{"title":"Ethical Regulations of Medical Research Involving Human Subjects: Exploring the Perspective of Trial Participants","authors":"A. Kravets","doi":"10.15273/JUE.V9I1.8883","DOIUrl":"https://doi.org/10.15273/JUE.V9I1.8883","url":null,"abstract":"In this paper I address the question of whether the existing ethical regulations of clinical research ensure protection and well-being of human subjects. Drawing on ethnographic data gathered in Berlin, Germany, I show that German institutions which are meant to ensure the ethical validity of clinical research cannot address posed issues. It appears that these institutions (Berlin Ethik-Kommission in particular) only evaluate research protocols and do not consider the broad spectrum of processes and interactions involved in clinical research. The experience of professional human subjects, as well as the consideration of the every-day life in a clinic, shows that there is much more to clinical trials. The argument of this paper is that the inability of institutions to address protection of human subjects originates from the bureaucratic logic of their organization. Drawing on Bauman’s (1992) argument that the bureaucratic machine is characterized by separation between morality and purpose, with the example of Berlin Ethik-Kommission, I argue that the bureaucratic machine cannot be sensitive to morality and ethics, even if these are its main purposes.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133460516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From Pedestrian Thoroughfare to Public Space: The Social Life of the Esplanade Underpass","authors":"H. Nguyen","doi":"10.15273/JUE.V9I1.8881","DOIUrl":"https://doi.org/10.15273/JUE.V9I1.8881","url":null,"abstract":"This study examines the Esplanade Underpass, an underground thoroughfare in Singapore that supports a range of public users and uses, despite not being a formally planned or officially designated public space. The Esplanade Underpass serves as an interesting case study as most public spaces in Singapore are zoned and governed by regulations of various kinds. The Esplanade Underpass, however, is minimally subject to these forms of surveillance and control. This research asks: What are the characteristics of the Esplanade Underpass that set it apart from the narrative of order and control often imposed upon public spaces in Singapore?” Through participant observation and interviews, the study investigates the users and uses of the Underpass. The study reveals how a range of users of the Underpass adapt the physical space for various uses, consequently establishing a series of informal social norms. Through varied habitual uses, the Underpass has been transformed from a place of transit into a meaningful public space which possesses a vibrant social life. The study highlights the nuances of social engagement that can work to make spaces “public” and offers a novel understanding of informally formed public space in Singapore.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"72 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115446393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ideology and Postvernacularity in 21st Century Yiddish Pedagogy","authors":"Alex McGrath","doi":"10.15273/JUE.V9I1.8886","DOIUrl":"https://doi.org/10.15273/JUE.V9I1.8886","url":null,"abstract":"In this paper, based on five weeks of ethnographic field work in a Yiddish classroom in Poland, I describe how Yiddish language ideologies were realized and enacted within the classroom by language learners and teachers alike. This paper connects these language ideologies and classroom practices to larger historical negotiations of the Jewish past occurring within contemporary Poland, negotiations that center around memory and space. I argue that Yiddish can be understood as an object in cultural flux, discursively framed by multiple intersecting and, at times, contradictory narratives. Focusing on Yiddish language classrooms in contemporary Poland in particular, I demonstrate how Yiddish is embedded in non-Jewish Polish narratives and historical negotiations, as well those of diaspora Jewry.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"66 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132044226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dying Professions: Exploring Emotion Management among Doctors and Funeral Directors","authors":"Molly Ryan","doi":"10.15273/JUE.V9I1.8884","DOIUrl":"https://doi.org/10.15273/JUE.V9I1.8884","url":null,"abstract":"There are few more emotive experiences in life than death. Drawing on Arlie Hochschild’s concept of emotional labour, this article compares the emotional responsibilities of two groups of death professionals: doctors and funeral directors. It addresses the lack of comparative studies in the otherwise robust literature concerning emotional labour in the workforce. Through qualitative analysis, I identify how funeral directors and doctors believe they should feel in regard to death, how they manage these feelings, and the related consequences of this emotional labour. This analysis suggests that the emotion management of