Bright Huo, Aaron J. Yu, Milos Bjelovic, Sofia Tsokani, Stephanie Sanger, Dimitris Mavridis, Gordon Guyatt, Stavros A. Antoniou
{"title":"EAES Clinical Practice Guideline 2026 Protocol: Multi-Society Recommendations for the Treatment of Achalasia","authors":"Bright Huo, Aaron J. Yu, Milos Bjelovic, Sofia Tsokani, Stephanie Sanger, Dimitris Mavridis, Gordon Guyatt, Stavros A. Antoniou","doi":"10.1002/gin2.70067","DOIUrl":"https://doi.org/10.1002/gin2.70067","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Achalasia causes significant distress and quality-of-life impairment to patients. Several options exist for the treatment of achalasia including endoscopic [intra-sphincteric injection of botulinum toxin, pneumatic dilation, peroral endoscopic myotomy (POEM)], and surgical techniques such as Heller Myotomy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This guideline will adhere to robust methodological standards according to GIN, GRADE, and AGREE-S. We will develop a clinical practice guideline addressing the treatment of patients with achalasia. A systematic review group will perform an evidence synthesis and network meta-analysis before appraising the certainty of evidence. An international, multidisciplinary panel will review the evidence and develop recommendations using the evidence-to-decision framework. The panel will be comprised of gastroenterologists, gastrointestinal surgeons, and patient partners. We will collect and address conflicts of interest for all guideline development group members. We will present this clinical practice guideline at international congresses and publish in the Journal of <i>Surgical Endoscopy & Other Interventional Techniques</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Questions</h3>\u0000 \u0000 <p>We will conduct a clinical practice guideline to provide evidence-informed treatment recommendations for patients with achalasia. We will examine the following questions:</p>\u0000 \u0000 <p>In patients with type I achalasia, what is the relative impact of Botox injection versus pneumatic dilation versus POEM versus Heller myotomy alone versus Heller myotomy with fundoplication on patient-important outcomes?</p>\u0000 \u0000 <p>In patients with type II achalasia, what is the relative impact of Botox injection versus pneumatic dilation versus POEM versus Heller myotomy alone versus Heller myotomy with fundoplication on patient-important outcomes?</p>\u0000 \u0000 <p>In patients with type III achalasia, what is the relative impact of Botox injection versus pneumatic dilation versus POEM versus Heller myotomy alone versus Heller myotomy with fundoplication on patient-important outcomes?</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70067","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147567429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kate Loveys, Franz E. Babl, Elizabeth Cotterell, Libby Haskell, Sharon O'Brien, Ed Oakley, Emma J. Tavender, Catherine L. Wilson, Jane Alsweiler, Simon S. Craig, Nigel W. Crawford, Dianne Crellin, Sonja Crone, Trevor Duke, Shane George, Anna Lithgow, Ken Peacock, Tomas Ratoni, Annie Smith, Rebecca Starkie, David Thomas, Alexandra Wallace, Michael Zhang, Meredith L. Borland, Stuart R. Dalziel, the Paediatric Research in Emergency Departments International Collaborative (PREDICT) Network
{"title":"Prioritising Recommendations for Conversion to Living Mode in the Australasian Bronchiolitis Guideline: A Modified Delphi Study","authors":"Kate Loveys, Franz E. Babl, Elizabeth Cotterell, Libby Haskell, Sharon O'Brien, Ed Oakley, Emma J. Tavender, Catherine L. Wilson, Jane Alsweiler, Simon S. Craig, Nigel W. Crawford, Dianne Crellin, Sonja Crone, Trevor Duke, Shane George, Anna Lithgow, Ken Peacock, Tomas Ratoni, Annie Smith, Rebecca Starkie, David Thomas, Alexandra Wallace, Michael Zhang, Meredith L. Borland, Stuart R. Dalziel, the Paediatric Research in Emergency Departments International Collaborative (PREDICT) Network","doi":"10.1002/gin2.70065","DOIUrl":"https://doi.org/10.1002/gin2.70065","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Australasian Bronchiolitis Guideline (ABG) provides evidence-based recommendations for managing one of the most frequent reasons for infant hospitalisation. As traditional guidelines age, they suffer from lack of relevance when new evidence is available but not incorporated. To address this limitation a guideline, or parts thereof, can be converted into a “living” mode, where new evidence is regularly incorporated into recommendations, enabling faster translation to practice. This study aimed to prioritise ABG recommendations for conversion to a living mode.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Members of the 2025 ABG Guideline Advisory Group and Guideline Development Committee were invited to participate in an online, modified Delphi study. Panellists ranked 38 recommendations as low, medium, or high priority for conversion to a living mode across two rounds. A consensus threshold of ≥ 75% agreement was used. Data collection ceased once consensus was reached on ≥ 4 recommendations for conversion.