Autism in adulthood : challenges and management最新文献

{"title":"Brief Report: Does Autistic Community Connectedness Moderate the Relationship Between Masking and Wellbeing?","authors":"Eilidh Cage, Rebekah Cranney, Monique Botha","doi":"10.1089/aut.2021.0096","DOIUrl":"10.1089/aut.2021.0096","url":null,"abstract":"<p><strong>Background: </strong>Masking involves blending in or covering a stigmatized identity, to avoid discrimination and to \"pass\" within society. Autistic people often report masking, both intentionally and unintentionally, to get by in social situations. Autistic people who report high rates of masking also tend to experience poorer mental health. It is important we understand whether there are variables that can protect against the negative effects of masking. One such potential variable is autistic community connectedness (ACC)-being part of and belonging to the autistic community. Past research suggests there are benefits for autistic people socially connecting with other autistic people. We investigated whether ACC could moderate the relationship between masking and wellbeing.</p><p><strong>Methods: </strong>One hundred ninety-six autistic people completed an online survey including measures of ACC, masking, and mental wellbeing. We used moderation analysis to test whether ACC acted as a buffer between masking and wellbeing.</p><p><strong>Results: </strong>Higher self-reported masking related to poorer mental wellbeing. Higher ACC related to more positive wellbeing. Higher ACC correlated with more masking. However, there was no interaction effect, and ACC did not moderate the relationship between masking and wellbeing.</p><p><strong>Conclusions: </strong>Although ACC did relate to more positive mental wellbeing overall, it did not moderate the negative relationship between masking and wellbeing. If masking relates to the prejudice faced by autistic people, those with greater attachment to the autistic community may also be more aware of discrimination against their community. Furthermore, autistic people who are more connected might experience a higher salience of masking when moving between autistic and nonautistic settings. Tackling prejudice toward autistic people is critical in helping to reduce the negative effects associated with masking, and we must endeavor to change perceptions and increase inclusion of autistic people.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 3","pages":"247-253"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645674/pdf/aut.2021.0096.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10133489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of an Educational Presentation About Autism on High School Students' Perceptions of Autistic Adults.","authors":"Nichole E Scheerer, Troy Q Boucher, Noah J Sasson, Grace Iarocci","doi":"10.1089/aut.2021.0046","DOIUrl":"10.1089/aut.2021.0046","url":null,"abstract":"<p><strong>Background: </strong>Social communication difficulties are a clinical characteristic of autism, but social interactions are reciprocal in nature and autistic individuals' social abilities may not be the only factor influencing their social success. Nonautistic individuals' social perceptions and behavior also contribute to autistic individuals' social difficulties. Previous research has identified that nonautistic individuals' perception of autistic individuals is influenced by autism knowledge and the quantity and quality of exposure to autistic people. The current research aimed to examine how autistic adults are perceived by high school students, assess whether quality and quantity of autism contact predicts these perceptions, and explore whether these perceptions are malleable.</p><p><strong>Methods: </strong>One hundred fifty-one senior high school students (15-19 years old) completed the First Impression Scale after viewing video recordings of 20 autistic and 20 nonautistic adults in social situations, either before or after viewing a 50-minute educational presentation detailing the everyday experiences of autistic people and participating in a question-and-answer session. We assessed students' prior experiences with autistic people using the Quantity and Quality of Contact Scale and their own self-perceived social competence using the Multidimensional Social Competence Scale.</p><p><strong>Results: </strong>Consistent with previous studies, students rated autistic adults less favorably than nonautistic adults. However, the educational presentation produced modest but significant improvements on these ratings, with students who viewed the presentation rating autistic adults as more attractive and likable and reporting greater social interest in them compared to those who had not yet viewed the presentation. Furthermore, consistent with a double empathy framework, exploratory analyses indicated that self-reports of greater social competence among students was associated with greater bias against autistic adults, whereas reports of higher quality interactions with autistic people were associated with less bias.