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Older Adults Perceptions of Data Privacy in Smart Technologies: A Qualitative Study. 老年人对智能技术中数据隐私的看法:一项定性研究。
Sage open aging Pub Date : 2026-09-08 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261481859
Jeannine M Rowe, Deanna D 'Amico Guthrie, Jiazhen Zhou, Roger Yin
{"title":"Older Adults Perceptions of Data Privacy in Smart Technologies: A Qualitative Study.","authors":"Jeannine M Rowe, Deanna D 'Amico Guthrie, Jiazhen Zhou, Roger Yin","doi":"10.1177/30495334261481859","DOIUrl":"10.1177/30495334261481859","url":null,"abstract":"<p><p>Older adults' perspectives on data privacy and smart health devices (SHDs) are essential for understanding potential security risks. However, limited research examines these perspectives. This qualitative study addresses this gap. Semi-structured interviews were conducted with 42 older adults residing in a Midwestern State. Interviews were analyzed using thematic analysis and five themes were developed: (1) Tools for Sustained Self-Management - indicating the use of SHDs to manage chronic health conditions and improve health, and for non-medical purposes; (2) Tools for Health and Reassurance - revealing convenience of SHDs and utility to promote healthy behaviors; (3) Uncertainty and Limited Awareness of Data Governance - highlighting lack of awareness regarding who accesses, collects, stores, and owns SHD data, and limited understanding of privacy practices; (4) Perceived Security Through Trust and Low Risk Appraisal - documenting low perceptions regarding sensitivity of data and placing trust in institutions to safeguard data, and (5) Exercising Control Over Data Sharing - showing the desire to control the sharing of personal data. Findings highlight the need for improved digital literacy education, particularly on how SHDs manage data. They further highlight the need for SHD developers to include older adults in discussions about data governance and device design.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261481859"},"PeriodicalIF":0.0,"publicationDate":"2026-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13554582/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148922619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Aging in the Himalayas: Assessing the Quality of Life and Needs of Senior Citizens in Lomanthang, Nepal. 喜马拉雅地区的老龄化:评估尼泊尔洛曼唐地区老年人的生活质量和需求。
Sage open aging Pub Date : 2026-09-07 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261485627
Suraj Parajuli, Serena Hartmann, Puspa Raj Pant, Puspa Mani Kharal, Tsering Wangmo Gurung, Hem Raj Dhakal, Puspa Bhandari, Tulasi Acharya
{"title":"Aging in the Himalayas: Assessing the Quality of Life and Needs of Senior Citizens in Lomanthang, Nepal.","authors":"Suraj Parajuli, Serena Hartmann, Puspa Raj Pant, Puspa Mani Kharal, Tsering Wangmo Gurung, Hem Raj Dhakal, Puspa Bhandari, Tulasi Acharya","doi":"10.1177/30495334261485627","DOIUrl":"10.1177/30495334261485627","url":null,"abstract":"<p><p>The elderly population in Lomanthang Rural Municipality, Mustang, accounts for 13% of the total population, significantly exceeding the national average of 6.93%. We conducted a cross-sectional survey with narrative components designed to comprehensively assess their healthcare needs and Quality of Life (QoL). We surveyed all 188 older adults in the region. Functional assessment showed over 90% of participants managed daily activities independently. 58.51% reported uncomfortable movement within their homes due to architectural barriers such as stairs and unfriendly toilets. Social assessment revealed that 62.23% lived with their children, whereas 37.77% lived without children. Physical health findings showed widespread musculoskeletal pain (84.57%) and sight impairments (65.42%). 8.51% of respondents were hypertensive, while 5.85% had signs of malnutrition (upper arm circumference <21 cm). Mental health and well-being assessment revealed that 71.81% had forgetfulness and 5.85% had suspected cognitive impairment. Furthermore, we found that their happiness lies in their relationship with family and good friends. Overall, 20.20% were classified as requiring professional care support. This research underscored the need for interventions to provide timely physical check-ups and improve easy access to basic healthcare services and social connections through FCHVs- an effective community-based approach to enhancing their quality of life and addressing healthcare needs.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261485627"},"PeriodicalIF":0.0,"publicationDate":"2026-09-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13554680/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148922616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From Evidence to Action: Translating Research Into Policy and Practice Communication Tools. 从证据到行动:将研究转化为政策和实践交流工具。
