Palliative Medicine最新文献

{"title":"Mapping the Science of palliative care: A bibliometric analysis of the top 100 cited articles.","authors":"Jacopo D'Andria Ursoleo, Alice Bottussi, Sandy Christiansen, Donald R Sullivan, Kelly C Vranas, William E Rosa, Fabrizio Monaco","doi":"10.1177/02692163251362560","DOIUrl":"10.1177/02692163251362560","url":null,"abstract":"<p><strong>Background: </strong>The palliative care evidence base has grown substantially in recent years with the benefits, barriers, and facilitators of care delivery well established across many settings and contexts.</p><p><strong>Aim: </strong>We aimed to rigorously and systematically delineate the trends, themes, and scope of the top 100 papers aided by bibliometrics to map the field of palliative care science and identify future directions for the field.</p><p><strong>Design: </strong>We conducted a bibliometric analysis in accordance with the BIBLIO checklist for reporting the bibliometric reviews.</p><p><strong>Data source: </strong>Employing a comprehensive search string we examined the Scopus online database from inception to December 14th, 2024, to identify and retrieve pertinent publications. Extracted data included year of publication, number of citations and other metrics, authorship, and study design, among others.</p><p><strong>Results: </strong>Total citations for the 100 most cited articles ranged from 5083 to 419. Most articles originated from the US (43%), United Kingdom (16%), and Canada (15%). Overall, 83 different first authors and 87 senior authors contributed; about half first authors and 32% of senior authors were women. Forty-two different journals published the articles. Key themes were end-of-life care, palliative care integration within different medical sub-specialties (e.g. oncology, respiratory disease), clinical tool development and validation, and symptom management.</p><p><strong>Conclusion: </strong>Our findings provide a comprehensive map of the palliative care scientific landscape with key implications for future research, clinical practice, and policy. These results can be used to mitigate scientific disparities in author representation, ensure appropriate evidence use across international contexts, and empower high-quality evidence-based palliative care advocacy.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"922-935"},"PeriodicalIF":3.9,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476462/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144964323","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Methodological reflections to support good practice in using nominal group techniques: Insights from applications in palliative care studies.","authors":"Hui-Ju Liang, Qian Xiong, Nancy Preston","doi":"10.1177/02692163251368974","DOIUrl":"https://doi.org/10.1177/02692163251368974","url":null,"abstract":"<p><strong>Background: </strong>High-quality recommendations require rigorous methods based on strong evidence to improve clinical practice. In palliative and end-of-life care, expert consensus is sometimes achieved through nominal group techniques. However, its practical challenges are often underestimated, potentially compromising the rigour and the quality of the recommendations.Methodological reflections:The methodological reflections on developing recommendations using the nominal group technique are discussed in this paper. These reflections are drawn from its theoretical foundations and applications in palliative care research, including a Taiwanese study on preparing families for a relative's death. We highlight key issues such as the omission of pilot meetings and the underestimation of practical challenges in conducting group meetings, including time constraints and real-world uncertainties, especially during the stages of listing, clarifying, voting and ranking recommendations. Cultural factors are often overlooked, as seen in the example study, where the moderator avoided interruptions to show respect and politeness during the meeting. Additionally, valuable data gathered during meetings is often underutilised. These factors collectively can undermine the quality of recommendations. Based on these insights, we offer suggestions for improvement.Key suggestions:Pilot meetings should be conducted and reported to demonstrate how they inform the main meeting, ensuring research rigour and recommendation quality. Sufficient time should be allocated for listing and clarifying recommendations and in societies with specific etiquettes (e.g. minimising interruptions to show politeness). Further qualitative analysis of meeting transcripts is suggested to better understand the context and rationale behind the recommendations and enhance their applicability and clarity.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"2692163251368974"},"PeriodicalIF":3.9,"publicationDate":"2025-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Characteristics and population estimates of unpaid end of life carers: An observational study.","authors":"Clare Gardiner, Arthur Juet, Edward Jd Webb, Juliet Stone","doi":"10.1177/02692163251366090","DOIUrl":"https://doi.org/10.1177/02692163251366090","url":null,"abstract":"<p><strong>Background: </strong>Improving support for unpaid carers is a policy priority internationally, yet there are few reliable population estimates on numbers of end of life carers, and little is known about the demographic characteristics of this group.</p><p><strong>Aim: </strong>(1) Estimate the number of unpaid end of life carers in the UK; (2) Describe demographic characteristics of this group.</p><p><strong>Design: </strong>An observational study using data from the UK Household Longitudinal Survey (Understanding Society), Health Survey for England and the Office for National Statistics to estimate the number of end of life carers in the UK. Understanding Society was used to explore characteristics of end of life carers including poverty before and after bereavement.</p><p><strong>Participants: </strong>Understanding Society collects annual data on around 40,000 households in the UK, including carers.