Journal of empirical research on human research ethics : JERHRE最新文献_第7页

Graduates of Caribbean Training Program Contribute to Strengthening Bioethics Systems, but More Support is Needed. 加勒比培训项目的毕业生有助于加强生物伦理体系，但需要更多的支持。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-11-24 DOI: 10.1177/15562646251397188

Onohomo Adebo, Donald T Simeon

{"title":"Graduates of Caribbean Training Program Contribute to Strengthening Bioethics Systems, but More Support is Needed.","authors":"Onohomo Adebo, Donald T Simeon","doi":"10.1177/15562646251397188","DOIUrl":"10.1177/15562646251397188","url":null,"abstract":"We conducted a retrospective pre-post study to determine the changes in research ethics-related practices that occurred after participation in a training program in the Caribbean. Using online questionnaires, we collected data on bioethics activities of alumni before and following training. Participants also indicated how else they thought the program could produce greater benefits. Of 40 English-speaking alumni, 20 (50%) completed questionnaires. There was greater participation in outreach education activities after the program (55%) compared with before (25%). No significant change was observed in other activities; however, at least half of the graduates served on research ethics committees, engaged in advocacy, or carried out bioethics-related duties in their jobs. Time constraints and insufficient opportunities were cited as reasons for not participating in more activities. Alumni also felt that they would have benefited from practical interventions such as internships. Graduates could contribute more to strengthening bioethics systems in the Caribbean with greater support from key stakeholders.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"15562646251397188"},"PeriodicalIF":1.1,"publicationDate":"2025-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12914572/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145597756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From Paper to Platform: Ethics Review in a Digital Age - A Kenyan Case. 从论文到平台：数字时代的伦理审查——肯尼亚案例。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-06 DOI: 10.1177/15562646251380741

Brenda Adhiambo Odero, Candice Groenewald

引用次数: 0

Ethical Practices for Gaining Access for Research with Deaf Communities in South Africa: A Case of South African Sign Language. 南非聋人社区研究准入的伦理实践：以南非手语为例。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-07-07 DOI: 10.1177/15562646251353471

Patrick Sibanda, Chrismi-Rinda Loth, Sara Siyavoshi

{"title":"Ethical Practices for Gaining Access for Research with Deaf Communities in South Africa: A Case of South African Sign Language.","authors":"Patrick Sibanda, Chrismi-Rinda Loth, Sara Siyavoshi","doi":"10.1177/15562646251353471","DOIUrl":"10.1177/15562646251353471","url":null,"abstract":"Research ethics frameworks used in South Africa view Deafness from a biomedical perspective. Unfortunately, this could hinder research access to Deaf communities. Deaf-centric best practices draw from sociocultural perspectives instead. Motivated by this lack of Deaf-centric provisions for research with Deaf communities in the existing legal ethical frameworks in South Africa, this article examines best practices for gaining access to Deaf communities based on a broader study on South African Sign Language place names. The article synthesises ethical guidelines from literature and infuses them with the researchers' own experiences during fieldwork of the broader study to come up with best practices. These include community engagement and collaborative partnerships, seeking ethics clearance; respecting conventions of the Deaf culture, and strategically managing discontent. We conclude that these best practices could form a foundation for a future research ethics framework that considers Deaf-centric practices.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"222-232"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12480613/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144577586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Examining Research Ethics and Integrity at a Public University in Bolivia. 考察玻利维亚一所公立大学的研究伦理和诚信。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-09-09 DOI: 10.1177/15562646251369924

Sarah Sullivan, Abigail Nina, Scarley Martinez-Pérez, Armando Basagoitia, Jessica S Schwind