Sage open aging Pub Date : 2026-09-04 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261488156
Katherine M Abbott, Molly Noble, John Beilenson, Christine Gherst, Jane Donahue, Kimberly Van Haitsma
{"title":"From Evidence to Action: Translating Research Into Policy and Practice Communication Tools.","authors":"Katherine M Abbott, Molly Noble, John Beilenson, Christine Gherst, Jane Donahue, Kimberly Van Haitsma","doi":"10.1177/30495334261488156","DOIUrl":"10.1177/30495334261488156","url":null,"abstract":"<p><strong>Background: </strong>Preference-based, person-centered care is essential to improving quality of life for older adults living in nursing homes (NHs). Communicating the rationale to implement evidence-based practices to policy makers and NH administrators amid competing priorities is challenging.</p><p><strong>Objective: </strong>This article describes an initiative that developed two communication tools-a value proposition statement and a policy brief-to promote adoption of the evidence-based Preferences for Everyday Living Inventory (PELI) in NHs.</p><p><strong>Methods: </strong>The PELI is a validated assessment that elicits NH residents' daily living preferences to inform care planning. Guided by knowledge translation, this project aimed to bridge research evidence and practice realities. To develop the value proposition statement, we identified the primary audience, developed a draft, and sought feedback from professionals to create a final version and accompanying policy brief.</p><p><strong>Results: </strong>A value proposition statement and a policy brief were created to communicate the return on investment of preference-based care and identify policy levers to incentivize implementation.</p><p><strong>Discussion: </strong>This initiative demonstrates how applied gerontological research can inform system-level change by supporting moving of preference-based, person-centered care from evidence to everyday practice. The tools serve complementary purposes, engaging providers and policymakers to communicate evidence into practice and policy.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261488156"},"PeriodicalIF":0.0,"publicationDate":"2026-09-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13547797/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148908608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nicotinic Acetylcholine Receptor Modulation Distinguishes Clinical Benefits of Galantamine in Alzheimer's Disease. 烟碱乙酰胆碱受体调节区分加兰他明在阿尔茨海默病中的临床益处。
Sage open aging Pub Date : 2026-09-01 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261485634
Pavel V Svintozelskiy, Andrew J Wahlert, Carson Harrod, Denis G Kay, Kurt P Grady, George T Grossberg
{"title":"Nicotinic Acetylcholine Receptor Modulation Distinguishes Clinical Benefits of Galantamine in Alzheimer's Disease.","authors":"Pavel V Svintozelskiy, Andrew J Wahlert, Carson Harrod, Denis G Kay, Kurt P Grady, George T Grossberg","doi":"10.1177/30495334261485634","DOIUrl":"10.1177/30495334261485634","url":null,"abstract":"<p><p>Alzheimer's disease (AD) is the leading cause of dementia and represents a public health challenge in aging populations. Acetylcholinesterase inhibitors (AChEIs) remain first-line symptomatic therapy for mild to moderate AD, with real-world effectiveness largely influenced by tolerability, adherence, and treatment persistence. Galantamine and its inactive prodrug benzgalantamine are differentiated within the class by a dual mechanism that combines reversible acetylcholinesterase inhibition with positive allosteric modulation of nicotinic acetylcholine receptors. This narrative review synthesizes preclinical and clinical evidence examining galantamine-based therapy, with a focus on aspects related to nicotinic acetylcholine receptors: behavioral symptoms and sleep-related effects. Across randomized, observational, and longitudinal studies, galantamine has been associated with improvement or stabilization in behavioral domains including aberrant motor behavior, agitation/aggression, anxiety, apathy, delusions, disinhibition, and hallucinations. However, like other members of the AChEI class, gastrointestinal tolerability issues may affect treatment persistence. Benzgalantamine was developed to address gastrointestinal tolerability, with the aim of improving adherence and long-term treatment continuity.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261485634"},"PeriodicalIF":0.0,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13535079/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148883376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Toward Better Nights: Sleep Hygiene, Depression, Pain, and Insomnia in Geriatric Palliative Veterans. 迈向更好的夜晚:睡眠卫生、抑郁、疼痛和失眠症在老年姑息治疗退伍军人。
