Palliative Care最新文献

筛选
英文 中文
Palliative Care Ethics: Medicine’s Duty to Help 姑息治疗伦理:医学的帮助责任
Palliative Care Pub Date : 2019-04-06 DOI: 10.5772/INTECHOPEN.85160
Ş. Keleş
{"title":"Palliative Care Ethics: Medicine’s Duty to Help","authors":"Ş. Keleş","doi":"10.5772/INTECHOPEN.85160","DOIUrl":"https://doi.org/10.5772/INTECHOPEN.85160","url":null,"abstract":"In palliative care, death, which is a part of human nature, is considered as a normal process. This type of care is concerned with the quality of life rather than its duration. In this context, the basic aim is to perform practices to relieve the patient in a way that does not raise any ethical suspicion. Within this framework, it can be said that palliative care is a requirement of medicine’s duty to help. The aim of this chapter is to draw attention to the importance of ethical values in the configuration of palliative care services for patients who are in the last period of their life or the ones who have terminal illnesses. In palliative care, it is essential to arrange care services in a manner that does not raise any ethical doubt about the measures taken to increase beneficence both to the patients who are in the last days of their life and to their relatives. In this study, “The Directive for Implementing Procedures of Palliative Care Services” prepared by the Ministry of Health in Turkey in 2015 will be evaluated in terms of ethics.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.5772/INTECHOPEN.85160","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46237667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Palliative Care Network in Brazil 巴西姑息治疗网络
Palliative Care Pub Date : 2019-03-28 DOI: 10.5772/INTECHOPEN.85169
J. Munis, Juliana Dias Reis Pessalacia, Jacqueline Resende Boaventura, Ana Paula Da Silva, Luciana Ferreira Da Silva, Aires Garcia dos Santos Júnior, A. M. Ferreira
{"title":"Palliative Care Network in Brazil","authors":"J. Munis, Juliana Dias Reis Pessalacia, Jacqueline Resende Boaventura, Ana Paula Da Silva, Luciana Ferreira Da Silva, Aires Garcia dos Santos Júnior, A. M. Ferreira","doi":"10.5772/INTECHOPEN.85169","DOIUrl":"https://doi.org/10.5772/INTECHOPEN.85169","url":null,"abstract":"Brazil is a country with great diversity and distinct realities, so there is a proportional challenge and complexity in offering a unified and integrated system which is accessible, of quality, and effective. Population aging and the increased incidence of chronic-degenerative noncommunicable diseases (NCDs) increase the need for palliative care (PC); however, public policies still need to be implemented so that this care encompasses adequate funding, professional training, and guaranteed medication. The first national policy for PC was recently proposed, providing guidelines for the organization of PC, emphasizing the importance of integration between the different levels of care and services in the Brazilian health system (SUS). Nevertheless, the challenges of this policy include the training of professionals, communication in the network, the absence of integrated health information systems, and effective mechanisms to finance this new modality of care.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.5772/INTECHOPEN.85169","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46886584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative Care Education for Everybody 人人享有姑息治疗教育
Palliative Care Pub Date : 2019-03-26 DOI: 10.5772/INTECHOPEN.85496
G. Bollig
{"title":"Palliative Care Education for Everybody","authors":"G. Bollig","doi":"10.5772/INTECHOPEN.85496","DOIUrl":"https://doi.org/10.5772/INTECHOPEN.85496","url":null,"abstract":"This chapter is about palliative care education for everybody including both professional health care workers and all citizens. A six-step approach to life-long palliative care education (as first described by Bollig in 2008 and published as a conference poster in 2009 and a book in German in 2010) will be proposed and discussed. The chapter will summarize the public knowledge approach to palliative care implementation (Bollig 2008) and other strategies to educate the public about palliative care. The concept of Last Aid courses for citizens will be introduced, and international experiences with this concept will be discussed. A possible combination of Last Aid courses and the compassionate community approach might improve palliative care provision in the community.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.5772/INTECHOPEN.85496","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46856775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Communication with Families in the Last Days of a Patient’s Life and Optimal Delivery of a Death Pronouncement 在病人生命的最后几天与家属的沟通和最佳的死亡宣告
