Patient Related Outcome Measures最新文献

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Development and Content Validation of the Patient's Qualitative Assessment of Treatment - Real-World (PQAT-RW): An Instrument to Evaluate Benefits and Disadvantages of Treatments in Real-World Settings. 患者对治疗的定性评估--真实世界(PQAT-RW)的开发和内容验证:一种在真实世界环境中评估治疗利弊的工具。
IF 1.8
Patient Related Outcome Measures Pub Date : 2024-10-07 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S468623
Aude Roborel de Climens, Amy Findley, Denise P Bury, Keri J S Brady, Matthew Reaney, Adam Gater
{"title":"Development and Content Validation of the Patient's Qualitative Assessment of Treatment - Real-World (PQAT-RW): An Instrument to Evaluate Benefits and Disadvantages of Treatments in Real-World Settings.","authors":"Aude Roborel de Climens, Amy Findley, Denise P Bury, Keri J S Brady, Matthew Reaney, Adam Gater","doi":"10.2147/PROM.S468623","DOIUrl":"https://doi.org/10.2147/PROM.S468623","url":null,"abstract":"<p><strong>Purpose: </strong>Quantifying patient-perceived benefits and disadvantages of treatments in a real-world setting is increasingly important in healthcare decision-making. The Patient's Qualitative Assessment of Treatment (PQAT) assesses patient-perceived benefits and disadvantages of treatment, and associated trade-offs potentially influencing patients' willingness to continue treatment. It has then been modified to capture patients' perceived magnitude of benefits and disadvantages of treatment quantitatively, as well as qualitatively (PQATv2). However, the PQAT and the PQATv2 were designed for use and validated in a clinical trial setting. The objective of this study was to adapt and test the content validity of a version of the PQATv2 for use in real-world settings (PQAT-RW).</p><p><strong>Patients and methods: </strong>The PQATv2 was adapted for use in real-world settings (PQAT-RW), and its content was validated in 16 patients with varied chronic medical conditions and medication regimens via semi-structured qualitative interviews.</p><p><strong>Results: </strong>All participants reported that the PQAT-RW was \"easy to understand\". The majority (n = 11/16) reported that the items covered all important aspects of their treatment experience, and that no items needed to be removed or added to the instrument. Analysis of free-text responses identified eight global concepts considered by participants when evaluating the benefits and disadvantages of treatment: treatment effectiveness, side effects and method of administration were most frequently considered (as both benefits and disadvantages), followed by frequency of administration, financial considerations, storage, packaging and drug preparation.</p><p><strong>Conclusion: </strong>The results of this study support the content validity of the PQAT-RW. They also demonstrate that using qualitative responses to contextualize quantitative responses provides unique insight into diverse and individualized patient-perceived benefits and disadvantages, and their relative importance, in real-world settings.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11468370/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142471864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Barriers to Effective COVID-19 Risk Mitigation, Recovery, and Chronic Disease Self-Management: A Qualitative Multilevel Perspective. 探索有效降低 COVID-19 风险、康复和慢性病自我管理的障碍:定性多层次视角。
IF 1.8
Patient Related Outcome Measures Pub Date : 2024-09-18 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S467743
Gayenell S Magwood, Charles Ellis, Chanita Hughes Halbert, Ebony Allen Toussaint, Jewel Scott, Lynne S Nemeth
