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What factors are associated with informal carers' psychological morbidity during end-of-life home care? A systematic review and thematic synthesis of observational quantitative studies. 在临终家庭护理期间,哪些因素与非正式护理员的心理疾病有关?对观察性定量研究的系统回顾和专题综合。
Health and social care delivery research Pub Date : 2023-11-15 DOI: 10.3310/HTJY8442
Tracey Shield, Kerin Bayliss, Alexander Hodkinson, Maria Panagioti, Alison Wearden, Jackie Flynn, Christine Rowland, Penny Bee, Morag Farquhar, Danielle Harris, Gunn Grande
{"title":"What factors are associated with informal carers' psychological morbidity during end-of-life home care? A systematic review and thematic synthesis of observational quantitative studies.","authors":"Tracey Shield, Kerin Bayliss, Alexander Hodkinson, Maria Panagioti, Alison Wearden, Jackie Flynn, Christine Rowland, Penny Bee, Morag Farquhar, Danielle Harris, Gunn Grande","doi":"10.3310/HTJY8442","DOIUrl":"https://doi.org/10.3310/HTJY8442","url":null,"abstract":"<p><strong>Background: </strong>Family carers are central in supporting patients nearing end of life. As a consequence, they often suffer detrimental impacts on their own mental health. Understanding what factors may affect carers' mental health is important in developing strategies to maintain their psychological well-being during caregiving.</p><p><strong>Aim: </strong>To conduct a systematic review and thematic evidence synthesis of factors related to carers' mental health during end-of-life caregiving.</p><p><strong>Method: </strong>Searches of MEDLINE, CINAHL, PsychINFO, Social Sciences Citation Index, EMBASE, Cochrane Central Register of Controlled Trials and Database of Abstracts of Reviews of Effects 1 January 2009-24 November 2019. We included observational quantitative studies focusing on adult informal/family carers for adult patients at end of life cared for at home considering any factor related to carer mental health (anxiety, depression, distress and quality of life) pre-bereavement. Newcastle-Ottawa Quality Assessment Scale was used. Thematic analysis with box score presentation, and meta-analysis were done where data permitted.</p><p><strong>Results: </strong>Findings from 63 included studies underpinned seven emergent themes. <b>Patient condition</b> (31 studies): worse patient psychological symptoms and quality of life were generally associated with worse carer mental health. Patient depression was associated with higher depression in carers (standardised mean difference = 0.59, 95% confidence interval 0.32 to 0.87, <i>I</i><sup>2</sup> = 77%). Patients' other symptoms and functional impairment may relate to carer mental health, but findings were unclear. <b>Impact of caring responsibilities</b> (14 studies): impact on carers' lives, task difficulty and general burden had clear associations with worse carer mental health. <b>Relationships</b> (8 studies): family dynamics and the quality of the carer-patient relationship may be important for carer mental health and are worthy of further investigation. <b>Finance</b> (6 studies): insufficient resources may relate to carers' mental health and warrant further study. <b>Carers' psychological processes</b> (13 studies): self-efficacy and preparedness were related to better mental health. However, findings regarding coping strategies were mixed. <b>Support</b> (18 studies): informal support given by family and friends may relate to better carer mental health, but evidence on formal support is limited. Having unmet needs was related to worse mental health, while satisfaction with care was related to better mental health. <b>Contextual factors</b> (16 studies): older age was generally associated with better carer mental health and being female was associated with worse mental health.</p><p><strong>Limitations: </strong>Studies were mainly cross-sectional (56) rather than longitudinal (7) which raises questions about the likely causal direction of relationships. One-third of studies had ","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138292555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Eye donation from palliative and hospice care contexts: the EDiPPPP mixed-methods study. 姑息治疗和临终关怀环境下的眼部捐赠:EDiPPPP混合方法研究。
Health and social care delivery research Pub Date : 2023-11-01 DOI: 10.3310/KJWA6741
Tracy Long-Sutehall, Mike Bracher, Sarah Mollart, Jane Wale