</p><p><strong>Conclusion: </strong>Previous research has demonstrated that nonautistic adults evaluate autistic people less favorably and report lower social interest in them relative to nonautistic controls. In this study, we extend these findings to adolescents but find these biases are somewhat malleable, with education about autism exerting some modest benefits. Changing nonautistic attitudes about autistic differences may provide an avenue for improving interactions for autistic individuals without putting the onus on autistic individuals to change or mask their behavior and identity.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 3","pages":"203-213"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645669/pdf/aut.2021.0046.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10131452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Still Infantilizing Autism? An Update and Extension of Stevenson et al. (2011).","authors":"Nameera Akhtar, Janette Dinishak, Jennifer L Frymiare","doi":"10.1089/aut.2022.0014","DOIUrl":"10.1089/aut.2022.0014","url":null,"abstract":"<p><strong>Background: </strong>Stevenson et al. (2011) examined photographs and language used to represent autism on chapter websites for the Autism Society of America, autism charity websites, movies, television shows, fictional books, and U.S. new stories and found that they overwhelmingly used children to represent autism.</p><p><strong>Methods: </strong>Using Stevenson et al.'s methods, we tested the hypothesis that, a decade on, these same sources would now include more representations of autistic adults. We statistically compared our findings with theirs.</p><p><strong>Results: </strong>On the chapter websites of the Autism Society of America and in fictional books, the hypothesis was supported in that there were more representations of adults (19%-20%) than in the original study (5%-9%), but there were still far more representations of children than of adults. In movies, television shows, and U.S. news stories, there were equal numbers of representations of autistic adults and autistic children.</p><p><strong>Conclusions: </strong>These findings suggest a move away from infantilizing autism in some domains, but they rely on a narrow construal of \"infantilizing\": the underrepresentation of autistic adults in media. However, even when autistic adults are represented, they may still be infantilized in various ways. Future research will need to examine the impact of infantilizing media on both autistic and non-autistic people, and other ways in which these representations are limited (e.g., gender and race/ethnicity).</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 3","pages":"224-232"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645676/pdf/aut.2022.0014.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10124892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"On Being Autistic and in Mental Health Crisis Care.","authors":"Hannah L Belcher","doi":"10.1089/aut.2022.0044","DOIUrl":"https://doi.org/10.1089/aut.2022.0044","url":null,"abstract":"","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 3","pages":"179-182"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9908276/pdf/aut.2022.0044.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10133984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stress and Coping in Autistic Young Adults.","authors":"Nancy Cheak-Zamora, Olakunle Odunleye","doi":"10.1089/aut.2021.0043","DOIUrl":"10.1089/aut.2021.0043","url":null,"abstract":"<p><strong>Introduction: </strong>Half a million autistic youth will enter adulthood over the next decade. Support services to help youth successfully transition into adulthood are limited and not tailored to the autistic youth and young adult's needs. This study utilized qualitative methods to understand how autistic young adults experience and cope with stress during the transition to adulthood.</p><p><strong>Methods: </strong>The study recruited 15 autistic young adults aged 18-25 years. Each participant completed a short demographic survey and individual interview. Interviews were conducted online via Google Docs or in-person based on the participants' preference. Three researchers organized and coded the data using a thematic approach.</p><p><strong>Results: </strong>Based on our analysis, three themes emerged. Within the first theme, young adults in this study described experiencing a great deal of stress and provided examples of how it manifested in physical and emotional ways. In the second theme, youth described that the causes of this stress stemmed from general problems handling new or multiple responsibilities and specific problems in school, work, financial responsibilities, and social relationships. Finally, young adults described using various coping mechanisms including relaxation techniques, use of technology, and friends and family social support.