Palliative Care Pub Date : 2019-03-12 DOI: 10.5772/INTECHOPEN.84730
Soichiro Okamoto, Yu Uneno, M. Mori, Takashi Yamaguchi, N. Nakajima
{"title":"Communication with Families in the Last Days of a Patient’s Life and Optimal Delivery of a Death Pronouncement","authors":"Soichiro Okamoto, Yu Uneno, M. Mori, Takashi Yamaguchi, N. Nakajima","doi":"10.5772/INTECHOPEN.84730","DOIUrl":"https://doi.org/10.5772/INTECHOPEN.84730","url":null,"abstract":"Communicating with family members is critically important when a severely ill patient is experiencing their last few days of life. However, healthcare professionals (HCPs) have limited opportunities to learn effective and respectful ways to perform this communication. In recent decades, significant effort has been put forth to identify the phenomena that indicate the last hours and days of life and the optimal methods to deliver a death pronouncement, which will potentially help HCPs communicate compassionately with family members throughout the dying process. In this chapter, we will review the literature regarding the phenomena that indicate the last hours and days of life and the death pronouncement. Furthermore, we will discuss clinical implications derived from those articles and future research perspectives.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.5772/INTECHOPEN.84730","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42719957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Advance care planning in dementia: recommendations for healthcare professionals. 痴呆症的预先护理计划:对医疗保健专业人员的建议
Palliative Care Pub Date : 2019-02-27 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219826579
Karen Harrison Dening, Elizabeth L Sampson, Kay De Vries
{"title":"Advance care planning in dementia: recommendations for healthcare professionals.","authors":"Karen Harrison Dening,&nbsp;Elizabeth L Sampson,&nbsp;Kay De Vries","doi":"10.1177/1178224219826579","DOIUrl":"https://doi.org/10.1177/1178224219826579","url":null,"abstract":"<p><p>The process of advance care planning in dementia is far from straightforward; as dementia progresses, the ability to consider future thoughts and actions becomes compromised, thus affecting decision-making abilities. Family carers find themselves increasingly in a position where they need to inform, or directly make, decisions on behalf of the person with dementia. This article discusses the context and importance of a palliative care approach and recommends rationales and strategies for healthcare professionals to support families affected by dementia to better plan for their future care.</p>","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1178224219826579","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"37185231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 21
The Marquette Palliative Care System 马奎特姑息治疗系统
Palliative Care Pub Date : 2019-02-22 DOI: 10.5772/INTECHOPEN.84475
R. Love, Sheikh Iqbal Ahamed
{"title":"The Marquette Palliative Care System","authors":"R. Love, Sheikh Iqbal Ahamed","doi":"10.5772/INTECHOPEN.84475","DOIUrl":"https://doi.org/10.5772/INTECHOPEN.84475","url":null,"abstract":"Worldwide, major clinical barriers to effective palliative care are the absence of a. current data on symptom type and intensity; b. immediately accessible information on practical, affordable, and effective interventions; and c. self-sustaining systems to facilitate physician engagement in continuing palliative care. Our adaptable system, developed for Bangladesh and Nepal, addresses these barriers. A tele-home palliative care program facilitates home care, minimizes expense, and encourages efficient professional practitioner involvement employing two information technology tools: a patient cell-phone “app” on the Android platform with a 15-item symptom questionnaire and an Internet website with health information sections for patients/families and for clinicians. The physician section contains a guide for patient symptom review, clinical practice palliative care guidelines, secured patient demographics, medical summaries, and current and past symptom reports along with prescription-writing capability. The system is managed by a local organization that registers patients and their physicians, instructs patients on the free download-able application and completes their demographic and medical summaries, and arranges collection of a modest fee. The organization also ensures regular physician/ clinic visits by the patient or by a family member with a patient phone check-in, at least every 2 weeks.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.5772/INTECHOPEN.84475","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47986635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Palliative care and public health: an asymmetrical relationship? 姑息治疗和公共卫生:一种不对称的关系?
