Down's syndrome, research and practice : the journal of the Sarah Duffen Centre最新文献_第3页

Singing Hands Book of Songs and Song Time CD, Volumes 1 & 2 歌曲和歌曲时间CD，第一卷和第二卷

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-20 DOI: 10.3104/RESOURCES.2082

J. Hughes

引用次数: 0

Teaching spontaneous responses to a young child with Down syndrome. 教唐氏综合症儿童的自发反应。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/case-studies.2007

Kathleen Feeley, Emily Jones

引用次数: 18

The power of behavioural approaches - we need a revival. 行为方法的力量——我们需要复兴。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/updates/2038

Sue Buckley

引用次数: 10

Medical conditions and medication use in adults with Down syndrome: a descriptive analysis. 成人唐氏综合症患者的医疗条件和药物使用:一项描述性分析

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/reports.2009

Gerard Kerins, Kimberly Petrovic, Mary Beth Bruder, Cynthia Gruman

引用次数: 72

Handling the transfer to secondary school. 办理转到中学的手续。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/practice.2016

Elaine Bull

引用次数: 0

Strategies to address challenging behaviour in young children with Down syndrome. 应对唐氏综合症幼儿具有挑战性行为的策略。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/case-studies.2008

Kathleen Feeley, Emily Jones

引用次数: 30

Motherhood and genetic screening: a personal perspective. 母性和基因筛选:个人观点。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/essays.2013

Fiona Place

{"title":"Motherhood and genetic screening: a personal perspective.","authors":"Fiona Place","doi":"10.3104/essays.2013","DOIUrl":"https://doi.org/10.3104/essays.2013","url":null,"abstract":"According to the medical profession the direction and scope of reproductive services such as IVF and pre-natal screening are based on solid evidence; the evidence indicates these are effective and safe services. Moreover, women want them. As a consequence these services are usually presented to the wider community in a positive light with images of 'successful' birth outcomes showcasing the importance of their work. Unsurprisingly this has lead to women being expected to take control - from timing a pregnancy to choosing one particular pregnancy over another - they are to improve their lives and the health of their offspring. But are these developments all 'good' news? Is it safe to assume the push to achieve better birth outcomes and the concomitant use of prenatal testing automatically improves lives? Could it be the issues raised are causing some lives to become harder? How meaningful, for example, are tests such as amniocentesis and CVS? As the mother of a child with Down syndrome I believe it is important for myself and other women in similar situations to share their lived experience. Perhaps we can illuminate some of the more complex and troubling issues these technological advances have the capacity to create - not only for ourselves - but for all women.","PeriodicalId":80275,"journal":{"name":"Down's syndrome, research and practice : the journal of the Sarah Duffen Centre","volume":"12 2","pages":"118-26"},"PeriodicalIF":0.0,"publicationDate":"2008-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"27853467","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Special at school but lonely at home: an alternative friendship group for adolescents with Down syndrome. 在学校很特别，但在家里很孤独:一个为患有唐氏综合症的青少年提供的另类友谊团体。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/practice.2012

Jeanne D'Haem

{"title":"Special at school but lonely at home: an alternative friendship group for adolescents with Down syndrome.","authors":"Jeanne D'Haem","doi":"10.3104/practice.2012","DOIUrl":"https://doi.org/10.3104/practice.2012","url":null,"abstract":"Friends play a significant role in mental and physical health; however, individuals with Down syndrome and other developmental disabilities, even those who are included in general education programmes, have not developed friendships as hoped. After a decade of inclusion and structured school programmes to facilitate friendships, many parents report that peer relationships end after school hours. This study compared the efficacy of school based friendship groups with a mixed age home based group. Specific methods to establish a successful friendship group are discussed. This study followed three friendship groups for five years. Two groups of six to eight general education students met with the target student twice a month during the school day; one group of mixed age participants met in the student's home. A counsellor facilitated all the groups. Parent and student concerns regarding friendships were informally assessed with interviews and observations. Observations and interviews confirmed that although peer interactions during school occurred they did not continue after school. Of the three students studied, only one had a relationship with a same-aged peer after four years of school facilitated groups. Two students had significant feelings of depression during high school. One student entered counselling. The home-based mixed age friendship group did result in significant friendships. The individual participated in two or three activities each month with friends from the group. School based friendship groups of adolescent peers were not successful in developing friendships for individuals with Down syndrome. When a multi-age group was conducted outside of the school, friendships formed and have continued for over two years. This article describes how and why parents and professionals should look beyond school based same age peer friendship groups and consider a community circle of mixed-age friends.","PeriodicalId":80275,"journal":{"name":"Down's syndrome, research and practice : the journal of the Sarah Duffen Centre","volume":"12 2","pages":"107-11"},"PeriodicalIF":0.0,"publicationDate":"2008-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"27853465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 24

Medical issues among children and teenagers with Down syndrome in Hong Kong. 香港唐氏综合症儿童及青少年的医疗问题

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/reports.2005

Winnie Ka-Ling Yam, Philomena Wan Ting Tse, Chak Man Yu, Chun Bong Chow, Wai Man But, Kit Yu Li, Lai Ping Lee, Eva Lai Wah Fung, Pauline Pui Yee Mak, Joseph Tak Fai Lau

{"title":"Medical issues among children and teenagers with Down syndrome in Hong Kong.","authors":"Winnie Ka-Ling Yam, Philomena Wan Ting Tse, Chak Man Yu, Chun Bong Chow, Wai Man But, Kit Yu Li, Lai Ping Lee, Eva Lai Wah Fung, Pauline Pui Yee Mak, Joseph Tak Fai Lau","doi":"10.3104/reports.2005","DOIUrl":"https://doi.org/10.3104/reports.2005","url":null,"abstract":"Unlabelled: We examined the prevalence of medical problems in children and teenagers with Down syndrome in Hong Kong.Methods: Children with Down syndrome receiving care from seven regional hospitals were included and their hospital records were reviewed. A total of 407 patients, aged between 0.06 and 17.16 years were included. Cardiovascular problems were observed in 216 (53%), endocrine problems in 111 (27%), gastrointestinal problems in 46 (11%), haematological problems in 18 (4%), neurological problems in 27 (7%), sleep problems in 36 (9%), skeletal problems in 56 (14%), visual problems in 195 (48%) and auditory problems in 137 (34%).Conclusions: The prevalence of medical problems was high in children and teenagers with Down syndrome in Hong Kong and similar to previous findings elsewhere. Future studies on the local prevalence of medical problems in the adult population with Down syndrome would help to define their medical needs.","PeriodicalId":80275,"journal":{"name":"Down's syndrome, research and practice : the journal of the Sarah Duffen Centre","volume":"12 2","pages":"138-40"},"PeriodicalIF":0.0,"publicationDate":"2008-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"27853469","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 34

Madrid conference on women with disabilities. 马德里残疾妇女问题会议。

Down's syndrome, research and practice : the journal of the Sarah Duffen Centre Pub Date : 2008-10-01 DOI: 10.3104/news.2064

Cora Halder

引用次数: 0