International journal of MS care最新文献_第9页

Innovations in Multiple Sclerosis Care: The Impact of Artificial Intelligence via Machine Learning on Clinical Research and Decision-Making. 多发性硬化症护理的创新：通过机器学习实现人工智能对临床研究和决策的影响。

International journal of MS care Pub Date : 2023-09-01 Epub Date: 2023-09-14 DOI: 10.7224/1537-2073.2022-076

Jacob Cartwright, Kristof Kipp, Alexander V Ng

{"title":"Innovations in Multiple Sclerosis Care: The Impact of Artificial Intelligence via Machine Learning on Clinical Research and Decision-Making.","authors":"Jacob Cartwright, Kristof Kipp, Alexander V Ng","doi":"10.7224/1537-2073.2022-076","DOIUrl":"10.7224/1537-2073.2022-076","url":null,"abstract":"Artificial intelligence (AI) and its specialized subcomponent machine learning are becoming increasingly popular analytic techniques. With this growth, clinicians and health care professionals should soon expect to see an increase in diagnostic, therapeutic, and rehabilitative technologies and processes that use elements of AI. The purpose of this review is twofold. First, we provide foundational knowledge that will help health care professionals understand these modern algorithmic techniques and their implementation for classification and clustering tasks. The phrases artificial intelligence and machine learning are defined and distinguished, as are the metrics by which they are assessed and delineated. Subsequently, 7 broad categories of algorithms are discussed, and their uses explained. Second, this review highlights several key studies that exemplify advances in diagnosis, treatment, and rehabilitation for individuals with multiple sclerosis using a variety of data sources-from wearable sensors to questionnaires and serology-and elements of AI. This review will help health care professionals and clinicians better understand AI-dependent diagnostic, therapeutic, and rehabilitative techniques, thereby facilitating a greater quality of care.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 5","pages":"233-241"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10503815/pdf/i1537-2073-25-5-233.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10672501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Climate Change and the Urgent Need to Prepare Persons With Multiple Sclerosis for Extreme Hurricanes. 气候变化和多发性硬化症患者应对极端飓风的迫切需要。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-01-23 DOI: 10.7224/1537-2073.2022-032

Sharon L Hsieh, James M Shultz, Farren Briggs, Zelde Espinel, Lauren T Shapiro

{"title":"Climate Change and the Urgent Need to Prepare Persons With Multiple Sclerosis for Extreme Hurricanes.","authors":"Sharon L Hsieh, James M Shultz, Farren Briggs, Zelde Espinel, Lauren T Shapiro","doi":"10.7224/1537-2073.2022-032","DOIUrl":"10.7224/1537-2073.2022-032","url":null,"abstract":"Climate change is contributing to increasingly hazardous tropical cyclones that endanger persons living in susceptible coastal and island communities. People living with chronic illness, including multiple sclerosis (MS), face unique challenges and vulnerabilities when exposed to hurricane hazards. Disaster and emergency preparedness requires a customized approach that considers the necessary adaptations to accommodate the mobility, self-care, sensory, cognitive, and communication impairments of persons living with MS. Related considerations include the potential for worsening neurologic signs and symptoms during and after a catastrophic storm. The impact of emotional and financial stresses, as well as disruptions in health care delivery, on this population are also key concerns. This paper addresses the challenges faced by individuals with MS in advance of, during, and in the aftermath of extreme storms. We propose new guidelines on how health care professionals can assist persons with MS when creating tailored disaster readiness and response plans.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"152-156"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353692/pdf/i1537-2073-25-4-152.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9841922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Epidemiological Insights on Medication Concurrency and Polypharmacy in People With Multiple Sclerosis in Greece. 希腊多发性硬化症患者药物并发和多药治疗的流行病学见解。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-01-16 DOI: 10.7224/1537-2073.2022-046

Christos Bakirtzis, Ioannis Nikolaidis, Marina-Kleopatra Boziki, Eleni Grigoriadou, Maria-Valeria Karakasi, Theodoros Moysiadis, Evangelia Kesidou, Georgios Papazisis, Nikolaos Grigoriadis

