Changing policy and practice最新文献

{"title":"40 ‘ACP, what’s that?’ Exploring public perceptions of advance/anticipatory care planning in research, among citizens and online","authors":"A. Canny, B. Mason, Clare Atkins, Rebecca M. Patterson, Lorna Moussa, K. Boyd","doi":"10.1136/spcare-2021-mcrc.40","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.40","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132710985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"35 Developing and evaluating collaborative planning of future care – advance care planning in a long-term residential setting for older homeless adults. A qualitative study","authors":"A. Jordan, O. Keegan, U. Molloy","doi":"10.1136/spcare-2021-mcrc.35","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.35","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"80 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121686818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"36 How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?","authors":"S. Stanley, A. Nwosu","doi":"10.1136/spcare-2021-mcrc.36","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.36","url":null,"abstract":"IntroductionThe need for palliative care is expected to increase globally due to a number of socioeconomic factors,1 therefore it is essential for society to use technology better to improve palliative care.2AimsThis project looks to identify learning beyond the COVID19 pandemic in the United Kingdom (UK), highlighting knowledge and skills required to support healthcare professionals to adopt technology to support communication.MethodAn electronic survey was developed consisting of a maximum of 36 multiple choice and free text response questions gathering demographic information and covering three themed areas: Communication within the multidisciplinary team, use of technology for education and using technology to support communication with patients and carers.ResultsThe survey received 234 responses from palliative care healthcare professionals across the UK, with 97% of respondents reporting that they have used technology to support communication more since the beginning of the Covid19 pandemic. Responses have highlighted several benefits of using technology to support communication in these areas, whilst providing greater understanding of the barriers that exist.ConclusionOur work has shown that there is an increasing use of technology to support communication in palliative care. It is essential that organisations acknowledge and adapt to this change in order for healthcare professionals to provide the best possible care by improving access and quality of palliative care services.ImpactThis work highlights areas of improvement needed to allow healthcare professionals to use technology to support communication. If used well, this can improve the scope of palliative care delivery in the future.References Bone AE, Gomes B, Etkind SN, et al. What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliative Medicine 2017;32(2):329–36. doi:10.1177/0269216317734435 Nwosu AC, Collins B, Mason S. Big data analysis to improve care for people living with serious illness: the potential to use new emerging technology in palliative care. Palliative Medicine 2018;32(1):164–66. doi:10.1177/0269216317726250","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"16 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125289558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"43 Cognitive changes experienced by patients with high-grade glioma after radiotherapy: A mixed method, public survey","authors":"Francesca Mazzaschi, S. Sivell, A. Byrne, K. Brain, J. Powell","doi":"10.1136/spcare-2021-mcrc.43","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.43","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"79 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132164205","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"45 Learnings from a portfolio analysis of the UK’s two largest palliative and end of life care research funders","authors":"K. Lakin, S. Best, Claire Vaughan, B. Hudson, S. Watson, Howard Simons, Dawn Biram, Hannah Thomas, Sarah Thomas, S. Ahmedzai","doi":"10.1136/spcare-2021-mcrc.45","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.45","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"152 3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128936590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"31 Communication of palliative needs in discharge letters from hospice to primary care","authors":"Katharine Weetman, J. MacArtney","doi":"10.1136/spcare-2021-mcrc.31","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.31","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121687038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"34 Death literacy in the UK– benchmarking levels of death literacy and validating a new measure","authors":"L. Graham-Wisener, Paul Toner, R. Leonard, Debbie Horsfall, J. Groarke","doi":"10.1136/spcare-2021-mcrc.34","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.34","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128939047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"46 Understanding local communities’ needs for palliative and end of life care and bereavement support","authors":"W. Yip, A. Llewellyn, Anna Robertson, C. McCabe","doi":"10.1136/spcare-2021-mcrc.46","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.46","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"62 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127238239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"33 Getting palliative medications right: intended processes for home, hospital and hospice","authors":"S. Yardley, S. Francis, B. Franklin, M. Ogden, J. Elyan, K. Mattick, A. Kajamaa","doi":"10.1136/spcare-2021-mcrc.33","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.33","url":null,"abstract":"","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"46 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130445100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"37 How can we meet the needs of people impacted by terminal illnesses in future loneliness policy development in Northern Ireland using research evidence?","authors":"T. McConnell, A. Finucane, Je Hanna, C. Harrison, B. Hudson, A. McCullagh, Sharon Paradine, Kasia Patynowska, J. Reid","doi":"10.1136/spcare-2021-mcrc.37","DOIUrl":"https://doi.org/10.1136/spcare-2021-mcrc.37","url":null,"abstract":"IntroductionWhile loneliness has been in the spotlight during the Coronavirus pandemic in the UK, for many people impacted by terminal illnesses and coming towards the end of life, the experience began a long time before March 2020. There is a growing recognition among policymakers in Northern Ireland that we need to do a lot more on the loneliness front, with NI standing today as the only place in the UK without a dedicated loneliness strategy. However, the evidence base around the impact and solutions to loneliness among terminally ill people and their loved ones is severely underdeveloped.AimsThrough the lens of health and social care professionals in Northern Ireland (NI), this research aims to explore the perceived prevalence, impact, and possible solutions to loneliness among people who are terminally ill and their carers.MethodExplanatory sequential mixed methods comprising an online survey (n = 68;response rate 30%) and three online focus groups (n = 15) with Marie Curie health and social care professionals. Data analysis included descriptive statistics and thematic analysis. Patients and informal carers were involved in shaping the results.ResultsWe will report preliminary findings, with a focus on the value of the Marie Curie policy-themed small research grants for supporting research to influence policy.ConclusionThis study will provide an evidence base on the impact, and tools for alleviating, loneliness among people with terminal illnesses and their carers.ImpactThis research evidence will be critical for influencing political change in NI and ensuring that, when and if a future loneliness strategy is developed, people impacted by terminal illness are given due regard and attention. The impact of loneliness on their lives every day is simply too great not to.","PeriodicalId":269307,"journal":{"name":"Changing policy and practice","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124913075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}