{"title":"Eye donation from palliative and hospice care contexts: the EDiPPPP mixed-methods study.","authors":"Tracy Long-Sutehall, Mike Bracher, Sarah Mollart, Jane Wale","doi":"10.3310/KJWA6741","DOIUrl":"10.3310/KJWA6741","url":null,"abstract":"<p><strong>Background: </strong>Over 2 million people in the United Kingdom are living with sight loss with costs to the United Kingdom economy reported as £4.34 billion annually. Conditions that lead to sight loss and impaired vision can be treated if eye tissue is available for corneal transplantation, reconstructive surgery and research into eye diseases. Supply of eye tissue (only available via eye donation) is currently insufficient to meet demand; therefore, new routes are needed. Hospice and hospital-based Palliative Care Services have been reported as potential donation sources of this tissue.</p><p><strong>Objectives: </strong>To: (1) scope the size and clinical characteristics of the potential eye donation population from research sites; (2) map the donation climate of each research site; (3) identify factors that enable or challenge service providers to consider the option of eye donation from a local and national perspective; (4) identify service users' views regarding the option of eye donation and the propriety of discussing eye donation; and (5) develop and pilot an empirically based intervention designed to change behaviours in relation to eye donation.</p><p><strong>Design: </strong>A 36-month mixed-methods, multicentre study undertaking three work packages.</p><p><strong>Settings: </strong>Three hospice care and three hospital-based palliative care services situated in the North, Midlands and the South of England (one service of each type per region).</p><p><strong>Participants: </strong>Work package 1 - 105 service providers. Work package 2 - 62 service users, and 156 service providers in the national survey. Work package 3 - 21 expert consultees (patient and public involvement, cross discipline).</p><p><strong>Data sources: </strong>Scoping review, retrospective note review, qualitative interviews/focus groups, participant observation, secondary analysis of primary data, national survey, transparent expert consultation.</p><p><strong>Results: </strong><b><i>Potential</i></b>: The retrospective notes review demonstrated that of 1199 deceased patients' notes, 553 (46%) patients met the criteria for eye donation (56%, <i>n</i> = 337 in hospice care service settings and 36%, <i>n</i> = 216 in hospital palliative care service). <b><i>Practice</i>:</b> Less than 4% of all cases agreed as eligible for donation had been approached or referred for eye donation. Eye donation is not currently an embedded practice at local and national levels. <b><i>Perceptions</i>:</b> Service providers were motivated to discuss eye donation but lacked opportunity and capability. Service users were willing and able to hold conversations about eye donation but were not aware of the option and had not had the option discussed with them. <b><i>Preferences:</i></b> Service users wanted to be offered the option of eye donation, and service providers wanted bespoke education and training related to eye donation. Evaluation of the developed intervention <i>STEP","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71489645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness of sexual assault referral centres with regard to mental health and substance use: a national mixed-methods study - the MiMoS Study. 性侵犯转诊中心在精神健康和药物使用方面的有效性:一项国家混合方法研究——MiMoS研究。
Health and social care delivery research Pub Date : 2023-11-01 DOI: 10.3310/YTRW7448
Elizabeth Hughes, Jill Domoney, Nicky Knights, Holly Price, Sibongile Rutsito, Theodora Stefanidou, Rabiya Majeed-Ariss, Alexandra Papamichail, Steven Ariss, Gail Gilchrist, Rachael Hunter, Sarah Kendal, Brynmor Lloyd-Evans, Mike Lucock, Fay Maxted, Rebekah Shallcross, Karen Tocque, Kylee Trevillion
{"title":"The effectiveness of sexual assault referral centres with regard to mental health and substance use: a national mixed-methods study - the MiMoS Study.","authors":"Elizabeth Hughes, Jill Domoney, Nicky Knights, Holly Price, Sibongile Rutsito, Theodora Stefanidou, Rabiya Majeed-Ariss, Alexandra Papamichail, Steven Ariss, Gail Gilchrist, Rachael Hunter, Sarah Kendal, Brynmor Lloyd-Evans, Mike Lucock, Fay Maxted, Rebekah Shallcross, Karen Tocque, Kylee Trevillion","doi":"10.3310/YTRW7448","DOIUrl":"10.3310/YTRW7448","url":null,"abstract":"<p><strong>Background: </strong>Sexual assault referral centres have been established to provide an integrated service that includes forensic examination, health interventions and emotional support. However, it is unclear how the mental health and substance use needs are being addressed.</p><p><strong>Aim: </strong>To identify what works for whom under what circumstances for people with mental health or substance use issues who attend sexual assault referral centres.</p><p><strong>Setting and sample: </strong>Staff and adult survivors in English sexual assault referral centres and partner agency staff.</p><p><strong>Design: </strong>A mixed-method multistage study using realist methodology comprising five work packages. This consisted of a systematic review and realist synthesis (work package 1); a national audit of sexual assault referral centres (work package 2); a cross-sectional prevalence study of mental health and drug and alcohol needs (work package 3); case studies in six sexual assault referral centre settings (work package 4), partner agencies and survivors; and secondary data analysis of outcomes of therapy for sexual assault survivors (work package 5).