Healthcare-The Journal of Delivery Science and Innovation最新文献

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Corrigendum to "Reading the crystal ball: Primary care implications while awaiting outcomes for multi-cancer early detection tests" [Healthcare 11 (2023) 100705].
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-12-11 DOI: 10.1016/j.hjdsi.2024.100755
Grace A Lin, Kathryn A Phillips, A Mark Fendrick
{"title":"Corrigendum to \"Reading the crystal ball: Primary care implications while awaiting outcomes for multi-cancer early detection tests\" [Healthcare 11 (2023) 100705].","authors":"Grace A Lin, Kathryn A Phillips, A Mark Fendrick","doi":"10.1016/j.hjdsi.2024.100755","DOIUrl":"https://doi.org/10.1016/j.hjdsi.2024.100755","url":null,"abstract":"","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":" ","pages":"100755"},"PeriodicalIF":2.0,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The national ambulatory medical care survey (NAMCS) at fifty: Past and future 全国流动医疗护理调查(NAMCS)五十周年:过去与未来。
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-11-11 DOI: 10.1016/j.hjdsi.2024.100754
John D. Goodson , Sara Shahbazi
{"title":"The national ambulatory medical care survey (NAMCS) at fifty: Past and future","authors":"John D. Goodson ,&nbsp;Sara Shahbazi","doi":"10.1016/j.hjdsi.2024.100754","DOIUrl":"10.1016/j.hjdsi.2024.100754","url":null,"abstract":"<div><h3>Introduction</h3><div>NAMCS, sponsored by the Centers for Disease Control and Prevention, is an annual nationally representative sample survey of visits to non-federal office-based physicians, excluding anesthesiologists, radiologists, and pathologists. NAMCS has collected physician-reported ambulatory care encounter-specific content over five decades. We assessed trends in the use of the data by the health services research community, response rates, and questionnaire changes.</div></div><div><h3>Methods</h3><div>We extracted all peer-reviewed journal articles using NAMCS data published between 1973 and 2020 and categorized publications into high- and low-impact groups, with high impact considered as the top 25 % of journals. We then examined the annual number of journal publications using NAMCS, data according to the year collected, by impact score groups for 50 years. We compared response rates and the information requested by NAMCS questionnaires from 1973 to the present.</div></div><div><h3>Results</h3><div>There has been a significant decline in the overall use of NAMCS data by the non-federal health services research community for publication in both high and lower-impact journals. Data used for high impact publications peaked in 1998, at 87, remained high at 58 in 2008 but then sharply declined. Concurrently, there was a substantial decline in NAMCS survey response rates (highest: 80.5 % in 1975 vs. lowest: 28.8 % in 2015). These changes came in the context of increasing questionnaire complexity.</div></div><div><h3>Conclusion</h3><div>Over the last two decades, annual publication rates citing NAMCS data have declined, coincident with lower response rates and more detailed questionnaires. Nationally representative encounter-specific data verified by the clinician of record will likely have renewed value for those who develop, implement, and assess healthcare policy if response rates improve, and questionnaire review and finalization are streamlined. Though multispecialty data offer unique opportunities for comparisons, sampling a subset of clinicians, such as those providing primary care, would complement national efforts to improve access to continuous comprehensive care.</div></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 4","pages":"Article 100754"},"PeriodicalIF":2.0,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142629046","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementation and adaptation of clinical quality improvement opioid measures 阿片类药物临床质量改进措施的实施和调整。
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-10-04 DOI: 10.1016/j.hjdsi.2024.100753
Catherine Hersey , Sarah Shoemaker-Hunt , Michael Parchman , Ellen Childs , John Le , Wesley Sargent
