Augmentative and alternative communication (Baltimore, Md. : 1985)最新文献_第6页

Unveiling underlying systemic isolation challenges for AAC users. 为AAC用户揭示潜在的系统隔离挑战。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-14 DOI: 10.1080/07434618.2025.2515279

Grant Blasko

{"title":"Unveiling underlying systemic isolation challenges for AAC users.","authors":"Grant Blasko","doi":"10.1080/07434618.2025.2515279","DOIUrl":"10.1080/07434618.2025.2515279","url":null,"abstract":"This paper examines systemic factors contributing to social isolation for people with communication disabilities, including those who could benefit from, or already rely on, Augmentative and Alternative Communication (AAC) to be heard and understood. Building on existing studies of social isolation that focus on individual risk factors, this paper introduces the concept of systemic isolation, a less recognized form of isolation exacerbated by institutional and societal barriers perpetuating exclusion. By integrating interdisciplinary perspectives from social sciences, public health, and disability studies, the paper critiques established AAC practices, arguing that they often fall short in addressing AAC users' broader social and emotional needs. Specific examples illustrate how systemic barriers work to isolate AAC users - including simplified communication systems, overly restrictive privacy policies, lack of access to collective support and problem-solving, and prioritization of independence over interdependence. These practices exacerbate isolation beyond the risks posed by communication disability alone. There is a moral imperative to address these issues. This paper encourages collaboration between AAC users, researchers, and service providers to reevaluate communication support goals with a focus on preventing isolation and enhancing relational support. The hope is to foster environments that promote greater connection, well-being, and equitable participation for AAC users.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"215-222"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13084300/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

To include us in our own worlds: AAC is not optional. 将我们纳入自己的世界：AAC不是可选的。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-14 DOI: 10.1080/07434618.2025.2515283

Ren Koloni

{"title":"To include us in our own worlds: AAC is not optional.","authors":"Ren Koloni","doi":"10.1080/07434618.2025.2515283","DOIUrl":"10.1080/07434618.2025.2515283","url":null,"abstract":"AAC as a field, a category of technologies, and a culture has advanced tremendously and rapidly in the past 40 years, yet the vast majority of people who cannot rely on speech alone to be heard and understood still lack meaningful access to effective communication that meets their physical, emotional, social, and cultural needs, and fulfills the civil and human rights to which they are entitled. The following article discusses some of the underlying reasons for these access gaps, but more importantly, highlights their devastating effects: an entire disability community subjected to repeated, pervasive, and often lifelong trauma. Indeed, many of the \"challenging behaviors\" traditionally considered inherent to certain communication-related disabilities may actually be the result of communication deprivation and its complications, including lifelong experiences of ableism, abuse, and violence against which one has no recourse. With so much at stake, it is crucial that AAC researchers learn from the words of those of us with access to the tools we need to share them, toward the shared goal of a world where that access is ubiquitous.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"226-229"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13093115/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Future of AAC technologies: priorities for inclusive innovation. AAC技术的未来：包容性创新的重点。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-14 DOI: 10.1080/07434618.2025.2513906

Kevin Williams, Christine Holyfield

{"title":"Future of AAC technologies: priorities for inclusive innovation.","authors":"Kevin Williams, Christine Holyfield","doi":"10.1080/07434618.2025.2513906","DOIUrl":"10.1080/07434618.2025.2513906","url":null,"abstract":"Innovation of AAC technology is urgently needed as existing technology is not fully meeting the needs of the people who rely upon it. Given that real people have urgent needs for significant and effective solutions, it is important that work in innovating AAC emphasizes: intuitiveness, feasibility, sustainability, solutions for those who currently benefit the least from existing technologies, affordability, and parallel advocacy work for expanded AAC funding. Opportunities to innovate AAC technology are bountiful given the fast-paced technology innovation occurring outside of the field of AAC. Areas with strong potential to improve daily communication life in future research and development work include: AAC that is wearable or embedded into the environment, AAC that is more connected to the user and the environment, and AAC that leverages relevant advances from mainstream technology (e.g., new smartphone features; new extended reality capabilities). Innovation does not always result in improved outcomes. For this reason, it is critical that research and development is driven by the people who use the technology, responsive to their expertise, and addressing their most urgent needs. By working collaboratively with stakeholders, researchers and developers will be more likely to create a positive, lasting impact from their work.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"211-214"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13096938/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Speaking from the heart: a story about innovation, resilience, and infinite possibilities with AAC. 发自内心：一个关于AAC创新、韧性和无限可能性的故事。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-06 DOI: 10.1080/07434618.2025.2508491