{"title":"Exploring Barriers to Effective COVID-19 Risk Mitigation, Recovery, and Chronic Disease Self-Management: A Qualitative Multilevel Perspective.","authors":"Gayenell S Magwood, Charles Ellis, Chanita Hughes Halbert, Ebony Allen Toussaint, Jewel Scott, Lynne S Nemeth","doi":"10.2147/PROM.S467743","DOIUrl":"10.2147/PROM.S467743","url":null,"abstract":"<p><strong>Introduction: </strong>Many research activities have focused on SARS-CoV-2 infection and subsequent COVID-19 respiratory illness during the pandemic. However, significant racial inequities emerged months after the COVID-19 pandemic began. The similarity between racial/ ethnic disparities in COVID-19 and those for other diseases raised awareness about the context for risk exposure and healthcare access. The purpose of this study is to examine social and structural determinants of health among COVID-19 survivors, carepartners, and the perspectives of healthcare stakeholders who experienced disruption during the early pandemic.</p><p><strong>Material and methods: </strong>A purposive sample of interviews (n=9) and focus groups (n=10) were used to collect data regarding knowledge of barriers to effective COVID-19 risk mitigation, recovery, and chronic disease self-management. This included nurses, physicians, COVID-19 survivors and their carepartners, public health, and community leaders connected with the healthcare systems in rural counties of South Carolina.</p><p><strong>Results: </strong>Five major themes were identified across the subgroups. The themes: The COVID-19 Illness Trajectory Added Major Health Challenges and Stressors, Access to Care Is Lacking, Support is Needed for COVID-19 Survivors and Care Partners, Support Must be Distributed Equitably, and Racism and Structural Issues Affect Stress reflect the strengths, opportunities, and inequities perceived within these groups.</p><p><strong>Conclusion: </strong>This research is the first qualitative study focused on COVID-19 survivor-carepartner dyads that consider the intersectionality of race/ ethnicity, geography, and health that is known to occur when engaging healthcare systems. The themes illustrate the need for infectious disease prevention at all socioecological levels: structural/ systemic, community, organizational/ institutional, interpersonal, and individual.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11416793/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142292810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ultra-Low Frequency Transmitted Ultrasound Breast Imaging vs DBT (Digital Breast Tomosynthesis): A Patient-Reported Outcome Study. 超低频透射超声乳腺成像与 DBT(数字乳腺断层扫描)对比:患者报告结果研究》。
IF 1.8
Patient Related Outcome Measures Pub Date : 2024-08-28 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S423380
Elaine Iuanow, Emily A Pickup, Bilal Malik, Julie Doehrmann, Fernando A Huyke, Rachel Ducker, John Klock
{"title":"Ultra-Low Frequency Transmitted Ultrasound Breast Imaging vs DBT (Digital Breast Tomosynthesis): A Patient-Reported Outcome Study.","authors":"Elaine Iuanow, Emily A Pickup, Bilal Malik, Julie Doehrmann, Fernando A Huyke, Rachel Ducker, John Klock","doi":"10.2147/PROM.S423380","DOIUrl":"10.2147/PROM.S423380","url":null,"abstract":"<p><strong>Purpose: </strong>Breast cancer screening remains a challenge in the United States. Many women do not get a mammogram because of pain associated with the exam, radiation exposure, false-positive results, and additional costs. Others who may benefit from annual screening do not qualify because of young age and radiation risk. We hypothesize that a novel volumetric transmitted breast ultrasound, Quantitative Transmission (QT) Scan may encourage more women to have annual breast cancer screening. Assessing results from patient-reported outcomes (PROs) may predict the value of newer, more desirable screening technologies.</p><p><strong>Participants and methods: </strong>Pre- and post-menopausal women who qualified for breast cancer screening were enrolled in a prospective trial of Quantitative Transmission (QT Scan) vs traditional mammography via Digital Breast Tomosynthesis (DBT) Clinical Trials.gov NCT03052166. These women completed questionnaires to assess their experiences with QT Scan and DBT. Associations between QT Scan or DBT and differences in PRO scores were examined.</p><p><strong>Results: </strong>A total of 430 subjects completed the PRO instrument analyzed. A total of 36 questions were asked, 34 were paired for both QT and DBT and two were asked regarding exclusively the QT Scan. Physical discomfort, perceptions of safety and low efficacy, false-positive results and additional out-of-pocket expenses were concerns identified as highest risk for opting out of screening mammography (differences between 2.1 and 2.9 indicate significant differences between means and standard deviations using the Cohen's d statistic). Student's <i>T</i>-test shows a significance level of <10 <sup>-10</sup>. Statistically significant differences in PROs between QT Scan and DBT were observed by 14 of the 17 paired experience questions (p<0.001).