{"title":"Implementation and adaptation of clinical quality improvement opioid measures","authors":"Catherine Hersey ,&nbsp;Sarah Shoemaker-Hunt ,&nbsp;Michael Parchman ,&nbsp;Ellen Childs ,&nbsp;John Le ,&nbsp;Wesley Sargent","doi":"10.1016/j.hjdsi.2024.100753","DOIUrl":"10.1016/j.hjdsi.2024.100753","url":null,"abstract":"","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 4","pages":"Article 100753"},"PeriodicalIF":2.0,"publicationDate":"2024-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142378393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association between patient-reported financial burden and catastrophic health expenditures in cancer survivors 癌症幸存者中患者报告的经济负担与灾难性医疗支出之间的关系
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-09-23 DOI: 10.1016/j.hjdsi.2024.100752
Nishant Uppal , Jordan M. Broekhuis , Jorge L. Gomez-Mayorga , Hao Wei Chen , Natalia Chaves , Benjamin C. James
{"title":"Association between patient-reported financial burden and catastrophic health expenditures in cancer survivors","authors":"Nishant Uppal ,&nbsp;Jordan M. Broekhuis ,&nbsp;Jorge L. Gomez-Mayorga ,&nbsp;Hao Wei Chen ,&nbsp;Natalia Chaves ,&nbsp;Benjamin C. James","doi":"10.1016/j.hjdsi.2024.100752","DOIUrl":"10.1016/j.hjdsi.2024.100752","url":null,"abstract":"<div><h3>Purpose</h3><div>To measure rates of patient-reported financial burden, compare them across cancer types, and determine whether they are predictive of catastrophic health expenditures (CHE).</div></div><div><h3>Methods</h3><div>We extracted data from the Medical Expenditures Panel Survey from 2011 to 2017 to conduct a retrospective population-based cohort study and multivariable logistic regression to assess the financial burden of cancer across 16 cancer types and compare patient-reported metrics to CHE rates.</div></div><div><h3>Results</h3><div>Patients with ovarian cancer were most likely to report inability paying bills (34.5 %) and filing for bankruptcy (9.4 %), while patients with thyroid cancer were most likely to incur debt (22.4 %). Patients with kidney cancer had the highest mean debt ($46,915). CHEs were independently predicted by inability to pay medical bills (OR [95 % CI], 1.96 [1.14–3.35]) and bankruptcy filing (OR [95 % CI], 3.90 [1.21–12.60].</div></div><div><h3>Conclusions and implications</h3><div>We report important variations in the financial burden across cancer types and underscore the importance of assessing how patient-reported measures are related to CHEs. Policy implications. The financial burden of cancer care could explain the lack of improved outcomes with increased national health spending.</div></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 4","pages":"Article 100752"},"PeriodicalIF":2.0,"publicationDate":"2024-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142312598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outpatient remdesivir treatment program for hospitalized patients with coronavirus disease-2019: Patient perceptions, process and economic impact 针对冠状病毒病住院患者的雷米替韦门诊治疗项目-2019:患者感知、治疗过程和经济影响
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-08-13 DOI: 10.1016/j.hjdsi.2024.100750
Supavit Chesdachai , Christina G. Rivera , Jordan K. Rosedahl , Lindsey M. Philpot , Ruchita Dholakia , Bijan J. Borah , Evan W. Draper , Richard Arndt , Ravindra Ganesh , Jennifer J. Larsen , Molly J. Destro Borgen , Raymund R. Razonable
{"title":"Outpatient remdesivir treatment program for hospitalized patients with coronavirus disease-2019: Patient perceptions, process and economic impact","authors":"Supavit Chesdachai ,&nbsp;Christina G. Rivera ,&nbsp;Jordan K. Rosedahl ,&nbsp;Lindsey M. Philpot ,&nbsp;Ruchita Dholakia ,&nbsp;Bijan J. Borah ,&nbsp;Evan W. Draper ,&nbsp;Richard Arndt ,&nbsp;Ravindra Ganesh ,&nbsp;Jennifer J. Larsen ,&nbsp;Molly J. Destro Borgen ,&nbsp;Raymund R. Razonable","doi":"10.1016/j.hjdsi.2024.100750","DOIUrl":"10.1016/j.hjdsi.2024.100750","url":null,"abstract":"<div><h3>Background</h3><p>Remdesivir is FDA-approved for the treatment of hospitalized patients with severe COVID-19. Many patients improve clinically to allow for hospital dismissal before completing the 5-day course. In a prior work, patients who continued remdesivir in an outpatient setting experienced better 28-day clinical outcomes. Here, we assessed patients' perspectives and the economic impact of this outpatient practice.