Health Psychology and Behavioral Medicine最新文献

{"title":"An analysis of physical activity coping plans: mapping barriers and coping strategies based on user ratings.","authors":"Maya Braun, Geert Crombez, Femke De Backere, Emma Tack, Annick L De Paepe","doi":"10.1080/21642850.2024.2434140","DOIUrl":"10.1080/21642850.2024.2434140","url":null,"abstract":"<p><strong>Introduction: </strong>Personalising recommendations for physical activity coping plans can help bridging the physical activity intention-behaviour gap. Data-driven 'black-box' approaches result in recommendations that prove difficult to explain, and may have undesired consequences. This study aimed to explicitly link barriers and coping strategies using end-user input.</p><p><strong>Method: </strong>152 participants (85 female) took part in an online task. Participants were asked to judge the relevance of coping strategies for barriers to physical activity, and under which circumstances coping strategies were relevant for a given barrier. Data was aggregated and heat maps were produced. Necessary conditions for the relevance of each combination were coded and their frequencies were reported.</p><p><strong>Results: </strong>Relevance of 1570 combinations of barriers and coping strategies were assessed, with 2 combinations rated 'always relevant' by all participants, and 37 combinations rated as 'always relevant' by no participants. Barriers differ strongly in how many coping strategies are relevant for them, and coping strategies differ strongly in how many barriers they are relevant for. Resulting aggregates concerning the average rating as 'never relevant', 'always relevant' and 'relevant under certain conditions' are shared for each barrier coping strategy combination, as are the conditions associated with different barriers and coping strategies.</p><p><strong>Discussion: </strong>This study introduces a novel method to create rules for recommendations using input from stakeholders. The datasets created throughout this research are available for re-use in future research, as well as for clinical practice and (digital) intervention development. This data can be used as a base for explainable personalised recommendations for physical activity coping plans.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2434140"},"PeriodicalIF":2.4,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11613413/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142768298","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Intelligent health management strategies, adaptation, and validation of the SAT-SF questionnaire into Spanish in cancer patients.","authors":"Lidia V Cerron Tito, Juleysi Delgado Baca, Marcos Espinola-Sánchez, Lindsey W Vilca, Salomon Huancahuire-Vega","doi":"10.1080/21642850.2024.2430967","DOIUrl":"https://doi.org/10.1080/21642850.2024.2430967","url":null,"abstract":"<p><strong>Introduction: </strong>A sudden cancer diagnosis creates a psycho-emotional and social crisis, making it crucial to manage emotional coping strategies and assess comprehensive health care, addressing both behavioral and practical aspects of patients' daily lives. Although there are instruments that measure strategies for emotional coping, emotional adjustment or post-traumatic growth, we still do not have a questionnaire in Spanish that comprehensively evaluates health self-management.</p><p><strong>Aim: </strong>This study aims to translate into Spanish and determine the validity and reliability of the Spanish version of the Smart Management Strategy for Health Assessment Tool (SAT-SF) evaluation questionnaire in Peruvian patients with cancer.</p><p><strong>Methodology: </strong>Cross-sectional study. Translation and back-translation of the SAT-SF were carried out. Next, 271 Peruvian adult patients of both sexes diagnosed with different types of cancer participated in the validation process. The factor structure was studied through Confirmatory Factor Analysis, the scale's reliability through Cronbach's alpha and omega coefficients, and the factorial invariance of the scale according to sex. For concurrent validity, the association with the Medical Outcomes Study (MOS) social support scale was analyzed.</p><p><strong>Result: </strong>The original model of three related dimensions presents acceptable fit indices to the data (<i>χ</i> ² = 1202.23; df = 402; <i>p</i> < .001; RMSEA = .086 [90% CI .080-.091]; SRMR = .065; CFI = .940; TLI = .930). The scale's factor structure has shown evidence of being strictly invariant for the groups of men and women. The reliability indices according to dimensions were Personal competencies (<i>α</i> = .91; <i>ω</i> = .92), Preparation strategies (<i>α</i> = .87; <i>ω</i> = .86) and Implementation strategies (<i>α</i> = .89; <i>ω</i> = .91). Additionally, it was evidenced that the dimensions of the SAT-SF are significantly related to the dimensions of the Social Support scale.