</p><p><strong>Results: </strong>Data from Understanding Society suggests there are 150,000-180,000 unpaid end of life care in the UK each year, while data from Health Survey for England suggests a higher estimate at 570,000-775,000 carers. End of life carers are more likely to be older and female. There is an increase in the percentage of carers falling into poverty one year after they provided care.</p><p><strong>Conclusions: </strong>These analyses have provided the first estimate of the number of end of life carers in the UK, using methods which are replicable in other countries. Our data provide a useful benchmark both for the UK and for other comparable high income countries. Many end of life carers are living in poverty, including after bereavement, showing a need for policy initiatives to provide support.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"2692163251366090"},"PeriodicalIF":3.9,"publicationDate":"2025-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews.","authors":"Sophie Pask, Chukwuebuka Okwuosa, Ahmed Mohamed, Rebecca Price, Jennifer Young, Thomas Curtis, Stuart Henderson, Ishbel Winter-Luke, Anisha Sunny, Rachel L Chambers, Sarah Greenley, Therese Johansson, Anna E Bone, Stephen Barclay, Irene J Higginson, Katherine E Sleeman, Fliss Em Murtagh","doi":"10.1177/02692163251362567","DOIUrl":"https://doi.org/10.1177/02692163251362567","url":null,"abstract":"<p><strong>Background: </strong>There is growing demand for home-based palliative care because of patient preference, and increased number of deaths. Optimal models for community-based palliative and end-of-life care are unknown.</p><p><strong>Aim: </strong>To identify, synthesise and describe review-level evidence to better understand models of palliative and end-of-life care for adults living at home, and examine components of these models and their association with outcomes.</p><p><strong>Design: </strong>Systematic umbrella review, using key concepts established a priori from Firth et al. and Brereton et al.''s model descriptions. Quality assessment used AMSTAR-2 or equivalent.</p><p><strong>Data sources: </strong>MEDLINE, EMBASE, CINAHL, Cochrane Database, Epistemonikos (inception - 2024), supplemented by CareSearch, PROSPERO and citation searches.</p><p><strong>Results: </strong>From 6683 initial papers, <i>n</i> = 66 reviews were included. Seven models of care were identified; by setting (in-home, outpatient); type of professionals (specialist, integrated, non-specialist); or mode (telehealth, education/training). Components included: holistic person-centred assessment, skilled professionals, access to medicines/care/equipment, patient/family support, advance care planning, integration of services, virtual/remote technology and education. We categorised outcomes into: (i) patient outcomes, (ii) family/informal caregiver outcomes, (iii) professional outcomes and iv) service utilisation/cost outcomes. The 'in-home palliative care' model was most researched with good evidence of positive benefit. Specialist and integrated models of care were next most researched, with evidence of improved patient and service utilisation outcomes. Cost-effectiveness evidence was lacking.</p><p><strong>Conclusion: </strong>This meta-level evidence supports provision of in-home palliative care, with most review level evidence showing positive effect on patient outcomes. There was also evidence to support specialist palliative care and integration of primary palliative care with specialist support.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"2692163251362567"},"PeriodicalIF":3.9,"publicationDate":"2025-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145001241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative care and assisted dying: Uneasy bedfellows.","authors":"James Downar, Nancy Preston","doi":"10.1177/02692163251365440","DOIUrl":"10.1177/02692163251365440","url":null,"abstract":"","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"830-832"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144862344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceptions and interests of cannabis use among patients with cancer: A cross-sectional survey.","authors":"Lara Eldering, Isabelle Kiew, Wei Lee, Davinia Seah, Richard Chye","doi":"10.1177/02692163251351550","DOIUrl":"10.1177/02692163251351550","url":null,"abstract":"<p><strong>Background: </strong>Cannabis is the most commonly used illicit drug worldwide. Although evidence for its medicinal use is limited, interest in medicinal cannabis is increasing. There is little understanding of cannabis use and attitudes among patients with cancer.</p><p><strong>Aim: </strong>To characterise the perception and practices of patients with cancer towards cannabis use, including information sources, reasons for use, perceived safety and comfort discussing cannabis use with their oncologists.</p><p><strong>Design: </strong>Single site, anonymous survey based cross-sectional cohort study.</p><p><strong>Setting/participants: </strong>Adult patients with cancer from a metropolitan hospital were recruited via consecutive sampling from oncology outpatient clinics between November 2020 and November 2021.</p><p><strong>Results: </strong>Of 272 respondents (84% response rate), 60% (<i>n</i> = 157) were greater than 61 years of age and 56% (<i>n</i> = 146) identified as male. The principal source of information regarding cannabis use was the internet and media (<i>n</i> = 95; 39%). The main reported reason for interest was to improve the side effects of cancer treatments (<i>n</i> = 135; 71%). Of the 27 cannabis users who responded, 90% perceived cannabis as safe. Among non-cannabis users, 73% (<i>n</i> = 159) were interested in cannabis use. 19% (<i>n</i> = 40) of non-cannabis users did not feel comfortable asking their oncologist about cannabis use and 42% (<i>n</i> = 13) of cannabis users did not inform their oncologists of their use.</p><p><strong>Conclusions: </strong>There is great interest and positive attitudes towards cannabis use among patients with cancer. Health professionals should be proactive in discussing cannabis use as patients may seek information about cannabis elsewhere.