Sociology of health & illness最新文献_第2页

Parental illness work across the attention deficit hyperactivity disorder diagnostic journey. 注意力缺陷多动障碍诊断过程中的父母疾病工作。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-07-18 DOI: 10.1111/1467-9566.13817

Tom Nicholson, Richard Lee

{"title":"Parental illness work across the attention deficit hyperactivity disorder diagnostic journey.","authors":"Tom Nicholson, Richard Lee","doi":"10.1111/1467-9566.13817","DOIUrl":"10.1111/1467-9566.13817","url":null,"abstract":"The process of referral, assessment, and diagnosis of attention deficit hyperactivity disorder (ADHD) within the UK is often protracted. Given that parents are frequently the instigators of the diagnostic process, understanding the experience of parents is important. Drawing on findings from a longitudinal study, this article explores how the parental experience of the ADHD diagnostic journey includes three significant and distinct forms of 'illness work'. Twenty-one semi-structured serial interviews were conducted over a 2-year period with seven parents of children on the ADHD diagnostic journey in North East England. We present three significant forms of parental illness work: (1) The 'diagnostic quest', parental work recognising and fighting for their children's needs and selfhood, seeking diagnosis and engaging with systems, (2) 'self-biographical illness work', the personal parental biographical response to the diagnostic journey and (3) 'child biographical illness work and recontextualizing the child', parental biographical adjustment and recontextualisation of their children. We advance Rasmussen et al.'s (2021) model by demonstrating its usefulness in understanding how parents with a personal ADHD diagnosis experience biographical disruption or cohesion in response to their children's diagnosis. That a child's diagnosis leads parents with ADHD to experience a self-biographical cohesive or disruptive response is a unique and significant finding.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1647-1667"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141634484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'When all you have is a hammer, everything has to be a nail': Managing diagnostic uncertainty in urinary tract infection. 当你只有一把锤子时，一切都会变成钉子"：处理尿路感染诊断的不确定性。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-06-03 DOI: 10.1111/1467-9566.13803

Eleanor Kashouris

{"title":"'When all you have is a hammer, everything has to be a nail': Managing diagnostic uncertainty in urinary tract infection.","authors":"Eleanor Kashouris","doi":"10.1111/1467-9566.13803","DOIUrl":"10.1111/1467-9566.13803","url":null,"abstract":"Diagnosis of urinary tract infections (UTI) is a routine part of medical work and yet is well recognised to be an area of high clinical uncertainty. Meanwhile, diagnosis of UTI is becoming increasingly important to policymakers globally due to concerns about antibiotic over-prescription. Drawing on Mol's concept of ontological multiplicity in clinical work, I explore how diagnostic uncertainty is co-ordinated into certainty by a UK national diagnostic algorithm for UTI. The diagnosis of UTI is produced or withheld as a post hoc rationalisation of a prior decision whether to prescribe antibiotics or not. Work in the sociology of diagnosis has already noted that diagnostic steps are often re-ordered by health-care professionals taking diverse actions in the best interest of their patients. This article contributes an argument that ordering diagnostic work around antimicrobial stewardship agendas has the effect of narrowing possible actions. Exploring the consequences and effects of doing diagnosis in this way for different groups, I argue that a greater creativity about what could be done to care for painful bladders could be found in a return to more clinical ways of working.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1668-1685"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141236930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'You're just a Guinea pig': Exploring the barriers and impacts of living with long COVID-19: A view from the undiagnosed. 你只是一只几内亚猪"：探索长期患有 COVID-19 的障碍和影响：来自未确诊患者的观点。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-06-08 DOI: 10.1111/1467-9566.13795

Jordan Mullard, Ghazala Mir, Chantal Herbert, Sophie Evans

{"title":"'You're just a Guinea pig': Exploring the barriers and impacts of living with long COVID-19: A view from the undiagnosed.","authors":"Jordan Mullard, Ghazala Mir, Chantal Herbert, Sophie Evans","doi":"10.1111/1467-9566.13795","DOIUrl":"10.1111/1467-9566.13795","url":null,"abstract":"The COVID-19 pandemic had a disproportionate impact on ethnically minoritised and other marginalised communities, yet little is known about the impacts of long COVID-19 (LC) on this group. Living with LC takes its toll both physically, emotionally and financially and even more so when a diagnosis is hard to come by. By using qualitative interviews centring the view of undiagnosed and marginalised communities already classed as 'underserved' in the medical literature, we show the range of barriers and impacts faced by these groups in the UK, and the strategies of resilience they use. Whether trapped on a 'diagnostic odyssey' at the level of primary care, struggling to maintain employment and businesses, or managing family commitments, we argue many minoritised communities are caught in a liminal space of misrecognition, invalidation and ambiguity. We show how these impacts are generated by tensions and challenges in the process and categorisation of diagnosis, and how this effects the daily lives of many individuals already on the receiving end of health inequity. We also offer some examples and suggestions for best practices.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1602-1625"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141293685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A third indeterminacy of labour power: Worker health investment and the indeterminacy of labour health. 劳动能力的第三种不确定性：工人健康投资与劳动健康的不确定性。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-06-30 DOI: 10.1111/1467-9566.13807