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-five of 29 (86%) experts responded in round one and 20/25 (80%) in round two. Panel diversity was maintained throughout voting rounds. At round one, consensus was reached to convert three recommendations to a living format and 11/38 recommendations were excluded. At round two, one additional recommendation was prioritised for conversion and 16/24 were excluded. Consensus was not reached on seven recommendations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Four key management recommendations will be converted to a living mode: high-flow therapy, combined glucocorticoid/adrenaline therapy, oxygen saturation targets, and chest X-ray in intensive care settings. These recommendations will be regularly updated as new evidence becomes available, supporting a more rapid translation to clinical practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70065","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147566033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kate Loveys, Franz E. Babl, Elizabeth Cotterell, Libby Haskell, Sharon O'Brien, Ed Oakley, Emma J. Tavender, Catherine L. Wilson, Jane Alsweiler, Simon S. Craig, Nigel W. Crawford, Dianne Crellin, Sonja Crone, Trevor Duke, Shane George, Anna Lithgow, Ken Peacock, Tomas Ratoni, Annie Smith, Rebecca Starkie, David Thomas, Alexandra Wallace, Michael Zhang, Meredith L. Borland, Stuart R. Dalziel, the Paediatric Research in Emergency Departments International Collaborative (PREDICT) Network
{"title":"Prioritising Recommendations for Conversion to Living Mode in the Australasian Bronchiolitis Guideline: A Modified Delphi Study","authors":"Kate Loveys, Franz E. Babl, Elizabeth Cotterell, Libby Haskell, Sharon O'Brien, Ed Oakley, Emma J. Tavender, Catherine L. Wilson, Jane Alsweiler, Simon S. Craig, Nigel W. Crawford, Dianne Crellin, Sonja Crone, Trevor Duke, Shane George, Anna Lithgow, Ken Peacock, Tomas Ratoni, Annie Smith, Rebecca Starkie, David Thomas, Alexandra Wallace, Michael Zhang, Meredith L. Borland, Stuart R. Dalziel, the Paediatric Research in Emergency Departments International Collaborative (PREDICT) Network","doi":"10.1002/gin2.70065","DOIUrl":"https://doi.org/10.1002/gin2.70065","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Australasian Bronchiolitis Guideline (ABG) provides evidence-based recommendations for managing one of the most frequent reasons for infant hospitalisation. As traditional guidelines age, they suffer from lack of relevance when new evidence is available but not incorporated. To address this limitation a guideline, or parts thereof, can be converted into a “living” mode, where new evidence is regularly incorporated into recommendations, enabling faster translation to practice. This study aimed to prioritise ABG recommendations for conversion to a living mode.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>Members of the 2025 ABG Guideline Advisory Group and Guideline Development Committee were invited to participate in an online, modified Delphi study. Panellists ranked 38 recommendations as low, medium, or high priority for conversion to a living mode across two rounds. A consensus threshold of ≥ 75% agreement was used. Data collection ceased once consensus was reached on ≥ 4 recommendations for conversion.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-five of 29 (86%) experts responded in round one and 20/25 (80%) in round two. Panel diversity was maintained throughout voting rounds. At round one, consensus was reached to convert three recommendations to a living format and 11/38 recommendations were excluded. At round two, one additional recommendation was prioritised for conversion and 16/24 were excluded. Consensus was not reached on seven recommendations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Four key management recommendations will be converted to a living mode: high-flow therapy, combined glucocorticoid/adrenaline therapy, oxygen saturation targets, and chest X-ray in intensive care settings. These recommendations will be regularly updated as new evidence becomes available, supporting a more rapid translation to clinical practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70065","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147566032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gwen Gillham, Graham Baker, Paul Kelly, Chloë Williamson
