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Erratum. 勘误表。
IRB Pub Date : 2016-09-01
{"title":"Erratum.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36429335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent and Child Perceptions of the Benefits of Research Participation. 父母和孩子对参与研究的好处的看法。
IRB Pub Date : 2016-07-01
Victoria A Miller, Chris Feudtner
{"title":"Parent and Child Perceptions of the Benefits of Research Participation.","authors":"Victoria A Miller,&nbsp;Chris Feudtner","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The primary objective of this study was to describe parents' and children's perceptions of the health benefits of research participation. We assessed 180 children ages 8 to 17 years who recently enrolled in medical research and their parents. Of the 136 parents with children on observational protocols, 41% indicated that there would be a health benefit to the child. Their descriptions of benefits revealed that many envisioned a future health benefit to the child arising from improvements in treatment due to the research. There was no difference in ratings of likelihood or importance of benefit between parents of children enrolled in observational protocols versus interventional protocols. Children enrolled in observational protocols were more likely to respond \"don't know\" to the question about potential health benefit compared to children on interventional protocols. For both observational and interventional protocols, the informed consent process may be enhanced when research personnel explicitly differentiate between different types of potential benefits, including heretofore-unrecognized future direct health benefits.</p>","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5790123/pdf/nihms935663.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35830134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers to Change in the Informed Consent Process: A Systematic Literature Review. 知情同意过程中改变的障碍:系统文献综述。
IRB Pub Date : 2016-05-01
Zachary P Hallinan, Annemarie Forrest, Gina Uhlenbrauck, Sheila Young, Ross McKinney
{"title":"Barriers to Change in the Informed Consent Process: A Systematic Literature Review.","authors":"Zachary P Hallinan,&nbsp;Annemarie Forrest,&nbsp;Gina Uhlenbrauck,&nbsp;Sheila Young,&nbsp;Ross McKinney","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34641848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations. 社区参与研究伦理审查:探索联邦法规的灵活性。
IRB Pub Date : 2016-05-01
Stephanie Solomon Cargill, Debra DeBruin, Milton Eder, Elizabeth Heitman, Julie M Kaberry, Jennifer B McCormick, Jennifer Opp, Richard Sharp, A Hal Strelnick, Sabune J Winkler, Mark Yarborough, Emily E Anderson
{"title":"Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations.","authors":"Stephanie Solomon Cargill,&nbsp;Debra DeBruin,&nbsp;Milton Eder,&nbsp;Elizabeth Heitman,&nbsp;Julie M Kaberry,&nbsp;Jennifer B McCormick,&nbsp;Jennifer Opp,&nbsp;Richard Sharp,&nbsp;A Hal Strelnick,&nbsp;Sabune J Winkler,&nbsp;Mark Yarborough,&nbsp;Emily E Anderson","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4997782/pdf/nihms810138.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34642317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Optimistic Bias and Illusions of Control in Clinical Research. 临床研究中的乐观偏见与控制幻觉。
IRB Pub Date : 2016-03-01
Lynn A Jansen
{"title":"The Optimistic Bias and Illusions of Control in Clinical Research.","authors":"Lynn A Jansen","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34388082","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Who's Willing? Characteristics Associated with Willingness to Participate in Clinical Research. 谁愿意?愿意参与临床研究的相关特征。
IRB Pub Date : 2016-03-01
Jennifer K Walter, Matthew M Davis
{"title":"Who's Willing? Characteristics Associated with Willingness to Participate in Clinical Research.","authors":"Jennifer K Walter,&nbsp;Matthew M Davis","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34388085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Genomic Research with Organs and Tissues Originating from Transplant Donors: Ethical Considerations for the GTEx Project. 来自移植捐赠者的器官和组织的基因组研究：GTEx项目的伦理考虑。
IRB Pub Date : 2016-03-01
Nicole C Lockhart, Anna M Smith, Latarsha J Carithers, Carol J Weil
{"title":"Genomic Research with Organs and Tissues Originating from Transplant Donors: Ethical Considerations for the GTEx Project.","authors":"Nicole C Lockhart, Anna M Smith, Latarsha J Carithers, Carol J Weil","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2016-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6753524/pdf/nihms-1049546.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41222285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What Should Be the Character of the Researcher- Participant Relationship? Views of Participants in a Long-standing Cancer Genetic Registry. 研究者-参与者关系的特征是什么?长期癌症遗传登记参与者的观点。
IRB Pub Date : 2015-07-01
Celeste M Condit, Diane M Korngiebel, Lesley Pfeifer, Anne D Renz, Deborah J Bowen, David Kaufman, Laura Min Mercer Kollar, Karen L Edwards
{"title":"What Should Be the Character of the Researcher- Participant Relationship? Views of Participants in a Long-standing Cancer Genetic Registry.","authors":"Celeste M Condit,&nbsp;Diane M Korngiebel,&nbsp;Lesley Pfeifer,&nbsp;Anne D Renz,&nbsp;Deborah J Bowen,&nbsp;David Kaufman,&nbsp;Laura Min Mercer Kollar,&nbsp;Karen L Edwards","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2015-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34139081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Could the High Prevalence of Therapeutic Misconception Partly Be a Measurement Problem? 治疗误解的高流行程度部分是测量问题吗?
IRB Pub Date : 2015-07-01
Scott Y H Kim, Renee Wilson, Raymond De Vries, H Myra Kim, Robert G Holloway, Karl Kieburtz
{"title":"Could the High Prevalence of Therapeutic Misconception Partly Be a Measurement Problem?","authors":"Scott Y H Kim,&nbsp;Renee Wilson,&nbsp;Raymond De Vries,&nbsp;H Myra Kim,&nbsp;Robert G Holloway,&nbsp;Karl Kieburtz","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2015-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34141121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health Researchers' Ancillary-Care Responsibilities in Low-Resource Settings: The Landscape of Institutional Guidance. 低资源环境下卫生研究人员的辅助护理责任:制度指导的景观。
IRB Pub Date : 2015-05-01
Carleigh B Krubiner, Raafay H Syed, Maria W Merritt
{"title":"Health Researchers' Ancillary-Care Responsibilities in Low-Resource Settings: The Landscape of Institutional Guidance.","authors":"Carleigh B Krubiner,&nbsp;Raafay H Syed,&nbsp;Maria W Merritt","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":73513,"journal":{"name":"IRB","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2015-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34139079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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