Palliative Care Pub Date : 2019-02-20 eCollection Date: 2019-01-01 DOI: 10.1177/1178224218819745
Sandy Whitelaw, David Clark
{"title":"Palliative care and public health: an asymmetrical relationship?","authors":"Sandy Whitelaw, David Clark","doi":"10.1177/1178224218819745","DOIUrl":"10.1177/1178224218819745","url":null,"abstract":"<p><p>Interest in the potential for public health and palliative care to work together is now widely established. Based on a mapping review of existing literature, we describe for the first time the ways in which public health has entered palliative care policy and practice and how this has been specifically articulated. We then go on to pursue analytical and critical lines of enquiry that are largely absent from the existing literature. We do this in three ways: (i) by considering why the link between public health and palliative care has become so ubiquitous within palliative care policy; (ii) by establishing how this has been constructed; and (iii) by exploring public health as a 'reference discipline' from which its 'secondary deployment' can become embedded <i>inside</i> another disciplinary field. From this, we develop a range of critical perspectives on the relationship between public health and palliative care by scrutinising its claims of utility and effectiveness and questioning the strength of the interdisciplinary interaction between the two disciplines. We see their relationship in a 'cross disciplinary' context which is still largely symbolic and tactical in nature. We conclude by considering the significance of these insights for policy and practice, with two possible scenarios. If the use of public health is essentially figurative and its resources are not unique, the particular and exclusive use of the term becomes insignificant. Progressive and effective policy and practice is possible, independent of any explicit public health label. If however public health is considered to have intrinsic and definable worth, we suggest that this currently asymmetrical association needs to be significantly developed with much higher levels of theoretical, practical and critical engagement between the two disciplines. Such work would result in more reflective and robust policy and practice.</p>","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6383085/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"37006753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Primary palliative care in southern Brazil: the legacy of Cicely Saunders. 巴西南部的初级姑息治疗:Cicely Saunders的遗产。
Palliative Care Pub Date : 2019-02-18 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219825874
Santiago Rodríguez Corrêa, Carla Mazuko, David Clark
{"title":"Primary palliative care in southern Brazil: the legacy of Cicely Saunders.","authors":"Santiago Rodríguez Corrêa,&nbsp;Carla Mazuko,&nbsp;David Clark","doi":"10.1177/1178224219825874","DOIUrl":"https://doi.org/10.1177/1178224219825874","url":null,"abstract":"Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). As her undergraduate medical studies drew to a close, Cicely Saunders, whose centenary is being celebrated in 2018, was moved to write her first article and to submit it for consideration to the St Thomas’s Hospital Gazette. Published in 1958, it proved to be a remarkably complete statement about the issue of terminal care in Britain at that time, and a manifesto for what might be done in the future.1","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1178224219825874","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36994852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The effectiveness of pancreatic enzyme replacement therapy for malabsorption in advanced pancreatic cancer, a pilot study. 胰酶替代疗法治疗晚期胰腺癌吸收不良的有效性,一项初步研究。
Palliative Care Pub Date : 2019-02-17 eCollection Date: 2019-01-01 DOI: 10.1177/1178224218825270
Amanda Landers, Helen Brown, Matthew Strother
{"title":"The effectiveness of pancreatic enzyme replacement therapy for malabsorption in advanced pancreatic cancer, a pilot study.","authors":"Amanda Landers,&nbsp;Helen Brown,&nbsp;Matthew Strother","doi":"10.1177/1178224218825270","DOIUrl":"https://doi.org/10.1177/1178224218825270","url":null,"abstract":"<p><p>Advanced adenocarcinoma of the pancreas has a globally poor prognosis. One of the characteristic features of pancreatic cancer (PC) is pancreatic exocrine insufficiency (PEI). This leads to a malabsorption syndrome and subsequent digestive symptoms. Given the high prevalence of PEI and malabsorption in PC, empiric use of pancreatic enzyme replacement therapy (PERT) is recommended. The aim of this pilot study was to determine the potential efficacy of PERT in improving symptoms and quality of life in those with metastatic PC. The study recruited patients with advanced PC referred to a specialist palliative care service. Following an initial assessment, patients were commenced on pancrealipase 25,000IU (Creon) and reassessed after 1 week and 3 weeks post-initiation of supplementation. These assessments included demographics, malabsorption symptom checklist, and completion of two validated quality-of-life questionnaires, the European Organisation for Research and Treatment of Cancer QLQ-C30 and QLQ-PAN26. PERT was associated with statistically significant improvement of symptoms in both the general (QLQ-C30) and pancreatic cancer specific tool (PAN26). Within 1 week of PERT initiation, there was a reduction in diarrhoea scores (26 vs. 8, <i>p</i><0.005), pancreatic and hepatic pain (47 vs. 33 and 24 vs. 11, respectively, <i>p</i><0.05). After 3 weeks, there were significant improvements in pancreatic pain and bloating/gas symptoms (47 vs. 26 and 46 vs. 26, respectively, <i>p</i>< 0.005). PERT appears to have the potential to improve symptoms of malabsorption in patients with metastatic PC.</p>","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1178224218825270","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36994851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 25
What is hypnosis and how might it work? 什么是催眠?它是如何起作用的?
Palliative Care Pub Date : 2019-01-31 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219826581
Ann Williamson
{"title":"What is hypnosis and how might it work?","authors":"Ann Williamson","doi":"10.1177/1178224219826581","DOIUrl":"https://doi.org/10.1177/1178224219826581","url":null,"abstract":"Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). Hypnosis can be seen as ‘a waking state of awareness, (or consciousness), in which a person’s attention is detached from his or her immediate environment and is absorbed by inner experiences such as feelings, cognition and imagery’.1 Hypnotic induction involves focusing of attention and imaginative involvement to the point where what is being imagined feels real. By the use and acceptance of suggestions, the clinician and patient construct a hypnotic reality.","PeriodicalId":56348,"journal":{"name":"Palliative Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1178224219826581","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36937280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信