</p><p><strong>Findings: </strong>There is a paucity of evidence identified in the review to support specific ways of addressing mental health and substance use. There is limited mental health expertise in sexual assault referral centres and limited use of screening tools based on the audit. In the prevalence study, participants (<i>n</i> = 78) reported high levels of psychological distress one to six weeks after sexual assault referral centre attendance (94% of people had symptoms of post-traumatic stress disorder). From work package 4 qualitative analysis, survivors identified how trauma-informed care potentially reduced risk of re-traumatisation. Sexual assault referral centre staff found having someone with mental health expertise in the team helpful not only in helping plan onward referrals but also in supporting staff. Both sexual assault referral centre staff and survivors highlighted challenges in onward referral, particularly to NHS mental health care, including gaps in provision and long waiting times. Work package 5 analysis demonstrated that people with recorded sexual assault had higher levels of baseline psychological distress and received more therapy but their average change scores at end point were similar to those without sexual trauma.</p><p><strong>Limitations: </strong>The study was adversely affected by the pandemic. The data were collected during successive lockdowns when services were not operating as usual, as well as the overlay of anxiety and isolation due to the pandemic.</p><p><strong>Conclusions: </strong>People who attend sexual assault centres have significant mental health and substance use needs. However, sexual assault referral centres vary in how they address these issues. Access to follow-up support from mental health services needs to be improved (es","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89720953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Remote monitoring for long-term physical health conditions: an evidence and gap map. 长期身体健康状况的远程监测:证据和差距图。
Health and social care delivery research Pub Date : 2023-11-01 DOI: 10.3310/BVCF6192
Siân de Bell, Zhivko Zhelev, Naomi Shaw, Alison Bethel, Rob Anderson, Jo Thompson Coon
{"title":"Remote monitoring for long-term physical health conditions: an evidence and gap map.","authors":"Siân de Bell, Zhivko Zhelev, Naomi Shaw, Alison Bethel, Rob Anderson, Jo Thompson Coon","doi":"10.3310/BVCF6192","DOIUrl":"10.3310/BVCF6192","url":null,"abstract":"<p><strong>Background: </strong>Remote monitoring involves the measurement of an aspect of a patient's health without that person being seen face to face. It could benefit the individual and aid the efficient provision of health services. However, remote monitoring can be used to monitor different aspects of health in different ways. This evidence map allows users to find evidence on different forms of remote monitoring for different conditions easily to support the commissioning and implementation of interventions.</p><p><strong>Objectives: </strong>The aim of this map was to provide an overview of the volume, diversity and nature of recent systematic reviews on the effectiveness, acceptability and implementation of remote monitoring for adults with long-term physical health conditions.</p><p><strong>Data sources: </strong>We searched MEDLINE, nine further databases and Epistemonikos for systematic reviews published between 2018 and March 2022, PROSPERO for continuing reviews, and completed citation chasing on included studies.</p><p><strong>Review methods: </strong>(Study selection and Study appraisal): Included systematic reviews focused on adult populations with a long-term physical health condition and reported on the effectiveness, acceptability or implementation of remote monitoring. All forms of remote monitoring where data were passed to a healthcare professional as part of the intervention were included. Data were extracted on the characteristics of the remote monitoring intervention and outcomes assessed in the review. AMSTAR 2 was used to assess quality. Results were presented in an interactive evidence and gap map and summarised narratively. Stakeholder and public and patient involvement groups provided feedback throughout the project.