Geraint Harvey, James Wallace

引用次数: 0

The reflexive imperative in the digital age: Using Archer's 'fractured reflexivity' to theorise widening inequities in UK general practice. 数字时代的反思要求：利用阿彻的 "断裂式反身性 "理论分析英国全科医学中不断扩大的不平等现象。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-06-22 DOI: 10.1111/1467-9566.13811

Sarah Rybczynska-Bunt, Richard Byng, Sophie Spitters, Sara E Shaw, Ben Jameson, Trisha Greenhalgh

{"title":"The reflexive imperative in the digital age: Using Archer's 'fractured reflexivity' to theorise widening inequities in UK general practice.","authors":"Sarah Rybczynska-Bunt, Richard Byng, Sophie Spitters, Sara E Shaw, Ben Jameson, Trisha Greenhalgh","doi":"10.1111/1467-9566.13811","DOIUrl":"10.1111/1467-9566.13811","url":null,"abstract":"'Reflexivity', as used by Margaret Archer, means creative self-mastery that enables individuals to evaluate their social situation and act purposively within it. People with complex health and social needs may be less able to reflect on their predicament and act to address it. Reflexivity is imperative in complex and changing social situations. The substantial widening of health inequities since the introduction of remote and digital modalities in health care has been well-documented but inadequately theorised. In this article, we use Archer's theory of fractured reflexivity to understand digital disparities in data from a 28-month longitudinal ethnographic study of 12 UK general practices and a sample of in-depth clinical cases from 'Deep End' practices serving highly deprived populations. Through four composite patient cases crafted to illustrate different dimensions of disadvantage, we show how adverse past experiences and structural inequities intersect with patients' reflexive capacity to self-advocate and act strategically. In some cases, staff were able to use creative workarounds to compensate for patients' fractured reflexivity, but such actions were limited by workforce capacity and staff awareness. Unless a more systematic safety net is introduced and resourced, people with complex needs are likely to remain multiply disadvantaged by remote and digital health care.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1772-1791"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141459073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes among physicians towards transgender and gender diverse people in Turkey: Relationship with religiousness, political view and conservatism. 土耳其医生对变性人和性别不同者的态度：与宗教信仰、政治观点和保守主义的关系。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-07-18 DOI: 10.1111/1467-9566.13809

Gökhan Ersoy, Aytunç Akrep, Anıl Çakır Gönen, Zeynep Belma Gölge

{"title":"Attitudes among physicians towards transgender and gender diverse people in Turkey: Relationship with religiousness, political view and conservatism.","authors":"Gökhan Ersoy, Aytunç Akrep, Anıl Çakır Gönen, Zeynep Belma Gölge","doi":"10.1111/1467-9566.13809","DOIUrl":"10.1111/1467-9566.13809","url":null,"abstract":"According to several recent studies, physicians in various medical branches have some differences in attitudes towards transgender and gender-diverse (TGD) persons based on religious or political beliefs. Our study aims to uncover the attitudes of the general physician community in Turkey, which has a youthful profile, regarding TGD individuals. The attitudes towards transgender individuals scale (ATTI) and the general conservatism scale, along with a form that asks about socio-demographic factors, political beliefs, and level of religion, were administered online to physicians. The ATTI score of physicians (mean = 77.8) is favourable and did not vary among branches. Being female, being close to TGD, having left-wing views, low conservatism and low religious belief scores were associated with positive attitudes towards TGD individuals. The physician profile's moderate religious belief and left-wing views can be interpreted as a country-specific dynamic and did not prevent the approach from being positive. Despite physicians' positive attitude towards TGD individuals on a professional level, there is resistance to contacting them in their daily lives. The possibility of the partial contribution of socially desirable response behaviour to positive scores should not be ignored.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1686-1708"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141724460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the intersection of income and race in an age diverse sample of people with Type 1 diabetes. 在不同年龄段的 1 型糖尿病患者样本中探索收入与种族的交集。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-07-04 DOI: 10.1111/1467-9566.13814

Mallory J Bell, Olivia T Neff

引用次数: 0

Young adults' experiences of biographical retrogression whilst living with long COVID. 青壮年在长期 COVID 生活中的传记倒退经历。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-06-12 DOI: 10.1111/1467-9566.13798

Kate Hunt, Alice Maclean, Louise Locock, Callum O'Dwyer, Sarah Nettleton, Sue Ziebland, Cervantee Wild

