016) Bioaster (French Investissements d’Avenir funding, Infectiology and Microbiology platform, Lyon-Paris, 2010–2020) Biomerieux (Lyon, France; cardio-vascular biomarker, 2013–2015) FRM (Medical Research Foundation): Hidradenitis Suppurativa project (2011–2015) IBiSA (Biology, Health and Agronomics infrastructure) selection of ICAReB platform in 2009 INCA (National Institute for Cancer research): INECOC project, 2009–2011 TOTAL foundation (Afribiota project on Environmental Pediatric Enteropathy, 2016-2020) WHO (for The WHO Human African Trypanosomiasis specimen Bank, 2008–2018, 2019–). Since three years, public-private relationships were proposed and research collaborations accepted with industrial partners, for example the Lyon-Paris ‘Technological Research Institute’ (BioAster) following a national Investissements d’Avenir program launched in 2012.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48883206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An Australian Chronic Kidney Disease Biobank to Support Future Research","authors":"Evan P. Owens, W. Hoy, A. Cameron, J. Coombes, G. Gobe","doi":"10.5334/OJB.56","DOIUrl":"https://doi.org/10.5334/OJB.56","url":null,"abstract":"The Chronic Kidney Disease (CKD) Biobank is a repository for plasma, erythrocytes, serum, peripheral blood mononuclear cells (PBMCs), DNA, kidney core biopsies, and relevant clinical data. These materials are collected from CKD patients and healthy controls in Queensland, Australia. Plasma, erythrocytes, serum, urine, and PBMCs are collected annually; DNA and kidney core biopsies are one-off collections; and clinical data are updated annually. The CKD Biobank aims to provide domestic investigators associated with the CKD Centre of Research Excellence (CKD.QLD), and international investigators of CKD, with a resource to support future research to improve clinical outcomes of CKD patients. Funding statement: The National Health and Medical Research Council Centres of Research Excellence scheme and the University of Queensland’s Simple Procurement Plan currently fund the CKD Biobank.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45580212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parelsnoer Institute Biobank Hereditary Colorectal Cancer: A Joint Infrastructure for Patient Data and Biomaterial on Hereditary Colorectal Cancer in the Netherlands","authors":"P. Manders, J. Vos, Richarda M. de Voer, Liselot P. van Hest, R. Sijmons, Chantal V. Hoge, F. Terpstra, M. Spaander, W. Mesker, E. Dekker, N. Hoogerbrugge","doi":"10.5334/OJB.54","DOIUrl":"https://doi.org/10.5334/OJB.54","url":null,"abstract":"Each year approximately 15,000 patients are diagnosed with colorectal cancer (CRC) in the Netherlands, of whom 5–10% are associated with a hereditary syndrome. To enable future research into hereditary CRC, we established a collaborative biobank for hereditary CRC in all eight University Medical Centers (UMCs) in the Netherlands in 2009. This Biobank Hereditary CRC is part of the Parelsnoer Institute (PSI), which is funded by the Dutch Federation of UMCs and the Dutch Government. Besides the multicenter collaboration, the multidisciplinary nature of this biobank – involving Gastroenterology, Genetics and Surgery – is essential for its functionality and value. Patients at increased risk of hereditary CRC and/or Polyposis, or with a proven germline mutation causing CRC and/or Polyposis are included. Both clinical data (demographic data, details on medical and family history, information on surveillance, endoscopy and surgery, results of microsatellite instability and molecular genetic tests) and biomaterial (DNA, plasma, serum and tissue) are collected in a standardized manner.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49482011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Quebec Respiratory Health Network Biobank","authors":"S. Biardel, C. Racine, Yvan Fortier, A. Mogas, É. Maillé, E. Brochiero, F. Maltais, A. Lauzon, S. Tse, C. Laprise, P. Joubert, É. Rousseau, É. Bissonnette, M. Laviolette, Y. Bossé, S. Rousseau","doi":"10.5334/OJB.39","DOIUrl":"https://doi.org/10.5334/OJB.39","url":null,"abstract":"The Quebec Respiratory Health Network (RHN) Biobank is a multi-site infrastructure located in the province of Quebec (Canada) to collect, store, and supply high-quality human biological specimens for research on respiratory diseases. The sample types are diverse (plasma, serum, buffy coat, primary lung cells, lung parenchyma, bronchial