CJC Pediatric and Congenital Heart Disease最新文献

{"title":"Exploring Caregiver Learning and Experiences Caring for a Child With Heart Failure: A Qualitative Study","authors":"","doi":"10.1016/j.cjcpc.2024.05.003","DOIUrl":"10.1016/j.cjcpc.2024.05.003","url":null,"abstract":"<div><h3>Background</h3><p>Paediatric heart failure poses life-long, burdensome symptoms for the health care system and families. Diagnosis and discharge are stressful and anxiety-provoking for caregivers. They face uncertainty about their child’s health and become responsible for administering complex care in the home. Little is known about this topic. Our study aimed to explore caregiver learning and experiences caring for a child with heart failure to design and implement a knowledge translation tool.</p></div><div><h3>Methods</h3><p>Qualitative description guided our study. Recruitment occurred in a tertiary cardiac centre in Edmonton, Alberta, Canada. Data collection and analysis occurred concurrently until data redundancy was achieved. Inductive conventional content analysis was used to develop categories.</p></div><div><h3>Results</h3><p>Eleven interviews identified 2 main categories. One relates to how traumatic life experiences impact learning (eg, new diverse ways of learning, stress steepens the learning curve, and learning heart failure takes time). The other relates to families’ new life reality after diagnosis (eg, emotional distress and the new reality).</p></div><div><h3>Conclusions</h3><p>This study provides insight into caregivers’ learning needs and experiences caring for a child with heart failure. Caregivers describe how the trauma of having their child diagnosed with heart failure negatively impacts their learning capabilities and way of life going forward. Caregiver learning experiences and preferences for digital platforms is also highlighted. This knowledge will inform the design of an online educational tool about pediatric heart failure for caregiver audiences. This tool will empower and improve caregiver decision-making related to their child’s daily heart failure management, with the goal to positively impact clincal outcomes, lessen stress and anxiety.</p></div>","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000411/pdfft?md5=c311883fbc040a703d8ed6067c12c6db&pid=1-s2.0-S2772812924000411-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Information for Readers","authors":"","doi":"10.1016/S2772-8129(24)00063-0","DOIUrl":"10.1016/S2772-8129(24)00063-0","url":null,"abstract":"","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000630/pdfft?md5=95fddde1884f1af6007c9a6da2d5e5ab&pid=1-s2.0-S2772812924000630-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Severe Inflammatory Heart Disease in Children With Lupus: A Case Series","authors":"","doi":"10.1016/j.cjcpc.2024.05.005","DOIUrl":"10.1016/j.cjcpc.2024.05.005","url":null,"abstract":"","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000435/pdfft?md5=e290183279c1422b7675774cabe923da&pid=1-s2.0-S2772812924000435-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nonfatal Isolated Cardiac Nonlysosomal Glycogenosis: A Rare Cause of Infantile Hypertrophic Cardiomyopathy","authors":"","doi":"10.1016/j.cjcpc.2024.02.003","DOIUrl":"10.1016/j.cjcpc.2024.02.003","url":null,"abstract":"","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000216/pdfft?md5=5f1bae0ed43d51d94298cf92d583604a&pid=1-s2.0-S2772812924000216-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140464814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Strategies to Overcome Barriers to Physical Activity Participation in Children and Adults Living With Congenital Heart Disease: A Narrative Review","authors":"","doi":"10.1016/j.cjcpc.2024.05.002","DOIUrl":"10.1016/j.cjcpc.2024.05.002","url":null,"abstract":"<div><p>Physical activity participation is critical for optimal physical, psychological, and cognitive health in children and adults living with congenital heart disease (CHD). Majority of the general population are not sufficiently active, and with the added psychological, physical, and socioeconomic barriers faced by individuals with CHD, it is unsurprising that many people living with CHD do not meet the recommendations for physical activity either. The aim of this review is to outline lifelong physical activity barriers faced by individuals living with CHD and provide age-appropriate strategies that can be used to ensure the development of long-term positive physical activity behaviours. Barriers to physical activity include safety fears, lack of encouragement, low exercise self-efficacy, body image concerns, limited education, socioeconomic status, reduced access to resources, and cardiac diagnosis and severity. These barriers are multifaceted and often begin in early childhood and continue to develop well into adulthood. Therefore, it is important for children to participate in physical activity from early stages of life as it has been shown to improve cardiorespiratory fitness, muscular endurance, and quality of life. Current literature demonstrates that participation in physical activity and higher intensity exercise after appropriate screening is safe and should be encouraged rather than dissuaded in people born with a congenital heart condition.