Sage open aging Pub Date : 2026-08-28 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261485624
Maria Tanielian, Anjuli Vasquez, Rachel Schwartz, Erika Hochstein, Marina Morkos, Georges Assaf, Maritza Garza, Michael J Mader
{"title":"Toward Better Nights: Sleep Hygiene, Depression, Pain, and Insomnia in Geriatric Palliative Veterans.","authors":"Maria Tanielian, Anjuli Vasquez, Rachel Schwartz, Erika Hochstein, Marina Morkos, Georges Assaf, Maritza Garza, Michael J Mader","doi":"10.1177/30495334261485624","DOIUrl":"10.1177/30495334261485624","url":null,"abstract":"<p><p>Insomnia is common among older adults receiving palliative care, yet the role of sleep hygiene in insomnia severity remains unclear. We conducted a cross-sectional study of 76 older veterans receiving outpatient palliative care (mean age, 75 years; 85.5% male). Participants completed the Sleep Hygiene Index, Insomnia Severity Index, Epworth Sleepiness Scale, and Geriatric Depression Scale. Nighttime pain was assessed using a 0-10 numeric rating scale. Multivariable linear regression examined the association between sleep hygiene and insomnia severity after adjusting for age, depressive symptoms, and nighttime pain. Poorer sleep hygiene was independently associated with greater insomnia severity (B = 0.382, 95% CI, 0.198-0.566; p < 0.001). Higher depressive symptoms (B = 1.063, 95% CI, 0.684-1.442; p < 0.001) and nighttime pain (B = 0.725, 95% CI, 0.331-1.119; p < 0.001) were also independently associated with greater insomnia severity. These findings support the potential value of addressing sleep hygiene alongside depressive symptoms and nighttime pain in palliative care. Prospective and interventional studies are needed to determine whether such approaches improve sleep outcomes.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261485624"},"PeriodicalIF":0.0,"publicationDate":"2026-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13525283/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148857956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Older People at High Risk of Falls With and Without Cognitive Impairment and Factors Related to Falls: A Cross-Sectional Study. 有或无认知障碍的老年人跌倒高风险及跌倒相关因素:一项横断面研究。
Sage open aging Pub Date : 2026-08-27 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261478667
Daiene de Morais, Madson Alan Maximiano-Barreto, Luana Flávia Talmelli-Ruy, Ana Laura Baldi, Caroline Barbalho Lamas, Ana Laura Oliveira Dias, Karina Gramani-Say, Juliana Hotta Ansai
{"title":"Older People at High Risk of Falls With and Without Cognitive Impairment and Factors Related to Falls: A Cross-Sectional Study.","authors":"Daiene de Morais, Madson Alan Maximiano-Barreto, Luana Flávia Talmelli-Ruy, Ana Laura Baldi, Caroline Barbalho Lamas, Ana Laura Oliveira Dias, Karina Gramani-Say, Juliana Hotta Ansai","doi":"10.1177/30495334261478667","DOIUrl":"10.1177/30495334261478667","url":null,"abstract":"<p><p>Cognitive impairment in older adults is associated with reduced functionality, impaired mobility, and increased fall risk, although the mechanisms linking these factors remain unclear. This study compared clinical and sociodemographic characteristics of community-dwelling older adults at high risk of falls with and without cognitive impairment and identified factors associated with the number of falls in each group. In this cross-sectional study, 118 older adults were assessed and classified as having cognitive impairment using the Mini-Mental State Examination and/or ACE-R. Sociodemographic, clinical, cognitive, psychological, functional, mobility (single- and dual-task Timed Up and Go), and fall history data were collected. Older adults with cognitive impairment (n=63) showed worse cognitive, functional, and mobility performance than those without impairment (n=55), although no difference was observed in the number of falls (p>0.05). Simple linear regression revealed that self-rated health was the only predictor of falls among individuals with cognitive impairment, whereas the number of medications predicted falls in those without impairment. Cognitive impairment is associated with greater multidimensional vulnerability, and fall-related factors differ between groups, indicating distinct risk mechanisms.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261478667"},"PeriodicalIF":0.0,"publicationDate":"2026-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13522682/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148852347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Life Story Book Experience With Residents With Neurocognitive Disorders in Long-Term Care and Their Caregivers: A Mixed-Methods Study. 生活故事书的经验与居民神经认知障碍的长期护理和他们的照顾者:一个混合方法的研究。