{"title":"Examining Research Ethics and Integrity at a Public University in Bolivia.","authors":"Sarah Sullivan, Abigail Nina, Scarley Martinez-Pérez, Armando Basagoitia, Jessica S Schwind","doi":"10.1177/15562646251369924","DOIUrl":"10.1177/15562646251369924","url":null,"abstract":"This descriptive cross-sectional study examined research ethics and integrity at a public university in Bolivia. We surveyed university professors, directors, and deans and analyzed secondary data from graduate student research manuscripts. The results showed gaps in the university professors' understanding and implementation of research ethics and integrity in their work. Findings indicated that while university leaders acknowledged serious research ethics and integrity challenges, they were largely unaware of the lack of policies and guidance to support ethical research practices. Furthermore, manuscript reviews revealed that graduate students did not consistently follow responsible research practices. These results highlight significant gaps in the research infrastructure, suggesting a need for comprehensive policies and education to improve research ethics and integrity in academic settings in Bolivia. This research serves as a baseline for change in-country and can inform the development of capacity training programs and quality research practices in similar low and middle-income country universities.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"200-209"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145031671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationships Between Ethical Conduct, Ethics Review and Education Within Scholarship of Teaching and Learning Research: Exploring Student Perspectives from Sweden and Aotearoa New Zealand. 教与学研究学术中伦理行为、伦理审查与教育的关系：来自瑞典和新西兰的学生视角探索。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-08-03 DOI: 10.1177/15562646251360463

Amanda B Lees, Rosemary Godbold, Simon Walters, Inger Eliasson

{"title":"Relationships Between Ethical Conduct, Ethics Review and Education Within Scholarship of Teaching and Learning Research: Exploring Student Perspectives from Sweden and Aotearoa New Zealand.","authors":"Amanda B Lees, Rosemary Godbold, Simon Walters, Inger Eliasson","doi":"10.1177/15562646251360463","DOIUrl":"10.1177/15562646251360463","url":null,"abstract":"Participant input in determining ethical conduct in research has the potential to play a greater role in shaping research ethics. Our study explored perspectives on ethical conduct in Scholarship of Teaching and Learning (SoTL) research from forty-two students from two universities, one in Sweden and one in Aotearoa New Zealand (NZ), where ethics review requirements for tertiary SoTL research significantly differ. A combination of global and local values informed participants' decisions. Commonly, students expected participation to be voluntary and informed, with grades protected. Students considered participation in SoTL research based on the trustworthiness of the teacher. We found two local differences. Firstly, a utilitarian justification was present within participatory decisions of the Swedish cohort, while a justice lens predominated among NZ students. Secondly, hands-on learning experiences may help nurture the capacity for moral judgment about research and research ethics. This appeared more likely in Sweden, where fewer ethics review restrictions exist for SoTL research.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"210-221"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12480611/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144777679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using Virtual Reality in Discrimination Research: Ethical Considerations and Participants' Perspectives. 在歧视研究中使用虚拟现实：伦理考虑和参与者的观点。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-09-01 DOI: 10.1177/15562646251372272

P Priscilla Lui, Elizabeth Stringer, Ernest N Jouriles

引用次数: 0

Conformity with Publication Ethics Guidelines among Nigerian Medical Journals. 尼日利亚医学期刊出版伦理准则的符合性。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-07-31 DOI: 10.1177/15562646251363203

Adaora A Onyiaorah, Euzebus C Ezugwu

{"title":"Conformity with Publication Ethics Guidelines among Nigerian Medical Journals.","authors":"Adaora A Onyiaorah, Euzebus C Ezugwu","doi":"10.1177/15562646251363203","DOIUrl":"10.1177/15562646251363203","url":null,"abstract":"Conformity with publication ethics guidelines by medical journals is vital, especially with increasing pressure to publish and potential for unethical practices that could undermine scientific research integrity and public trust. This study assessed Nigerian medical journals' status concerning conformity with publication ethics guidelines. Cross-sectional survey of Nigerian medical journals using a checklist to obtain information from the journals' websites on journal characteristics and presence of the Committee on Publication Ethics (COPE) 16 principles of 'Transparency and Best Practice in Scholarly Publishing. Forty journals were studied: 57.5% general medical and 42.5% specialty journals. Mean conformity score, 21.8 ± 5.6 (66.1%). All journals conformed to name uniqueness; 2.5% had data sharing policy. More general medical journals, (43.5%) specified readership than specialty journals, (11.8%). Conformity to COPE principles by Nigerian Medical journals was adequate. However, some deficient areas including data sharing and post-publication discussion policies could negatively impact research integrity. Improved adherence is recommended.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"250-258"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12321224/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144755568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Study of Academics' Perceptions of Ethical Implications of Generative Artificial Intelligence on Scientific Research and Publishing. 学者对生成式人工智能对科研和出版的伦理影响的认知研究。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-09-08 DOI: 10.1177/15562646251370869