</p><p><strong>Conclusion: </strong>The SAT-SF questionnaire was adapted to Spanish, demonstrating adequate construct validity, internal consistency, reliability, and concurrent validity.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2430967"},"PeriodicalIF":2.4,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11610319/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142768300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Digital behavioral dietary interventions to promote a healthy diet among children and adolescents: a scoping review of technologies, design, behavioral theory, and assessed outcomes.","authors":"Zoë van der Heijden, Desiree Lucassen, Janine Faessen, Guido Camps, Yuan Lu, Henk Schipper, Sanne Nijhof, Elske Brouwer-Brolsma","doi":"10.1080/21642850.2024.2430965","DOIUrl":"10.1080/21642850.2024.2430965","url":null,"abstract":"<p><strong>Background: </strong>Childhood overweight and obesity prevalence steeply increased during recent decades, prompting the development of many digital behavioral dietary interventions (DBDIs). However, a coherent overview is lacking, which is crucial for delineating research in this field.</p><p><strong>Objective: </strong>This scoping review outlines the landscape of DBDIs for improving dietary behaviors in children and adolescents, including delivery modes, design and development approaches, behavioral theory, and outcomes assessed. Secondary objectives involved examining the integration of behavior change techniques (BCTs) and identifying outcomes favoring DBDIs.</p><p><strong>Methods: </strong>Following PRISMA guidelines, PsycInfo, PubMed, and Scopus were systematically searched for evaluated DBDIs. Two reviewers independently screened titles and abstracts; one performed full-text screening. Studies included had a digital component, targeted dietary behavior, focused on children or adolescents, and evaluated effects on behavior change, health, or process evaluation outcomes. One reviewer extracted data, including general information, theoretical underpinning, and outcomes assessed, while BCTs were coded independently by two reviewers. DBDIs were deemed favorable if significant improvements were observed in all outcomes (<i>p</i> ≤ .05).</p><p><strong>Results: </strong>From 51 included studies, 41 DBDIs were identified, including app-based (37%), web-based (29%), computer-based (27%), text-message-based (5%), and combined technology tools (2%). Stakeholders were involved in the design of 59% of DBDIs, with 5% using co-design methodologies. Studies evaluated behavior change outcomes (86%), process evaluation outcomes (59%), and health outcomes (20%). DBDIs included an average of 6.2 BCTs, primarily 'Feedback on behavior' (56%) and 'Non-specific reward' (46%). Among experimental studies, 15% yielded favorable results, 58% mixed results, and 28% no favorable results.</p><p><strong>Discussion: </strong>This review outlines the diverse landscape of DBDIs, highlighting various technological delivery modes and outcomes assessed. Methodological variations and limitations challenge consistent effectiveness assessment. Future research should prioritize rigorous study designs to understand efficacy and identify effective BCTs among diverse pediatric populations. Leveraging co-design methods may enhance engagement and effectiveness.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2430965"},"PeriodicalIF":2.4,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11610228/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142768299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"It's just how we do it: social processes in rapid weight loss for combat sports.","authors":"Susan J Wilbraham, David Elliott, Paul K Miller","doi":"10.1080/21642850.2024.2433517","DOIUrl":"https://doi.org/10.1080/21642850.2024.2433517","url":null,"abstract":"<p><p>Making weight is an essential aspect of preparation for competition in combat sports. In addition to gradual weight loss in order to fight lean, fighters commonly engage in Rapid Weight Loss (RWL) practices seeking short-term hypohydration in order to be lighter for weigh-in. The aims of this study were to explore the RWL-related experiences of <i>N</i> = 7 participants in non-professional UK Thai boxing (Muay Thai), in order to elucidate the socio-cultural and social-psychological processes relating to these behaviours. Four themes were identified: One-upmanship; Setting and conforming to expectations; Self-directed preparation; and Subversion of RWL controls. These themes describe how RWL is learned, rewarded, magnified, often unmitigated, and inherently difficult to restrict. Contrary to suggestions in past research, participant accounts highlight how fighters may aggressively cut weight at lower levels of the sport where health-related interventions are harder to implement.