CMAJ open最新文献

{"title":"Long-term health care use and diagnosis after hospitalization for COVID-19: a retrospective matched cohort study.","authors":"Tkt Lo,&nbsp;Andrew MacMillan,&nbsp;Gavin Y Oudit,&nbsp;Hussain Usman,&nbsp;Jason L Cabaj,&nbsp;Judy MacDonald,&nbsp;Vineet Saini,&nbsp;Khokan C Sikdar","doi":"10.9778/cmajo.20220002","DOIUrl":"https://doi.org/10.9778/cmajo.20220002","url":null,"abstract":"<p><strong>Background: </strong>Knowledge pertaining to the health and health care utilization of patients after recovery from acute COVID-19 is limited. We sought to assess the frequency of new diagnoses of disease and health care use after hospitalization with COVID-19.</p><p><strong>Methods: </strong>We included all patients hospitalized with COVID-19 in Alberta between Mar. 5 and Dec. 31, 2020. Additionally, 2 matched controls (SARS-CoV-2 negative) per case were included and followed up until Apr. 30, 2021. New diagnoses and health care use were identified from linked administrative health data. Repeated measures were made for the periods 1-30 days, 31-60 days, 61-90 days, 91-180 days, and 180 and more days from the index date. We used multivariable regression analysis to evaluate the association of COVID-19-related hospitalization with the number of physician visits during follow-up.</p><p><strong>Results: </strong>The study sample included 3397 cases and 6658 controls. Within the first 30 days of follow-up, the case group had 37.12% (95% confidence interval [CI] 35.44% to 38.80%) more patients with physician visits, 11.12% (95% CI 9.77% to 12.46%) more patients with emergency department visits and 2.92% (95% CI 2.08% to 3.76%) more patients with hospital admissions than the control group. New diagnoses involving multiple organ systems were more common in the case group. Regression results indicated that recovering from COVID-19-related hospitalization, admission to an intensive care unit, older age, greater number of comorbidities and more prior health care use were associated with increased physician visits.</p><p><strong>Interpretation: </strong>Patients recovered from the acute phase of COVID-19 continued to have greater health care use up to 6 months after hospital discharge. Research is required to further explore the effect of post-COVID-19 conditions, pre-existing health conditions and health-seeking behaviours on health care use.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E706-E715"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/b2/9a/cmajo.20220002.PMC10435242.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10023007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health care providers' perspectives on challenges and opportunities of intercultural health care in diabetes and obesity management: a qualitative study.","authors":"Nicole N Ofosu,&nbsp;Thea Luig,&nbsp;Naureen Mumtaz,&nbsp;Yvonne Chiu,&nbsp;Karen K Lee,&nbsp;Roseanne O Yeung,&nbsp;Denise L Campbell-Scherer","doi":"10.9778/cmajo.20220222","DOIUrl":"https://doi.org/10.9778/cmajo.20220222","url":null,"abstract":"<p><strong>Background: </strong>Migrants often face worse health outcomes in countries of transit and destination because of challenges such as financial constraints, employment problems, lack of a network of social support, language and cultural differences, and difficulties accessing health services. As understanding how the migrant context affects patient-provider engagement is critical to the provision of contextually appropriate care, this study aimed at understanding primary health care provider perspectives on challenges and opportunities of the intercultural care process for migrant patients with diabetes and obesity.</p><p><strong>Methods: </strong>This qualitative study within a multimethod, participatory research project involved primary care providers in clinics and primary care networks in Edmonton, Alberta, between September 2019 and February 2020. We explored health care providers' approaches to diabetes and obesity management, and experiences of and challenges with intercultural care. We conducted a thematic analysis using an interpretive qualitative approach.</p><p><strong>Results: </strong>We conducted 9 interviews and 4 focus groups and identified 3 themes: a shift from traditional weight loss-centred approaches; relationships and navigating cultural distance; and importance of and limitations in identifying and addressing root causes and barriers. Health care providers encounter considerable nonmedical challenges when supporting immigrant patients, such as navigating cultural distance and working with patients' financial constraints.