Indian Journal of Palliative Care最新文献

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Lived Experiences of Pancreatic Cancer Patients Undergone Whipple Procedure: A Qualitative Study.
IF 1.1
Indian Journal of Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-02-15 DOI: 10.25259/IJPC_205_2024
Priyanka Chauhan, Sukhpal Kaur, Neena Vir Singh, Maninderdeep Kaur, Rajesh Gupta
{"title":"Lived Experiences of Pancreatic Cancer Patients Undergone Whipple Procedure: A Qualitative Study.","authors":"Priyanka Chauhan, Sukhpal Kaur, Neena Vir Singh, Maninderdeep Kaur, Rajesh Gupta","doi":"10.25259/IJPC_205_2024","DOIUrl":"https://doi.org/10.25259/IJPC_205_2024","url":null,"abstract":"<p><strong>Objectives: </strong>Pancreatic cancer is a devastating illness with significant impacts on patients' health-related quality of life (HRQoL). The Whipple procedure, a common surgical intervention for pancreatic cancer, presents numerous challenges for recovery and adaptation. This study aims to provide a comprehensive understanding of the lived experiences of patients' post-Whipple surgery. The objective of the study is to explore the lived experiences of patients having cancer of the pancreas undergone Whipple's procedures.</p><p><strong>Materials and methods: </strong>A qualitative phenomenological approach was employed to delve into the experiences of patients who underwent the Whipple procedure. Twenty-seven patients attending the surgical gastroenterology outpatient department of a tertiary care institution for follow-up were enrolled in the study. The patients were enrolled consecutively till the saturation of data. An interview guide was used to collect the data. The data were analysed using Colaizzi's method to identify the key themes.</p><p><strong>Results: </strong>The participants, with a mean age of 51.61 ± 10.89 years, were predominantly male (61.7%) and Hindu (70%) by religion. Most participants had tumours of the head of the pancreas and were hospitalised for 16-30 days at the time of surgery. Thematic analysis revealed eleven themes, i.e. post-diagnosis reaction, burden of the disease, physical problems, socioeconomic burden, psychological issues, impact on social life, financial support, disturbed body image, spirituality, communication with healthcare professionals and hospital experiences.</p><p><strong>Conclusion: </strong>This study underscores the multifaceted challenges faced by pancreatic cancer patients post-Whipple procedure, highlighting the importance of addressing physical, emotional and socioeconomic aspects to improve their HRQoL. The findings can inform healthcare professionals in developing holistic care strategies tailored to these patients' unique needs.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"31 1","pages":"67-73"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866703/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Opioid Accessibility for Palliative Care in Nepal: A Review of Achievement and Remaining Challenges.
IF 1.1
Indian Journal of Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-02-15 DOI: 10.25259/IJPC_118_2024
Rajeev Shrestha, Sunil Shrestha, Shakti Shrestha, Amrita Shrestha, Bishnu Dutta Paudel, Daniel Munday
{"title":"Opioid Accessibility for Palliative Care in Nepal: A Review of Achievement and Remaining Challenges.","authors":"Rajeev Shrestha, Sunil Shrestha, Shakti Shrestha, Amrita Shrestha, Bishnu Dutta Paudel, Daniel Munday","doi":"10.25259/IJPC_118_2024","DOIUrl":"https://doi.org/10.25259/IJPC_118_2024","url":null,"abstract":"<p><p>This study aimed to explore current opioid availability and accessibility for palliative care (PC) practice in Nepal. A narrative review was conducted by performing literature searches in electronic databases, grey literature, policy documents, and pharmaceutical websites. This was supplemented by utilising the authors' expertise and experience in this field. Six different opioids are available in Nepal, including oral immediate and modified-release morphine formulations. Morphine is produced and distributed by only one manufacturer, which imports all raw materials from Europe. Access to morphine in rural areas is poor, with rural-level healthcare centres rarely stocking morphine, particularly in PC formulations. Fentanyl transdermal (TD) patch and methadone syrup are available in Nepal but are imported. The Fentanyl TD patch is extremely expensive, and methadone syrup is only available for the management of addiction. While opioid availability has increased in Nepal, there is a need to improve opioid accessibility for PC services, particularly in rural areas. Several approaches are explored in this review.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"31 1","pages":"74-78"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866692/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Optimising Initial Pain Management and its Influence on Compliance and Treatment Abandonment in Newly Diagnosed Head-and-Neck Cancer Patients: A Real-world Experience.