</p></div><div><h3>Methods</h3><p>Hospitalized patients who received remdesivir for COVID-19 at Mayo Clinic, Rochester, from 11/6/2020 to 11/5/2021 and were dismissed to continue remdesivir in the outpatient setting were surveyed. The cost of care was compared between those who remained hospitalized versus those who were dismissed.</p></div><div><h3>Results</h3><p>93 (19.8 %) among 470 eligible patients responded to the electronic survey. Responders were older than non-responders. The majority (70.5 %) had symptoms resolved by the time of the survey. Ten (11.4 %) patients had persistent symptoms attributed to long COVID-19. The majority were satisfied with the quality of care (82.3 %) and overall experience (76.0 %) in the infusion clinic. After adjusting for gender, comorbidity score, and WHO severity scale, the predicted costs for the groups were $16,544 (inpatient) and $9,097 (outpatient) per patient (difference of $7,447; p &lt; .01). An estimate of 1,077 hospital bed-days were made available to other patients as a result of this transition to outpatient.</p></div><div><h3>Conclusion</h3><p>An outpatient remdesivir program that allowed for early dismissal was perceived favorably by patients. The program resulted in significant cost and resource savings, the latter in terms of the availability of hospital beds for other patients needing critical services.</p></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 4","pages":"Article 100750"},"PeriodicalIF":2.0,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2213076424000174/pdfft?md5=46142016be627eec552c4319212a099e&pid=1-s2.0-S2213076424000174-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141978370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing cultural humility in food is medicine services: A mixed-methods investigation of patient food and dietary preferences 增强医疗服务中的文化谦逊:对病人食物和饮食偏好的混合方法调查。
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-08-06 DOI: 10.1016/j.hjdsi.2024.100749
Olivia W. Thomas , Lorrin Liang , Emily Getzoff , Santana Silver , Jessica Peters , Liza Fuentes
{"title":"Enhancing cultural humility in food is medicine services: A mixed-methods investigation of patient food and dietary preferences","authors":"Olivia W. Thomas ,&nbsp;Lorrin Liang ,&nbsp;Emily Getzoff ,&nbsp;Santana Silver ,&nbsp;Jessica Peters ,&nbsp;Liza Fuentes","doi":"10.1016/j.hjdsi.2024.100749","DOIUrl":"10.1016/j.hjdsi.2024.100749","url":null,"abstract":"<div><p>Dietary inequities, influenced by sociocultural and economic factors, significantly affect health outcomes, particularly among underserved communities. To address these disparities, the Food is Medicine (FIM) movement strives to enhance access to nutritious food, provide education, and encourage behavioral changes. Boston Medical Center (BMC) ‘s Nourishing Our Community Program (NOCP) exemplifies this mission by offering FIM services such as an on-site food pantry, rooftop farm, and teaching kitchen. However, persistent barriers hinder the effectiveness of programs like NOCP. This quality improvement (QI) project employed mixed methods to refine existing and develop new patient-generated nutrition education materials and resources across various FIM services.</p></div><div><h3>Methods</h3><p>This QI project included surveys and focus groups conducted electronically and in person between January and May 2023. We analyzed the data using descriptive statistics and qualitative content analysis.</p></div><div><h3>Results</h3><p>The analysis of results revealed patient preferences and experiences regarding dietary patterns, food choices, and nutrition education. These findings enhanced existing handouts, websites, and group class curricula and forged new partnerships with local community-based organizations.</p></div><div><h3>Conclusion</h3><p>Our findings underpin the importance of co-designing interventions, dynamic and multimodal resources, and cultural humility in care to meet individual needs.