Cancer care research online最新文献

{"title":"Translation and linguistic validation of the Pittsburgh Fatigability Scale for Korean breast cancer survivors: A cognitive interviewing study.","authors":"Sue Kim,&nbsp;Inah Kim,&nbsp;Nancy W Glynn,&nbsp;Min Kyeong Jang","doi":"10.1097/cr9.0000000000000029","DOIUrl":"10.1097/cr9.0000000000000029","url":null,"abstract":"<p><strong>Background: </strong>Fatigability-the perception of fatigue contextualized to activities of fixed intensity and duration-has received growing attention in oncology research.</p><p><strong>Objectives: </strong>This study aimed to translate and linguistically validate a Korean-language version of the Pittsburgh Fatigability Scale.</p><p><strong>Methods: </strong>Following the Linguistic Validation Manual for Health Outcome Assessment, we applied a multi-stage cognitive interviewing (CI) method to ensure accurate translation and interpretation of the Pittsburgh Fatigability Scale. After forward- and backward-translation were completed, three rounds of CI regarding the translated instrument were performed with 18 participants having or not having breast cancer.</p><p><strong>Results: </strong>The first round of CI showed that seven items of the 10-item Korean-language instrument required revision to reflect the physical abilities of breast cancer patients with similar levels of physical activity. After the second round, two additional items were revised to reflect the cultural context and gender roles. During the third round, all participants exhibited full understanding of the Korean-language instrument.</p><p><strong>Conclusions: </strong>The translated instrument, its quality enriched by cross-cultural linguistic validation in combination with CI, can be effectively used to assess perceived physical and mental fatigability.</p><p><strong>Implications for practice: </strong>Use of the Pittsburgh Fatigability Scale can facilitate oncology nurses' assessment of perceived fatigue levels in cancer patients and can expand understanding of how patients' fatigue perceptions are related to their exercise capacity.</p><p><strong>Foundational: </strong>This study is valuable as an example of how a multi-stage CI process can be effectively applied in cross-cultural oncology research.</p>","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"2 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9928162/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10747253","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Why Do Adult Patients With Cancer Not Seek Help for Their Depressive Symptoms? The Role of Illness Perceptions, Coping, and Social Support","authors":"E. Bickel, J. Fleer, A. Ranchor, M. Schroevers","doi":"10.1097/cr9.0000000000000034","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000034","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47946642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Evaluation of a Cervical Cancer Screening Training Program for Midwives in Japan","authors":"Tokiko Oishi, Akito Miyauchi, Manabu Yamada, N. Nakane, Yuko Manome, Yoko Kajihara, Sharon J B Hanley, Emiko Nishioka, Yumiko Mikami","doi":"10.1097/cr9.0000000000000027","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000027","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47196281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Illuminating Black, Hispanic, and Asian Women’s Breast Cancer-related Cognitive Impairment Symptom Experience: An Integrative Review","authors":"Shanon G. Dunovan, Roksana B. Zak, R. Lally","doi":"10.1097/cr9.0000000000000030","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000030","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"61664768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of the National Cervical Cancer Screening Programme in the Thabachweu Region of Mpumalanga Province, South Africa","authors":"Mamoraka H. Themba, Mariatha Yazbek, Theodor Loots","doi":"10.1097/cr9.0000000000000033","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000033","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48490330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Cross-sectional Study on the Unmet Supportive Care Needs of Cancer Patients Under the COVID-19 Pandemic","authors":"Denise Shuk Ting Cheung, N. Takemura, Helen Yun-Fong Lui, Wen-Pei Chang, C. Chiang, W. Mui, Alina Yee Man Ng, P. Chau, A. W. Lee, Chia-chin Lin","doi":"10.1097/cr9.0000000000000028","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000028","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44365905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correlates of Breast Cancer Screening in Arab Muslim Women Living in the United States","authors":"F. Mataoui","doi":"10.1097/cr9.0000000000000031","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000031","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46722967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Establishment of a Cancer Acute Care Clinic Within an Infusion Center","authors":"E. Alfaro, Marisa Quinn, Tammy Baltic, C. Acebedo, Manisha Israni, C. Miaskowski","doi":"10.1097/cr9.0000000000000035","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000035","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49148757","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living With Ovarian Cancer: Transitions Lost in Translation","authors":"Karen Rosnes Gissum, S. Drageset, L. Thomsen, L. Bjørge, R. Strand","doi":"10.1097/cr9.0000000000000032","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000032","url":null,"abstract":"Objective: To explore experiences of women living with ovarian cancer and their interactions with health care professionals. Methods: Five focus group interviews were conducted with the same 4 women, between 2018 and 2020. The interviews were analyzed using systematic text condensation. Results: Living with ovarian cancer involved a set of transitions from health to illness and disease. These transitions were difficult for the women to articulate to health care professionals, friends and family, and to themselves. All participants expressed the experiencing of existential and emotional chaos and paradoxes. As their illness developed, it impacted their ability to articulate changes to their body and sense of self and to their own identity negatively. Consequently, the women felt that their ability to communicate their needs to others, including to health care professionals, deteriorated as the disease progressed. Conclusions: Women living with ovarian cancer experience transitions lost in translation within themselves and in communication with persons in their personal, familial, and medical realms. Implications for Practice: A better understanding of their existential suffering and how it is easily lost in translation may refine care and support for these women throughout their illness and disease trajectory. Foundational: Communicating and understanding illness and disease in ovarian cancer is essential to provide personalized care and support to ovarian cancer patients.","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44460795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Helping Diagnosed Mothers and Their Adolescent-Young Adult Daughters Navigate Challenging Breast Cancer Conversations.","authors":"Carla L Fisher, Amanda Kastrinos, Alana Curley, Mollie R Canzona, Nicole Piemonte, Bianca Wolf, Teri Pipe","doi":"10.1097/cr9.0000000000000025","DOIUrl":"10.1097/cr9.0000000000000025","url":null,"abstract":"<p><strong>Background: </strong>Mothers diagnosed with breast cancer describe daughters as a critical source of support. Talking about breast cancer is especially distressing and challenging for mothers and their adolescent-young adult (AYA) daughters.</p><p><strong>Objective: </strong>The over-arching study aim was to generate findings to integrate into an intervention to enhance diagnosed mothers' and AYA daughters' communication skills by identifying approaches they find helpful when talking about cancer.</p><p><strong>Methods: </strong>We recruited 27 women (12 dyads). Diagnosed mothers and their AYA daughters (aged 18-29) participated in individual, in-depth, semi-structured interviews. Transcripts were thematically analyzed. Mothers'/daughters' perspectives were compared/ triangulated.</p><p><strong>Results: </strong>Both mothers and daughters identified 3 approaches that helped them navigate cancer communication: (mothers) initiate conversations, keep communication positive, and limit cancer conversations. Only mothers reported it was helpful to downplay the seriousness of cancer. Only daughters identified it was important for them to reframe their perspective of mothers' disclosures.</p><p><strong>Conclusions: </strong>Findings provide clinicians like nurses and families with a \"psychosocial map\" of communication approaches and associated strategies mothers and AYA daughters can use to talk about breast cancer in ways that promote daughters' comfort and/or alleviate distress.</p><p><strong>Implications for practice: </strong>Findings capture communication skills to focus on when tailoring developmentally focused interventions targeting diagnosed mothers and AYA daughters. Nurses can translate findings into practice to help patients talk to AYA daughters about cancer, thereby promoting a family-centered cancer care approach. What Is Foundational: AYA daughters are especially distressed talking about cancer with their diagnosed mothers. They can both use communication strategies to enhance their communal coping.</p>","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10795856/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42728107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}