{"title":"What Do Adults Know and Think About the United Kingdom Physical Activity Guidelines, and How Should They be Communicated? A Qualitative Exploration","authors":"Gwen Gillham, Graham Baker, Paul Kelly, Chloë Williamson","doi":"10.1002/gin2.70066","DOIUrl":"https://doi.org/10.1002/gin2.70066","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Currently, there is limited insight into public understanding and opinion of physical activity guidelines (PAG) despite the acknowledged importance of communicating such health-related information. This study aimed to explore adults' understanding and opinions of current UK Chief Medical Officer's PAG (UKCMOPAG) in addition to messaging preferences to inform effective communication of future PAG.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Qualitative semi-structured one-to-one interviews were conducted with 17 adults (52% female, mean age 33.1 years) in Scotland, United Kingdom. The interview schedule included open-ended questions developed to explore understanding and opinion of guidelines, and preferences for communication using the physical activity messaging framework. Data were analysed using framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants were aware that PAG likely existed but could not accurately recall them. Once informed of the UKCMOPAG, they found them unappealing and unclear. They expressed uncertainty about the intended audience and questioned their relevance across different groups. Participants were, however, aware of some benefits of PA and had lived experience of short-term benefits (e.g., improved sleep and mood). As such, there was a preference for communicating UKCMOPAG through positive, relatable messages emphasising everyday benefits. Participants disliked threshold messages, suggesting continuum-based messages with a sliding scale of PA volume/intensity and associated benefits. Lastly, participants indicated that messages should be delivered by trustworthy sources, identified as the National Health Service (NHS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study is the first qualitative exploration of how the general adult population in Scotland interpret the UKCMOPAG. Findings show that current communication strategies are not aligned to public understanding and opinions of PAG, indicating a need to change communication approaches. Future updates should separate technical guidance from public-facing messages, use relatable language, inclusive examples and ensure delivery by trusted sources. Continuum- and gain-framed messaging highlighting short-term PA benefits may also improve engagement. Further research is needed to evaluate the effectiveness of such audience-centred messages.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70066","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147565295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gwen Gillham, Graham Baker, Paul Kelly, Chloë Williamson
{"title":"What Do Adults Know and Think About the United Kingdom Physical Activity Guidelines, and How Should They be Communicated? A Qualitative Exploration","authors":"Gwen Gillham, Graham Baker, Paul Kelly, Chloë Williamson","doi":"10.1002/gin2.70066","DOIUrl":"https://doi.org/10.1002/gin2.70066","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Currently, there is limited insight into public understanding and opinion of physical activity guidelines (PAG) despite the acknowledged importance of communicating such health-related information. This study aimed to explore adults' understanding and opinions of current UK Chief Medical Officer's PAG (UKCMOPAG) in addition to messaging preferences to inform effective communication of future PAG.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Qualitative semi-structured one-to-one interviews were conducted with 17 adults (52% female, mean age 33.1 years) in Scotland, United Kingdom. The interview schedule included open-ended questions developed to explore understanding and opinion of guidelines, and preferences for communication using the physical activity messaging framework. Data were analysed using framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Participants were aware that PAG likely existed but could not accurately recall them. Once informed of the UKCMOPAG, they found them unappealing and unclear. They expressed uncertainty about the intended audience and questioned their relevance across different groups. Participants were, however, aware of some benefits of PA and had lived experience of short-term benefits (e.g., improved sleep and mood). As such, there was a preference for communicating UKCMOPAG through positive, relatable messages emphasising everyday benefits. Participants disliked threshold messages, suggesting continuum-based messages with a sliding scale of PA volume/intensity and associated benefits. Lastly, participants indicated that messages should be delivered by trustworthy sources, identified as the National Health Service (NHS).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study is the first qualitative exploration of how the general adult population in Scotland interpret the UKCMOPAG. Findings show that current communication strategies are not aligned to public understanding and opinions of PAG, indicating a need to change communication approaches. Future updates should separate technical guidance from public-facing messages, use relatable language, inclusive examples and ensure delivery by trusted sources. Continuum- and gain-framed messaging highlighting short-term PA benefits may also improve engagement. Further research is needed to evaluate the effectiveness of such audience-centred messages.