</p></div>","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S277281292400040X/pdfft?md5=94843d6f1f675657d4193d810858b3af&pid=1-s2.0-S277281292400040X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141049076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effective Management of Cor Triatriatum Dexter Using Double Balloon Dilatation in a Paediatric Age Group Case-Report Study","authors":"","doi":"10.1016/j.cjcpc.2024.06.001","DOIUrl":"10.1016/j.cjcpc.2024.06.001","url":null,"abstract":"","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000599/pdfft?md5=88b5260e75db582a0b79fa1d2314089e&pid=1-s2.0-S2772812924000599-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141402863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Radiation Reduction in Paediatric Cardiac Catheterization: We Can Go Even Lower","authors":"","doi":"10.1016/j.cjcpc.2024.05.004","DOIUrl":"10.1016/j.cjcpc.2024.05.004","url":null,"abstract":"<div><h3>Background</h3><p>Radiation reduction is an integral component in the management of a paediatric cardiac catheterization laboratory. Simple and easily implementable protocol changes and technical upgrades have been shown to significantly reduce radiation exposure.</p></div><div><h3>Methods</h3><p>Radiation exposures (2020-2022) at Safra Children’s Hospital, Sheba Medical Center, Israel (unit A: n = 672) were retrospectively reviewed, including dose area product (DAP) (μGy m²), DAP/kg, Air Kerma (mGy), and fluoroscopy time (minutes) for 16 procedural types. Median doses were compared with those measured (2011-2014) at the Hospital for Sick Children, Toronto, Canada (unit B: n = 2033). Radiation reduction techniques included fluoroscopy acquisition at 7.5 frames/s, removal of antiscatter grids for children &lt;30 kg, limiting field of view, use of Philips ClarityIQ technology, and an institutional culture of radiation mindedness.</p></div><div><h3>Results</h3><p>Exposure was significantly lower in unit A in 14 of 16 procedure types. Total median doses were lower in unit A (DAP: 91.4 [44.7-205.4] vs 387 [138.2-1339] μGy m² [<em>P</em> &lt; 0.001], DAP/kg: 9.33 [4.3-16.4] vs 29.22 [12.8-65.9] μGy m²/kg [<em>P</em> &lt; 0.001], and Air Kerma: 14.9 [7.8-29] vs 61 [23-176.4] mGy [<em>P</em> &lt; 0.001]) despite higher fluoroscopy time (14.1 [4.2-24.6] vs 12.3 [6.8-23.3] minutes [<em>P</em> = 0.03]). DAP was lower for specific procedures including pulmonary valvuloplasty (46.3 [14.3-219.3] vs 127 [60-323] μGy m² [<em>P</em> &lt; 0.001]) and patent ductus arteriosus closure (51.9 [18.8-111.8] vs 178 [96-410] μGy m² [<em>P</em> &lt; 0.001]).</p></div><div><h3>Conclusions</h3><p>Enhanced radiation reduction techniques can lead to lower than previously published exposure levels across a wide range of procedure types when employing dose-limiting protocols and radiation reduction technology.</p></div>","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000423/pdfft?md5=f403cdb9a3b0d4b0ed13b335a2620191&pid=1-s2.0-S2772812924000423-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Behaviour Concerns in Preschool Cardiac Surgery Survivors","authors":"","doi":"10.1016/j.cjcpc.2024.04.001","DOIUrl":"10.1016/j.cjcpc.2024.04.001","url":null,"abstract":"<div><h3>Background</h3><p>Behaviour concerns (BC) are reported in survivors of complex cardiac surgery (CCSx) with inconsistent evidence about health and demographic variables that impact outcomes.</p></div><div><h3>Methods</h3><p>A prospective inception-cohort study of infants (without known chromosomal abnormalities) after CCSx from 2001 to 2017 determined Behaviour Assessment System for Children (BASC-II/III) parent rating scales at 4.5 years. <em>T</em> scores ≥60 for externalizing, internalizing, and the Behavioural Symptoms Index and ≤40 for adaptive behaviour defined BC. Potential predictive variables included demographic, acute care, and health factors after initial CCSx. Multiple logistic regression using the purposeful selection method gave odds ratios (ORs) with 95% confidence intervals (CIs).