IF 1.1
Indian Journal of Palliative Care Pub Date : 2025-01-01 Epub Date: 2024-12-24 DOI: 10.25259/IJPC_153_2024
Bharath V S S K Talagadadeevi, Ravi Kannan, Surendran Veeraiah, Arun Seshachalam, Tanu Anand, S Vijayakanth, Kapil Malik
{"title":"Optimising Initial Pain Management and its Influence on Compliance and Treatment Abandonment in Newly Diagnosed Head-and-Neck Cancer Patients: A Real-world Experience.","authors":"Bharath V S S K Talagadadeevi, Ravi Kannan, Surendran Veeraiah, Arun Seshachalam, Tanu Anand, S Vijayakanth, Kapil Malik","doi":"10.25259/IJPC_153_2024","DOIUrl":"https://doi.org/10.25259/IJPC_153_2024","url":null,"abstract":"<p><strong>Objectives: </strong>Improper pain management is a significant contributing factor and a potential correctable factor for low cure rates of head-and-neck cancer (HNC) patients. This study aims to assess the significance of the Quantitative Improvement Programme (QIP) in evaluating pain levels and its correlation with treatment compliance in recently diagnosed HNC patients undergoing curative treatment at a surgical oncology outpatient department (OPD). The study was conducted from January 2022 to August 2023 at a tertiary cancer care centre in Northeast India.</p><p><strong>Materials and methods: </strong>This cohort study used secondary data. We implemented the QIP in December 2022. There were 204 patients in the non-implemented group (NIG) (January 2022 to December 2022), and 110 patients were in the implemented group (IG) (January 2023 to August 2023).</p><p><strong>Results: </strong>The study included 314 HNC patients. The mean age was 57 years, and the male-to-female ratio was 3:1. More than two-thirds (70%) of patients presented with pain. Pain assessment was carried out in 63% (120) of patients in the NIG and 86% (95) patients in the IG and was found to differ significantly (<i>P</i> < 0.0001) between the groups. Treatment abandonment (default before starting treatment) was reported amongst 23% in the NIG, compared to 16% in the IG. 41% (85) of patients in the NIG and 39% (43) in the IG reported non-compliance with treatment (breaks after commencing treatment). There were only 7% of patients from the NIG and 4% of patients from the IG who experienced unfavourable events (relapse, death and treatment failure). Of the various factors analysed, we found age as the single most significant predictor of compliance to treatment (age 18-39 years: Risk ratio [RR] = 2.482, 95% confidence interval [CI]: 0.88, 6.99 [<i>P</i> < 0.08]; age group 40-64 years: RR = 0.54, 95% CI: 0.33, 0.90 [<i>P</i> < 0.01]).</p><p><strong>Conclusion: </strong>QIP for pain management resulted in efficient pain assessment, enhanced patient compliance and reduced rates of treatment abandonment. The study findings mandate QIP for effective pain management of HNC patients in all cancer centres.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"31 1","pages":"15-20"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866678/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Yoga Intervention and Inflammatory Homoeostasis in Breast Cancer Patients.
