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Flexible Coping in Cancer Care 癌症护理中的灵活应对
Cancer care research online Pub Date : 2022-01-01 DOI: 10.1097/cr9.0000000000000016
Miwako Eto, Sena Yamamoto, Harue Arao
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引用次数: 1
Palliative Care Clinicians' Perspectives of an Integrated Caregiver Patient-Portal System in Oncology. 姑息治疗临床医生对肿瘤科综合护理-患者门户系统的看法。
Cancer care research online Pub Date : 2021-12-01 DOI: 10.1097/cr9.0000000000000014
M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang
{"title":"Palliative Care Clinicians' Perspectives of an Integrated Caregiver Patient-Portal System in Oncology.","authors":"M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang","doi":"10.1097/cr9.0000000000000014","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000014","url":null,"abstract":"Background\u0000Despite recommendations and policies to integrate family caregivers into U.S. healthcare settings, caregivers are not systematically involved. Thus, we developed an Integrated Caregiver Patient-Portal system that (1) allows a patient to identify their primary caregiver and their communication preferences; (2) connects the caregiver to a unique portal page to indicate their needs; and 3) informs the care team of dyad responses to aid in integrating the caregiver.\u0000\u0000\u0000Objective\u0000This formative research explored palliative care clinicians' perceptions of the system to inform refinements before usability testing.\u0000\u0000\u0000Methods\u0000We conducted two focus groups with palliative care clinicians (N=11) at an NCI-designated cancer center. Transcripts were analyzed using an integrated approach to specify system benefits and concerns.\u0000\u0000\u0000Results\u0000The most referenced benefits included: Learning information that they might not have known without the system; giving caregivers a voice or a way to express needs; and supporting an ideal model of care. Top concerns included lacking capacity to respond; needing to clarify clinician roles and expertise in responding to caregivers' needs; and ensuring ongoing system adaptability.\u0000\u0000\u0000Conclusions\u0000The clinicians' feedback resulted in revisions including: (1) modifying the caregiver questions; (2) integrating social workers in the response; and (3) adding a text-based report to the care team.\u0000\u0000\u0000Implications for Practice\u0000This formative research provided valuable feedback for portal development, and also contributes more broadly to recommendations related to integrating caregivers in healthcare.\u0000\u0000\u0000Foundational\u0000This research provides practical and logistical relevance to the discussion on how to integrate caregivers into clinical care.","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 4 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49611231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research. 从潜伏到参与和发现儿童姑息治疗研究的意义。
Cancer care research online Pub Date : 2021-09-01
Katherine Patterson Kelly
{"title":"From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research.","authors":"Katherine Patterson Kelly","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8594761/pdf/nihms-1727219.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39891269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impacts of Coronavirus Disease 2019 on Oncology Nursing Research 2019冠状病毒病对肿瘤护理研究的影响
Cancer care research online Pub Date : 2021-08-26 DOI: 10.1097/cr9.0000000000000009
N. Giordano, J. Bai, K. Yeager, J. Frediani, E. Im
{"title":"Impacts of Coronavirus Disease 2019 on Oncology Nursing Research","authors":"N. Giordano, J. Bai, K. Yeager, J. Frediani, E. Im","doi":"10.1097/cr9.0000000000000009","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000009","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44851488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research 儿科姑息治疗研究从潜伏到介入和寻找意义
Cancer care research online Pub Date : 2021-08-01 DOI: 10.1097/cr9.0000000000000010
K. Kelly
{"title":"From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research","authors":"K. Kelly","doi":"10.1097/cr9.0000000000000010","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000010","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48794087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Elevating Supportive Cancer Care Research 提升支持性癌症治疗研究
Cancer care research online Pub Date : 2021-04-01 DOI: 10.1097/cr9.0000000000000005
S. Kagan
{"title":"Elevating Supportive Cancer Care Research","authors":"S. Kagan","doi":"10.1097/cr9.0000000000000005","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000005","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42251951","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Invisible Roles of Oncology Nurses in Shared Decision Making 肿瘤科护士在共同决策中的隐形作用
Cancer care research online Pub Date : 2021-04-01 DOI: 10.1097/cr9.0000000000000007
K. Olling, K. Steffensen, Leonard Berry, D. Stacey
{"title":"The Invisible Roles of Oncology Nurses in Shared Decision Making","authors":"K. Olling, K. Steffensen, Leonard Berry, D. Stacey","doi":"10.1097/cr9.0000000000000007","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000007","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45046103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Philippines Cancer Control Plan: Nursing Priorities From Nursing Service Delivery Working Group of the Philippine National Childhood Cancer Control Workshop 菲律宾癌症控制计划:来自菲律宾国家儿童癌症控制研讨会护理服务提供工作组的护理优先事项
Cancer care research online Pub Date : 2021-04-01 DOI: 10.1097/cr9.0000000000000008
A. C. Banayat, Marichen Dychangco, Lydia T. Manahan, S. Howard, C. Sullivan
{"title":"Philippines Cancer Control Plan: Nursing Priorities From Nursing Service Delivery Working Group of the Philippine National Childhood Cancer Control Workshop","authors":"A. C. Banayat, Marichen Dychangco, Lydia T. Manahan, S. Howard, C. Sullivan","doi":"10.1097/cr9.0000000000000008","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000008","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46693053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Cross-cultural Adaptation and Psychometric Evaluation of the Persian Version of the Leuven Questionnaire for Patient Self-care During Chemotherapy 化疗患者自我护理波斯语鲁汶问卷的跨文化适应和心理测量学评价
Cancer care research online Pub Date : 2021-04-01 DOI: 10.1097/cr9.0000000000000006
Nazi Nejat, F. Rafiei, Maryam Ebrahimabadi
{"title":"Cross-cultural Adaptation and Psychometric Evaluation of the Persian Version of the Leuven Questionnaire for Patient Self-care During Chemotherapy","authors":"Nazi Nejat, F. Rafiei, Maryam Ebrahimabadi","doi":"10.1097/cr9.0000000000000006","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000006","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45746775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Journal for Foundational Knowledge for Cancer Care: Cancer Care Research Online 癌症护理基础知识杂志:癌症护理研究在线
Cancer care research online Pub Date : 2021-01-01 DOI: 10.1097/cr9.0000000000000004
P. Hinds, Amy Bedinger Miller
{"title":"A Journal for Foundational Knowledge for Cancer Care: Cancer Care Research Online","authors":"P. Hinds, Amy Bedinger Miller","doi":"10.1097/cr9.0000000000000004","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000004","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46086123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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