</p></div><div><h3>Results</h3><p>Survivors (n = 585; 61% boys, 40% single ventricle) were assessed at a median age of 55 months (interquartile range: 53, 57 months). Independent predictors were noncardiac hospitalizations (OR: 1.10, 95% CI: 1.02, 1.19; <em>P</em> = 0.015) for externalizing; noncardiac hospitalizations (OR: 1.14, 95% CI: 1.05, 1.24; <em>P</em> = 0.003), female sex (OR: 1.62, 95% CI: 1.04, 2.52; <em>P</em> = 0.031), and single ventricle (OR: 1.82, 95% CI: 1.04, 3.17; <em>P</em> = 0.035) for internalizing; noncardiac hospitalizations (OR: 1.10, 95% CI: 1.02, 1.19; <em>P</em> = 0.017), socioeconomic status (SES) (OR: 0.98, 95% CI: 0.96, 0.10; <em>P</em> = 0.031), and years of maternal schooling (OR: 0.91, 95% CI: 0.84, 0.10; <em>P</em> = 0.04) for adaptive; and extracorporeal life-saving support (OR: 2.03, 95% CI: 1.01, 3.96; <em>P</em> = 0.041) for the Behavioural Symptoms Index, indicating more pervasive behaviours.</p></div><div><h3>Conclusions</h3><p>The number of noncardiac hospitalizations predicted increased odds of BC and requires further attention. Improving inpatient trauma-informed care experiences and optimizing access to primary care to prevent noncardiac hospitalization may be modifiable.</p></div>","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772812924000381/pdfft?md5=0b3e1115d1c09283c8fecaa3dfd03aa8&pid=1-s2.0-S2772812924000381-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing Cardiovascular Health in Pediatric Hypertrophic Cardiomyopathy using the CANHEART Health Index","authors":"Victoria Srbely, A. Jeewa, T. Pidborochynski, S. Lemaire-Paquette, Michael Khoury, Chentel Cunningham, Santokh Dhillon, N. Laroussi, L. Vaujois, Frédéric Dallaire, D. Schantz, K. Armstrong, W. Mawad, Timothy J Bradley, Jennifer Conway","doi":"10.1016/j.cjcpc.2024.06.002","DOIUrl":"https://doi.org/10.1016/j.cjcpc.2024.06.002","url":null,"abstract":"","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141694107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Childhood Maltreatment and Body Mass Index in Older Adults With Chronic Illness","authors":"Vicki St-Arnaud MSc ,&nbsp;Ann Xiuli Chicoine BSc ,&nbsp;Jean-Claude Tardif MD ,&nbsp;David Busseuil PhD ,&nbsp;Bianca D’Antono PhD","doi":"10.1016/j.cjcpc.2024.03.002","DOIUrl":"10.1016/j.cjcpc.2024.03.002","url":null,"abstract":"<div><h3>Background</h3><p>Childhood trauma has been associated with greater psychological and physical morbidity, including a greater risk of developing coronary artery disease (CAD). Emotional dysregulation and increased body mass index (BMI) may be involved. This study evaluated whether (1) childhood maltreatment is associated with a higher BMI at study onset and with greater increases in BMI 5 years later among older adults with CAD or other chronic illnesses; (2) sex and/or CAD status moderate these results; and (3) baseline symptoms of anxiety, depression, and perceived stress (emotional dysregulation) mediate the association between childhood maltreatment and BMI at follow-up.</p></div><div><h3>Methods</h3><p>A total of 1232 men and women (aged 60.86 [6.95] years) completed validated questionnaires on childhood maltreatment and symptoms of psychological distress. The weight and height of the participant were measured, and the BMI was calculated using the weight (kg)/height (m²) ratio.</p></div><div><h3>Results</h3><p>Childhood maltreatment was not significantly associated with BMI at study onset nor at follow-up. This relation did not differ as a function of sex nor CAD status. Although childhood maltreatment was associated with significantly greater psychological distress at study onset (all <em>P</em> &lt; 0.001), there latter was not found to mediate the relation between maltreatment and change in BMI at follow-up.</p></div><div><h3>Conclusions</h3><p>In contrast to previous literature, childhood maltreatment was not associated with BMI nor with the change in BMI over 5 years in men and women with chronic disease. However, as psychological distress increases risk for morbidity and mortality, it may represent an important target for prevention and intervention in survivors of childhood maltreatment.</p></div>","PeriodicalId":100249,"journal":{"name":"CJC Pediatric and Congenital Heart Disease","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S277281292400037X/pdfft?md5=8641f5ea353fcb65d3615aaa40356b5a&pid=1-s2.0-S277281292400037X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140781559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}