</p><p><strong>Interpretation: </strong>The nonmedical challenges we identified can hinder the process of chronic disease management. Thus, in addition to educational programs and trainings to enhance the cultural competency of health care providers, incorporating avenues for cultural brokering in health care can provide invaluable support in patient-provider engagements to mitigate these challenges.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E765-E773"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/ce/70/cmajo.20220222.PMC10449020.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10061347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correction to \"Low-value preoperative cardiac testing before low-risk surgical procedures: a population-based cohort study\".","authors":"","doi":"10.9778/cmajo.20230051","DOIUrl":"https://doi.org/10.9778/cmajo.20230051","url":null,"abstract":"","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E735"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435240/pdf/cmajo.20230051.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10420762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correction to \"Assessing the appropriateness of community-based antibiotic prescribing in Alberta, Canada, 2017-2020, using ICD-9-CM codes: a cross-sectional study\".","authors":"","doi":"10.9778/cmajo.20230050","DOIUrl":"https://doi.org/10.9778/cmajo.20230050","url":null,"abstract":"","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E734"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10435239/pdf/cmajo.20230050.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10420765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The impact of delayed nonurgent surgery during the COVID-19 pandemic on surgeons in Alberta: a qualitative interview study.","authors":"Natalia Jaworska,&nbsp;Emma Schalm,&nbsp;Jaling Kersen,&nbsp;Christine Smith,&nbsp;Jennifer Dorman,&nbsp;Mary Brindle,&nbsp;Joseph Dort,&nbsp;Khara M Sauro","doi":"10.9778/cmajo.20220188","DOIUrl":"https://doi.org/10.9778/cmajo.20220188","url":null,"abstract":"<p><strong>Background: </strong>During the COVID-19 pandemic, nonurgent surgeries were delayed to preserve capacity for patients admitted with COVID-19; surgeons were challenged personally and professionally during this time. We aimed to describe the impact of delays to nonurgent surgeries during the COVID-19 pandemic from the surgeons' perspective in Alberta.</p><p><strong>Methods: </strong>We conducted an interpretive description qualitative study in Alberta from January to March 2022. We recruited adult and pediatric surgeons via social media and through personal contacts from our research network. Semistructured interviews were conducted via Zoom, and we analyzed the data via inductive thematic analysis to identify relevant themes and subthemes related to the impact of delaying nonurgent surgery on surgeons and their provision of surgical care.</p><p><strong>Results: </strong>We conducted 12 interviews with 9 adult surgeons and 3 pediatric surgeons. Six themes were identified: accelerator for a surgical care crisis, health system inequity, system-level management of disruptions in surgical services, professional and interprofessional impact, personal impact, and pragmatic adaptation to health system strain. Participants also identified strategies to mitigate the challenges experienced due to nonurgent surgical delays during the COVID-19 pandemic (i.e., additional operating time, surgical process reviews to reduce inefficiencies, and advocacy for sustained funding of hospital beds, human resources and community-based postoperative care).</p><p><strong>Interpretation: </strong>Our study describes the impacts and challenges experienced by adult and pediatric surgeons of delayed nonurgent surgeries because of the COVID-19 pandemic response. Surgeons identified potential health system-, hospital- and physician-level strategies to minimize future impacts on patients from delays of nonurgent surgery.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E587-E596"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/3f/21/cmajo.20220188.PMC10325580.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9792197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient-reported outcomes of neurologic and neuropsychiatric symptoms in mild COVID-19: a prospective cohort study.","authors":"Aravind Ganesh,&nbsp;Ryan E Rosentreter,&nbsp;Yushi Chen,&nbsp;Rahul Mehta,&nbsp;Graham A McLeod,&nbsp;Miranda W Wan,&nbsp;Jonathan D Krett,&nbsp;Yasamin Mahjoub,&nbsp;Angela S Lee,&nbsp;Ilan S Schwartz,&nbsp;Lawrence P Richer,&nbsp;Luanne M Metz,&nbsp;Eric E Smith,&nbsp;Michael D Hill","doi":"10.9778/cmajo.20220248","DOIUrl":"https://doi.org/10.9778/cmajo.20220248","url":null,"abstract":"<p><strong>Background: </strong>Various neurologic manifestations have been reported in patients with COVID-19, mostly in retrospective studies of patients admitted to hospital, but there are few data on patients with mild COVID-19. We examined the frequency and persistence of neurologic/neuropsychiatric symptoms in patients with mild COVID-19 in a 1-year prospective cohort study, as well as assessment of use of health care services and patient-reported outcomes.