</p><p><strong>Conclusions: </strong>The study findings can help service providers and family members find new ways to help autistic young adults manage their stress. This study provides a unique understanding of stress and coping from the autistic individuals' point of view. Stress is most often derived from managing new responsibilities in general and school, work, money, and relationships in particular. Tailored support services that follow the individual from adolescence through adulthood are needed to manage these stressors. Researchers and service providers can utilize these recommendations for future program development. Furthermore, the method used in this study can be replicated to facilitate autistic individual input on future program development.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 3","pages":"193-202"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645673/pdf/aut.2021.0043.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10133487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Trajectories of Seizures, Medication Use, and Obesity Status into Early Adulthood in Autistic Individuals and Those with Other Neurodevelopmental Conditions.","authors":"Katherine Byrne, Kyle Sterrett, Rebecca Elias, Vanessa H Bal, James B McCauley, Catherine Lord","doi":"10.1089/aut.2020.0080","DOIUrl":"10.1089/aut.2020.0080","url":null,"abstract":"<p><strong>Background: </strong>Physical and psychiatric health conditions affect the lives of many autistic adults. However, relatively little is known about individual trajectories in autistic individuals' physical and mental health from adolescence to adulthood.</p><p><strong>Methods: </strong>This study uses a well-characterized longitudinal sample (<i>n</i> = 253) to investigate rates of seizures, medication use, and obesity, from early adolescence (age 10 years) into adulthood (age 30 years). Within this sample, 196 participants were diagnosed with autism spectrum disorder (ASD), whereas the remaining 57 participants never received an ASD diagnosis, but, rather, were diagnosed with other neurodevelopmental conditions. Data were collected through parent report questionnaires and in-person interviews and assessments.</p><p><strong>Results: </strong>Seizure onset continued well into adulthood, with two individuals experiencing their first seizure at the age of 25 years. Seizures and neuropsychiatric medication use were both higher for those with lower intelligence quotient (IQs). In addition, medication use increased over time for these individuals, whereas those with higher IQs saw a reduction in medication use with age. Between the ages of 15 to 30 years, the predicted probability of medication use increased from 82% to 88% for those with lower IQs and decreased from 37% to 13% for those with higher IQs. Collectively, almost 70% of all participants in this study were classified as either overweight or obese. Body mass index (BMI) increased throughout adulthood, especially for those with higher IQs. The steepest increase in BMI over time occurred for those with higher IQs who also took antipsychotic medications.</p><p><strong>Conclusion: </strong>Overall, continued risk for developing seizures, high rates of neuropsychiatric medication use, and significant and increasing rates of obesity from adolescence to adulthood underscore the importance of monitoring health issues in autistic individuals and those diagnosed with other neurodevelopmental conditions throughout the lifespan.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 2","pages":"110-119"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9242707/pdf/aut.2020.0080.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9561903","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"This Was Just How This Friendship Worked\": Experiences of Interpersonal Victimization Among Autistic Adults.","authors":"Amy Pearson, Jon Rees, Samantha Forster","doi":"10.1089/aut.2021.0035","DOIUrl":"10.1089/aut.2021.0035","url":null,"abstract":"<p><strong>Background: </strong>The victimization of autistic people by familiar others (interpersonal victimization) is an understudied phenomenon despite suggestions that prevalence rates may be disproportionately high. We know very little about the way autistic people perceive these experiences, and how to support them. The aim of the current study was to explore experiences of interpersonal victimization among autistic adults from their own perspective.</p><p><strong>Methods: </strong>We recruited 43 autistic adults to take part in a qualitative online study, and asked about their experiences of being victimized or taken advantage of by people they know in the past. We analyzed their comments at the semantic level using inductive thematic analysis, from a critical realist perspective.