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2433517"},"PeriodicalIF":2.4,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11610240/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142768301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effect of content framing in smoking prevention campaigns on recognition and attitudes: a virtual reality study.","authors":"Solenne Bonneterre, Oulmann Zerhouni, Maréva Barré, Reinout Wiers, Marilisa Boffo","doi":"10.1080/21642850.2024.2420810","DOIUrl":"10.1080/21642850.2024.2420810","url":null,"abstract":"<p><strong>Objectives: </strong>Anti-tobacco campaigns often suffer from a lack of systematic evaluation and may not always have the intended impact on the target population. Our research adopted immersive virtual reality (iVR) to systematically evaluate preventive anti-tobacco messages in a controlled setting while mimicking a naturalistic and ecological environment. We investigated the effect of content framing of Anti-tobacco posters on attitudes and cravings toward tobacco, and poster recognition.</p><p><strong>Methods: </strong>Participants were undergraduate students (n = 121), mostly female (76%). They were immersed in a virtual environment incidentally exposing them to either negatively, positively, or neutrally framed preventive posters based on their experimental condition. Their gaze was eye-tracked during the entire procedure.</p><p><strong>Results: </strong>Results indicate that incidental exposure to preventive anti-tobacco posters while directly looking at negatively framed posters was associated with lower positive attitudes toward tobacco. Incidental exposure to posters did not impact their explicit recognition, except when exposed to negatively framed posters. No significant effect was found on craving.</p><p><strong>Conclusions: </strong>We advise health campaign designers to consistently use negatively framed preventive messages and recommend the use of iVR to evaluate campaigns before launching them.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2420810"},"PeriodicalIF":2.4,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11587717/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142716165","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The mediating role of coping in the relationship between perceived health and psychological wellbeing in recurrent urinary tract infection: the rUTI Illness Process Model.","authors":"Abigail F Newlands, Melissa L Kramer, Kayleigh Maxwell, Jessica L Price, Katherine A Finlay","doi":"10.1080/21642850.2024.2420806","DOIUrl":"10.1080/21642850.2024.2420806","url":null,"abstract":"<p><p><b>Background:</b> Recurrent urinary tract infection (rUTI) is associated with significant symptom and quality of life burden. Given the unique challenges in diagnostics and management, healthcare disillusionment and stigmatisation which distinguish rUTI from other urological conditions, specific identification of the key illness processes experienced by this patient population is required. This study aimed to identify the unique illness processes and perceptions that contribute to quality of life in rUTI, through perceived health status, psychological wellbeing, and coping. <b>Methods:</b> An international sample of adults living with rUTI (<i>N = </i>389, 96.9% female) completed a cross-sectional survey comprising the following standardised questionnaires: the EuroQoL EQ-5D-5L, Patient Health Questionnaire 9 (PHQ-9), Generalised Anxiety Disorder 7 (GAD-7), Connor-Davidson Resilience Scale-10 (CD-RISC-10), Pain Catastrophising Scale (PCS). Sociodemographic characteristics were also assessed. Structural equation modelling was conducted to identify the underlying constructs which contributed to psychological wellbeing in rUTI, establishing the 'rUTI Illness Process Model'. <b>Results:</b> The positive relationship between 'perceived health status' and 'psychological wellbeing' was partially mediated by 'rUTI coping', after controlling for the impact of household income and age (<i>p </i>< .001). The model demonstrated a large effect size (<i>R</i> ²= .81) and good local and global fit. Overall, rUTI coping skills, boosted by resilience and weakened by pain catastrophising, contribute to a significant proportion of the positive relationship between perceived health status and psychological wellbeing in rUTI. A uniquely vulnerable patient phenotype emerges from this new research, with patients who are younger and/or of lower socioeconomic status at greater risk of poorer rUTI health outcomes and psychological wellbeing, potentially requiring further support. <b>Conclusions:</b> The rUTI Illness Process Model establishes the crucial need to clinically characterise the individualised illness perceptions and metacognitive strategies held by people living with rUTI, revealing that patient-centred interventions targeting illness perceptions and coping strategies require prioritisation to enhance patient outcomes and the patient experience of living with rUTI.