</p><p><strong>Results: </strong>We included 72 systematic reviews. Of these, 61 focus on the effectiveness of remote monitoring and 24 on its acceptability and/or implementation, with some reviews reporting on both. The majority contained studies from North America and Europe (38 included studies from the United Kingdom). Patients with cardiovascular disease, diabetes and respiratory conditions were the most studied populations. Data were collected predominantly using common devices such as blood pressure monitors and transmitted via applications, websites, e-mail or patient portals, feedback provided via telephone call and by nurses. In terms of outcomes, most reviews focused on physical health, mental health and well-being, health service use, acceptability or implementation. Few reviews reported on less common conditions or on the views of carers or healthcare professionals. Most reviews were of low or critically low quality.</p><p><strong>Limitations: </strong>Many terms are used to describe remote monitoring; we searched as widely as possible but may have missed some relevant reviews. Poor reporting of remote monitoring interventions may mean some included reviews contain interventions that do not","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138447460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of interventions to improve recovery of older adults following planned hospital admission on quality-of-life following discharge: linked-evidence synthesis. 为改善老年人按计划入院后的恢复情况而采取的干预措施对出院后生活质量的影响:相关证据综述。
Health and social care delivery research Pub Date : 2023-11-01 DOI: 10.3310/GHTY5117
Debbie Kinsey, Samantha Febrey, Simon Briscoe, Dylan Kneale, Jo Thompson Coon, Daniele Carrieri, Christopher Lovegrove, John McGrath, Anthony Hemsley, G J Melendez-Torres, Liz Shaw, Michael Nunns
{"title":"Impact of interventions to improve recovery of older adults following planned hospital admission on quality-of-life following discharge: linked-evidence synthesis.","authors":"Debbie Kinsey, Samantha Febrey, Simon Briscoe, Dylan Kneale, Jo Thompson Coon, Daniele Carrieri, Christopher Lovegrove, John McGrath, Anthony Hemsley, G J Melendez-Torres, Liz Shaw, Michael Nunns","doi":"10.3310/GHTY5117","DOIUrl":"10.3310/GHTY5117","url":null,"abstract":"<p><strong>Objectives: </strong>To understand the impact of multicomponent interventions to improve recovery of older adults following planned hospital treatment, we conducted two systematic reviews, one of quantitative and one of qualitative evidence, and an overarching synthesis. These aimed to: • understand the effect of multicomponent interventions which aim to enhance recovery and/or reduce length of stay on patient-reported outcomes and health and social care utilisation • understand the experiences of patients, carers and staff involved in the delivery of interventions • understand how different aspects of the content and delivery of interventions may influence patient outcomes.</p><p><strong>Review methods: </strong>We searched bibliographic databases including MEDLINE ALL, Embase and the Health Management Information Consortium, CENTRAL, and Cumulative Index to Nursing and Allied Health Literature and Allied and Complementary Medicine Database, conducted forward and backward citation searching and examined reference lists of topically similar qualitative reviews. Bibliographic database searches were completed in May/June 2021 and updated in April 2022. We sought primary research from high-income countries regarding hospital inpatients with a mean/median age of minimum 60 years, undergoing planned surgery. Patients experienced any multicomponent hospital-based intervention to reduce length of stay or improve recovery. Quantitative outcomes included length of stay and any patient-reported outcome or experience or service utilisation measure. Qualitative research focused on the experiences of patients, carers/family and staff of interventions received. Quality appraisal was undertaken using the Effective Public Health Practice Project Quality Assessment Tool or an adapted version of the Wallace checklist. We used random-effects meta-analysis to synthesise quantitative data where appropriate, meta-ethnography for qualitative studies and qualitative comparative analysis for the overarching synthesis.</p><p><strong>Results: </strong>Quantitative review: Included 125 papers. Forty-nine studies met criteria for further synthesis. Enhanced recovery protocols resulted in improvements to length of stay, without detriment to other outcomes, with minimal improvement in patient-reported outcome measures for patients admitted for lower-limb or colorectal surgery. Qualitative review: Included 43 papers, 35 of which were prioritised for synthesis. We identified six themes: 'Home as preferred environment for recovery', 'Feeling safe', 'Individualisation of structured programme', 'Taking responsibility', 'Essential care at home' and 'Outcomes'. Overarching synthesis: Intervention components which trigger successful interventions represent individualised approaches that allow patients to understand their treatment, ask questions and build supportive relationships and strategies to help patients monitor their progress and challenge themselves through early m","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138886787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs. 招募儿童和青少年参加试验时多媒体信息的有效性和可接受性:TRECA 对 SWATs 的荟萃分析。