</p></div><div><h3>Implications</h3><p>This initiative is a model for hospitals aiming to improve educational resources within FIM services and tailor content to the specific needs of diverse patient populations. This project is the first step in programmatic improvement, and continuous refinement is crucial for sustained improvements and advancing health equity at our institution.</p></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 3","pages":"Article 100749"},"PeriodicalIF":2.0,"publicationDate":"2024-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Race disparities in emergency department utilization: Analyzing the role of value-based payment among Medicare Advantage beneficiaries 急诊室使用率的种族差异:分析医疗保险优势受益人中基于价值的支付的作用。
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-06-28 DOI: 10.1016/j.hjdsi.2024.100748
Melanie Canterberry, Jeremiah S. Rastegar, Shireen Haq, Gosia Sylwestrzak, Emily Boudreau
{"title":"Race disparities in emergency department utilization: Analyzing the role of value-based payment among Medicare Advantage beneficiaries","authors":"Melanie Canterberry,&nbsp;Jeremiah S. Rastegar,&nbsp;Shireen Haq,&nbsp;Gosia Sylwestrzak,&nbsp;Emily Boudreau","doi":"10.1016/j.hjdsi.2024.100748","DOIUrl":"10.1016/j.hjdsi.2024.100748","url":null,"abstract":"","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 3","pages":"Article 100748"},"PeriodicalIF":2.0,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2213076424000150/pdfft?md5=1ebf272e07c633c55f38e48026f353ea&pid=1-s2.0-S2213076424000150-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471147","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The role of framing in managing EHR portal messages 框架在管理电子病历门户信息中的作用。
IF 2 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-06-27 DOI: 10.1016/j.hjdsi.2024.100747
Ahmad Anshasi , Eduardo Mulanovich , Joshua M. Liao
{"title":"The role of framing in managing EHR portal messages","authors":"Ahmad Anshasi ,&nbsp;Eduardo Mulanovich ,&nbsp;Joshua M. Liao","doi":"10.1016/j.hjdsi.2024.100747","DOIUrl":"10.1016/j.hjdsi.2024.100747","url":null,"abstract":"","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 3","pages":"Article 100747"},"PeriodicalIF":2.0,"publicationDate":"2024-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How CPC+ supported patient care during the COVID-19 pandemic: Lessons for alternative payment models CPC+ 如何在 COVID-19 大流行期间支持病人护理:替代支付模式的经验教训
IF 2.5 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-04-10 DOI: 10.1016/j.hjdsi.2024.100745
Genna Cohen , Nancy Duda , Katie Morrison-Lee , Kaylyn Swankoski , Gillian Giudice , Maya Palakal , Caroline Mack , Ann S. O'Malley
{"title":"How CPC+ supported patient care during the COVID-19 pandemic: Lessons for alternative payment models","authors":"Genna Cohen ,&nbsp;Nancy Duda ,&nbsp;Katie Morrison-Lee ,&nbsp;Kaylyn Swankoski ,&nbsp;Gillian Giudice ,&nbsp;Maya Palakal ,&nbsp;Caroline Mack ,&nbsp;Ann S. O'Malley","doi":"10.1016/j.hjdsi.2024.100745","DOIUrl":"https://doi.org/10.1016/j.hjdsi.2024.100745","url":null,"abstract":"<div><h3>Background</h3><p>A growing literature documents how primary care practices adapted to the COVID-19 pandemic. We examine a topic that has received less attention—how participants in an advanced alternative payment model perceive the model influenced their ability to meet patients’ care needs during the pandemic.</p></div><div><h3>Methods</h3><p>Analysis of closed- and open-ended questions from a 2021 survey of 2496 practices participating in the Comprehensive Primary Care Plus (CPC+) model (92% response rate) and a 2021 survey of 993 randomly selected primary care physicians from these practices (55% response rate). Both surveys asked whether respondents agreed or disagreed that they or their practice was “better positioned to meet patients' care needs during the coronavirus pandemic” because of participation in CPC+. Both also included an open-ended question about CPC+’s effects.