{"title":"Epidemiological Insights on Medication Concurrency and Polypharmacy in People With Multiple Sclerosis in Greece.","authors":"Christos Bakirtzis, Ioannis Nikolaidis, Marina-Kleopatra Boziki, Eleni Grigoriadou, Maria-Valeria Karakasi, Theodoros Moysiadis, Evangelia Kesidou, Georgios Papazisis, Nikolaos Grigoriadis","doi":"10.7224/1537-2073.2022-046","DOIUrl":"10.7224/1537-2073.2022-046","url":null,"abstract":"Background: Besides disease-modifying therapies, various pharmacologic agents are frequently prescribed to people with multiple sclerosis (MS) for symptom treatment and for comorbid conditions. The present study aims to investigate the types and frequencies of agents prescribed to people with MS in Greece using records from the nationwide digital prescription database.Methods: Prescription records for 21,218 people (65.9% women) with MS were included in the study. The criterion for study inclusion was a minimum of 3 months of continuous prescription of an agent. Identified treatments were further examined by age group.Results: Antispasticity agents (17.5%) and fampridine (14.5%) were the most regularly prescribed symptomatic medications. Antihypertensives (21.1%) and drugs for affective disorders, including antidepressants (36.1%) and anxiolytics (16.2%), were the most frequently prescribed medications for comorbid conditions. Antidepressants were prescribed at almost equally high rates among individuals older than 40 years. Hypertension was one of the leading comorbidities among the study sample, with rates rising significantly after age 40 years and plateauing after age 60 years. Polypharmacy was observed in 22.5% of the study sample, with a higher incidence among people with MS older than 60 years (46.98%).Conclusions: Agents prescribed for the treatment of disease symptoms and other medical conditions are expected to positively affect quality of life in people with MS. However, polypharmacy seems to be particularly high, especially in the aged population. The potential implications of polypharmacy in the disease course should further be explored.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"140-144"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353693/pdf/i1537-2073-25-4-140.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9841925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

An Exploratory Study of Community Mobility in Adults With Multiple Sclerosis Across Different Ambulation Levels. 成人多发性硬化症不同住院水平社区流动性的探索性研究。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-02-27 DOI: 10.7224/1537-2073.2022-042

Carley Giroux, Barbara Sogoloff, Lance Bergmans, Myeongjin Bae, Michael Vannostrand, Susan L Kasser

{"title":"An Exploratory Study of Community Mobility in Adults With Multiple Sclerosis Across Different Ambulation Levels.","authors":"Carley Giroux, Barbara Sogoloff, Lance Bergmans, Myeongjin Bae, Michael Vannostrand, Susan L Kasser","doi":"10.7224/1537-2073.2022-042","DOIUrl":"10.7224/1537-2073.2022-042","url":null,"abstract":"Background: The purpose of this study was to identify differences in community mobility in adults with multiple sclerosis (MS) at various ambulation levels.Methods: Seventy-one adults with MS completed a survey about their mobility impairment and avoidance of challenging mobility tasks. Individuals were categorized as having mild, moderate, or severe gait impairment.Results: Participants across the different functional groups significantly differed in perceived ambulation disability, fatigue impact, falls efficacy, quality of life, challenges with dual-tasking, and self-efficacy for community mobility. There were no significant differences between the mild and moderate gait impairment groups in crossing a busy street or going out in different ambient conditions. Significant differences were found between those with mild impairment and those with severe impairment in avoidance of various terrain elements, heavy manual doors, postural transitions, attentional situations, and crowded places. The only environmental dimension that significantly differed across all 3 groups was carrying 2 or more items, in which avoidance increased as ambulation worsened.Conclusions: Avoidance behavior for particular environmental features can begin relatively early in the disease process. This underscores the need to further study mobility differences, community ambulation, and participation restrictions in adults with MS.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"145-151"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353691/pdf/i1537-2073-25-4-145.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9834659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rest-Activity Rhythm, Pain, and Motor Activity in Multiple Sclerosis. 多发性硬化症的休息活动节律、疼痛和运动活动。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-03-08 DOI: 10.7224/1537-2073.2021-030