Health and social care delivery research Pub Date : 2023-11-01 DOI: 10.3310/HTPM3841
Peter Knapp, Jacqueline Martin-Kerry, Thirimon Moe-Byrne, Rebecca Sheridan, Elizabeth Coleman, Jenny Roche, Bridget Young, Steven Higgins, Jennifer Preston, Peter Bower, Carrol Gamble, Catherine Stones
{"title":"The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs.","authors":"Peter Knapp, Jacqueline Martin-Kerry, Thirimon Moe-Byrne, Rebecca Sheridan, Elizabeth Coleman, Jenny Roche, Bridget Young, Steven Higgins, Jennifer Preston, Peter Bower, Carrol Gamble, Catherine Stones","doi":"10.3310/HTPM3841","DOIUrl":"10.3310/HTPM3841","url":null,"abstract":"<p><strong>Background: </strong>The information provided to potential trial participants plays a crucial role in their decision-making. Printed participant information sheets for trials have received recurrent criticism as being too long and technical, unappealing and hard to navigate. An alternative is to provide information through multimedia (text, animations, video, audio, diagrams and photos). However, there is limited evidence on the effects of multimedia participant information on research recruitment rates, particularly in children and young people.</p><p><strong>Objectives: </strong>The study objectives were as follows: 1. to develop template multimedia information resources through participatory design, for use when recruiting children and young people to trials 2. to evaluate the multimedia information resources in a series of Studies Within A Trial, to test their effects on recruitment and retention rates, and participant decision-making, by comparing the provision of multimedia information resources instead of printed participant information sheets, and comparing the provision of multimedia information resources in addition to printed participant information sheets.</p><p><strong>Design: </strong>Two-phase study: 1. multimedia information resources development including qualitative study; user testing study; readability metrics; enhanced patient and public involvement 2. multimedia information resources' evaluation comprising Studies Within A Trial undertaken within host trials recruiting children and young people.</p><p><strong>Setting: </strong>United Kingdom trials involving patients aged under 18.</p><p><strong>Participants: </strong>Development phase: <i>n</i> = 120 (children and young people, parents, clinicians, trial personnel). Evaluation phase: <i>n</i> = 1906 (children and young people being asked to take part in trials).</p><p><strong>Interventions: </strong>Multimedia information resources (comprising text, audio, 'talking heads' video, trial-specific and trial-generic animations). Printed participant information sheets.</p><p><strong>Main outcome measures: </strong>Primary outcome: trial recruitment rate comparing multimedia information resource-only with printed participant information sheet-only provision. Secondary outcomes: trial recruitment rate comparing combined multimedia information resource and printed participant information sheet with printed participant information sheet-only provision; trial retention rate; quality of participant decision-making. Results for each trial were calculated and combined in a two-stage random-effects meta-analysis.</p><p><strong>Results: </strong>Phase 1 generated two multimedia information resource templates: (1) for children aged 6-11 years; (2) for children aged 12-18 years and parents. In the Phase 2 Studies Within A Trial the multimedia information resources improved trial recruitment, when compared to printed information alone [odds ratio (OR) = 1.54; 95% confidence interva","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138886788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Involving carer advisors in evidence synthesis to improve carers' mental health during end-of-life home care: co-production during COVID-19 remote working. 让护理顾问参与证据综合,以改善临终家庭护理期间护理人员的心理健康:新冠肺炎远程工作期间的共同生产。
Health and social care delivery research Pub Date : 2023-10-25 DOI: 10.3310/TGHH6428
Gunn Grande, Kerin Bayliss, Tracey Shield, Jackie Flynn, Christine Rowland, Danielle Harris, Alison Wearden, Morag Farquhar, Maria Panagioti, Alexander Hodkinson, Margaret Booth, David Cotterill, Lesley Goodburn, Cedric Knipe, Penny Bee