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"910-914"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144601184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to \"McGlinchey T, Mason S, Skorpen Iversen G, et al. iLIVE volunteer study: Volunteer and healthcare professional perceptions of newly developed hospital end-of-life-care volunteer services, in five countries\".","authors":"","doi":"10.1177/02692163251360181","DOIUrl":"10.1177/02692163251360181","url":null,"abstract":"","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"917"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144619711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation and cross-cultural adaptation of Integrated Palliative Care Outcome Scale for Dementia.","authors":"Linghui Chen, Katherine E Sleeman, Huichan Huang, Yihan Mo, Andy Bradshaw, Clare Ellis-Smith","doi":"10.1177/02692163251347826","DOIUrl":"10.1177/02692163251347826","url":null,"abstract":"<p><strong>Background: </strong>The Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) was developed to assess symptoms and concerns comprehensively for people with dementia. There is a high demand for comprehensive assessment of people with dementia in China.</p><p><strong>Aim: </strong>To translate and culturally adapt the IPOS-Dem into Chinese.</p><p><strong>Design: </strong>Conceptual equivalence, forward and backward translations, and expert review were performed to develop a prototype Chinese version. Two rounds of cognitive interviews were conducted to ensure the items and scoring format were clearly expressed in the Chinese version.</p><p><strong>Setting/participants: </strong>Professionals, including a physician, a nurse, a linguistic researcher and a humanities researcher, were involved in the prototype Chinese version development. A purposive sample of 12 health care professionals working in three Chinese nursing homes participated in the cognitive interviewing.</p><p><strong>Results: </strong>The Chinese version was perceived as clinically useful. Challenges arose regarding comprehension of some items due to difficulties in translating the precise meanings. These included 'Drowsiness (sleepiness)', 'Difficulty communicating' and 'Do you think s/he felt at peace?'. Considering how a symptom affects an individual presented was also challenging for respondents, as they needed to judge whether the symptom was present and/or causing distress. Selecting the appropriate term to name the measure elucidated the current understanding of dementia and palliative care in China, both of which remain poorly understood.</p><p><strong>Conclusion: </strong>This study highlighted the importance of cultural adaptation in conveying meanings across cultures. Most items were translatable and conceptually equivalent. The term 'at peace' and the concept of 'being affected' generated the most challenges in comprehension and judgement.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"897-909"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12405654/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144619712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries.","authors":"Ian Basil Kibet, Mteeve Brian Amugune, Grace Wanjiku Macharia","doi":"10.1177/02692163251353010","DOIUrl":"10.1177/02692163251353010","url":null,"abstract":"","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"915-916"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144591952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What determines quality in palliative sedation? A scoping review identifying elements contributing to palliative sedation quality.","authors":"Indra Albrecht, Joni Gilissen, Lenzo Robijn, Peter Pype, Luc Deliens, Kenneth Chambaere","doi":"10.1177/02692163251351534","DOIUrl":"10.1177/02692163251351534","url":null,"abstract":"<p><strong>Background: </strong>Palliative sedation involves using sedatives to reduce consciousness until death. Though common in end-of-life care, it remains complex and controversial, with unclear quality parameters and limited guidance for improvement. A comprehensive overview of elements that reflect quality in palliative sedation is currently missing.</p><p><strong>Aim: </strong>To identify quality reflecting elements for palliative sedation reported in peer-reviewed, indexed and gray literature.</p><p><strong>Design: </strong>Scoping review using Levac et al.'s methodological framework, including systematic searching, screening and narrative synthesis.</p><p><strong>Data sources: </strong>Academic databases with indexed sources (MEDLINE, EMBASE, CENTRAL, CINAHL, PsycINFO) and databases also containing gray literature (MEDNAR, Web of Science) were searched between February and December 2023 for sources with primary data published after 2009, without restrictions on population or study design.</p><p><strong>Results: </strong>Among the 60 sources analyzed, 157 elements reflecting palliative sedation quality were identified and thematized into 22 themes and four overarching domains: (1) process elements of decision-making such as indication, proximity to death, timing, patient involvement, proactiveness, patient support, family involvement, artificial nutrition and hydration; (2) process elements of performance, such as level of sedation, medication use, monitoring, duration, care continuation, family support; (3) outcome elements covering patient comfort, family well-being, family satisfaction, professionals' well-being and satisfaction; (4) process elements of collaboration and documentation.</p><p><strong>Conclusion: </strong>This scoping review found a broad range of elements reflecting palliative sedation quality - beyond clinical performance, sedation outcomes or patient level elements alone. These insights can inform the development of a core set of indicators to support quality monitoring in palliative sedation.</p>","PeriodicalId":19849,"journal":{"name":"Palliative Medicine","volume":" ","pages":"849-870"},"PeriodicalIF":3.9,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144708358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}