IF 1.9 4区医学

Health Pub Date : 2024-09-01 Epub Date: 2023-11-10 DOI: 10.1177/13634593231204171

Marjolein de Boer, Marieke Hendriks, Emiel Krahmer, Jenny Slatman, Nadine Bol

{"title":"Un-tracking menopause: How not using self-tracking technologies mediates women's self-experiences in menopause.","authors":"Marjolein de Boer, Marieke Hendriks, Emiel Krahmer, Jenny Slatman, Nadine Bol","doi":"10.1177/13634593231204171","DOIUrl":"10.1177/13634593231204171","url":null,"abstract":"Self-tracking in general, and by women in particular is increasingly researched. In the literature, however, women's interactions with selftracking technologies in menopause-a change that (almost) every woman will go through-is largely taken for granted. This paper addresses this lacuna by asking whether and how menopausal women use self-tracking technologies, and how this (non-) usage mediates their self-experiences. In doing so, it elaborates on another understudied phenomenon: the constitutive significance of \"un-tracking\"-that is, of various shades and levels of not using self-tracking technologies-in menopause. Most of the 13 interviewed women in this study reported that they stopped, drastically reduced, or resisted self-tracking in menopause. By framing the discussion of these accounts of \"un-tracking\" within the tradition of post-phenomenology and a phenomenology of situated bodily self-awareness, we show that these women experience their bodies as (1) wise and eu-appearing, (2) unmoldable and dysappearing, and (3) longing for disappearance. Herein, their experientially mediating un-tracking practices are temporally and socio-culturally contextualized in complex ways and bear substantial existential significance. This study establishes the potential harmful ways in which self-tracking mediates self-experiences, as well as the fruitful ways in which un-tracking may do so. Against the background of this observation, this paper makes an appeal to take a step back from uncritically celebrating self-tracking in healthcare contexts, and critically evaluates whether (the promotion of) using (more) self-tracking technologies in these contexts is desirable to begin with.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"653-672"},"PeriodicalIF":1.9,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11323410/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"72014052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'Trying to battle a very slow version of the system that exists outside': Experiences of waiting for healthcare in English prisons. 试图与外面非常缓慢的系统作斗争"：在英国监狱中等待医疗服务的经历。

IF 1.9 4区医学

Health Pub Date : 2024-09-01 Epub Date: 2023-08-28 DOI: 10.1177/13634593231195785

Sue Bellass, Krysia Canvin, Laura Sheard

{"title":"'Trying to battle a very slow version of the system that exists outside': Experiences of waiting for healthcare in English prisons.","authors":"Sue Bellass, Krysia Canvin, Laura Sheard","doi":"10.1177/13634593231195785","DOIUrl":"10.1177/13634593231195785","url":null,"abstract":"Prison has been described as the ultimate form of time-punishment - a place where time is no longer a commodity for individuals to spend, but is ordered by a system which symbolises its power through the control of segments of people's lives. As such, a prison sentence epitomises the experience of waiting. Yet anticipating release is not the only form of waiting within carceral life; waiting for healthcare in its various forms also shapes people's temporal experience. Drawing on interviews with 21 people who have lived in prison, this article describes how experiences of waiting for healthcare are mediated by expectation or hope, perceptions of the relationship between behaviour and healthcare access, and the consequences of waiting for care. Constraints on the autonomy of people in prison mean that waiting for healthcare differs in important ways from waiting for healthcare in the community, and can be perceived as an additional form of punishment. The experience of waiting for prison healthcare can affect physical and psychological well-being, and can in itself be understood as a pain of imprisonment.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"736-753"},"PeriodicalIF":1.9,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11323424/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10082373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Loss, shame and secrecy in women's experiences of a vulval skin condition: A qualitative study. 妇女外阴皮肤病经历中的失落、羞耻和隐秘：一项定性研究。

IF 1.9 4区医学

Health Pub Date : 2024-08-11 DOI: 10.1177/13634593241271041

Sophie Rees, Susanne Arnold

引用次数: 0

The embodied experience of genetic inheritance in hereditary thrombophilia. 遗传性血栓性疾病的基因遗传体验。

IF 1.9 4区医学

Health Pub Date : 2024-08-08 DOI: 10.1177/13634593241271011

Edina Tomán, Judit Nóra Pintér, Rita Hargitai

{"title":"The embodied experience of genetic inheritance in hereditary thrombophilia.","authors":"Edina Tomán, Judit Nóra Pintér, Rita Hargitai","doi":"10.1177/13634593241271011","DOIUrl":"https://doi.org/10.1177/13634593241271011","url":null,"abstract":"Our study focuses on exploring the embodied experiences of genetic inheritance within and between bodies. Drawing on insights from studies on embodied experiences and family risk we examine how interviewees perceive their vulnerability, negotiate family narratives, genetic inheritance, and the transmission of genetic knowledge within families. To answer these questions, we conducted an interpretative phenomenological analysis, based on 10 in-depth interviews with patients with thrombophilia diagnosis and venous thromboembolic disease, in Hungary. Three Experiential Themes were identified: The body as a repository of risk (1), Family heritage (2), and The borderline of thrombophilia-liminality (3). Our study has found that patients living with thrombophilia interpret their bodies as repositories of genetic risk. It seems that an important aspect of adapting to thrombophilia is the creation of genetically vulnerable identities. Alongside the new identity(ies), living with risk can induce newly discovered forms of familial responsibility, within the common identification experience of family history and succession. Based on our research, we see that individuals living with thrombophilia experience the liminality of borderlands. In some cases, however, the space between health and illness represents a dynamic permeability for people with thrombophilia, which can be triggered by medical uncertainty in addition to individual experiences and life events.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593241271011"},"PeriodicalIF":1.9,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141901559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Lesbian, gay, bisexual, transgender and queer (LGBTQ+) menopause: Literature review, knowledge gaps and research agenda. 女同性恋、男同性恋、双性恋、变性人和同性恋（LGBTQ+）更年期：文献综述、知识差距和研究议程。