Sage open aging Pub Date : 2026-08-22 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261481199
Marie-Soleil Hardy, Camille Savoie, Maude Laberge, Chaimaa Fanaki
{"title":"The Life Story Book Experience With Residents With Neurocognitive Disorders in Long-Term Care and Their Caregivers: A Mixed-Methods Study.","authors":"Marie-Soleil Hardy, Camille Savoie, Maude Laberge, Chaimaa Fanaki","doi":"10.1177/30495334261481199","DOIUrl":"10.1177/30495334261481199","url":null,"abstract":"<p><strong>Background: </strong>Residents with neurocognitive disorders in long-term care facilities experience behavioral and psychological symptoms that affect well-being and relationships. Life story books, personalized compilations of memories, may enhance communication and emotional connection through reminiscence.</p><p><strong>Objectives: </strong>To examine observed changes in the effects and acceptability of the life story books intervention among residents with neurocognitive disorders and their informal caregivers.</p><p><strong>Methods: </strong>A convergent mixed-methods design was conducted in three long-term care facilities with sixteen resident-caregiver dyads. Quantitative data were collected before and after a six-month intervention, complemented by qualitative interviews and observations.</p><p><strong>Results: </strong>Fifteen residents and eleven caregivers completed the study. Quantitative findings revealed changes in positive affect and pleasure, as well as reduced agitated behaviors and an increase in irritability. Qualitative findings highlighted enhanced engagement, communication, and emotional connection. Caregivers reported high acceptability and confidence in using the books, despite occasional emotional ambivalence.</p><p><strong>Conclusion: </strong>Life Story Book is a feasible and person-centred intervention that shows promise in promoting emotional well-being and meaningful connections in the context of dementia care.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261481199"},"PeriodicalIF":0.0,"publicationDate":"2026-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13500964/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148815485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association Between Leisure Activity Frequency, Number of Activities, and the Residential Environment Among Community-Dwelling Older Japanese Adults: A Questionnaire Survey in Fukushima Prefecture. 日本社区老年人休闲活动频率、活动次数与居住环境的关系:福岛县问卷调查。
Sage open aging Pub Date : 2026-08-20 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261481206
Natsumi Kimura, Masataka Ando, Toshimasa Sone, Akihiko Asao, Maki Ogasawara, Masayuki Hoshi, Tatsuya Nakanowatari, Toshimi Sato, Yuko Horikoshi, Rie Sakuraba-Hirata, Yoshitaka Shiba
{"title":"Association Between Leisure Activity Frequency, Number of Activities, and the Residential Environment Among Community-Dwelling Older Japanese Adults: A Questionnaire Survey in Fukushima Prefecture.","authors":"Natsumi Kimura, Masataka Ando, Toshimasa Sone, Akihiko Asao, Maki Ogasawara, Masayuki Hoshi, Tatsuya Nakanowatari, Toshimi Sato, Yuko Horikoshi, Rie Sakuraba-Hirata, Yoshitaka Shiba","doi":"10.1177/30495334261481206","DOIUrl":"10.1177/30495334261481206","url":null,"abstract":"<p><p>With the rapid aging of the Japanese population, loneliness, social isolation, and mental health decline have become major public health concerns. Leisure activities contribute to health and well-being in later life; however, associations with residential factors remain unclear. This study examined associations between leisure activity participation (frequency and number of activities) and the residential environment among community-dwelling older adults in Japan. A cross-sectional questionnaire survey was conducted on 324 adults aged ≥ 65 years in Fukushima Prefecture. Leisure activities were assessed using a leisure activity scale, and residential factors included housing type, mode of transportation, and neighborhood environment. Multiple and logistic regression analyses were conducted. The results indicated that greater participation was associated with living in a detached house, driving a private car, and access to public transport. Although associations with individual leisure activities were more limited. Nevertheless, overall leisure activity participation was associated with housing type, family composition, access to public transport and recreational facilities and driving a private car. Therefore, transportation access, family support, and community engagement may be related to leisure activity participation in later life. However, causal relationships and the direction of these associations cannot be determined. Further longitudinal and multifaceted studies are warranted.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261481206"},"PeriodicalIF":0.0,"publicationDate":"2026-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13494292/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148805575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Safe Enough to Thrive: A Dignity of Risk Framework for Older Adult Mental Health Care. 安全到足以茁壮成长:老年人精神卫生保健的风险尊严框架。