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70066","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147565279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Making Sense of the Noise: The e-Chronic Pain Recommendation Map Initiative as a Pathway to Clarity, Trust, and Equity in Chronic Pain Management","authors":"Chronic Pain RecMap Collaborative","doi":"10.1002/gin2.70064","DOIUrl":"https://doi.org/10.1002/gin2.70064","url":null,"abstract":"<p>Chronic pain, which persists for 3 months or longer, represents a major public health challenge, affecting roughly one in five people globally and resulting in a profound societal and economic toll [<span>1</span>].</p><p>Despite growing recognition of this condition, effective pain management remains complex and problematic, and access to care is inequitable. Older people, low-income and unstably housed individuals, those with mental health or substance use challenges, Indigenous and racialized communities, veterans, trades workers, survivors of violence, persons with disabilities, gender diverse people, and women bear disproportionate burdens of chronic pain, and often receive less equitable care [<span>1</span>]. Thus, the approach to chronic pain management is a matter of equity and social justice.</p><p>To address the abundance of guidelines of variable quality that often present contradictory guidance for management of chronic pain, our international collaborative, comprising 29 organizations and over 90 individuals, is developing the e-Chronic Pain Recommendation Map (RecMap) [<span>2</span>]. This open-access digital platform is designed to consolidate, appraise, and visually compare national and international guideline recommendations along with identifying research gaps and priorities [<span>2</span>]. The key aim of the RecMap is to provide easy access to trustworthy recommendations for the management of chronic pain and their underlying evidence and contextual factors. Our initial focus aligns with the three high-priority areas identified by the Canadian Pain Task Force, including opioids, cannabis for medical purposes, and spine-related interventional procedures for chronic pain [<span>2, 5</span>], with the ultimate aim of expanding to other management options.</p><p>The RecMap follows a structured and multi-stage process, co-designed with diverse interest-holders, including people living with chronic pain [<span>2</span>]. This participatory approach aims to ensure the RecMap will be usable, relevant, and responsive to the needs of those it is meant to serve. Equity considerations are embedded throughout the process. The RecMap is designed to enable users to identify and filter equity-sensitive recommendations using PROGRESS-Plus characteristics, flag equity-deserving populations and evidence gaps, and incorporate a structured equity appraisal of included guidelines using a tool under development that will also inform the AGREE III update. This appraisal will support transparent assessment of how equity is integrated across guideline development, including the applicability of final recommendations to diverse populations and contexts [<span>2</span>].</p><p>We have designed the e-Chronic Pain RecMap as a meta-guideline resource; a navigational aid that will integrate the methodological rigour of systematic appraisal with the accessibility of modern digital tools. Our platform will extend the concept of evidence mapping to the re","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70064","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147563094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Making Sense of the Noise: The e-Chronic Pain Recommendation Map Initiative as a Pathway to Clarity, Trust, and Equity in Chronic Pain Management","authors":"Chronic Pain RecMap Collaborative","doi":"10.1002/gin2.70064","DOIUrl":"https://doi.org/10.1002/gin2.70064","url":null,"abstract":"<p>Chronic pain, which persists for 3 months or longer, represents a major public health challenge, affecting roughly one in five people globally and resulting in a profound societal and economic toll [<span>1</span>].</p><p>Despite growing recognition of this condition, effective pain management remains complex and problematic, and access to care is inequitable. Older people, low-income and unstably housed individuals, those with mental health or substance use challenges, Indigenous and racialized communities, veterans, trades workers, survivors of violence, persons with disabilities, gender diverse people, and women bear disproportionate burdens of chronic pain, and often receive less equitable care [<span>1</span>]. Thus, the approach to chronic pain management is a matter of equity and social justice.</p><p>To address the abundance of guidelines of variable quality that often present contradictory guidance for management of chronic pain, our international collaborative, comprising 29 organizations and over 90 individuals, is developing the e-Chronic Pain Recommendation Map (RecMap) [<span>2</span>]. This open-access digital platform is designed to consolidate, appraise, and visually compare national and international guideline recommendations along with identifying research gaps and priorities [<span>2</span>]. The key aim of the RecMap is to provide easy access to trustworthy recommendations for the management of chronic pain and their underlying evidence and contextual factors. Our initial focus aligns with the three high-priority areas identified by the Canadian Pain Task Force, including opioids, cannabis for medical purposes, and spine-related interventional procedures for chronic pain [<span>2, 5</span>], with the ultimate aim of expanding to other management options.