Sociology of health & illness最新文献_第7页

'Sweating Blood': Patients' Dirty Work in Informal Complaint Biographies. “出汗的血”：病人在非正式投诉传记中的肮脏工作。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-03-01 DOI: 10.1111/1467-9566.70167

Jelmer Brüggemann, Lisa Guntram, Ann-Charlotte Nedlund

{"title":"'Sweating Blood': Patients' Dirty Work in Informal Complaint Biographies.","authors":"Jelmer Brüggemann, Lisa Guntram, Ann-Charlotte Nedlund","doi":"10.1111/1467-9566.70167","DOIUrl":"10.1111/1467-9566.70167","url":null,"abstract":"Every day patients make informal complaints directly to care professionals. Although common in care encounters, the practice remains understudied. In this study, we focus on informal complaints through an analysis of interviews with 19 patients in Sweden, many living with chronic illness. We conceptualise these complaints as 'informal complaint biographies': not merely verbal expressions, but interwoven with people's lives, identities and care trajectories. As a lens through which to examine informal complaining, this study investigates 'dirty work': work that is considered a nuisance or even humiliating. We identify three different kinds of dirty work. 'Disgusting' refers to work with physical dirt entangled with the complaint. 'Drudging' describes patients' persistence, their effort to make healthcare function. Finally, 'disrupting' characterises work that challenges expertise from a vulnerable position. Our analysis shows how informal complaining can involve various types of undignifying work that cannot be separated from the complaint itself. By including work done by others than the traditional 'worker', namely patients, this study expands scholarship on dirty work. The study calls attention to how dirty work is shaped by systemic inefficiencies in healthcare and contributes new perspectives to complaints, research and policy, which is often wiped clean from any kind of dirt.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 3","pages":"e70167"},"PeriodicalIF":2.6,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12967771/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147378382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transformations in Diabetes Care: Lessons From Commons-Based, Peer-Produced Citizen Science. 糖尿病护理的转变：来自共同基础、同行产生的公民科学的教训。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70140

Shane O'Donnell, Muireann Quigley

{"title":"Transformations in Diabetes Care: Lessons From Commons-Based, Peer-Produced Citizen Science.","authors":"Shane O'Donnell, Muireann Quigley","doi":"10.1111/1467-9566.70140","DOIUrl":"10.1111/1467-9566.70140","url":null,"abstract":"Medical technologies have historically been the domain of private entities and public institutions. However, this market-state model is being challenged by commons-based, peer-produced citizen science. Here, we present a community of people with diabetes, which has developed life-critical medical devices through open-source innovation, as a case study in the possibilities and constraints of a more commons-centric form of healthcare. We draw on insights from an existing body of social scientific research, as well as the first author's personal experience as a member of this movement, putting them in the context of a theoretical approach in which commoning is viewed as a transformative social paradigm. Drawing on Bollier and Helfrich's patterns of commoning, we offer two linked conceptual contributions which function as an analytical lens. First, we outline what we call the 'diabetes commons' to understand the dynamics of how the community established an alternative innovation ecosystem. Second, we posit 'medical technology provisioning', whereby production, consumption and follow-up care are blended into a holistic whole. We highlight how promoting an open innovation model allowed the community to avoid enclosure and transformed the diabetes device landscape. We also argue that this openness has created challenges for its autonomy and sustainability as a commons.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70140"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12828094/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146030761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rethinking the Role of HIV/AIDS Memories in Gay Men's Experiences of COVID-19 Fear: The Centrality of Social and Ethnic Inequalities. 重新思考艾滋病毒/艾滋病记忆在男同性恋者COVID-19恐惧经历中的作用：社会和种族不平等的中心地位。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70146

Sophie Atherton, Jaime Garcia-Iglesias

{"title":"Rethinking the Role of HIV/AIDS Memories in Gay Men's Experiences of COVID-19 Fear: The Centrality of Social and Ethnic Inequalities.","authors":"Sophie Atherton, Jaime Garcia-Iglesias","doi":"10.1111/1467-9566.70146","DOIUrl":"10.1111/1467-9566.70146","url":null,"abstract":"This paper examines how gay men in the UK experienced fear during the COVID-19 pandemic, and how these experiences were shaped by memories of HIV/AIDS, ethnicity, socio-economic position and access to social support. Although much scholarship assumes that HIV casts a long shadow over gay men's responses to subsequent health crises, we explore to what extent HIV memories actually structured COVID-19 fear. Drawing on 45 semi-structured interviews with gay men of diverse ages, ethnic backgrounds and HIV statuses, we identify three overlapping forms of COVID-19 fear: fear of contagion, fear of infecting others, and fear about societal futures. Although some participants explicitly drew parallels with the AIDS crisis, most described HIV and COVID-19 as too different in transmission, temporality and social meaning for HIV memories to be central to their experiences of fear. Instead, COVID-19 fear was most powerfully patterned by socio-economic precarity and the presence or absence of social support networks. These forms of vulnerability were disproportionately reported by ethnic minority men. Our findings challenge assumptions about the primacy of HIV memory in shaping gay men's pandemic experiences and re-centre contemporary inequalities as key determinants of COVID-19 fear.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70146"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146046664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reflections on Healthism and Medicalization 45 Years Later. 45年后对健康主义和医疗化的思考。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70147