{"title":"Young adults' experiences of biographical retrogression whilst living with long COVID.","authors":"Kate Hunt, Alice Maclean, Louise Locock, Callum O'Dwyer, Sarah Nettleton, Sue Ziebland, Cervantee Wild","doi":"10.1111/1467-9566.13798","DOIUrl":"10.1111/1467-9566.13798","url":null,"abstract":"During the early years (2020-2021) of the COVID-19 pandemic, relatively little attention focused on experiences of people with long-lasting symptoms, particularly young adults who were commonly understood to be invulnerable to serious effects of the virus. Drawing on narrative interviews with 15 adults in their twenties and living in the UK when they became ill with long COVID, we explore contextual factors which made their long COVID illness experience, and the wholescale disruption to their lives, challenging. We propose that existing adaptations of the concept of biographical disruption are problematic for this group, and instead suggest that 'biographical retrogression' may more accurately reflect these young adults' experiences. For many of these young adults, their illness occurred at a crucial stage in forming or solidifying (presumed) adult trajectories. Secondly, the recency of long COVID did not allow for comparison with an existing 'grand narrative' of recovery, so the future course of their illness was not just unknown for them as individuals; there was no prognostic map against which to assess their symptoms. Thirdly, the lives of people with long COVID have been disrupted in the context of global societal disruption by the same virus, rendering their experiences both topical yet invisible.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1526-1546"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141306751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Working knowledge, uncertainty and ontological politics: An ethnography of UK long covid clinics. 工作知识、不确定性和本体论政治：英国长期阴道炎诊所的人种学研究。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-07-19 DOI: 10.1111/1467-9566.13819

Trisha Greenhalgh, Julie Darbyshire, Emma Ladds, Jackie Van Dael, Clare Rayner

{"title":"Working knowledge, uncertainty and ontological politics: An ethnography of UK long covid clinics.","authors":"Trisha Greenhalgh, Julie Darbyshire, Emma Ladds, Jackie Van Dael, Clare Rayner","doi":"10.1111/1467-9566.13819","DOIUrl":"10.1111/1467-9566.13819","url":null,"abstract":"Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual trust, distributed cognition (e.g. emails, record entries), relational knowledge of what was at stake for the patient, and harnessing uncertainty to open new discursive spaces. Most long covid MDTs performed the working knowledge of 'rehabilitation', a linked set of practices oriented to ensuring that the patient understood and strove to 'correct' maladaptive physiological responses (e.g. through breathing exercises) and pursued recovery goals, supported by physiotherapists, psychologists and generalist clinicians. Some MDTs with a higher proportion of doctors (e.g. cardiologists, neurologists, immunologists) enacted the working knowledge of 'microscopic damage', seeking to elucidate and rectify long covid's underlying molecular and cellular pathology. They justified non-standard investigations and medication in selected patients by co-constructing an evidentiary narrative based on biological mechanisms. Working knowledge was ontologically concordant within MDTs but sometimes discordant between MDTs. Overt ontological conflict occurred mostly when patients attending 'rehabilitation' clinics invoked the working knowledge of microscopic damage that had been generated and circulated in online support communities.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1881-1900"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141731348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Valuing good health care: How medical doctors, scientists and patients relate ethical challenges with artificial intelligence decision-making support tools in prostate cancer diagnostics to good health care. 重视良好的医疗保健：医生、科学家和患者如何将前列腺癌诊断中的人工智能决策支持工具所带来的伦理挑战与良好的医疗保健联系起来。

IF 2.7 2区医学

Sociology of health & illness Pub Date : 2024-11-01 Epub Date: 2024-07-22 DOI: 10.1111/1467-9566.13818

Maria Bårdsen Hesjedal, Emilie Hybertsen Lysø, Marit Solbjør, John-Arne Skolbekken

{"title":"Valuing good health care: How medical doctors, scientists and patients relate ethical challenges with artificial intelligence decision-making support tools in prostate cancer diagnostics to good health care.","authors":"Maria Bårdsen Hesjedal, Emilie Hybertsen Lysø, Marit Solbjør, John-Arne Skolbekken","doi":"10.1111/1467-9566.13818","DOIUrl":"10.1111/1467-9566.13818","url":null,"abstract":"Artificial intelligence (AI) is increasingly used in health care to improve diagnostics and treatment. Decision-making tools intended to help professionals in diagnostic processes are developed in a variety of medical fields. Despite the imagined benefits, AI in health care is contested. Scholars point to ethical and social issues related to the development, implementation, and use of AI in diagnostics. Here, we investigate how three relevant groups construct ethical challenges with AI decision-making tools in prostate cancer (PCa) diagnostics: scientists developing AI decision support tools for interpreting MRI scans for PCa, medical doctors working with PCa and PCa patients. This qualitative study is based on participant observation and interviews with the abovementioned actors. The analysis focuses on how each group draws on their understanding of 'good health care' when discussing ethical challenges, and how they mobilise different registers of valuing in this process. Our theoretical approach is inspired by scholarship on evaluation and justification. We demonstrate how ethical challenges in this area are conceptualised, weighted and negotiated among these participants as processes of valuing good health care and compare their perspectives.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1808-1827"},"PeriodicalIF":2.7,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0