IF 1.1
Indian Journal of Palliative Care Pub Date : 2025-01-01 Epub Date: 2024-10-07 DOI: 10.25259/IJPC_181_2024
Kaini Cecilia Kaje, Fatima Dsilva, Praveen Kumar Shetty, Rajashekar Mohan, Shishir Kumar, Neevan Dsouza, Caren D'souza, Shwetha Shetty Kalladka, Dhananjay B Alagundagi, Krithika Kalladka
{"title":"Yoga Intervention and Inflammatory Homoeostasis in Breast Cancer Patients.","authors":"Kaini Cecilia Kaje, Fatima Dsilva, Praveen Kumar Shetty, Rajashekar Mohan, Shishir Kumar, Neevan Dsouza, Caren D'souza, Shwetha Shetty Kalladka, Dhananjay B Alagundagi, Krithika Kalladka","doi":"10.25259/IJPC_181_2024","DOIUrl":"https://doi.org/10.25259/IJPC_181_2024","url":null,"abstract":"<p><strong>Objectives: </strong>Yoga, renowned for its ability to maintain physical, mental and spiritual well-being, has recently gained prominence as a supportive therapy during conventional breast cancer (BC) treatment. This paradigm shift reflects a growing trend of people embracing yoga to enhance their overall health and aid in managing BC. The objective of this study was to determine the yoga intervention and inflammatory homoeostasis in newly diagnosed BC patients.</p><p><strong>Materials and method: </strong>This study recruited 44 newly diagnosed BC patients at stages II, III and IV (without distant metastasis or other inflammatory diseases), all admitted for neoadjuvant chemotherapy followed by surgery. A prospective non-randomised control design was employed. Baseline assessments were conducted before the first chemotherapy cycle, with follow-ups before the 2<sup>nd</sup> and 3<sup>rd</sup> chemotherapy cycles, before surgery, and 2 months post-surgery. The outcome was compared with the control group.</p><p><strong>Results: </strong>The study showed significant within-subject effects in the yoga intervention group on serum tumour necrosis factor-alpha, interleukin (IL)-1-beta and IL-6 levels, while no significant changes were observed in the control group. Although between groups did not show statistically significant, the mean values indicated a consistent downregulation of proinflammatory markers over time in the yoga group.</p><p><strong>Conclusion: </strong>Incorporating yoga as a complementary therapy alongside conventional BC treatment significantly improved the health outcomes of BC patients by modulating proinflammatory markers.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"31 1","pages":"1-7"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866663/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outcomes of Specialist Palliative Care Consultation for Patients with Advanced Cancer in an Oncological Emergency Department: A Retrospective Analysis. 肿瘤急诊科晚期癌症患者的姑息关怀专家会诊结果:回顾性分析
IF 1.1
Indian Journal of Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-01-24 DOI: 10.25259/IJPC_232_2024
Sumith Surendran, Jayita Deodhar, Shamali Srinivas Poojary, Pallavi Singh, Prarthna Jayaseelan
{"title":"Outcomes of Specialist Palliative Care Consultation for Patients with Advanced Cancer in an Oncological Emergency Department: A Retrospective Analysis.","authors":"Sumith Surendran, Jayita Deodhar, Shamali Srinivas Poojary, Pallavi Singh, Prarthna Jayaseelan","doi":"10.25259/IJPC_232_2024","DOIUrl":"https://doi.org/10.25259/IJPC_232_2024","url":null,"abstract":"<p><strong>Objectives: </strong>Research on palliative care (PC) consultation and its outcomes in the emergency department (ED) within a low-and middle-income country (LMIC) setting is limited. This study aimed to evaluate PC consultation outcomes, symptom burden and management, and referral patterns in patients with advanced cancer referred for specialist PC (SPC) in the ED of an urban tertiary care cancer centre in India.</p><p><strong>Materials and methods: </strong>Data of adult advanced cancer patients referred for SPC services in the ED between August 2017 and June 2019 were retrospectively screened. Patients' sociodemographic features, clinical characteristics, ED visit-related data, and treatment-related data were documented. Multinomial logistic regression, incorporating significant univariate factors, was performed to analyse the independent predictive factors of consultation outcomes in the ED.