</p><p><strong>Conclusion: </strong>Significant differences in PROs were found between QT scan and DBT, indicating women have significantly more negative experiences with traditional mammography via DBT and are less inclined to undergo screening mammography. Identification of PRO differences could be used to help identify a more desirable breast cancer screening modality.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11366257/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142110580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic Literature Review of Studies Reporting Measures of Functional Outcome or Quality of Life in People with Negative Symptoms of Schizophrenia. 对报告精神分裂症阴性症状患者功能结果或生活质量测量方法的研究进行系统性文献综述。
IF 1.8
Patient Related Outcome Measures Pub Date : 2024-06-17 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S454845
Dusica Hadzi Boskovic, Jayne Smith-Palmer, Johannes Pöhlmann, Richard F Pollock, Steve Hwang, David Bruhn
{"title":"Systematic Literature Review of Studies Reporting Measures of Functional Outcome or Quality of Life in People with Negative Symptoms of Schizophrenia.","authors":"Dusica Hadzi Boskovic, Jayne Smith-Palmer, Johannes Pöhlmann, Richard F Pollock, Steve Hwang, David Bruhn","doi":"10.2147/PROM.S454845","DOIUrl":"10.2147/PROM.S454845","url":null,"abstract":"<p><strong>Aim: </strong>Negative symptoms of schizophrenia (NSS) have been linked with poor functional outcomes. A literature review was performed to identify instruments used to assess functional outcomes and quality of life in clinical trials and observational studies conducted in groups of people with NSS.</p><p><strong>Methods: </strong>Literature search strings were designed using Medical Subject Headings combined with free-text terms and searches were performed using the PubMed, Embase and the Cochrane Library databases. For inclusion, articles were required to be published as full-text articles, in English, over the period 2011-2021, include at least one group or treatment arm of people with NSS and report either functional outcomes or quality of life (QoL).</p><p><strong>Results: </strong>Literature searches identified a total of 3,268 unique hits. After two rounds of screening, 37 publications (covering 35 individual studies) were included in the review. A total of fourteen different instruments were used to assess functional outcomes and eleven different instruments were used to assess QoL. In studies in people with NSS, the most frequently used functional outcome measures were the Personal and Social Performance scale and the Global Assessment of Functioning. The most frequently used QoL instruments included the Manchester Short Assessment of Quality of Life, the Heinrich Carpenter Quality of Life Scale, the Schizophrenia Quality of Life Scale and the EQ-5D.</p><p><strong>Conclusion: </strong>A large number of measures have been used to assess functional outcomes and QoL in people with NSS, these include both generic and condition-specific as well as both interviewer-administered and self-reported instruments.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11192194/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141444105","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Validation and Cultural Adaptation of the Sinhala Translation of the Cardiff Acne Disability Index (CADI). 卡迪夫痤疮残疾指数(CADI)僧伽罗语译本的验证与文化适应。
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-05-08 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S451537
Achala Liyanage, Shamini Prathapan, Chathurika Jayarathne, Ludhmila Savani Ranaweera, Jennifer Perera