Robert Crawford

引用次数: 0

Non-Directiveness and Authenticity in the Predictive Genetic Clinic. 预测性遗传临床的非指导性与真实性。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70149

Shane Doheny, Rebecca Dimond, Lisa Ballard, Anneke Lucassen, Angus Clarke

{"title":"Non-Directiveness and Authenticity in the Predictive Genetic Clinic.","authors":"Shane Doheny, Rebecca Dimond, Lisa Ballard, Anneke Lucassen, Angus Clarke","doi":"10.1111/1467-9566.70149","DOIUrl":"10.1111/1467-9566.70149","url":null,"abstract":"The predictive genetic clinic is a space where counsellors use non-directive counselling to facilitate asymptomatic patients at risk of carrying a dominantly inherited disease access a predictive genetic test. The social science literature has a history of examining practices within this clinic, but with little attention from the sociology of identity. In this paper, we highlight the importance of identity within these clinics by examining how currently healthy patients anticipate the prospect of a future identity of illness and death. We do this by examining how patients authenticate a decision to take a predictive genetic test for Huntington's Disease (HD). In deciding to take this test, a patient simultaneously asserts that they want the test, and they will be able to cope with a positive (bad news) test result. Positioning this as a claim to authenticity using Habermas, we explore authentic decision making through four themes-vouching, calibrating, reassuring and projecting. Non-directive counselling provides space for patients to articulate the authenticity of their decision while enabling counsellors probe their decision. However, counselling risks hindering authentic decision making and may devalue the social and familial as bases for efforts to authenticate.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70149"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12854100/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146087031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Between Suicide and Regret: Media Representations of Gender-Affirming Care for Transgender and Gender Diverse Youth. 自杀与后悔之间：跨性别与多元性别青年性别认同关怀的媒体表现。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70141

Ida Linander, Johanna Lauri

{"title":"Between Suicide and Regret: Media Representations of Gender-Affirming Care for Transgender and Gender Diverse Youth.","authors":"Ida Linander, Johanna Lauri","doi":"10.1111/1467-9566.70141","DOIUrl":"10.1111/1467-9566.70141","url":null,"abstract":"Prompted by intense public debate and policy shifts, this study examines news media representations of gender-affirming care for transgender and gender diverse (TGD) youth in Sweden from 2019 to 2023. The analysis draws on Hall's theories of media representation and articulation, with a framework focussing on risk and temporality. Analysing media representations is crucial for understanding how societal discourses on gender dysphoria are shaped. The media articulates a dramatic rise in youth seeking gender-affirming care, and portrays a new group of patients, primarily young \"girls\" with neuropsychiatric conditions. This group is frequently articulated as vulnerable, mentally unstable and influenced by social contagion. The media representations draw on a risk discourse, centred on the threat of future regret, the irreversibility of medical interventions and suicidality. Both critics and supporters of gender-affirming care invoke suicide risk to justify their positions. The study highlights how TGD youths' voices are largely absent from the media representations. It critiques the simplified constructions of gender dysphoria and calls for more nuanced understandings of the rise of a diagnosis, care access and mental health. Finally, the paper illustrates shifting alliances and resistance within a broader conjuncture where professional and cultural tensions shape public discourse on gender-affirming care.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70141"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12848637/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146066460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

At the Crossroads of Data Justice and Data Capitalism: How Generative AI in Healthcare Mobilises Its Assemblages. 在数据正义和数据资本主义的十字路口：医疗保健中的生成人工智能如何动员其组合。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70150

Nicole Gross, Susi Geiger

{"title":"At the Crossroads of Data Justice and Data Capitalism: How Generative AI in Healthcare Mobilises Its Assemblages.","authors":"Nicole Gross, Susi Geiger","doi":"10.1111/1467-9566.70150","DOIUrl":"10.1111/1467-9566.70150","url":null,"abstract":"Algorithmic technologies such as machine learning, generative artificial intelligence (GenAI) and automated decision-making have become one of the frontiers of contemporary technoscientific innovation in healthcare. However, algorithmic technologies can never be seen in isolation from the networks in which they are embedded. Not only are they woven into situated sociotechnical assemblages of human and nonhuman entities-tools, objects and other technologies-but their entanglements also reach into regulatory institutions and markets. This paper conceptualises GenAI in healthcare 'in the making' at the rapidly changing intersection of three spheres: regulatory, market and healthcare delivery. Our study, conducted in conjunction with two nongovernmental social justice organisations, explores how this intersection is currently 'motored' by data justice concerns on the one hand and data capitalist objectives on the other. We draw health sociologists' attention to the technopolitics and market interests that lie behind AI promissories and implementations in healthcare. More importantly, we contribute to collective thinking around how we may steer this dynamic towards the empowerment of civic society, dynamic regulation and a push for public value-rather than enrichment of the few.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70150"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12856386/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146086955","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Contesting the C Word: The Diagnosis of DCIS and Women's Resistance Against Overtreatment. 挑战C字：DCIS的诊断与女性对过度治疗的抵抗。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70145

