Journal of empirical research on human research ethics : JERHRE最新文献_第3页

Attitudes of Longitudinal Study Participants and Members of the Public Towards Data Sharing for Secondary Research: A Survey Based Approach. 纵向研究参与者和公众对二次研究数据共享的态度：基于调查的方法。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-10-01 Epub Date: 2026-06-03 DOI: 10.1177/15562646261452724

Nicola Howe, Thomas Chadwick, Dorothy Newbury-Birch, Elaine McColl

引用次数: 0

Beyond Methodology: The Role of Reflexivity in Ethical Research That Benefits Marginalised Participants and Communities. 超越方法论：反身性在有利于边缘化参与者和社区的伦理研究中的作用。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-10-01 Epub Date: 2026-07-09 DOI: 10.1177/15562646261463356

Bethlehem Tekola

{"title":"Beyond Methodology: The Role of Reflexivity in Ethical Research That Benefits Marginalised Participants and Communities.","authors":"Bethlehem Tekola","doi":"10.1177/15562646261463356","DOIUrl":"10.1177/15562646261463356","url":null,"abstract":"Reflexivity is often framed in qualitative research methods literature as a means of enhancing methodological rigour and research quality. However, less attention has been paid to whether research that meets such standards is also ethically responsive to the needs of participants and communities. In this paper, I critically examine the role of reflexivity in advancing ethical research practices, particularly in studies involving marginalised groups and communities. Drawing on Indigenous and decolonial scholarship, together with insights from my own long-term engagement with marginalised groups and communities, I propose an approach to reflexivity that is community centred and ethically oriented. I further explore the limits of reflexivity in addressing power asymmetries and ensuring that research produces knowledge that matters to researched communities. This paper contributes to ongoing debates in qualitative inquiry by repositioning reflexivity not only as a marker of rigour but as a practice with ethical and political significance for research.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"299-304"},"PeriodicalIF":1.1,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13554362/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148414666","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Experimental Analysis of Research Assent in Children. 儿童研究同意的实验分析。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-10-01 Epub Date: 2026-06-30 DOI: 10.1177/15562646261461801

Sarah C Mead Jasperse, Javier Virués-Ortega, Michelle P Kelly, Shannon N Ward, Aida Tarifa-Rodríguez, Malena Manchado-Porras, Carlos Mera-Cantillo, José Ignacio Navarro-Guzmán

引用次数: 0

Funding and Function During Crises: A Global Survey of Research Ethics Committees During the COVID-19 Pandemic. 危机期间的资金和职能：COVID-19大流行期间研究伦理委员会的全球调查。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-29 DOI: 10.1177/15562646261486085

Carly Jean Seedall, Jūratė Lekstutienė, Vilma Lukaševičienė, Agnė Girkontaitė, Lisa Tambornino, Vygintas Aliukonis, Eugenijus Gefenas

引用次数: 0

When Scientific Validity Overshadows Justice: An Analysis of a Liberian Institutional Review Board's Minutes (2018-2019) Using the Emanuel et al. Framework. 当科学有效性掩盖正义：利比里亚机构审查委员会的会议记录（2018-2019）的分析使用伊曼纽尔等人。框架。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-29 DOI: 10.1177/15562646261488591

Sienneh Zezay Tamba, Marlyn Faure, Heidi Matisonn

{"title":"When Scientific Validity Overshadows Justice: An Analysis of a Liberian Institutional Review Board's Minutes (2018-2019) Using the Emanuel et al. Framework.","authors":"Sienneh Zezay Tamba, Marlyn Faure, Heidi Matisonn","doi":"10.1177/15562646261488591","DOIUrl":"https://doi.org/10.1177/15562646261488591","url":null,"abstract":"Post-Ebola Liberia experienced rapid growth in internationally sponsored health research, increasing demands on institutional review boards (IRBs) amid constrained oversight capacity. This qualitative single-case study analyzed meeting minutes from 2018-2019 from one Liberian IRB, coding 124 documented ethical concerns using Emanuel et al.'s eight-principle framework. Scientific validity accounted for nearly half of concerns, while fair participant selection and informed consent formed a second tier, and collaborative partnership and social value were rarely mentioned. These findings suggest that concerns tied to study design, risk-benefit assessment, and consent are raised more frequently than concerns that explicitly address partnership and social value. We interpret this pattern as a profile of documented deficiencies rather than a hierarchy of the committee's ethical commitments, since minutes capture objections and requests for change. The results highlight opportunities to strengthen attention to collaborative partnership, social value, and equity-oriented capacity-building in IRB procedures, and training in Liberia and aid-dependent settings.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"15562646261488591"},"PeriodicalIF":1.1,"publicationDate":"2026-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149077481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Editorial: Introduction to Special Issue: Outputs of the US NIH Fogarty International Center Research Ethics Curriculum Development Programs 2012-2025. 社论：特刊导论：美国国立卫生研究院福格蒂国际中心研究伦理课程发展计划2012-2025的产出。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-28 DOI: 10.1177/15562646261493361