</p><p><strong>Results: </strong>Of the 644 consultations, 366 (56.8%) were discharged home, 166 (25.8%) were admitted to various settings (hospital/respite care/hospice), 74 (11.5%) died in the ED, and 38 (5.9%) were unresponsive upon arrival. Sex, performance status (PS), gastrointestinal and cardiovascular events, pain, cancer progression, and receipt of pharmacological treatment were predictive of consultation outcomes. Male patients and those with poor PS were more likely to be admitted to the ED, whereas patients with poor PS and cancer progression were more likely to die. Discharge rates were higher among females, those with gastrointestinal symptoms and pain, and those receiving pharmacological treatment.</p><p><strong>Conclusion: </strong>More than 50% of the patients referred for SPC consultations were discharged. In addition, we also identified predictors for each consultation outcome in the LMIC-ED setting. Future research should investigate advanced care planning and survival analyses in comparable ED settings.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"31 1","pages":"39-47"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866695/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Retraction: Challenges to Family Caregivers in Caring for Gastric Cancer Patients from the Perspectives of Family Caregivers, Patients and Healthcare Providers: A Qualitative Study. 撤回:从家庭照顾者、患者和医疗保健提供者的角度对胃癌患者的家庭照顾面临的挑战:一项定性研究。
IF 1.1
Indian Journal of Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-01-03 DOI: 10.25259/IJPC_98_21_ER
Raghavendra
{"title":"Retraction: Challenges to Family Caregivers in Caring for Gastric Cancer Patients from the Perspectives of Family Caregivers, Patients and Healthcare Providers: A Qualitative Study.","authors":"Raghavendra","doi":"10.25259/IJPC_98_21_ER","DOIUrl":"10.25259/IJPC_98_21_ER","url":null,"abstract":"<p><p>[This retracts the article DOI: 10.25259/IJPC_98_21.].</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"30 4","pages":"388"},"PeriodicalIF":1.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618707/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Unmet Palliative Care Needs of Patients with Stage B Chronic Heart Failure Classified by the American Heart Association/American College of Cardiology. 美国心脏协会/美国心脏病学会分类的B期慢性心力衰竭患者未满足的姑息治疗需求
IF 1.1
Indian Journal of Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-11-15 DOI: 10.25259/IJPC_37_2023
Ryo Matsunuma, Takashi Yamaguchi, Kensuke Matsumoto, Akihiro Sakashita, Chikako Hashiguchi, Masashi Iida, Yoshiyuki Kizawa
{"title":"Unmet Palliative Care Needs of Patients with Stage B Chronic Heart Failure Classified by the American Heart Association/American College of Cardiology.","authors":"Ryo Matsunuma, Takashi Yamaguchi, Kensuke Matsumoto, Akihiro Sakashita, Chikako Hashiguchi, Masashi Iida, Yoshiyuki Kizawa","doi":"10.25259/IJPC_37_2023","DOIUrl":"10.25259/IJPC_37_2023","url":null,"abstract":"<p><p>This study sought to explore the unmet palliative care needs of patients diagnosed with Stage B chronic heart failure (CHF) according to the American Heart Association (AHA) and American College of Cardiology (ACC) classifications. We conducted this cross-sectional study between June 1 and August 31, 2020, at Kobe University Hospital. Patients were asked to complete the Integrated Palliative care Outcome Scale (IPOS) along with a customized questionnaire developed by a multidisciplinary team. These tools were filled out by the patients themselves or with help from family members. A total of 101 patients participated in the study, with 55 of them (55%) falling into the Stage B CHF group as classified by AHA/ACC. Among the physical symptoms, 22% reported dyspnea and 20% reported drowsiness as common concerns. Regarding specific problems, 47% identified issues related to exercise, 62% with eating, 26% with finances, and 18% with employment. Notably, financial difficulties were found to be significantly more common among Stage B patients when compared to those in Stages C and D (odds ratio [OR]: 5.22; 95% confidence interval [95% CI]: 1.03-26.5; p = 0.032). Almost 79% of Stage B patients expressed a desire to understand the progression of their disease. In conclusion, stage B CHF patients may face financial difficulties and have unmet informational needs. Therefore, further research is necessary to explore these aspects in greater detail.