</p><p><strong>Methods: </strong>Participants in the Alberta HOPE COVID-19 trial (hydroxychloroquine v. placebo for 5 d), managed as outpatients, were prospectively assessed 3 months and 1 year after their positive test result. They completed detailed neurologic/neuropsychiatric symptom questionnaires, the telephone version of the Montreal Cognitive Assessment (T-MoCA), the Kessler Psychological Distress Scale (K10) and the EuroQol EQ-5D-3L (measure of quality of life). Close informants completed the Mild Behavioural Impairment Checklist (MBI-C) and the Informant Questionnaire on Cognitive Decline in the Elderly. We also tracked use of health care services and neurologic investigations.</p><p><strong>Results: </strong>The cohort consisted of 198 participants (87 female [43.9%] median age 45 yr, interquartile range 37-54 yr). Of the 179 participants with symptom assessments, 139 (77.6%) reported at least 1 neurologic symptom, the most common being anosmia/dysgeusia (99 [55.3%]), myalgia (76 [42.5%]) and headache (75 [41.9%]). Forty patients (22.3%) reported persistent symptoms at 1 year, including confusion (20 [50.0%]), headache (21 [52.5%]), insomnia (16 [40.0%]) and depression (14 [35.0%]); 27/179 (15.1%) reported no improvement. Body mass index (BMI), a history of asthma and lack of full-time employment were associated with the presence and persistence of neurologic/neuropsychiatric symptoms; female sex was independently associated with both (presence: odds ratio [OR] adjusted for age, race, BMI, history of asthma and neuropsychiatric history 5.04, 95% confidence interval [CI] 1.58 to 16.10). Compared to participants without persistent symptoms, those with persistent symptoms had more hospital admissions and family physician visits, and worse MBI-C scores and less frequent independence for instrumental activities at 1 year (83.8% v. 97.8%, <i>p</i> = 0.005). Patients with any or persistent neurologic symptoms had worse psychologic distress (K10 score ≥ 20: adjusted OR 12.1, 95% CI 1.4 to 97.2) and quality of life (median EQ-5D-3L visual analogue scale rating 75 v. 90, <i>p</i> < 0.001); 42/84 (50.0%) had a T-MoCA score less than 18 at 3 months, as did 36 (42.9%) at 1 year. Participants who reported memory loss were more likely than those who did not report such symptoms to have informant-reported cognitive-behavioural decline (1-yr MBI-C score ≥ 6.5: adjusted OR 15.0, 95% CI 2.42 to 92.60).</p><p><strong>Interpretation: </strong>Neurologic/neuropsychiatric symptoms were commonly report","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E696-E705"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/54/9b/cmajo.20220248.PMC10414975.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10330674","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Physician home visits to rostered patients during their last year of life: a retrospective cohort study.","authors":"Mary M Scott,&nbsp;Colleen Webber,&nbsp;Anna E Clarke,&nbsp;Abe Hafid,&nbsp;Sarina R Isenberg,&nbsp;Aaron Jones,&nbsp;Amy T Hsu,&nbsp;Katrin Conen,&nbsp;James Downar,&nbsp;Douglas G Manuel,&nbsp;Michelle Howard,&nbsp;Peter Tanuseputro","doi":"10.9778/cmajo.20220123","DOIUrl":"https://doi.org/10.9778/cmajo.20220123","url":null,"abstract":"<p><strong>Background: </strong>Physician home visits are associated with better health outcomes, yet most patients near the end of life never receive such a visit. Our objectives were to describe the receipt of physician home visits during the last year of life after a referral to home care - an indication that the patient can no longer live independently - and to measure associations between patient characteristics and receipt of a home visit.</p><p><strong>Methods: </strong>We conducted a retrospective cohort study using linked population-based health administrative databases housed at ICES. We identified adult (aged ≥ 18 yr) decedents in Ontario who died between Mar. 31, 2013, and Mar. 31, 2018, who were receiving primary care and were referred to publicly funded home care services. We described the provision of physician home visits, office visits and telephone management. We used multinomial logistic regression to calculate the odds of receiving home visits from a rostered primary care physician, controlling for referral during the last year of life, age, sex, income quintile, rurality, recent immigrant status, referral by rostered physician, referral during hospital stay, number of chronic conditions and disease trajectory based on the cause of death.