these professionals is primarily influenced by two key factors: prioritizing the emotions of others and stifling one’s own strong emotions. Differences became apparent in terms of how these factors are managed and what the related emotional consequences may be, due to the respective reliance of the funeral directors on surface acting and the doctors on deep acting emotion management strategies. In the future, it would be helpful to complement existing research with participant observation studies in order to better illuminate the meaning that emotional labour has for individuals in practice. Due to their unique position of encountering death as part of a job, death professionals have much to teach each other, as well as the broader population, about accepting and managing emotions related to mortality.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"79 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123988415","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Being Special: Nostalgia through Special Rates Areas and Community Improvement Districts in Cape Town Suburbs","authors":"Zarreen Kamalie","doi":"10.15273/JUE.V8I2.8684","DOIUrl":"https://doi.org/10.15273/JUE.V8I2.8684","url":null,"abstract":"This paper explores how memories and nostalgia inform the rationale of implementing Community Improvement Districts (CIDs) or Special Rates Areas (SRAs) as a means of crime prevention and urban maintenance in two formerly ‘whites-only’ Cape Town suburbs; Rondebosch and Mowbray. Through an exploration of the remembering, the maintenance and the resuscitation of an idealized past in a suburb that remains predominantly white after years of racial and economic exclusion, this paper interrogates the role of long-term resident nostalgia in post-apartheid South Africa in maintaining spatial apartheid. Using Svetlana Boym’s (2001) framework of nostalgia, particularly ‘restorative nostalgia’ and ‘reflective nostalgia,’ to interpret the memories of residents interviewed, this paper argues that it is nostalgia for an idealized past and a remembered specialness that sustains mentalities that give rise to spatially exclusive SRAs and CIDs. In this paper, public and social media discourse analysis and resident interviews allow us to understand residents’ memories and discussions around crime and urban degeneration and homelessness in Rondebosch. The purpose of this paper is to contribute to questions about spatial exclusivity in residential spaces in the post-apartheid era, particularly in a city that retains the legacy of spatial apartheid.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"4 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133915217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond Invisibility: A REDress Collaboration to Raise Awareness of the Crisis of Missing and Murdered Aboriginal Women","authors":"Natalie Marie Lesco","doi":"10.15273/JUE.V8I2.8688","DOIUrl":"https://doi.org/10.15273/JUE.V8I2.8688","url":null,"abstract":"This article describes the impact of a case study of the REDress project on a university campus in Nova Scotia, Canada. The REDress project is a grassroots initiative that operates at the local level to empower Aboriginal women through an evocative art exhibit: the hanging of empty red dresses symbolizing missing and murdered Indigenous women and girls and the emptiness of the societal response to the violence committed against them. Using a participatory-action research model (PAR), which guides the exploration of the kinds of ideas instilled within this community-based initiative, my research demonstrates the potential this project has to mobilize local Indigenous women’s perspectives and voices, in order to break the silence to which they are often subjected through structures of oppression. This process relies on the establishment of meaningful connections with members of the StFX Aboriginal Student’s Society and creating a transparent research process, while also encouraging action in the form of awareness building. The project makes a political statement that resists the ascribed invisibility of Aboriginal women by honouring the lives of missing and murdered Aboriginal women. As a community-based initiative, the REDress project demonstrates the beginnings of reconciliation by cultivating meaningful relationships that provide hope for the future.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123825820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Cultivating Empathy and Community for Adults with Disabilities: Germany’s “Die Lebensgemeinschaft e. V.” of Sassen and Richthof","authors":"Nicolas Gedigk","doi":"10.15273/JUE.V8I2.8685","DOIUrl":"https://doi.org/10.15273/JUE.V8I2.8685","url":null,"abstract":"Sassen, a German rural community, cares for mentally disabled adults with the purpose of providing them with the empathy, freedom, and community that other institutions often fail to provide. Through participant-observation and interviews, this study examines the ways in which this isolated community does not deny disabled individuals of their humanity. Sassen has full-time, live-in caretakers that care for their own surrogate family of disabled residents, creating an empathetic, and personal community. Through its isolation from society and its live-in staff, Sassen goes beyond ensuring their residents’ survival and provides them with the freedom and empathy to engage in romantic relationships, belong to a family, and have a sense of purpose through their jobs that help sustain their community – to live and not just survive.