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"30 4","pages":"384-387"},"PeriodicalIF":1.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618809/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Linguistic Validation of the Functional Assessment of Chronic Illness Therapy-Spiritual-Well-being-Expanded Version 4 Tool into Malayalam Language and its Feasibility in Advanced Cancer Patients Receiving Palliative Care. 慢性疾病治疗-精神健康-功能评估的语言验证-扩展版本4工具马拉雅拉姆语及其在晚期癌症患者接受姑息治疗的可行性。
IF 1.1
Indian Journal of Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-10-21 DOI: 10.25259/IJPC_79_2024
M S Biji, Shoba Nair, Praveen Kumar Shenoy, Odette Spruijt, Chitra Venkateswaran, K C Rajashree, K Ratheesan, Satheesan Balasubramanian
{"title":"Linguistic Validation of the Functional Assessment of Chronic Illness Therapy-Spiritual-Well-being-Expanded Version 4 Tool into Malayalam Language and its Feasibility in Advanced Cancer Patients Receiving Palliative Care.","authors":"M S Biji, Shoba Nair, Praveen Kumar Shenoy, Odette Spruijt, Chitra Venkateswaran, K C Rajashree, K Ratheesan, Satheesan Balasubramanian","doi":"10.25259/IJPC_79_2024","DOIUrl":"10.25259/IJPC_79_2024","url":null,"abstract":"<p><strong>Objective: </strong>The objective of this study was to validate the 'Functional Assessment of Chronic Illness Therapy-Spiritual-Well-being-Expanded(FACIT-SpEx) Version 4' tool in Malayalam and assess its feasibility among advanced cancer patients receiving palliative care.</p><p><strong>Materials and methods: </strong>The study was carried out at the outpatient Department of Cancer Palliative Medicine of Malabar Cancer Centre between November 2022 and June 2023. Initially, the FACIT-Sp-Ex version 4 tool with 23 items was translated into the Malayalam language with a forward-backward translation procedure. This was followed by pilot testing in 10 advanced adult cancer patients receiving palliative care who could read and comprehend the Malayalam language. After answering the draft version of the validated tool, patients responded to questions from a Malayalam-translated cognitive debriefing script.</p><p><strong>Results: </strong>The process of translation and cross-cultural adaptation went on smoothly with very few hurdles. The Malayalam terms used in three items Sp<sup>7</sup>, Sp<sup>9</sup> and Sp<sup>23</sup> when back translated were found to be different from the source. These issues were resolved with the use of the most suitable translations and closest equivalents available in Malayalam. In the pilot testing, the majority (70%) of the patients were female. The mean age of patients was 45.90 (standard deviation [SD] = 7.62) years. Carcinoma breast (50%) was the most common type of cancer. All the patients knew their diagnosis, while only 80% knew the prognosis. Almost 90% of the patients were receiving some form of palliative anticancer treatment. All patients completed the draft version of the validated tool. The mean spiritual well-being score measured using this validated tool was 71.20 (SD = 15.10). Analysis of the debriefing interviews revealed that the Malayalam version was easy to complete, relevant, and appropriate.</p><p><strong>Conclusion: </strong>Linguistic validation and cognitive debriefing produced the Malayalam translated FACIT-Sp-Ex version 4 tool conceptually equivalent to the original FACIT-Sp-Ex version 4 tool, and it is feasible for its use.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"30 4","pages":"358-365"},"PeriodicalIF":1.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618643/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Unmet Spiritual Needs: A Study among Patients with Chronic Illness. 未满足的精神需求:慢性病患者的研究。
IF 1.1
Indian Journal of Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-10-07 DOI: 10.25259/IJPC_39_2024
Leemamol Mathew, Binu Kunnath