</p><p><strong>Results: </strong>Of the 58 753 decedents referred in their last year of life, 3125 (5.3%) received a home visit from their family physician. Patient characteristics associated with higher odds of receiving home visits compared to office-based or telephone-based care were being female (adjusted odds ratio [OR] 1.28, 95% confidence interval [CI] 1.21-1.35), being 85 years of age or older (adjusted OR 2.42, 95% CI 1.80-3.26) and living in a rural area (adjusted OR 1.09, 95% CI 1.00-1.18). Increased odds were associated with home care referrals by the patient's primary care physician (adjusted OR 1.49, 95% CI 1.39-1.58) and referrals occurring during a hospital stay (adjusted OR 1.20, 95% CI 1.13-1.28).</p><p><strong>Interpretation: </strong>A small proportion of patients near the end of life received home-based physician care, and patient characteristics did not explain the low visit rates. Future work on system- and provider-level factors may be critical to improve access to home-based end-of-life primary care.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E597-E606"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/5f/28/cmajo.20220123.PMC10325583.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9792201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sickle cell disease in Ontario, Canada: an epidemiologic profile based on health administrative data.","authors":"Jacob Pendergrast,&nbsp;Lanre Tunji Ajayi,&nbsp;Eliane Kim,&nbsp;Michael A Campitelli,&nbsp;Erin Graves","doi":"10.9778/cmajo.20220145","DOIUrl":"https://doi.org/10.9778/cmajo.20220145","url":null,"abstract":"<p><strong>Background: </strong>The number of patients with sickle cell disease in Ontario, Canada, is unknown. In the absence of a formal registry, we performed a study to determine an approximate census via analysis of health administrative databases.</p><p><strong>Methods: </strong>We identified Ontario patients with a diagnosis of sickle cell disease through queries of the Discharge Abstract Database, National Ambulatory Care Reporting System and Newborn Screening Ontario database. The period of inquiry was Apr. 1, 2007, through Mar. 31, 2017. We identified repeat interactions by the same patient by cross-referencing provincial health insurance plan numbers.</p><p><strong>Results: </strong>We documented health care system interactions for 3418 unique patients (1912 [55.9%] female, median age at the time of identification 24 yr). Over the 10-year study period, patients visited the emergency department a median of 2 (interquartile range [IQR] 1-7) times and an average of 6.69 (standard deviation [SD] 26.71) times, and were admitted to hospital a median of 1 (IQR 1-5) time and an average of 4.38 (SD 8.53) times for treatment related to sickle cell disease. A total of 229 patients (6.7%) died during the study period, with an average age at death of 55 years. Even without accounting for the effects of immigration, the rate of natural increase slowed slightly over the study period owing to a decrease in the annual number of affected births.</p><p><strong>Interpretation: </strong>The estimated prevalence of patients with sickle cell disease in Ontario in 2007/08-2016/17 was 1 in 4200, and affected patients' need for hospital-based care was substantial, although highly variable. Similar queries of health administrative databases may be feasible in other Canadian provinces.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E725-E733"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/0d/2b/cmajo.20220145.PMC10435244.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10027979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Genetic testing for familial hypercholesterolemia in Quebec, Canada: a single-centre retrospective cohort study.","authors":"Amanda Guerin,&nbsp;Iulia Iatan,&nbsp;Isabelle Ruel,&nbsp;Linda Fri Ngufor,&nbsp;Jacques Genest","doi":"10.9778/cmajo.20220108","DOIUrl":"https://doi.org/10.9778/cmajo.20220108","url":null,"abstract":"<p><strong>Background: </strong>Familial hypercholesterolemia (FH) is associated with premature atherosclerotic cardiovascular disease caused by elevated low-density lipoprotein cholesterol (LDL-C) levels. We determined the impact of a full next-generation sequencing (NGS) genetic panel on reclassification of patients with a clinical diagnosis of FH in Quebec compared to the partial genetic panel currently offered by the Quebec Ministère de la Santé et des Services sociaux (Ministry of Health and Social Services) (MSSS), which includes 11 variants that are common in French Canadians.