Sage open aging Pub Date : 2026-08-17 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261479384
William McKenna
{"title":"Safe Enough to Thrive: A Dignity of Risk Framework for Older Adult Mental Health Care.","authors":"William McKenna","doi":"10.1177/30495334261479384","DOIUrl":"https://doi.org/10.1177/30495334261479384","url":null,"abstract":"<p><strong>Background: </strong>Older adults with psychiatric disorders and/or neurocognitive impairment are often cared for in restrictive settings such as long-term care facilities and inpatient psychiatric hospitals. Risk-averse institutional cultures can lead to overly restrictive practices that prioritize safety at the expense of autonomy and dignity.</p><p><strong>Objective: </strong>To develop a geropsychology-informed dignity of risk framework that helps clinicians and teams balance safety and autonomy in geriatric mental health care.</p><p><strong>Methods: </strong>This conceptual paper integrates psychological, gerontological, and philosophical literature, including human rights perspectives, geropsychological work on fluctuating capacity and serious mental illness, and empirical studies of institutional risk cultures, coercion, and ageism.</p><p><strong>Results: </strong>The resulting framework comprises five elements: (1) clarifying older adults' values and goals; (2) assessing and supporting decision-making capacity; (3) distinguishing everyday life risk from high, non-negotiable risk; (4) explicitly weighing psychological benefits alongside physical risks; and (5) documenting \"safe enough\" risk-sharing plans in partnership with older adults, families, and staff.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261479384"},"PeriodicalIF":0.0,"publicationDate":"2026-08-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13482054/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148805559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Facilitating Supportive Care Decision-Making for Persons with Dementia: Qualitative Insights from Health Care Professionals. 促进痴呆患者的支持性护理决策:来自卫生保健专业人员的定性见解。
Sage open aging Pub Date : 2026-08-07 eCollection Date: 2026-01-01 DOI: 10.1177/30495334261476104
Jean O Taylor, Rashmi K Sharma, Maryam S Abdel Magid, Kimiko Domoto-Reilly, Anne M Turner
{"title":"Facilitating Supportive Care Decision-Making for Persons with Dementia: Qualitative Insights from Health Care Professionals.","authors":"Jean O Taylor, Rashmi K Sharma, Maryam S Abdel Magid, Kimiko Domoto-Reilly, Anne M Turner","doi":"10.1177/30495334261476104","DOIUrl":"10.1177/30495334261476104","url":null,"abstract":"<p><strong>Background: </strong>Persons living with dementia (PLWDs) and their care partners (CPs) often face decisions about future supportive care transitions.</p><p><strong>Methods: </strong>We conducted in-depth interviews with a purposive sample of healthcare professionals (HCPs) experienced in supporting PLWDs and CPs with transitions in care. Interviews were audio recorded, transcribed, and coded using a hybrid deductive-inductive approach. We used thematic analysis to identify key themes regarding factors influencing supportive care decisions and planning and decision-making facilitators used by HCPs.</p><p><strong>Results: </strong>Qualitative analysis of 18 interviews revealed four themes: (1) difficulty thinking about the future; (2) increasing CP burden with disease progression; (3) uncertainty about costs and resources; and (4) the impact of cultural values. HCP strategies to support decision-making included building trust; timely education; and facilitating access to resources. HCP input suggested the importance of an accessible decision tool, sensitive to sociocultural values, and administered by trusted experts.</p><p><strong>Conclusion: </strong>We identified themes to inform development of a decision tool to support PLWDs and CPs supportive care transitions. HCPs highlighted the importance of early access to decision-making tools to facilitate dementia care planning and education.</p>","PeriodicalId":520851,"journal":{"name":"Sage open aging","volume":"12 ","pages":"30495334261476104"},"PeriodicalIF":0.0,"publicationDate":"2026-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13451689/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148698739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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