Godfrey Nazareth

{"title":"Speaking from the heart: a story about innovation, resilience, and infinite possibilities with AAC.","authors":"Godfrey Nazareth","doi":"10.1080/07434618.2025.2508491","DOIUrl":"10.1080/07434618.2025.2508491","url":null,"abstract":"Communication is the cornerstone of human connection, impacting everything from our personal relationships to our professional success. This concept became heartbreakingly real for me when I was diagnosed with motor neuron disease at the age of 25. The rapid decline of my speech left me feeling all alone and isolated. After experimenting with AAC options, I yearned for a system that was lightweight, portable and stylish. This sparked my entrepreneurial spirit, leading me to assemble components catering to my diverse interests and professional pursuits. Over the years, I have built multiple AAC systems using different hardware platforms. Currently, I am focused on integrating emotional expression and faster communication speeds into AAC technology. Artificial intelligence, multi-modal inputs and non-invasive brain-computer interfaces hold immense potential for people who use AAC. Building my communication tools has revealed profound truths about living life to the fullest, accepting complete responsibility for our lives and embracing the good, the bad and the ugly. Through innovation and resilience, I have discovered infinite possibilities and I continue to use AAC to work miracles in my own life.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"248-249"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13092258/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144236726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Alternative ways to access AAC technologies. 访问AAC技术的替代方法。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-13 DOI: 10.1080/07434618.2025.2513902

Pancho Ramirez

引用次数: 0

AAC and technology: what's communication equity got to do with it? AAC和技术：通信公平与它有什么关系？

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-05 DOI: 10.1080/07434618.2025.2504495

Bob Williams

{"title":"AAC and technology: what's communication equity got to do with it?","authors":"Bob Williams","doi":"10.1080/07434618.2025.2504495","DOIUrl":"10.1080/07434618.2025.2504495","url":null,"abstract":"Many, if not most, people who need AAC are still denied effective language-based AAC; assumed illiterate for life; and subjected to extreme isolation and violence. We must secure fundamental fairness and mitigate the multiple and compounding biases and discrimination that those who require AAC endure. We must envisage ways in which people who use AAC can be better heard and live in community with all others. True community is not a dot on a map. It is a way of belonging. The right to community and communication are symbiotic. While our disabilities modify the ways we live, unchallenged biases cripple our lives far more. Communication equity boils down to the societal and legal obligation to ensure that all people have fair and universal, lifelong access to all means of communication. Research is required to determine whether the way we talk about AAC perpetuates the erroneous assumption that people should express themselves and be understood in one prescribed way only. To move toward communication equity, we need research grounded in the lived experiences of those who need or use AAC. We need to work together to bring about communication equity, not for the privileged few, but for all.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"207-210"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13087698/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144228390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

External challenges for individuals who need or use AAC who are learning language: lived experiences, key research findings, and future directions. 需要或使用AAC学习语言的个体面临的外部挑战：生活经历、主要研究成果和未来发展方向。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-05-29 DOI: 10.1080/07434618.2025.2508485