</p><p><strong>Results: </strong>We identified two key themes in the data. The first theme, \"cycles of victimization\" highlighted the occurrence of polyvictimization in the sample. The second (\"perceptions of victimization\") focused on how these experiences were related to difficulties with trust (of both self and others), the recognition of victimization, and heightened compliance. The participants expressed difficulty with saying no to people, and found it difficult to identify when someone had negative or manipulative intentions.</p><p><strong>Conclusions: </strong>Our findings suggest that autistic adults experience victimization from a range of close others, and may find it difficult to recognize when someone is acting in an abusive manner. Many participants had experienced heightened compliance in response to unreasonable requests from others, however, reasons for this were varied (e.g., fear and desire to avoid confrontation) and require further investigation. These findings have implications for developing supports that enable autistic adults to recognize their own boundaries and advocate for themselves, in addition to helping them to recognize what a healthy relationship looks like.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 2","pages":"141-150"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645672/pdf/aut.2021.0035.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9561901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Autistic Perspectives on the Future of Clinical Autism Research.","authors":"Heta Pukki, Jorn Bettin, Avery Grey Outlaw, Joshua Hennessy, Kabie Brook, Martijn Dekker, Mary Doherty, Sebastian C K Shaw, Jo Bervoets, Silke Rudolph, Thibault Corneloup, Kylieanne Derwent, Onemoo Lee, Yadira Garcia Rojas, Wenn Lawson, Monica Vidal Gutierrez, Kosjenka Petek, Myria Tsiakkirou, Annikka Suoninen, Jo Minchin, Rainer Döhle, Silke Lipinski, Heini Natri, Emma Reardon, Giovanna Villarreal Estrada, Ovidiu Platon, Nick Chown, Ayaya Satsuki, Damian Milton, Nick Walker, Ondrej Roldan, Bárbara Herrán, Citlali Limón Cañedo, Sue McCowan, Mona Johnson, Eleanor Jane Turner, Jessy Lammers, Wn-Ho Yoon","doi":"10.1089/aut.2022.0017","DOIUrl":"10.1089/aut.2022.0017","url":null,"abstract":"","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 2","pages":"93-101"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9242721/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10546091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Older Age Autism Research: A Rapidly Growing Field, but Still a Long Way to Go.","authors":"David Mason,&nbsp;Gavin Robert Stewart,&nbsp;Simone Josephine Capp,&nbsp;Francesca Happé","doi":"10.1089/aut.2021.0041","DOIUrl":"https://doi.org/10.1089/aut.2021.0041","url":null,"abstract":"<p><strong>Background: </strong>There is a paucity of research involving older autistic people, as highlighted in a number of systematic reviews. However, it is less clear whether this is changing, and what the trends might be in research on autism in later life.</p><p><strong>Methods: </strong>We conducted a broad review of the literature by examining the number of results from a search in three databases (PubMed, Embase, PsycINFO) across four age groups: childhood, adolescence, adulthood, and older age. We also examined the abstracts of all the included articles for the older age group and categorized them under broad themes.</p><p><strong>Results: </strong>Our database search identified 145 unique articles on autism in older age, with an additional 67 found by the authors (hence, the total number of articles in this review is 212). Since 2012, we found a 392% increase in research with older autistic people, versus 196% increase for childhood/early life, 253% for adolescence, and 264% for adult research. We identify 2012 as a point at which, year-on-year, older age autism research started increasing, with the most commonly researched areas being cognition, the brain, and genetics. However, older adult research only accounted for 0.4% of published autism studies over the past decade.</p><p><strong>Conclusions: </strong>This increase reflects a positive change in the research landscape, although research with children continues to dominate. We also note the <i>difficulty of identifying papers relevant to older age autism research, and propose that a new keyword could be created to increase the visibility and accessibility of</i> research in this steadily growing area.</p>","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 2","pages":"164-172"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9645679/pdf/aut.2021.0041.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9556286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Accepting the Monsters.","authors":"Danny Dunn","doi":"10.1089/aut.2022.0015","DOIUrl":"https://doi.org/10.1089/aut.2022.0015","url":null,"abstract":"","PeriodicalId":72338,"journal":{"name":"Autism in adulthood : challenges and management","volume":"4 2","pages":"102-103"},"PeriodicalIF":0.0,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9907859/pdf/aut.2022.0015.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9556751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}