{"title":"Involving carer advisors in evidence synthesis to improve carers' mental health during end-of-life home care: co-production during COVID-19 remote working.","authors":"Gunn Grande,&nbsp;Kerin Bayliss,&nbsp;Tracey Shield,&nbsp;Jackie Flynn,&nbsp;Christine Rowland,&nbsp;Danielle Harris,&nbsp;Alison Wearden,&nbsp;Morag Farquhar,&nbsp;Maria Panagioti,&nbsp;Alexander Hodkinson,&nbsp;Margaret Booth,&nbsp;David Cotterill,&nbsp;Lesley Goodburn,&nbsp;Cedric Knipe,&nbsp;Penny Bee","doi":"10.3310/TGHH6428","DOIUrl":"https://doi.org/10.3310/TGHH6428","url":null,"abstract":"<p><strong>Background: </strong>Family carers play a central role in supporting people at the end of life, but often suffer detrimental impacts on their own mental health as a result. This project conducted evidence synthesis of research into factors that may affect carers' mental health to help identify ways of maintaining their mental health. It worked closely with a carer Review Advisory Panel to help ensure the findings made sense and were communicated meaningfully from the carers' perspective.</p><p><strong>Aim: </strong>To present: (1) principles and components that facilitated successful patient and public involvement in an evidence synthesis project to help inform patient and public involvement in similar projects; (2) recommendations for carer support that were instigated and produced by the Review Advisory Panel.</p><p><strong>Process and principles: </strong>Nine Review Advisory Panel meetings including four to five carers, a lay Chair and three researchers were held. Solid 'groundwork' was invested in recruitment and relationship-building prior to meetings, and it was ensured that there was agreement of how to work together and clarification of expectations at the first meeting. Key meeting principles were: having a majority of carers, and a Chair with both carer and patient and public involvement experience, to ensure carer voices remained at the fore substantial researcher representation, including the project lead, to highlight the value placed on Review Advisory Panel meetings flexibility to follow carers' agendas, enabling 'space to talk' and 'space to change' appropriate and prompt carer payment, again emphasising patient and public involvement value to the project. Added general principles were: ongoing training, ample funded time for Review Advisory Panel preparation and ongoing communication outside meetings. COVID moved all meetings online after the first meeting, but the principles were maintained.</p><p><strong>Outputs: </strong>The project saw an evolution from patient and public involvement consultation to co-production. The main patient and public involvement output was recommendations for supporting carers based on project findings, instigated and produced by the Review Advisory Panel.</p><p><strong>Reflection on successful components and challenges: </strong>Five carers (including the Chair) and six researchers responded to questions by e-mail. Analysis by one researcher, aided by two other researchers, was then reviewed by all participants and revised. Both carers and researchers felt the components that made the patient and public involvement work were: (1) a shared sense of purpose of and gains from the Review Advisory Panel; (2) personal gains; (3) mutual commitment and respect; and (4) bridging between academic and lay perspectives, through investment in training, ensuring carers were able to meaningfully comment, and continuous negotiation and compromise. Challenges were that the COVID-induced move from face-to-","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71415796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reducing unplanned hospital admissions from care homes: a systematic review. 减少护理院的非计划住院人数:一项系统综述。
Health and social care delivery research Pub Date : 2023-10-01 DOI: 10.3310/KLPW6338
Duncan Chambers, Anna Cantrell, Louise Preston, Carl Marincowitz, Lynne Wright, Simon Conroy, Adam Lee Gordon
{"title":"Reducing unplanned hospital admissions from care homes: a systematic review.","authors":"Duncan Chambers,&nbsp;Anna Cantrell,&nbsp;Louise Preston,&nbsp;Carl Marincowitz,&nbsp;Lynne Wright,&nbsp;Simon Conroy,&nbsp;Adam Lee Gordon","doi":"10.3310/KLPW6338","DOIUrl":"https://doi.org/10.3310/KLPW6338","url":null,"abstract":"<p><strong>Background: </strong>Care homes predominantly care for older people with complex health and care needs, who are at high risk of unplanned hospital admissions. While often necessary, such admissions can be distressing and provide an opportunity cost as well as a financial cost.</p><p><strong>Objectives: </strong>Our objective was to update a 2014 evidence review of interventions to reduce unplanned admissions of care home residents. We carried out a systematic review of interventions used in the UK and other high-income countries by synthesising evidence of effects of these interventions on hospital admissions; feasibility and acceptability; costs and value for money; and factors affecting applicability of international evidence to UK settings.</p><p><strong>Data sources: </strong>We searched the following databases in December 2021 for studies published since 2014: Cochrane Central Register of Controlled Trials and Cochrane Database of Systematic Reviews; Cumulative Index to Nursing and Allied Health Literature; Health Management Information Consortium; Medline; PsycINFO; Science and Social Sciences Citation Indexes; Social Care Online; and Social Service Abstracts. 