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2420806"},"PeriodicalIF":2.4,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11536654/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142582423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cognitive emotional regulation in physiotherapy students in Croatia.","authors":"Manuela Filipec, Anica Kuzmić, Marina Ćurlin, Pavao Vlahek","doi":"10.1080/21642850.2024.2419842","DOIUrl":"10.1080/21642850.2024.2419842","url":null,"abstract":"<p><strong>Background: </strong>Cognitive emotional regulation refers to a conscious or unconscious process that affects an individual's emotions and the physical and mental health of the individual. The aim of this study was to detect strategies of cognitive emotional regulation used by physiotherapy students in stressful situations.</p><p><strong>Methods: </strong>The study was conducted from January to March 2022 and enrolled 372 students. An announcement was posted electronically on the web page of each physiotherapy study in Croatia, inviting students to participate in the study. Each participant provided written informed consent. The Cognitive Emotion Regulation Questionnaire was used in the study for detecting cognitive emotional strategies that students use in stressful situations. Statistical analysis of data included descriptive statistics of data groups where values were expressed as mean and standard deviation. The Kolmogorov-Smirnov test was used to test the normality of the distribution. To test the differences between two independent groups, the Mann-Whitney U rank sum test was applied, while the non-parametric Kruskal-Wallis test was used to test the differences of several subgroups of variables. Categorical variables were tested with Fischer's exact test or chi-square test.</p><p><strong>Results: </strong>The most frequently used emotional cognitive regulation strategies are acceptance and positive reappraisal. There is a statistically significant difference in the use of self-blame (<i>p</i> < .001), rumination (<i>p</i> < .001) and blaming others (<i>p</i> = 0.018) in relation to gender. Also, there is a statistically significant difference in the use of acceptance (<i>p</i> = 0.022), rumination (<i>p</i> < .001) and blaming others (<i>p</i> = 0.049) in relation to the year of study.</p><p><strong>Conclusion: </strong>Education of physiotherapy students to the use of adaptive strategies could have a positive effect on the students' learning quality, their decision-making abilities and the quality of physiotherapy provided to patients. Encouraging physiotherapy students to engage in cognitively adaptive ways of thinking can serve as a solid method to help students in an academic and professional environment.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2419842"},"PeriodicalIF":2.4,"publicationDate":"2024-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11514390/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142521749","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Look, over there! A streaker! - Qualitative study examining streaking as a behaviour change technique for habit formation in recreational runners.","authors":"Meghan Curran, Nicholas Larade, Gözde Özakinci, Gabriela Tymowski-Gionet, Stephan U Dombrowski","doi":"10.1080/21642850.2024.2416505","DOIUrl":"https://doi.org/10.1080/21642850.2024.2416505","url":null,"abstract":"<p><strong>Background: </strong>Running as a form of physical activity is beneficial to overall health and wellbeing. The aim of the study is to examine 'run streaking' (i.e. running on consecutive days, for a minimum period of time or distance, typically at least one mile) as a technique for habit formation and behaviour change.</p><p><strong>Methods: </strong>Qualitative semi-structured interviews with 21 recreational adult runners (11 female and 10 male). Run streak length ranged from a minimum of 100 days to over 4500 days. Transcripts were analysed using a hybrid deductive-inductive thematic analysis.</p><p><strong>Results: </strong>Run streaking was reported to lead to several benefits, health improvements and a sense of accomplishment, although many run streakers reported running through injuries and lack of recovery. Accounts of run streaking showed features of automaticity indicative of habitual behaviour. Other behavioural processes identified included motivation, identity, self-regulation and social support. Behavioural streaking showed the potential to influence change in behaviours other than running.</p><p><strong>Conclusion: </strong>Accounts of run streaking demonstrate an interplay between automatic and deliberate processes in the maintenance of running behaviour. Behavioural streaking is a technique that could be used in other behaviour change contexts beyond running to support habit formation.