Rogier J Scherder, M J van Dorp, A J Prins, C van Klaveren, I Cornelisz, J Killestein, Henry C Weinstein

{"title":"Rest-Activity Rhythm, Pain, and Motor Activity in Multiple Sclerosis.","authors":"Rogier J Scherder, M J van Dorp, A J Prins, C van Klaveren, I Cornelisz, J Killestein, Henry C Weinstein","doi":"10.7224/1537-2073.2021-030","DOIUrl":"10.7224/1537-2073.2021-030","url":null,"abstract":"BACKGROUND\u0000Although the relationships among physical disability, mood disorders, and pain are well described in multiple sclerosis (MS), little is known about whether those symptoms are associated with sleep disturbances.\u0000\u0000\u0000METHODS\u0000Forty-six patients with MS experiencing pain participated. Sleep was indirectly measured by assessing rest-activity rhythm via actigraphy: interdaily stability, intradaily variability, and relative amplitude. Pain was assessed using visual and verbal analog scales, mood by the Beck Depression Inventory and Symptom Checklist-90, and physical disability by the Expanded Disability Status Scale.\u0000\u0000\u0000RESULTS\u0000Incorporating mood, pain, and physical disability into 1 regression model resulted in a significant association with interdaily stability.\u0000\u0000\u0000CONCLUSIONS\u0000Compared with intradaily variability and relative amplitude, interdaily stability seems to be the most vulnerable actigraphy variable for mood disturbances, pain, and physical disabilities.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"157-162"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353695/pdf/i1537-2073-25-4-157.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9834660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Letter From the Editor. 编辑来信。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-07-11 DOI: 10.7224/1537-2073-25.4.xi

M Alissa Willis

引用次数: 0

Orchestrating a New Path for Multiple Sclerosis: Achieving Physical, Cognitive, and Emotional Rehabilitation Goals Through Physical and Music Therapy. 为多发性硬化症开辟新途径：通过物理和音乐治疗实现身体、认知和情感康复目标。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-02-22 DOI: 10.7224/1537-2073.2021-144

Megan Weigel, Brian Hutchinson, Wendy L Magee, Kevin Leong, Tom Sweitzer, Jamie L Weiss, Wendy Su, Renée Fleming

{"title":"Orchestrating a New Path for Multiple Sclerosis: Achieving Physical, Cognitive, and Emotional Rehabilitation Goals Through Physical and Music Therapy.","authors":"Megan Weigel, Brian Hutchinson, Wendy L Magee, Kevin Leong, Tom Sweitzer, Jamie L Weiss, Wendy Su, Renée Fleming","doi":"10.7224/1537-2073.2021-144","DOIUrl":"10.7224/1537-2073.2021-144","url":null,"abstract":"Background: Interdisciplinary therapies for the management of people with multiple sclerosis (MS) are underappreciated. There is an urgent need to introduce music therapy (MT), either alone or in combination with physical therapy (PT), into clinical practice to achieve synergy with disease-modifying therapies. A holistic approach to rehabilitation for people with MS may mitigate symptoms and reduce polypharmacy, potentially lowering health care costs.Results: As MS progresses, patients experience a range of worsening symptoms, and many develop psychosocial comorbidities. As disease-modifying therapies delay disability progression, nonpharmacologic treatments become increasingly important. The main aim of PT is to improve or maintain patients' functional mobility, strength, and flexibility. Because it targets multiple functions, MT can help improve functional and psychosocial domains and may be a valuable intervention to help patients achieve the physical, cognitive, and emotional goals of PT. Exploratory studies showed that MT, alone or in combination with PT, can lead to functional improvements in mobility, balance, gait, and fatigue. Similar to PT, MT also has benefits in improving fine motor skills, cognition, learning, and memory and in providing emotional support.Conclusions: Both MT and PT have the potential to improve overall well-being and health-related quality of life in physically active patients with MS, and MT can provide added emotional support for those who are less able to engage in physical activity. However, MT is not typically a part of standard of care, and PT visits are limited. Nevertheless, interdisciplinary therapies should be incorporated into clinical practice.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"168-175"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353696/pdf/i1537-2073-25-4-168.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9847663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Dance for Multiple Sclerosis: A Systematic Review. 舞蹈治疗多发性硬化症：系统综述。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-07-11 DOI: 10.7224/1537-2073.2022-088