</p><p>The RecMap follows a structured and multi-stage process, co-designed with diverse interest-holders, including people living with chronic pain [<span>2</span>]. This participatory approach aims to ensure the RecMap will be usable, relevant, and responsive to the needs of those it is meant to serve. Equity considerations are embedded throughout the process. The RecMap is designed to enable users to identify and filter equity-sensitive recommendations using PROGRESS-Plus characteristics, flag equity-deserving populations and evidence gaps, and incorporate a structured equity appraisal of included guidelines using a tool under development that will also inform the AGREE III update. This appraisal will support transparent assessment of how equity is integrated across guideline development, including the applicability of final recommendations to diverse populations and contexts [<span>2</span>].</p><p>We have designed the e-Chronic Pain RecMap as a meta-guideline resource; a navigational aid that will integrate the methodological rigour of systematic appraisal with the accessibility of modern digital tools. Our platform will extend the concept of evidence mapping to the re","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70064","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147563117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth Ann Bryant, Rae Thomas, Sharon Lea Sanders
{"title":"Patient and Public Involvement Reporting Consistency: Analysis of 24 Clinical Practice Guidelines From 4 Countries","authors":"Elizabeth Ann Bryant, Rae Thomas, Sharon Lea Sanders","doi":"10.1002/gin2.70061","DOIUrl":"10.1002/gin2.70061","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>We compared the reporting of patient and public involvement (PPI) in the development of clinical practice guidelines (CPG) with the guidance regarding PPI in the auspicing organisation's guideline development manual.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We examined the PPI guidance provided by seven guideline auspicing organisations from four countries, that provided guideline development manuals referencing PPI inclusion in guideline development. We determined whether the auspicing organisations provided guidance on four aspects of PPI critical to understanding the process; (i) which patients and public (PPs) to involve, (ii) how to recruit PPs, (iii) where in the process to involve PPs, and (iv) how PPs should contribute to guideline development. We assessed a random selection of 24 CPGs affiliated with these organisations for consistency of reporting of PPI with the guidance provided.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Half (50%) of the auspicing organisations' guideline development manuals provided guidance on all four aspects of PPI. Five of the 24 CPGs (21%) affiliated with auspicing organisations that made reference to PPI in guideline development did not report PPI in their development. Although 79% (19/24) of guidelines did report PPI in their development, only half (10/19) reported PPI that was consistent with the auspicing organisations guidance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Auspicing organisations often do not provide guidance to guideline developers on critical aspects of PPI. Even when auspicing organisations do provide guidance, CPG developers may not report PPI, and/or not report PPI consistent with that guidance. It is unknown whether this is because PPI was not conducted, or because it was conducted, but not reported, or was reported incompletely.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Auspicing organisations need to improve guidance on PPI in guideline development, and CPG developers need to report PPI more diligently when it is done. Understanding guideline developers' motivations for PPI implementation and/or reporting is critical to facilitate improvement in this area.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70061","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146139275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth Ann Bryant, Rae Thomas, Sharon Lea Sanders