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2416505"},"PeriodicalIF":2.4,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11494719/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142499197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors influencing health-related quality of life of children with overweight and obesity in Kuala Lumpur, Malaysia.","authors":"Shazana Rifham Abdullah, Hoe Victor Chee Wai, Zahari Ishak, Siti Sarah Hamzah, Ahmad Kamil Nur Zati Iwani, Ruziana Mona Wan Mohd Zin, Abqariyah Yahya","doi":"10.1080/21642850.2024.2413980","DOIUrl":"10.1080/21642850.2024.2413980","url":null,"abstract":"<p><strong>Introduction: </strong>Overweight and obesity among children may have psychological consequences, with potentially lasting effects on health-related quality of life (HRQOL). The aims of this study were to compare HRQOL across weight status among children and to determine the factors influencing HRQOL among children with overweight and obesity.</p><p><strong>Methods: </strong>This cross-sectional study involved school children aged 9-16 years that were recruited from eight randomly selected primary and secondary schools in Kuala Lumpur. The validated Malay version of Pediatric Quality of Life Inventory (PedsQL) was used to measure HRQOL. Complex sample general linear model was used to determine the significant factors associated with HRQOL among children with overweight and obesity.</p><p><strong>Results: </strong>From 928 students, 41.2% (n<i> </i>= 375) of them had either overweight or obesity. Children with obesity reported lower overall HRQOL, physical functioning, social functioning, and psychosocial health summary, compared to normal weight children. In the final model, children with obesity had significantly lower HRQOL and physical functioning compared to children who were overweight, while those who lived with a single parent reported poorer HRQOL compared to children who lived with both parents. Children with history of being bullied had lower HRQOL and psychosocial health. Whereas those with lower self-esteem reported significantly lower scores in all three domains.</p><p><strong>Conclusion: </strong>Overweight and obesity have negative impacts on HRQOL of children. Among children with overweight and obesity, factors such as degree of obesity, family structure, history of being bullied, and self-esteem were found to be significantly associated with HRQOL. Therefore, assessing and managing HRQOL should be included as a part of the obesity prevention programme.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2413980"},"PeriodicalIF":2.4,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11488170/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142463406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating post-ICU care: understanding family members' experiences - a qualitative study.","authors":"Matteo Danielis, Alessandro Garau, Dina Molaro, Sara Gentilini, Marika Rosset, Serena Giorgino, Federica Vuerich, Renzo Zanotti, Lorenza Entilli","doi":"10.1080/21642850.2024.2415394","DOIUrl":"https://doi.org/10.1080/21642850.2024.2415394","url":null,"abstract":"<p><strong>Background: </strong>Comprehending and addressing the needs of caregivers during the post-intensive care unit (ICU) phase is vital for establishing sustainable support systems and improving the overall quality of life (QoL) for both patients and caregivers.</p><p><strong>Objective: </strong>To explore the experiences of family members (FMs) caring for loved ones three-months after ICU discharge and their related QoL.</p><p><strong>Methods and measures: </strong>A qualitative, descriptive research was conducted. Participants were recruited from two general ICUs in an Italian Academic Hospital. Data collection lasted two months and was performed with telephonic interviews led by ICU nurses. Thematic analysis was conducted using a hybrid approach, incorporating both deductive and inductive coding strategies. This process has been facilitated by Atlas.ti software.</p><p><strong>Results: </strong>Twenty-four FMs participated, representing a diverse range of familial relationships with the patients. Thematic analysis revealed four overarching themes: 1) QoL underwent transformations; 2) Positive emotions laden with significance; 3) Supporting role taken on by a caregiver; and 4) Life's transience through the meaning-making of the illness event. These themes highlighted the multifaceted nature of the caregiving experience.</p><p><strong>Conclusions: </strong>This study provides valuable insights into the challenges and dynamics faced by FMs following ICU discharge. Findings underscore the importance of addressing environmental challenges, cultivating positive emotions, and strengthening caregiver-patient relationships to enhance the caregiving experience and promote overall QoL. FMs can adapt their personal concepts and reach their full potential by learning to coexist with the demanding role of caregiver and achieve a new level of resilience and fulfillment.</p>","PeriodicalId":12891,"journal":{"name":"Health Psychology and Behavioral Medicine","volume":"12 1","pages":"2415394"},"PeriodicalIF":2.4,"publicationDate":"2024-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11485935/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142463407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}