biopsies, polyps, others), disease-oriented, and mirror research activities conducted at each site. The biobank currently manages approximately 57,000 specimens from 8,000 research participants or patients treated by standard of care. Specimens’ inventory and corresponding clinical data from all sites are denominalized and linked to a centralized database with retrieval and querying capabilities. Archival samples from recent to nearly 20-year collections are available to academic and industry researchers studying respiratory diseases. Funding statement: The infrastructure is supported by the Quebec Respiratory Health Network ( rsr.chus.qc.ca ) of the Fonds de la recherche du Quebec – Sante (FRQS), the research centers involved, local foundations and users of the biobank. Each biobank site is responsible to sustain their activities.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-12-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"AIDS and Cancer Specimen Resource (ACSR)","authors":"S. Silver, J. Bethony, P. Bracci, Ashokkumar A. Patel, M. Nokta, M. Ittmann, L. Rimza, J. Schneider, M. McGrath","doi":"10.5334/OJB.42","DOIUrl":"https://doi.org/10.5334/OJB.42","url":null,"abstract":"The AIDS and Cancer Specimen Resource (ACSR) has four regional biorepositories (RBRs) in the United States and one in South Africa. The ACSR is funded by the National Cancer Institute (NCI) of the National Institutes of Health (United States) to support investigators studying HIV/AIDS and HIV/AIDS-associated malignancies. The ACSR inventory includes more than 450,000 annotated HIV-positive biospecimens from over 10,000 individuals and 100,000 HIV-negative controls from approximately 4,250 individuals, reflecting the pre-highly active antiretroviral therapy (HAART) and post-HAART era of the HIV epidemic, as well as selected geographic regions heavily impacted by this global pandemic. Funding statement: The U.S. NIH National Cancer Institute has funded the ACSR since 1994. The present award is UM1CA181255.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46866222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bioresource of Cervical Tissue Explants from Healthy Women","authors":"James M. Fox, R. Wiggins, C. Lacey","doi":"10.5334/OJB.49","DOIUrl":"https://doi.org/10.5334/OJB.49","url":null,"abstract":"The York Tissue Bank was established in 2013 at the University of York as a repository for cells and tissues to facilitate clinical and translational research at the university and with collaborative external tissue bank applicants. The bioresource described in this publication was initially established to conduct investigations into infection processes of sexually transmitted diseases in ex vivo organotypical models, specifically in uterine cervical tissue. Healthy human uterine cervical tissue is currently available to suitable applicants for ethically approved scientific research meeting the access criteria of the York tissue bank management committee. Funding statement: Funding to support the bioresource is from University of York.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41504428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Wales Cancer Bank (WCB)","authors":"A. Parry-Jones, L. Spary","doi":"10.5334/OJB.46","DOIUrl":"https://doi.org/10.5334/OJB.46","url":null,"abstract":"The Wales Cancer Bank (WCB) was established in 2004 and consents patients in Wales, UK with a known or suspected cancer diagnosis to donate biosamples for future research. The resource is open access to all researchers working in cancer research, regardless of geographic location or employment sector. To December 2017, just over 13,500 patients have donated samples across a variety of tumour types. Tumour and adjacent normal tissue and blood samples are routinely collected, stored and processed to standardised protocols. Bespoke collections for unique samples such as urine or ascites are also available. Pathology data, clinical data including treatment and outcome data and selected molecular data is also available. Funding statement: The WCB is currently funded as part of the Wales Cancer Research Centre by Health and Care Research Wales. Funding is also received from Velindre Charitable funds and Cancer Research UK’s Stratified Medicine Programme. Previous funding has also been received from Cancer Research Wales.","PeriodicalId":36769,"journal":{"name":"Open Journal of Bioresources","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70694921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}