Changing policy and practice最新文献_第2页

38 What a difference a systematic review makes 系统回顾的作用太大了

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.38

Mala Mann, E. Harrop, A. Byrne

{"title":"38 What a difference a systematic review makes","authors":"Mala Mann, E. Harrop, A. Byrne","doi":"10.1136/spcare-2021-mcrc.38","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.38","url":null,"abstract":"IntroductionSystematic reviews aim to identify, evaluate, and summarise all the evidence meeting pre-specified eligibility criteria for a given clinical question. However, they face criticisms including long completion timeframes and level of impact. Whilst systematic reviews represent a robust methodology, evidence synthesis must address the challenges of timeliness and impacting at pace on care delivery.AimsWe use the example of a rapidly conducted narrative systematic review on the challenge of supporting large numbers of bereaved people to demonstrate how evidence can be gathered at pace and impact quickly on palliative care practice and policy.MethodWe followed Palliative Care Evidence Review Service (PaCERS) methodology1 with narrative synthesis, developed to conduct rapid reviews requested by clinicians/clinical services. A systematic search was conducted on four databases and supplementary search methods were employed to identify additional papers.ResultsSix studies were included, reporting on system responses to man-made disasters and natural disasters. Through narrative synthesis we sought to draw consistent lessons from the available evidence. The review was completed in 10 weeks and rapidly published in a peer reviewed journal2 adding to the emergent Covid literature, informing a subsequent UK wide study and provided evidence in support of a national bereavement framework for Wales.ConclusionThe COVID-19 pandemic has resulted in unprecedented research worldwide. Our review highlighted common features for effective service delivery that can be identified for bereavement support beyond the pandemic, which will have a long-lasting impact.ImpactInformed the successful funding application and project design for: Supporting people bereaved during COVID–19: a mixed methods study of bereaved people’s experiences and the bereavement services supporting them.Informed steering group discussions for the new National Framework for Bereavement Care in WalesReview published July 2020, up to now 16 citations.Placed at the top 5% of all research outputs scored by Altmetric.References Mann M, Woodward A, Nelson A, Byrne A. Palliative care evidence review service (PaCERS): a knowledge transfer partnership. Health Research Policy and Systems 2019;17(1):100. doi:10.1186/s12961-019-0504-4 Harrop E, Mann M, Semedo L, Chao D, Selman LE, Byrne A. What elements of a systems’ approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19. Palliative Medicine, 2020;34(9):1165–1181. doi:10.1177/0269216320946273","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"79 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125329028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

41 Patient safety consequences of medication incidents in palliative care: mixed method analysis of incident reports 姑息治疗中用药事件对患者安全的影响:事件报告的混合方法分析

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.41

Amy Brown, Matthew J. Wills, S. Francis, L. Bemand-Qureshi, B. Bowers, S. Hellard, Antony Chuter, A. Carson-Stevens, S. Yardley

引用次数: 0

39 Does early integration of palliative care with acute oncology services improve cancer patient outcomes following acute hospital admission? A rapid review 姑息治疗与急性肿瘤服务的早期整合是否能改善癌症患者急性住院后的预后?快速回顾

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.39

M. Mann, Lowri Evans, L. Williams, A. Byrne

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47 Mouth care matters project echo 口腔护理很重要

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.47

Melanie Nugent, A. Brooke, S. Monks, Nicola George

引用次数: 0

42 What outcome domains are considered core to assessing the impact of adult specialist palliative care services in Wales? 哪些结果领域被认为是评估威尔士成人专科姑息治疗服务影响的核心?

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.42

Rhiannon Cordiner, M. Mann, A. Byrne, Gladys Makuta, R. Stewart

引用次数: 0

32 Critically examining the experience of end of life care for people with interstitial lung disease: views of patients, families and healthcare professionals 32 .严格审查间质性肺病患者的临终护理经验:患者、家属和卫生保健专业人员的观点

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.32

E. Palmer, A. Bourke, S. Visram, I. Forrest, C. Exley

{"title":"32 Critically examining the experience of end of life care for people with interstitial lung disease: views of patients, families and healthcare professionals","authors":"E. Palmer, A. Bourke, S. Visram, I. Forrest, C. Exley","doi":"10.1136/spcare-2021-mcrc.32","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.32","url":null,"abstract":"IntroductionPeople with interstitial lung disease (ILD) have a high symptom burden at the end of life and the majority die in hospital.AimsTo explore patients’ and their relatives’ experiences of end of life care in ILD. To explore potential barriers preventing access to palliative care services and develop a theoretical framework that captures the experience of dying with ILD.MethodTwenty semi-structured interviews have been conducted to date with patients with ILD, bereaved carers and healthcare professionals. Interviews are transcribed verbatim and data analysis is undertaken concurrently with data generation using Grounded Theory.ResultsData generation and analysis is ongoing. Candidate themes identified from the data are 1) Hidden illness, 2) Preparing for dying, 3) The important bit – final days and hours, 5) Lasting memories. These themes are likely to develop further with additional data from subsequent interviews. There is often a dichotomy between what information is wanted by relatives towards the end of life and what people with ILD are happy to discuss. Recognition of dying is important to allow the opportunity for advance care planning for people who wish to have these discussions. Symptom control and family presence at the end of life has an impact of bereaved relatives’ lasting memories. The covid-19 pandemic has heavily influenced these factors and highlighted deficiencies in the existing services.ConclusionThe uncertain prognosis associated with ILD leads to avoidance of advance care planning by both patients, relatives and healthcare professionals. This ongoing research project will add to the emerging body of evidence of the importance of timely end of life care in this patient group, which has many similarities to covid-19, namely respiratory symptoms, and the propensity to deteriorate suddenly.ImpactThis research will influence the design and delivery of palliative care services for people with ILD regionally and potentially opportunity to explore this nationally.","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"13 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128451704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

44 End of life anticipatory medication: understanding the financial costs of medicines 临终预期药物治疗:了解药物的财务成本

Changing policy and practice Pub Date : 2022-01-01 DOI: 10.1136/spcare-2021-mcrc.44

L. Morgan, S. Barclay, B. Bowers

引用次数: 1