Douglas R Wassenaar

引用次数: 0

From Biomarker to Social Diagnosis: Reframing the Ethics of HIV Vaccine-Induced Seropositivity. 从生物标志物到社会诊断：重构HIV疫苗诱导血清阳性的伦理。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-20 DOI: 10.1177/15562646261489042

Fan Xia, Shu Xia

引用次数: 0

Comparative Analysis of Large Language Models in Interpreting Publication Research Ethics: Insights from COPE Forum Case Studies. 大语言模型在解释出版研究伦理中的比较分析——来自COPE论坛案例研究的启示。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-17 DOI: 10.1177/15562646261488630

Kannan Sridharan, Gowri Sivaramakrishnan

{"title":"Comparative Analysis of Large Language Models in Interpreting Publication Research Ethics: Insights from COPE Forum Case Studies.","authors":"Kannan Sridharan, Gowri Sivaramakrishnan","doi":"10.1177/15562646261488630","DOIUrl":"https://doi.org/10.1177/15562646261488630","url":null,"abstract":"BackgroundCommittee on Publication Ethics (COPE) serves as one of the key resources for journal editors navigating ethical challenges. This study evaluated two large language models (LLMs) in interpreting real-world publication ethics cases compared to COPE member responses.MethodsEleven anonymized COPE cases were selected. Gemini 2.5 Flash and DeepSeek-V3.2 provided editorial advice for each case. Responses were scored using a structured rubric supplemented by descriptive case-wise comparisons relative to COPE responses.ResultsBoth LLMs generated detailed responses for all cases, with similar domain scores. LLMs largely aligned with COPE, often adding actionable steps like contacting secondary authors or updating policies. However, they occasionally omitted specific COPE suggestions or contradicted guidance.ConclusionLLMs demonstrate competence in interpreting publication research ethics and, when paired with appropriate prompt-engineering training, can offer editors structured, actionable advice. However, their occasional contradictions and inability to fully replicate nuanced human judgment necessitate careful human oversight.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"15562646261488630"},"PeriodicalIF":1.1,"publicationDate":"2026-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148993488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Designing and Evaluating a Project-Oriented Problem-Based Learning Curriculum: A Master's Program in Bioethics and Research Ethics in Colombia. 设计和评估以项目为导向的问题为基础的学习课程：哥伦比亚的生物伦理学和研究伦理学硕士课程。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-09-15 DOI: 10.1177/15562646261487463

Valeriano López-Segura, Helmann Cantor Hernández, María Teresa Gómez Lozano, Manuela Fernández Pinto, Juny Montoya Vargas

引用次数: 0

Misunderstanding and Overprotection: The Impact of Research Ethics Committees on Social Disability Studies in Chile. 误解与过度保护：研究伦理委员会对智利社会残疾研究的影响。

IF 1.1

Journal of empirical research on human research ethics : JERHRE Pub Date : 2026-08-08 DOI: 10.1177/15562646261476110

Pablo Marshall, Florencia Herrera, Nicole Gallegos, Valquiria Ramos, Beatriz Ruíz

{"title":"Misunderstanding and Overprotection: The Impact of Research Ethics Committees on Social Disability Studies in Chile.","authors":"Pablo Marshall, Florencia Herrera, Nicole Gallegos, Valquiria Ramos, Beatriz Ruíz","doi":"10.1177/15562646261476110","DOIUrl":"https://doi.org/10.1177/15562646261476110","url":null,"abstract":"This study explores the experiences of researchers in Chile when submitting disability-related projects to Research Ethics Committees. Through a qualitative approach involving 18 semi-structured interviews with researchers, the study identifies the barriers that arise from applying existing ethical frameworks to social research on disability. The results reveal a \"presumption of incapacity\" toward people with disabilities-an infantilizing and overprotective view that leads to excessive and detrimental requirements. Key findings highlight the questioning of the capacity to consent, the medicalization of disability, and the imposition of third parties in decision-making processes. These practices impact research by altering methodologies, excluding people with disabilities from studies, causing burnout within research teams, and limiting the production of evidence relevant to public policy. The study underscores the need to move toward more flexibility, integrating a rights-based perspective and the necessary supports to ensure the full and effective participation of people with disabilities in research.","PeriodicalId":520668,"journal":{"name":"Journal of empirical research on human research ethics : JERHRE","volume":" ","pages":"15562646261476110"},"PeriodicalIF":1.1,"publicationDate":"2026-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148698717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0