Emily Davis, Amy Webster, Bethany Whiteside, Lorna Paul

{"title":"Dance for Multiple Sclerosis: A Systematic Review.","authors":"Emily Davis, Amy Webster, Bethany Whiteside, Lorna Paul","doi":"10.7224/1537-2073.2022-088","DOIUrl":"10.7224/1537-2073.2022-088","url":null,"abstract":"Background: Evidence of the benefits of dance for people with Parkinson disease is well established, but only recently has dance been investigated for people with multiple sclerosis (MS). The purpose of this review was to identify and evaluate the feasibility and effectiveness of dance interventions to improve functional, psychosocial, and participation outcomes in people with MS.Methods: Eight databases and gray literature sources were searched from inception to March 2022. Quantitative, mixed-methods, and qualitative studies evaluating dance interventions for adults with MS were included. Included studies were critically appraised using the Mixed Methods Appraisal Tool, and results were analyzed through a parallel-results convergent synthesis.Results: Thirteen studies were included, with a total of 174 participants. Various dance genres were investigated, and only 1 mild adverse event was reported. Four to 12 weeks of twice-weekly, 60-minute dance sessions were feasible in those with mild to moderate relapsing-remitting MS. Positive effects were identified mainly in motor outcomes, with qualitative themes indicating psychological and social benefits.Conclusions: A variety of dance interventions are likely feasible and potentially beneficial for people with mild to moderate relapsing-remitting MS, but studies were generally of low-moderate quality. High-quality studies are needed to determine the effectiveness of dance interventions for people with MS, including those with progressive forms of MS and higher levels of disability.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"176-185"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353690/pdf/i1537-2073-25-4-176.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9844498","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sacral Neuromodulation Therapy for Urinary and Fecal Incontinence in Patients With Multiple Sclerosis: Report of 6 Cases and Literature Review. 脊髓神经调控治疗多发性硬化症患者大小便失禁6例报告及文献复习。

International journal of MS care Pub Date : 2023-07-01 Epub Date: 2023-02-08 DOI: 10.7224/1537-2073.2022-027

Erika Thys, Kent Sasse

{"title":"Sacral Neuromodulation Therapy for Urinary and Fecal Incontinence in Patients With Multiple Sclerosis: Report of 6 Cases and Literature Review.","authors":"Erika Thys, Kent Sasse","doi":"10.7224/1537-2073.2022-027","DOIUrl":"10.7224/1537-2073.2022-027","url":null,"abstract":"Background: Urinary incontinence (UI) and fecal incontinence (FI) are challenging manifestations of multiple sclerosis (MS) that have historically been treated with limited success. Sacral neuromodulation (SNM) has provided successful resolution of UI and FI in the general population and in patients with neurologic conditions, including MS. We report on 6 patients with MS-related incontinence treated successfully with SNM and review the literature.Methods: Medical records were reviewed retrospectively to identify patients with MS seeking treatment for incontinence. Six patients were identified, and each is presented with follow-up assessment of the severity of UI or FI.Results: All 6 individuals with MS had severe incontinence that had been refractory to therapies that included medications and pelvic floor physical therapy. Five patients reported severe UI and 2 patients reported severe FI. Each patient was successfully treated with SNM, with large reductions of incontinence scores and improved quality of life.Conclusions: In this case series, SNM was effective as a treatment for UI and FI among patients with MS. These findings confirm other published series that have reported the success of SNM in patients with MS with incontinence. Sacral neuromodulation should be considered as a potential treatment option for patients with MS and UI and/or FI.","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"25 4","pages":"163-167"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353694/pdf/i1537-2073-25-4-163.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9844499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Abstracts from the 2023 Annual Meeting of the Consortium of Multiple Sclerosis Centers 多发性硬化症中心联盟2023年年会摘要

International journal of MS care Pub Date : 2023-06-01 DOI: 10.7224/1537-2073-25.s2

引用次数: 0