{"title":"Validation and Cultural Adaptation of the Sinhala Translation of the Cardiff Acne Disability Index (CADI).","authors":"Achala Liyanage, Shamini Prathapan, Chathurika Jayarathne, Ludhmila Savani Ranaweera, Jennifer Perera","doi":"10.2147/PROM.S451537","DOIUrl":"10.2147/PROM.S451537","url":null,"abstract":"<p><strong>Introduction: </strong>Quality of life (QoL) is impaired in patients with acne vulgaris. The Cardiff Acne Disability Index (CADI) that assesses QoL of acne patients was initially developed in English and is being currently used widely after being validated in different languages. This study was conducted to validate the CADI in Sinhala, a language used by the majority of Sri Lanka.</p><p><strong>Materials and methods: </strong>The CADI was translated into Sinhala, and lingually validated as per published guidelines. This CADI-Sinhala version and the Sinhala version of the Dermatology Life Quality Index (DLQI) were simultaneously administered to 150 Sinhala-speaking young adults with acne. The clinical severity of acne was assessed using the Global Acne Grading System (GAGS). The Cronbach's alpha and Spearman correlation coefficients were used to determine the internal consistency, reliability, and validity of the CADI-Sinhala. Construct validity was examined using a factor analysis.</p><p><strong>Results: </strong>The study included 90% females and their mean age was 23 (SD, 2.5) years. The majority (97.3%) had acne of mild to moderate severity when measured by the GAGS. The CADI-Sinhala Scale showed a Cronbach's alpha coefficient of 0.819 indicating high internal consistency and reliability. The mean item-total correlation coefficient was 0.74 (range, 0.42-0.87) with CADI Q3 having the lowest correlation. CADI Sinhala showed a strong and highly significant correlation with the Sinhala DLQI (Spearman's rho = 0.66; P< 0.001) indicating concurrent validity. The correlation with GAGS was of low intensity, although it was statistically significant (p < 0.01).</p><p><strong>Conclusion: </strong>The CADI-Sinhala is a reliable and valid tool for assessing the QoL of Sinhala-speaking acne patients. This five-item tool will help clinicians to provide holistic treatment through improved understanding of patient's perspectives.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11088832/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140912639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence, Clinical Characteristics and Determinants of Unsuccessful Treatment Outcomes Among Pulmonary Tuberculosis Patients: A 5-Year Registry-Based Retrospective Cohort Study 肺结核患者的患病率、临床特征和治疗失败的决定因素:一项基于登记簿的五年期回顾性队列研究
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-05-01 DOI: 10.2147/prom.s463396
Hind AlOsaimi, Mohammed Alshammari, Ghadah Almijlad, Nawaf Alotaibi, Dhafer Alqahtani, Mohammed Alshamrani, Tariq Shutur, Mansior Alhazmi, Mohammed Hurubi, Kutayd ALShammari, Khalid Alzahrani, Hadeel Aldaghriri, Anood Alshammari, Oudah Alatawi, Reema Alharbi
{"title":"Prevalence, Clinical Characteristics and Determinants of Unsuccessful Treatment Outcomes Among Pulmonary Tuberculosis Patients: A 5-Year Registry-Based Retrospective Cohort Study","authors":"Hind AlOsaimi, Mohammed Alshammari, Ghadah Almijlad, Nawaf Alotaibi, Dhafer Alqahtani, Mohammed Alshamrani, Tariq Shutur, Mansior Alhazmi, Mohammed Hurubi, Kutayd ALShammari, Khalid Alzahrani, Hadeel Aldaghriri, Anood Alshammari, Oudah Alatawi, Reema Alharbi","doi":"10.2147/prom.s463396","DOIUrl":"https://doi.org/10.2147/prom.s463396","url":null,"abstract":"","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141141497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Engaging Stakeholders to Develop a Roadmap for Dry Eye and MGD PCORI-Funded Research 让利益相关者参与制定干眼症和 MGD PCORI 资助研究的路线图
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-05-01 DOI: 10.2147/PROM.S438290
Natalia Warren, Steven L Maskin, V. Gurupur, Deidre Rector, Diana Adelman, Susan Howell, John McAree, Ruthie Dibble, Celia Carlisano, David Maconi, Dirk Schrotenboer, Maria Jaimes, Nancy Marte, Theresa Carlisano, Claire Toland, Jongik Chung, Sandra Cremers, Glenn Corbin