</p><p><strong>Methods: </strong>We conducted a retrospective cohort study in a subgroup of patients in the Canadian FH Registry seen at the McGill University Health Centre Preventive Cardiology/Lipid Clinic, Montréal, between September 2017 and September 2021 who were clinically diagnosed with severe hypercholesterolemia, probable FH or definite FH according to the Canadian definition of FH. Next-generation sequencing of the <i>LDLR</i>, <i>APOB</i> and <i>PCSK9</i> genes, and multiplex ligation-dependent probe amplification of the <i>LDLR</i> gene to detect genetic variants, were performed.</p><p><strong>Results: </strong>Among 335 consecutive patients with heterozygous FH (184 men [54.9%] and 151 women [45.1%]), the baseline LDL-C level was 6.96 (standard deviation 1.79) mmol/L. Patients identified through cascade screening were 11 years younger on average than index patients, and smaller proportions presented to the clinic with cardiovascular risk factors. A pathogenic FH variant was identified in 169 (73.8%) of the 229 patients who underwent genetic testing; the majority had variants in the <i>LDLR</i> (146 [86.4%]) or <i>APOB</i> (24 [14.2%]) gene. The genetic panel offered by the MSSS accounted for only 48% of the variants identified with the full NGS panel. Of the 229 patients, 90 (39.3%, 95% confidence interval 32.9%-46.0%) were reclassified from a clinical diagnosis of probable FH to definite FH after genetic screening with a full FH panel.</p><p><strong>Interpretation: </strong>Genetic testing in patients suspected of having FH provided diagnostic certainty and permitted many patients with a clinical diagnosis of probable FH to be reclassified as having definite FH. Genetic screening allows for increased identification of patients with FH and may therefore help reduce the burden of cardiovascular disease and mortality rates among Canadians with FH. <b>Trial registration:</b> ClinicalTrials.gov, no. NCT02009345.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E754-E764"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/06/fd/cmajo.20220108.PMC10449021.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10069184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Canadian family members' experiences with guilt, judgment and secrecy during medical assistance in dying: a qualitative descriptive study.","authors":"Ellen T Crumley,&nbsp;Jocelyne LeBlanc,&nbsp;Brett Henderson,&nbsp;Caitlin S Jackson-Tarlton,&nbsp;Erika Leck","doi":"10.9778/cmajo.20220140","DOIUrl":"https://doi.org/10.9778/cmajo.20220140","url":null,"abstract":"<p><strong>Background: </strong>Although research briefly mentions that family members have encountered unexpected experiences during the medical assistance in dying (MAiD) process, from keeping MAiD a secret, to being judged and feeling guilty, the potential implications of these are less understood. This study's aim was to examine guilt, judgment and secrecy as part of the MAiD experiences of family members in Canada.</p><p><strong>Methods: </strong>We conducted a qualitative descriptive study with 1-hour semistructured interviews by telephone or video from December 2020 to December 2021. Through local and national organizations, we recruited Canadian family members with MAiD experience. A subset analysis of unexpected experiences was conducted, which identified 3 categories: guilt, judgment and secrecy. Similar codes were grouped together within each category into themes. Participants were sent the draft manuscript and their suggestions were integrated.</p><p><strong>Results: </strong>A total of 45 family members from 6 provinces who experienced MAiD from 2016 to 2021 participated. Many people who had MAiD were diagnosed with cancer, comorbidities or neurologic disease. Some participants unexpectedly found themselves managing guilt, judgment and/or secrecy, which may complicate their grieving and bereavement. Numerous participants experienced judgment from relatives, friends, religious people and/or health care professionals. Many kept MAiD secret because they were not allowed to tell or for religious reasons, and/or selectively told others.</p><p><strong>Interpretation: </strong>Family members said they were ill-prepared to manage their experiences of guilt, judgment and secrecy during the MAiD process. MAiD programs and assessors/providers could provide family-specific information to help lessen these burdens and better prepare relatives for common, yet unexpected, experiences they may encounter.</p>","PeriodicalId":10432,"journal":{"name":"CMAJ open","volume":"11 4","pages":"E782-E789"},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/8d/4f/cmajo.20220140.PMC10449018.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10069187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}