{"title":"Patient and Public Involvement Reporting Consistency: Analysis of 24 Clinical Practice Guidelines From 4 Countries","authors":"Elizabeth Ann Bryant, Rae Thomas, Sharon Lea Sanders","doi":"10.1002/gin2.70061","DOIUrl":"https://doi.org/10.1002/gin2.70061","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>We compared the reporting of patient and public involvement (PPI) in the development of clinical practice guidelines (CPG) with the guidance regarding PPI in the auspicing organisation's guideline development manual.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We examined the PPI guidance provided by seven guideline auspicing organisations from four countries, that provided guideline development manuals referencing PPI inclusion in guideline development. We determined whether the auspicing organisations provided guidance on four aspects of PPI critical to understanding the process; (i) which patients and public (PPs) to involve, (ii) how to recruit PPs, (iii) where in the process to involve PPs, and (iv) how PPs should contribute to guideline development. We assessed a random selection of 24 CPGs affiliated with these organisations for consistency of reporting of PPI with the guidance provided.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Half (50%) of the auspicing organisations' guideline development manuals provided guidance on all four aspects of PPI. Five of the 24 CPGs (21%) affiliated with auspicing organisations that made reference to PPI in guideline development did not report PPI in their development. Although 79% (19/24) of guidelines did report PPI in their development, only half (10/19) reported PPI that was consistent with the auspicing organisations guidance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Auspicing organisations often do not provide guidance to guideline developers on critical aspects of PPI. Even when auspicing organisations do provide guidance, CPG developers may not report PPI, and/or not report PPI consistent with that guidance. It is unknown whether this is because PPI was not conducted, or because it was conducted, but not reported, or was reported incompletely.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Auspicing organisations need to improve guidance on PPI in guideline development, and CPG developers need to report PPI more diligently when it is done. Understanding guideline developers' motivations for PPI implementation and/or reporting is critical to facilitate improvement in this area.</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70061","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146139276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mapping Evidence on Care Interventions for People Living With Motor Neurone Disease: A Protocol for a Living Evidence and Gap Map","authors":"Danielle Pollock, Cindy Stern, Melissa Bond, Timothy Hugh Barker, Sabira Hasanoff, Grace Holland, Ines Semendric, Anna Fragkoudi, Nipun Shrestha, Sebastian Cole Facchin-Young, Abigail Molly Day-Sharman, Lemma Negesa Bulto, Lara Stollery, Sitasma Sharma, Camille Schubert, Lynne Giles, Jay Beasley-Hall, Tracy Merlin, Julie Labra, Steve Vucic, Taryn Hunt, Zachary Munn","doi":"10.1002/gin2.70062","DOIUrl":"10.1002/gin2.70062","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>To map the available evidence informing the care and management of people living with motor neurone disease (MND), including evidence pertaining to carers, asymptomatic genetic carriers, family, friends and healthcare professionals caring for people with MND.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>MND is a devasting neurodegenerative disease that has no cure and eventually leads to paralysis, progressive speech difficulties and respiratory failure. There are a plethora of interventions to support people living with MND, however, information regarding these interventions is often not organised in a manner that best supports the MND community. An evidence and gap map will provide a visual presentation that highlights the existing evidence that is available to support specific interventions, and indicate where there is no evidence. This will help inform future guideline and research efforts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Inclusion Criteria</h3>\u0000 \u0000 <p>Studies if they describe care interventions for people living with MND, carers, asymptomatic genetic carriers, family, friends and healthcare professionals caring for people with MND. Peer-reviewed randomised controlled trials, and nonrandomised studies of interventions, systematic reviews and qualitative studies describing the experience of an intervention will be included.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>An evidence and gap map will be conducted according to Campbell guidance and JBI guidance for scoping reviews. A comprehensive search of academic databases and clinical trial registries will be performed to identify eligible studies. An evidence inclusion framework has been developed with members of the MND community. Data screening and extraction will be independently performed by two reviewers. The evidence and gap map will be presented using EPPI Reviewer.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Review Registration</h3>\u0000 \u0000 <p>This protocol has been uploaded to the Australian Motor Neurone Disease (MND) Guideline Open Science Framework page (https://osf.io/c2ezm/).</p>\u0000 </section>\u0000 </div>","PeriodicalId":100266,"journal":{"name":"Clinical and Public Health Guidelines","volume":"3 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/gin2.70062","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146135864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}