{"title":"Engaging Stakeholders to Develop a Roadmap for Dry Eye and MGD PCORI-Funded Research","authors":"Natalia Warren, Steven L Maskin, V. Gurupur, Deidre Rector, Diana Adelman, Susan Howell, John McAree, Ruthie Dibble, Celia Carlisano, David Maconi, Dirk Schrotenboer, Maria Jaimes, Nancy Marte, Theresa Carlisano, Claire Toland, Jongik Chung, Sandra Cremers, Glenn Corbin","doi":"10.2147/PROM.S438290","DOIUrl":"https://doi.org/10.2147/PROM.S438290","url":null,"abstract":"Introduction Although affecting an estimated 35% of the population, Dry Eye is not well understood by patients and the medical community. As a result, both in research and clinical settings, diagnostic and treatment protocols tend to be non-specific, ad hoc, and inadequate, with a narrow industry-driven focus. The purpose of this convening was to propose a research roadmap that orients Dry Eye researchers toward a comprehensive patient-centered approach to diagnosing and treating Dry Eye, Meibomian gland dysfunction (MGD), and related comorbidities with a goal of improving clinical outcomes for Dry Eye/MGD patients. Methods Sixteen participants, including Dry Eye/MGD patients, caregivers, and patient advocates together with a group of experts in Dry Eye, MGD and other fields identified gaps in research on Dry Eye and MGD diagnostic and treatment approaches (age range 20–80; male to female ratio of 7:11; patients: 7). During a 2-day virtual convening, participants were assigned to topic-specific focus-group sessions to discuss and develop research questions pertaining to Dry Eye and MGD. The research questions were compiled into a proposed patient-centered roadmap for Dry Eye and MGD research. Two additional participants contributed to the proposed roadmap following the convening. Results The focus groups identified over 80 patient-centered research questions important to patients and other stakeholders and compiled these into a proposed research roadmap. Conclusion The convened stakeholders aim to establish a cohesive and comprehensive patient-centered approach to treating Dry Eye, Meibomian Gland Dysfunction, and comorbidities. The research roadmap will serve as a reference for researchers, educational institutions, clinicians, and others evaluating diagnostic and treatment protocols in Dry Eye and MGD.","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141026253","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Translation, Cross-Cultural Adaptation and Validation of the Chinese Version of the High Activity Arthroplasty Score. 高活动量关节置换术评分中文版的翻译、跨文化适应和验证。
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-04-29 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S451710
Dongping Wan, Shihang Cao, Xinrui Li, Qiang Zan, Shuxin Yao, Jianbing Ma, Lei Shang, Chao Xu
{"title":"Translation, Cross-Cultural Adaptation and Validation of the Chinese Version of the High Activity Arthroplasty Score.","authors":"Dongping Wan, Shihang Cao, Xinrui Li, Qiang Zan, Shuxin Yao, Jianbing Ma, Lei Shang, Chao Xu","doi":"10.2147/PROM.S451710","DOIUrl":"https://doi.org/10.2147/PROM.S451710","url":null,"abstract":"<p><strong>Background: </strong>The High Activity Arthroplasty Score (HAAS) is a validated score that assesses functional outcomes after lower limb arthroplasty, with fewer ceiling effects than other scores. The aim is to translate and cross-culturally adapt the HAAS into a Chinese version (HAAS-C) and to evaluate the psychometric properties of HAAS-C in patients after primary total knee arthroplasty (TKA).</p><p><strong>Methods: </strong>A total of 104 patients diagnosed with knee osteoarthritis who had undergone TKA at least 12 months prior were recruited. A forward and backward translation procedure was performed for developing a culturally acceptable HAAS-C. Internal consistency was assessed using Cronbach's α, and test-retest reliability was measured using the intraclass correlation coefficient (ICC) within a 10-day interval. Construct validity was assessed by examining the correlations between HAAS-C and the Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC), EuroQoL Group's five-dimension questionnaire (EQ-5D-5L), and Oxford knee score (OKS).