IF 1.9 4区医学

Health Pub Date : 2024-08-08 DOI: 10.1177/13634593241270923

Sue Westwood

引用次数: 0

Pediatric oncology caregiving as narrative repair: Restor(y)ing disrupted family biographies and damaged moral identities. 作为叙事修复的儿科肿瘤护理：修复中断的家庭传记和受损的道德认同。

IF 1.9 4区医学

Health Pub Date : 2024-08-05 DOI: 10.1177/13634593241270955

Monica L Molinaro, Jessica Polzer, Debbie Laliberte Rudman, Marie Savundranayagam

{"title":"Pediatric oncology caregiving as narrative repair: Restor(y)ing disrupted family biographies and damaged moral identities.","authors":"Monica L Molinaro, Jessica Polzer, Debbie Laliberte Rudman, Marie Savundranayagam","doi":"10.1177/13634593241270955","DOIUrl":"https://doi.org/10.1177/13634593241270955","url":null,"abstract":"Drawing on Arthur Frank's conceptualization of narrative repair, we consider how pediatric oncology nurses restore and re-story the narratives of patients and families whose biographies have been thrown off course by the diagnosis and death of a child from cancer, as well as their own narratives as caregivers. Frank argued that when one's life story is shipwrecked by chronic or life-threatening illness, storytelling is way to reorient one's biography to a new ending, repairing the narrative wreckage created by the illness experience. In this critical narrative study with nine pediatric oncology nurses in Ontario, Canada, we highlight how, through physical, narrative, and moral proximity, nurses become entwined in their patients' and families' illness narratives, and how developing this narrative knowledge provides nurses with opportunities to steer families onto new terrain. As well, we examine how nurses re-story and repair their own identities as \"good\" caregivers in situations when they are prevented from acting on behalf of their pediatric cancer patients. These findings contribute to literature on illness narratives by considering narrative repair as a relational process enacted as part of pediatric oncology caregiving.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593241270955"},"PeriodicalIF":1.9,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141889025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reply: How do we avoid polarization of interdisciplinary research on cancer diagnosis? 答复：如何避免癌症诊断跨学科研究的两极分化？

IF 1.9 4区医学

Health Pub Date : 2024-07-30 DOI: 10.1177/13634593241258410

Christina Sadolin Damhus, Mette Bech Risør, John Brandt Brodersen, Alexandra Brandt Ryborg Jønsson

引用次数: 0

How do we avoid polarization of interdisciplinary research on cancer diagnosis? A critical comment to: "Rethinking the Logic of Early Diagnosis in Cancer" by Damhus, Risør, Brodersen, and Jønsson (2024). 如何避免癌症诊断跨学科研究的两极分化？评论"对 Damhus、Risør、Brodersen 和 Jønsson 所著《癌症早期诊断逻辑的反思》（2024 年）的批判性评论。

IF 1.9 4区医学

Health Pub Date : 2024-07-25 DOI: 10.1177/13634593241258392

Rikke Sand Andersen, Michal Frumer, Camilla Hoffmann Merrild, Sara Marie Hebsgaard Offersen, Rikke Aarhus, Marie Louise Tørring

引用次数: 0

Shaping mindful citizens: Practitioners' motivations and aspirations for mindfulness in education. 塑造有正念的公民：从业者在教育中对正念的动机和愿望。

IF 1.9 4区医学

Health Pub Date : 2024-07-01 Epub Date: 2023-09-19 DOI: 10.1177/13634593231179024

Peter J Hemming

{"title":"Shaping mindful citizens: Practitioners' motivations and aspirations for mindfulness in education.","authors":"Peter J Hemming","doi":"10.1177/13634593231179024","DOIUrl":"10.1177/13634593231179024","url":null,"abstract":"Mindfulness meditation has enjoyed growing popularity in the UK over the last few decades and is increasingly found in many educational settings. To date, existing empirical research on mindfulness in education has focused primarily on its efficacy, rather than more sociological concerns. This article draws on qualitative data from a major research study entitled 'Mapping Mindfulness in the UK' to investigate the motivations and aspirations of mindfulness practitioners for promoting and delivering mindfulness in educational contexts. The analysis argues that some of the existing theoretical critiques of mindfulness as a neo-liberalising self-technology are too reductive and do not take adequate account of the views and experiences of practitioners. For participants in this study, mindfulness in education was more than an individualised self-help therapeutic tool, but was instead a uniquely versatile practice, representing multiple possibilities for individuals and society. The research makes significant contributions to several fields of sociological inquiry, including on mindfulness, mental health and wellbeing, and education and citizenship.","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"596-614"},"PeriodicalIF":1.9,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11149386/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41102012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Coexisting cancer regimes: Transformations of breast and lung cancer in the United Kingdom. 并存的癌症制度：英国乳腺癌和肺癌的转变。

IF 1.9 4区医学

Health Pub Date : 2024-07-01 Epub Date: 2023-05-22 DOI: 10.1177/13634593231176979

Cinzia Greco

引用次数: 0

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