'Grey' literature (January 2022) and citations were searched and reference lists were checked.</p><p><strong>Methods: </strong>We included studies of any design reporting interventions delivered in care homes (with or without nursing) or hospitals to reduce unplanned hospital admissions. A taxonomy of interventions was developed from an initial scoping search. Outcomes of interest included measures of effect on unplanned admissions among care home residents; barriers/facilitators to implementation in a UK setting and acceptability to care home residents, their families and staff. Study selection, data extraction and risk of bias assessment were performed by two independent reviewers. We used published frameworks to extract data on intervention characteristics, implementation barriers/facilitators and applicability of international evidence. We performed a narrative synthesis grouped by intervention type and setting. Overall strength of evidence for admission reduction was assessed using a framework based on study design, study numbers and direction of effect.</p><p><strong>Results: </strong>We included 124 publications/reports (30 from the UK). Integrated care and quality improvement programmes providing additional support to care homes (e.g. the English Care Homes Vanguard initiatives and hospital-based services in Australia) appeared to reduce unplanned admissions relative to usual care. Simpler training and staff development initiatives showed mixed results, as did interventions aimed at tackling specific problems (e.g. medication review). Advance care planning was key to the success of most quality improvement programmes but do-not-hospitalise orders were problematic. Qualitative research identified tensions affecting decision-making involving paramedics, care home staf","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integration, effectiveness and costs of different models of primary health care provision for people who are homeless: an evaluation study. 为无家可归者提供初级保健的不同模式的整合、有效性和成本:一项评估研究。
Health and social care delivery research Pub Date : 2023-10-01 DOI: 10.3310/WXUW5103
Maureen Crane, Louise Joly, Blánaid Jm Daly, Heather Gage, Jill Manthorpe, Gaia Cetrano, Chris Ford, Peter Williams
{"title":"Integration, effectiveness and costs of different models of primary health care provision for people who are homeless: an evaluation study.","authors":"Maureen Crane,&nbsp;Louise Joly,&nbsp;Blánaid Jm Daly,&nbsp;Heather Gage,&nbsp;Jill Manthorpe,&nbsp;Gaia Cetrano,&nbsp;Chris Ford,&nbsp;Peter Williams","doi":"10.3310/WXUW5103","DOIUrl":"10.3310/WXUW5103","url":null,"abstract":"<p><strong>Background: </strong>There is a high prevalence of health problems among single people who are homeless. Specialist primary health care services for this population have been developed in several locations across England; however, there have been very few evaluations of these services.</p><p><strong>Objectives: </strong>This study evaluated the work of different models of primary health care provision in England to determine their effectiveness in engaging people who are homeless in health care and in providing continuity of care for long-term conditions. It concerned single people (not families or couples with dependent children) staying in hostels, other temporary accommodation or on the streets. The influence on outcomes of contextual factors and mechanisms (service delivery factors), including integration with other services, were examined. Data from medical records were collated on participants' use of health care and social care services over 12 months, and costs were calculated.</p><p><strong>Design and setting: </strong>The evaluation involved four existing Health Service Models: (1) health centres primarily for people who are homeless (Dedicated Centres), (2) Mobile Teams providing health care in hostels and day centres, (3) Specialist GPs providing some services exclusively for patients who are homeless and (4) Usual Care GPs providing no special services for people who are homeless (as a comparison). Two Case Study Sites were recruited for each of the specialist models, and four for the Usual Care GP model.</p><p><strong>Participants: </strong>People who had been homeless during the previous 12 months were recruited as 'case study participants'; they were interviewed at baseline and at 4 and 8 months, and information was collected about their circumstances and their health and service use in the preceding 4 months. Overall, 363 participants were recruited; medical records were obtained for 349 participants. Interviews were conducted with 65 Case Study Site staff and sessional workers, and 81 service providers and stakeholders.