</p><p><strong>Results: </strong>HAAS-C demonstrated adequate Internal consistency reliability, as indicated by Cronbach's α coefficient of 0.75. Test-retest reliability yielded excellent results, with an ICC value of 0.98. Content validity indices were high, with a scale-level validity index of 0.9 and item-level validity indices greater than or equal to 0.8. HAAS-C showed a strong correlation with WOMAC (<i>r</i> = 0.69), a moderate correlation with EQ-5D-5L (<i>r</i> = 0.43), and OKS (<i>r</i> = 0.53) while exhibiting no floor or ceiling effects.</p><p><strong>Conclusion: </strong>The validated HAAS-C questionnaire is a valid instrument for assessing patients undergoing TKA in mainland China.</p>","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11069113/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140857404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Satisfaction with Care Provided in Intensive Care Unit; a Multi-Center, Cross-Sectional Study 家属对重症监护室护理服务的满意度;一项多中心横断面研究
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-04-01 DOI: 10.2147/prom.s453246
T. Liyew, A. Mersha, B. Admassie, N. Arefayne
{"title":"Family Satisfaction with Care Provided in Intensive Care Unit; a Multi-Center, Cross-Sectional Study","authors":"T. Liyew, A. Mersha, B. Admassie, N. Arefayne","doi":"10.2147/prom.s453246","DOIUrl":"https://doi.org/10.2147/prom.s453246","url":null,"abstract":"Background: Healthcare provided in medical facilities should prioritize the needs of families, as it enhances the quality of care for the patients. Family satisfaction gauges how effectively healthcare professionals address the perceived needs and expectations of family members. Numerous factors, including information dissemination, communication, family dynamics, patient characteristics, hospital facilities, and the caregiving process, serve as predictors of family satisfaction. Thus, this study seeks to evaluate the satisfaction of families with the care received by patients admitted to the intensive care unit. Methods: A hospital-based cross-sectional study involving 400 participants was conducted across multiple centers from March to June 2023. Multicollinearity was assessed by examining variance inflation factors (VIF), while the goodness-of-fit was evaluated using the Hosmer and Lemeshow test. Both bivariable and multivariable logistic regression analyses were utilized to identify factors correlated with family satisfaction. Variables with a p-value below 0.2 in the bivariable logistic regression were included in the multivariable logistic regression analysis. Adjusted Odds Ratios (AORs) with 95% Confidence Intervals were computed to indicate the strength of association. In the multivariable analysis, variables with a p-value less than 0.05 were deemed statistically significant. Results: The overall family satisfaction with the care provided in the intensive care unit was 58.6%, with a 95% confidence interval ranging from 55.882% to 61.241%. Families expressed higher satisfaction levels with patient care (64.8%) and professional care (67.4%). However, they reported lower satisfaction levels regarding care provided for families (52.2%), the ICU environment (56.8%), and involvement of families in decision-making (55.8%). Lack of formal education (AOR: 1.949, 95% CI: 1.005, 4.169), completion of primary education (AOR: 2.581, 95% CI: 1.327, 5.021), and completion of grades 9–12 (AOR: 2.644, 95% CI: 1.411, 4.952) were found to be significantly associated with overall family satisfaction. Conclusion and recommendation: The overall level of satisfaction is satisfactory. To enhance service quality and family satisfaction, healthcare providers should prioritize effective and regular communication with family members. Keeping them well informed about the patient’s condition and treatment plan is essential.","PeriodicalId":19747,"journal":{"name":"Patient Related Outcome Measures","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140791939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient Satisfaction with Antiretroviral Therapy Services in Hadiya Zone, Central Ethiopia Using the Donebidean Model: A Time-Motion Study. 使用 Donebidean 模型研究埃塞俄比亚中部哈迪亚区患者对抗逆转录病毒疗法服务的满意度:时间-运动研究。
IF 2.1
Patient Related Outcome Measures Pub Date : 2024-03-05 eCollection Date: 2024-01-01 DOI: 10.2147/PROM.S452389
Abayneh Halili, Belay Echafo Lubago, Feleke Doyore Agide
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