Chien-Juh Gu

{"title":"Contesting the C Word: The Diagnosis of DCIS and Women's Resistance Against Overtreatment.","authors":"Chien-Juh Gu","doi":"10.1111/1467-9566.70145","DOIUrl":"10.1111/1467-9566.70145","url":null,"abstract":"DCIS, or ductal carcinoma in situ-also known as Stage 0 breast cancer-accounts for approximately 20 per cent of new breast cancer cases. Although it is noninvasive, treatment typically mirrors that of invasive cancer. Whether DCIS is overtreated remains controversial, even among medical professionals. This study analyses discussions within a Facebook group of women diagnosed with DCIS who have declined the standard of care (SOC). The findings suggest that these women hold contrasting views on cancer risk compared to their healthcare providers. Although doctors focus on the potential for DCIS to progress to invasive cancer, the women emphasise the higher likelihood of nonprogression. Their considerations of alternative treatments are often dismissed by medical professionals, heightening the stress of an already anxiety-inducing diagnosis. This online community provides affirmation and support to those who choose holistic approaches to manage their condition. However, rejecting the SOC shifts the responsibility for healing onto the individual. These women must engage in vigilant self-surveillance, maintain strict healthy lifestyles and uphold an optimistic outlook-demands that require significant physical discipline and emotion work. This case carries important implications for both sociological research and medical practice.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70145"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12856781/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146086963","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

(Re)constructing Intersectional Masculinities Following Myocardial Infarction. （Re）心肌梗死后交叉男性特征的构建。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-02-01 DOI: 10.1111/1467-9566.70151

Jesper Andreasson, Thomas Johansson, Carina Danemalm-Jägervall, Anna Strömberg

{"title":"(Re)constructing Intersectional Masculinities Following Myocardial Infarction.","authors":"Jesper Andreasson, Thomas Johansson, Carina Danemalm-Jägervall, Anna Strömberg","doi":"10.1111/1467-9566.70151","DOIUrl":"10.1111/1467-9566.70151","url":null,"abstract":"This study builds on interview data with 24 Swedish men who have been diagnosed with and treated for myocardial infarction (MI). The aim is to explore how masculine subjectivities are constituted and dynamically negotiated through men's meaning-making of their illness experiences, with particular attention to how notions of masculinity intersect with and are shaped by social categories such as class and age. Across the data, various configurations of masculinity were generated: from stoic endurance and bodily control to emotional reflexivity and relational responsibility. These constructs of masculinity are not equally valued, however. Certain seemingly masculine ideals, such as autonomy and productivity, tend to remain culturally dominant, whereas other modes, such as care orientation, are more conditionally addressed. Furthermore, the results show how masculinity, in intersection with age and socioeconomic position, may function as both an impediment and an opportunity for dealing with the disruption that the MI might bring in terms of changes in lifestyle, health, work and family life. By doing so, the study contributes to theorising hegemonic masculinity, showing how it is continuously reconfigured rather than fixed and how it is negotiated through classed and aged subject positions in the context of illness.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 2","pages":"e70151"},"PeriodicalIF":2.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12887143/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146150587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Immunitary Life in COVID-19 Times: Understandings, Practices and Experiences Among Members of Marginalised Social Groups. COVID-19时代的免疫生活：边缘社会群体成员的理解、实践和经验。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70125

Deborah Lupton, Kerryn Drysdale

{"title":"Immunitary Life in COVID-19 Times: Understandings, Practices and Experiences Among Members of Marginalised Social Groups.","authors":"Deborah Lupton, Kerryn Drysdale","doi":"10.1111/1467-9566.70125","DOIUrl":"10.1111/1467-9566.70125","url":null,"abstract":"Since the outbreak of COVID-19, the concepts of human immunity and immune responsiveness have received new attention. This article reports findings from a project that interviewed members of four marginalised subgroups of the Australian population with experience of blood-borne viruses, other chronic health conditions and social stigma about how they understand their immunity and in what practices they have engaged to strengthen their immune responsiveness since the outbreak of COVID. In participants' accounts, there were echoes of long-held concepts about immunity as self-defence against invasion and personal responsibility for strong immune responsiveness. However, these ideas were combined with less adversarial concepts referring to the importance of friendly collaboration with one's immune system, as well as the role of collective responses in strengthening individuals' immunity. Participants also acknowledged the influence of external factors beyond their control that affected their immunity. They were strongly supportive of COVID vaccines but also recognised that they were just one part of a 'package' of immunitarian behaviours and health factors required to protect themselves and others. This study, therefore, contributes to a more inclusive conceptualisation of immunity-related biopolitics that acknowledges the sociocultural and material conditions in which immunities extend beyond the atomised individual body.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70125"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145662033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0