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"178 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132877125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Visible, Invisible: A Portrait of the Intersection Between Whiteness and Moroccanness in the Netherlands","authors":"O. Dougherty","doi":"10.15273/JUE.V8I2.8687","DOIUrl":"https://doi.org/10.15273/JUE.V8I2.8687","url":null,"abstract":"This article explores the influence of appearance on experiences of race and racism in the Netherlands. It is based on one semi-structured, in-depth interview with a 20 year-old performing arts student who, despite his outward appearance of being white, has Moroccan heritage. The intersection between whiteness and Moroccan identity in the case of the interviewee is considered in terms of the Dutch national image, racial passing and Dutch visual culture. The results of the in-depth interview provide insight into the exclusivity of the categories of white and Moroccan in the image of Dutch identity, as well as the claims to a post-race Netherlands.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"4 7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128417368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Picturing Halifax: Young Immigrant Women and the Social Construction of Urban Space","authors":"Sarah England","doi":"10.15273/JUE.V8I1.8620","DOIUrl":"https://doi.org/10.15273/JUE.V8I1.8620","url":null,"abstract":"This study explores the social construction of space in the lives of young immigrant women. Drawing upon data from photo-elicitation interviews, I analyze how young women who recently immigrated to Canada interpret and transform the meanings of spaces in their everyday lives. Using the social construction of space as a conceptual framework, I demonstrate how the social positions of young immigrant women are reflected in and negotiated through their use of urban space. While participants share perceptions of risk and experiences of gendered safety issues, all negotiate these issues by gaining spatial knowledge through exploration. They all also experience Otherness in various spaces. However, they construct belonging by developing diverse social networks, claiming space, and getting involved in the international community. It is evident that the city affects how, and whether, young immigrant women mobilize their identities as immigrants. New spaces bring new understandings of their identities as women, young people, and immigrants. This study illuminates how young immigrant women transform cities, and how, in turn, the city transforms them. Editor's note: This article won the 2017 Best Undergraduate Student Paper Prize of the Society for Urban, National, and Transnational / Global Anthropology (SUNTA).","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"37 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128560227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"“Time for a Promotion? No, It’s Not for Me…” How Caring for Children with Life-Limiting Conditions Affects Health Care Assistants’ Career Decisions","authors":"E. Arslanboga","doi":"10.15273/JUE.V8I1.8617","DOIUrl":"https://doi.org/10.15273/JUE.V8I1.8617","url":null,"abstract":"This paper discusses the relationship between the level and experience of care provided by Health Care Assistants (HCAs) to children in palliative care and the HCAs’ views about their career progression. An ethnographic approach was taken to explore the reasoning that informs Health Care Assistants’ choices about whether to pursue a career pathway into nursing. The author, a medical student, conducted the study using participant observation while working as a volunteer for one year in a Children’s Hospice in England. The data presented and analysed here were collected through unstructured conversations with the HCAs. It was found that the main reason why HCAs declined opportunities to progress in their career to nursing was their fear of not being able to be emotionally available to the children with whom they worked. HCAs also wanted to avoid working in hospital settings, where they perceived that they would have to trade off emotional involvement in caring for patients against career advancement. The decision to pass up a promotion, in some cases several times, is not easy, especially when pay may be substantially higher. This study shows that participants’ job satisfaction and valuing of having time to provide compassionate care were the main motivations to avoid progressing from HCA to nursing roles.","PeriodicalId":298867,"journal":{"name":"Journal for Undergraduate Ethnography","volume":"72 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127337100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}