</p></div><div><h3>Results</h3><p>Half of practices and one-third of physicians agreed or strongly agreed that participating in CPC+ better positioned them to meet patients' care needs during the pandemic. One in 10 practices and 2 in 10 physicians, disagreed or strongly disagreed, while 4 in 10 practices and slightly more than half of physicians neither agreed nor disagreed (or, for physicians, didn't know). The most commonly identified CPC+ activities that facilitated meeting patient care needs related to practices' work on care management (e.g., risk stratification), access (e.g., telehealth), payment outside of fee-for-service (FFS), and staffing (e.g., supporting care managers).</p></div><div><h3>Conclusions</h3><p>Most CPC+ practices and physicians were positive or neutral about participating in CPC+ in the context of COVID-19, indicating more benefit than risk to payment alternatives to FFS.</p></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 2","pages":"Article 100745"},"PeriodicalIF":2.5,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140539250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mobilizing data during a crisis: Building rapid evidence pipelines using multi-institutional real world data 在危机期间调动数据:利用多机构真实世界数据建立快速证据管道
IF 2.5 4区 医学
Healthcare-The Journal of Delivery Science and Innovation Pub Date : 2024-03-25 DOI: 10.1016/j.hjdsi.2024.100738
Jayson S. Marwaha , Maren Downing , John Halamka , Amy Abernethy , Joseph B. Franklin , Brian Anderson , Isaac Kohane , Kavishwar Wagholikar , John Brownstein , Melissa Haendel , Gabriel A. Brat
{"title":"Mobilizing data during a crisis: Building rapid evidence pipelines using multi-institutional real world data","authors":"Jayson S. Marwaha ,&nbsp;Maren Downing ,&nbsp;John Halamka ,&nbsp;Amy Abernethy ,&nbsp;Joseph B. Franklin ,&nbsp;Brian Anderson ,&nbsp;Isaac Kohane ,&nbsp;Kavishwar Wagholikar ,&nbsp;John Brownstein ,&nbsp;Melissa Haendel ,&nbsp;Gabriel A. Brat","doi":"10.1016/j.hjdsi.2024.100738","DOIUrl":"https://doi.org/10.1016/j.hjdsi.2024.100738","url":null,"abstract":"<div><p>The COVID-19 pandemic generated tremendous interest in using real world data (RWD). Many consortia across the public and private sectors formed in 2020 with the goal of rapidly producing high-quality evidence from RWD to guide medical decision-making, public health priorities, and more. Experiences were gathered from five large consortia on rapid multi-institutional evidence generation during the COVID-19 pandemic. Insights have been compiled across five dimensions: consortium composition, governance structure and alignment of priorities, data sharing, data analysis, and evidence dissemination. The purpose of this piece is to offer guidance on building large-scale multi-institutional RWD analysis pipelines for future public health issues.</p><p>The composition of each consortium was largely influenced by existing collaborations. A central set of priorities for evidence generation guided each consortium, however different approaches to governance emerged. Challenges surrounding limited access to clinical data due to various contributors were overcome in unique ways. While all consortia used different methods to construct and analyze patient cohorts ranging from centralized to federated approaches, all proved effective for generating meaningful real-world evidence. Actionable recommendations for clinical practice and public health agencies were made from translating insights from consortium analyses.</p><p>Each consortium was successful in rapidly answering questions about COVID-19 diagnosis and treatment despite all taking slightly different approaches to data sharing and analysis. Leveraging RWD, leveraged in a manner that applies scientific rigor and transparency, can complement higher-level evidence and serve as an important adjunct to clinical trials to quickly guide policy and critical care, especially for a pandemic response.</p></div>","PeriodicalId":29963,"journal":{"name":"Healthcare-The Journal of Delivery Science and Innovation","volume":"12 2","pages":"Article 100738"},"PeriodicalIF":2.5,"publicationDate":"2024-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140290466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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