Christine Holyfield, Janice Light, Dana Nieder, Jamie Preece

{"title":"External challenges for individuals who need or use AAC who are learning language: lived experiences, key research findings, and future directions.","authors":"Christine Holyfield, Janice Light, Dana Nieder, Jamie Preece","doi":"10.1080/07434618.2025.2508485","DOIUrl":"10.1080/07434618.2025.2508485","url":null,"abstract":"Language skills are essential to effective communication, but learning language is by no means a simple process for individuals with developmental disabilities who cannot rely on speech alone to be heard and understood. Research demonstrates that augmentative and alternative communication (AAC) interventions positively impact development across language domains (e.g., pragmatics, semantics, morphosyntax) and may also benefit speech production. However, these gains can only be realized if people have timely access to effective AAC and have meaningful opportunities to interact with others. This paper integrates the lived experiences of individuals who need or use AAC and their families with key research findings to highlight external challenges that may negatively impact language learning, including delays in access to AAC, service providers' limited competencies in AAC, the lack of fit between AAC systems and user needs and strengths, limited opportunities for social interaction, and communication partners with limited experience and training in AAC. Future research, technology development, and policy change are urgently required to reduce these barriers. People who need or use AAC and their families must be involved as equitable partners in this work to ensure that it addresses their most pressing needs and results in meaningful and valued outcomes.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"267-279"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13126768/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144176199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Speech is exhausting. 演讲很累人。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-12 DOI: 10.1080/07434618.2025.2513907

Endever Corbin

{"title":"Speech is exhausting.","authors":"Endever Corbin","doi":"10.1080/07434618.2025.2513907","DOIUrl":"10.1080/07434618.2025.2513907","url":null,"abstract":"This paper focuses on my meaningful participation in society as a semispeaking AAC user, the importance of self-determination and interdependence, and the critical role of participatory research. Having spent years in speech-centric services as a child, I pushed myself to use mouthwords for decades. But the cost was high. Such \"expensive speech\" is defined as that which may be effective, but has a significant cost in terms of energy, cognitive resources, or other internal resources, affecting what is available for other or later skills or tasks. Multimodal AAC has decreased my cognitive load, freeing up resources for more meaningful participation in society. Yet many people do not have access to the supports they need to communicate fully. Future research should examine and deconstruct barriers to AAC that are established and maintained by ableism. Every human deserves the opportunity to explore multiple robust AAC options. Too often AAC users' perspectives are disregarded, no matter how tenacious our self-advocacy. The idea that the field of AAC research itself would perpetuate this enforced \"voicelessness\" is deeply unjust. Our contributions to AAC research - via participatory models that position us as equal partners - can, will, and do make that research more meaningful.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"245-247"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13180254/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144288123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How ableism impacts people who need and use AAC. 残疾是如何影响需要和使用AAC的人的。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-06 DOI: 10.1080/07434618.2025.2489663

Alice Wong

{"title":"How ableism impacts people who need and use AAC.","authors":"Alice Wong","doi":"10.1080/07434618.2025.2489663","DOIUrl":"10.1080/07434618.2025.2489663","url":null,"abstract":"I was born with a neuromuscular disability. Ever since I was a child, I encountered and experienced ableism, but I did not have the word for it. It was not until I was in my twenties when I started to read disability studies and sociology that I had a better framework for understanding how the world operates. Learning about systemic ableism as a form of oppression was a turning point. I realized that not only was the physical world never built for me, but the entire sociopolitical apparatus is centered on normative bodies and behaviors that uphold white supremacy and hypercapitalism, deeming disabled people as deviant, unproductive, and less than human. In June 2022, I was hospitalized with a punctured lung, aspiration pneumonia, and malnourishment. I came home from the hospital with an irrevocably altered body, unable to eat, drink, or speak. I was left to face a new reality of being a nonspeaking person in a world that privileges speaking and hearing as primary ways of communicating. While I am still evolving and discovering new aspects of life without speech, I believe AAC users can collectively bend conventional modes of communication, practice crip time, teach speaking people to slow the fuck down, and have us centered instead of at the margins. Nonspeaking people belong in public, holding court in conversations, doing our thing, our access needs respected, and being our full selves unapologetically.","PeriodicalId":520566,"journal":{"name":"Augmentative and alternative communication (Baltimore, Md. : 1985)","volume":" ","pages":"203-206"},"PeriodicalIF":1.6,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13101051/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144236725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Editorial: Sharing perspectives on change in AAC research. 社论：分享对AAC研究变化的看法。

IF 1.6

Augmentative and alternative communication (Baltimore, Md. : 1985) Pub Date : 2025-09-01 Epub Date: 2025-06-16 DOI: 10.1080/07434618.2025.2514750

MaryAnn Romski, Rose A Sevcik

引用次数: 0