</p><p><strong>Results: </strong>The primary outcome was the extent of health screening for body mass index, mental health, alcohol use, tuberculosis, smoking and hepatitis A among participants, and evidence of an intervention if a problem was identified. There were no overall differences in screening between the models apart from Mobile Teams, which scored considerably lower. Dedicated Centres and Specialist GPs were more successful in providing continuity of care for participants with depression and alcohol and drug problems. Service use and costs were significantly higher for Dedicated Centre participants and lower for Usual Care GP participants. Participants and staff welcomed flexible and tailored approaches to care, and related services being available in the same building. Across all models, dental needs were unaddressed and staff reported poor availability of mental health services.</p><p><stron","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41241753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rapid evaluation of the Special Measures for Quality and challenged provider regimes: a mixed-methods study. 快速评估质量特别措施和受质疑的供应商制度:一项混合方法研究。
Health and social care delivery research Pub Date : 2023-10-01 DOI: 10.3310/GQQV3512
Naomi J Fulop, Estela Capelas Barbosa, Melissa Hill, Jean Ledger, Pei Li Ng, Christopher Sherlaw-Johnson, Lucina Rolewicz, Laura Schlepper, Jonathan Spencer, Sonila M Tomini, Cecilia Vindrola-Padros, Stephen Morris
{"title":"Rapid evaluation of the Special Measures for Quality and challenged provider regimes: a mixed-methods study.","authors":"Naomi J Fulop,&nbsp;Estela Capelas Barbosa,&nbsp;Melissa Hill,&nbsp;Jean Ledger,&nbsp;Pei Li Ng,&nbsp;Christopher Sherlaw-Johnson,&nbsp;Lucina Rolewicz,&nbsp;Laura Schlepper,&nbsp;Jonathan Spencer,&nbsp;Sonila M Tomini,&nbsp;Cecilia Vindrola-Padros,&nbsp;Stephen Morris","doi":"10.3310/GQQV3512","DOIUrl":"10.3310/GQQV3512","url":null,"abstract":"<p><strong>Background: </strong>Health-care organisations in England that are rated as inadequate for leadership and one other domain enter the Special Measures for Quality regime to receive support and oversight. A 'watch list' of challenged providers that are at risk of entering Special Measures for Quality also receive support. Knowledge is limited about whether or not the support interventions drive improvements in quality, the costs of the support interventions and whether or not the support interventions strike the right balance between support and scrutiny.</p><p><strong>Objective: </strong>To analyse the responses of trusts to the implementation of (1) interventions for Special Measures for Quality trusts and (2) interventions for challenged provider trusts to determine their impact on these organisations' capacity to achieve and sustain quality improvements.</p><p><strong>Design: </strong>This was rapid research comprising five interrelated workstreams: (1) a literature review using systematic methods; (2) an analysis of policy documents and interviews at the national level; (3) eight multisite, mixed-methods trust case studies; (4) an analysis of national performance and workforce indicators; and (5) an economic analysis.</p><p><strong>Results: </strong>The Special Measures for Quality/challenged provider regimes were intended to be 'support' programmes. Special Measures for Quality/challenged provider regimes had an emotional impact on staff. Perceptions of NHS Improvement interventions were mixed overall. Senior leadership teams were a key driver of change, with strong clinical input being vital. Local systems have a role in improvement. Trusts focus efforts to improve across multiple domains. Internal and external factors contribute to positive performance trajectories. Nationally, only 15.8% of Special Measures for Quality trusts exited the regime in 24 months. Entry into Special Measures for Quality/challenged provider regimes resulted in changes in quality indicators (such the number of patients waiting in emergency departments for more than 4 hours, mortality and the number of delayed transfers of care) that were more positive than national trends. The trends in staff sickness and absence improved after trusts left Special Measures for Quality/challenged provider regimes. There was some evidence that staff survey results improved. No association was found between Special Measures for Quality/challenged provider regimes and referral to treatment times or cancer treatment waiting times. NHS Improvement spending in case study trusts was mostly directed at interventions addressing 'training on cultural change' (33.6%), 'workforce quality and safety' (21.7%) and 'governance and assurance' (18.4%). The impact of Special Measures for Quality on financial stability was equivocal; most trusts exiting Special Measures for Quality experienced the same financial stability before and after exiting.</p><p><strong>Limitations: </strong>The rapi","PeriodicalId":73204,"journal":{"name":"Health and social care delivery research","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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