{"title":"Unmet Spiritual Needs: A Study among Patients with Chronic Illness.","authors":"Leemamol Mathew, Binu Kunnath","doi":"10.25259/IJPC_39_2024","DOIUrl":"10.25259/IJPC_39_2024","url":null,"abstract":"<p><strong>Objectives: </strong>The conventional healthcare system operates on the 'physiological man' and overlooks the 'spiritual man'. Many studies reported on the unmet spiritual needs of terminally ill patients. Despite spiritual care being a predictor of a positive mindset (meaning making) among patients with terminal illnesses, assessing spiritual needs and providing adequate spiritual care is still a distant phenomenon in the healthcare setting.</p><p><strong>Materials and methods: </strong>With the help of a spiritual needs questionnaire, we analysed the unmet spiritual needs and preferences of 30 terminally ill patients. Specific attention was given to psychosocial, emotional, existential, religious and acceptance of death.</p><p><strong>Results: </strong>The results show that 72% of terminally ill patients reported a strong desire to have their spiritual needs met. Psychosocial needs scored the highest, while acceptance of dying scored the least. The need to be connected with the family was one of the strongest wishes expressed in the study. Religious needs ranked as the second category of needs. Findings show that the highest needs are intertwined with the patients' culture.</p><p><strong>Conclusion: </strong>In India, religion and family connections are essential; terminally ill patients expressed the desire that meeting these two aspects makes their lives meaningful even at the end stage. The results warrant a spiritual needs assessment as a deathbed test to make the end-of-life more meaningful.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"30 4","pages":"342-346"},"PeriodicalIF":1.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618673/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Brassiere-Wearing Practices and Issues among Post-mastectomy Women: A Systematic Review. 乳房切除术后妇女穿胸罩的做法和问题:系统回顾。
IF 1.1
Indian Journal of Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-10-21 DOI: 10.25259/IJPC_192_2024
Ruchi Saini, Maninderdeep Kaur, Ashok Kumar, Sukhpal Kaur
{"title":"Brassiere-Wearing Practices and Issues among Post-mastectomy Women: A Systematic Review.","authors":"Ruchi Saini, Maninderdeep Kaur, Ashok Kumar, Sukhpal Kaur","doi":"10.25259/IJPC_192_2024","DOIUrl":"10.25259/IJPC_192_2024","url":null,"abstract":"<p><p>This systematic review was carried out to appraise the evidence regarding the brassiere-wearing practices and problems faced by breast cancer survivors. An electronic search was carried out across eight databases such as PubMed, Scopus, Web of Science, Science Direct, Google Scholar, Embase, CINAHL and ProQuest. Two researchers independently screened the studies for their eligibility and study quality. A total of 309 studies were assessed for eligibility. After conflict resolution by the third reviewer, five studies were selected for systematic review. All study outcomes in terms of the pattern of brassieres/prostheses, issues and challenges faced by women post-mastectomy were reviewed. It was observed that very few studies were published from various countries all over the world. All the studies were of descriptive type except one, which adopted a prospective randomised crossover design. The brassieres or prostheses, the survivors preferred were homemade made of cotton, cloth, wool, rice, sponge or commercially silicon-made. Weight of the brassiere/prostheses, discomfort, displacement while doing activities of daily living and impaired body image were common issues identified, while the unavailability of size or fit of the brassieres or requirement of alteration in clothes to meet clothing styles were common challenges faced by post-mastectomy women. It was concluded that the post- mastectomy used varied types of brassieres or prostheses with various associated issues and challenges.</p>","PeriodicalId":13319,"journal":{"name":"Indian Journal of Palliative Care","volume":"30 4","pages":"315-321"},"PeriodicalIF":1.1,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618640/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800536","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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