Perihan Elif Ekmekci, Banu Buruk, Başak Akar, Nazife Yasemin Ardıçoğlu Akışın

引用次数: 0

'Consider a Less Risky Alternative': Navigating Ethics Approval in Suicide Research. “考虑一个风险较小的选择”：在自杀研究中引导伦理批准。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-08-29 DOI: 10.1177/15562646251372240

Joanna Brooke, Caroline Lenette, Jack Shipway

{"title":"'Consider a Less Risky Alternative': Navigating Ethics Approval in Suicide Research.","authors":"Joanna Brooke, Caroline Lenette, Jack Shipway","doi":"10.1177/15562646251372240","DOIUrl":"10.1177/15562646251372240","url":null,"abstract":"This paper discusses key themes from the literature on navigating institutional ethics approval for suicide research. We used a narrative review approach to identify recurring issues that Research Ethics Committees (RECs) commonly raise as concerns and the strategies that might be effective to manage the intricacies of institutional processes. Six dominant themes were: risk aversion overshadowing benefits of suicide research; participant agency and informed consent; ethically reflexive practice is not supported through current processes; dominance of quantitative research tradition; lack of standardisation in RECs decision-making; and lack of evidence on risk in suicide research. Four strategies to navigate institutional ethics approval were: relationship-building and dialogue between researchers and RECs; researcher safeguarding strategies; supporting ethically reflexive practice of the researcher; and RECs processes are evidence-based and provide ethical justification. We suggest how to improve institutional ethics processes specifically for suicide research and highlight the need for more insight into REC members' perspectives.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"233-240"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12480609/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144986374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Unveiling the Ethics of Chinese Biobank: Insights from Consent Document Analysis. 揭示中国生物样本库的伦理：来自同意文件分析的见解。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2025-10-01 Epub Date: 2025-09-08 DOI: 10.1177/15562646251371249

Mingtao Huang, Kun Li, Baicheng Yang, Xiaonan Wang, Jichao Wang, Xiaomei Zhai

{"title":"Unveiling the Ethics of Chinese Biobank: Insights from Consent Document Analysis.","authors":"Mingtao Huang, Kun Li, Baicheng Yang, Xiaonan Wang, Jichao Wang, Xiaomei Zhai","doi":"10.1177/15562646251371249","DOIUrl":"10.1177/15562646251371249","url":null,"abstract":"Biobanking in China has seen rapid development, placing the country as a key player globally. However, significant ethical challenges arise, particularly around donor autonomy in informed consent for collecting and using biological materials and personal data. This study examines how Chinese biobanks inform donors about their participation and the ethical content of consent documents. Using qualitative content analysis, 12 consent documents from various biobanks were reviewed against six ethical dimensions. Findings revealed significant variability, with only two biobanks providing comprehensive information across all dimensions. While all biobanks employed an opt-in consent model, the scope of future research and data-sharing was often vaguely defined, raising concerns about donor autonomy. Practical recommendations include adopting flexible legal approaches to enhance donor rights, build public trust, and support biobank research. These findings offer actionable insights for policymakers and biobank administrators, emphasizing the need for more standardized and transparent consent practices to advance public health and medical research ethically and sustainably.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"241-249"},"PeriodicalIF":1.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145014240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0