American Journal of Hospice & Palliative Medicine最新文献

筛选
英文 中文
Evaluation of Surgical Clinic Nurses' Knowledge Levels About Palliative Surgery. 评估外科门诊护士对姑息手术的了解程度。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-02-01 Epub Date: 2023-04-12 DOI: 10.1177/10499091231170084
Runida Doğan, Aysel Doğan, Fatma Karasu, Nazlıcan Bağci
{"title":"Evaluation of Surgical Clinic Nurses' Knowledge Levels About Palliative Surgery.","authors":"Runida Doğan, Aysel Doğan, Fatma Karasu, Nazlıcan Bağci","doi":"10.1177/10499091231170084","DOIUrl":"10.1177/10499091231170084","url":null,"abstract":"<p><strong>Background: </strong>Currently, palliative care plays an important role in increasingly aging populations and their long-term care needs. Surgical palliative care is important for improving quality of life. This study aimed to determine the knowledge level of nurses working in surgical clinics about palliative surgery.</p><p><strong>Method: </strong>This research was conducted as a descriptive study. We included 182 nurses working in surgical clinics who agreed to participate and met the inclusion criteria for participation in the study. The Personal Information and Palliative Surgery Information Forms were used to collect data. Data were collected between November 30, and December 15, 2022. The analysis of the data obtained was performed using the Statistical Program in Social Sciences (SPSS), Version 25. The level of significance was set at <i>P</i> < .05.</p><p><strong>Results: </strong>Nurses referred to palliative care as end-of-life care, 73.1% did not care for palliative care patients, and 84.6% did not receive training in palliative care. Surgical clinic nurses were found to have \"moderate knowledge about palliative surgery. A statistically significant difference was found between the average palliative surgery knowledge of surgical clinic nurses and those trained in education and palliative care (<i>P</i> < .05).</p><p><strong>Conclusions: </strong>The results of the study showed that surgical clinic nurses had moderate knowledge about palliative surgery. Moreover, the nurses who have received training in palliative care and had high level of education exhibited a higher level of knowledge.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"133-139"},"PeriodicalIF":1.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9283411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What Counts as a Surrogate Decision? 什么算代理决定?
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-02-01 Epub Date: 2023-03-30 DOI: 10.1177/10499091231168976
Benjamin H Levi, Anne Ef Dimmock, Lauren J Van Scoy, Theresa Smith, Bronson Kunzler, Andrew J Foy, Laurie Badzek, Michael J Green
{"title":"What Counts as a Surrogate Decision?","authors":"Benjamin H Levi, Anne Ef Dimmock, Lauren J Van Scoy, Theresa Smith, Bronson Kunzler, Andrew J Foy, Laurie Badzek, Michael J Green","doi":"10.1177/10499091231168976","DOIUrl":"10.1177/10499091231168976","url":null,"abstract":"<p><p>When patients lose decision-making capacity, others must make surrogate decisions on their behalf. What counts as a surrogate decision might seem self-evident. But as clinician-researchers in the field of advance care planning, we have found that it is not always so clear-cut. In this paper, we describe how and why this is a matter of concern, a novel approach for assessing whether a surrogate decision occurred, and findings from this assessment.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"125-132"},"PeriodicalIF":1.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10751970/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9884826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Live Discharge of Hospice Patients with Alzheimer's Disease and Related Dementias: A Systematic Review. 阿尔茨海默病及相关痴呆临终关怀病人的活出院:系统回顾。
IF 1.5 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-02-01 Epub Date: 2023-03-28 DOI: 10.1177/10499091231168401
Stephanie P Wladkowski, Cara L Wallace, Kathryn Coccia, Rebecca C Hyde, Leslie Hinyard, Karla T Washington
{"title":"Live Discharge of Hospice Patients with Alzheimer's Disease and Related Dementias: A Systematic Review.","authors":"Stephanie P Wladkowski, Cara L Wallace, Kathryn Coccia, Rebecca C Hyde, Leslie Hinyard, Karla T Washington","doi":"10.1177/10499091231168401","DOIUrl":"10.1177/10499091231168401","url":null,"abstract":"<p><p><b>Background:</b> Hospice is intended to promote the comfort and quality of life of dying patients and their families. When patients are discharged from hospice prior to death (ie, experience a \"live discharge\"), care continuity is disrupted. This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer's Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition. <b>Methods:</b> Researchers conducted a systematic review in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Reviewers searched AgeLine, APA PsycINFO (Ovid), CINAHL Plus with Full Text, ProQuest Dissertations & Theses Global, PubMed, Scopus, and Web of Science (Core Collection). Reviewers extracted data and synthesized findings from 9 records, which reported findings from 10 individual studies. <b>Results:</b> The reviewed studies, which were generally of high quality, consistently identified diagnosis of ADRD as a risk factor for live discharge from hospice. The relationship between race and live hospice discharge was less clear and likely dependent upon the type of discharge under investigation and other (eg, systemic-level) factors. Research on patient and family experiences underscored the extent to which live hospice discharge can be distressing, confusing, and associated with numerous losses. <b>Conclusion:</b> Research specific to live discharge among ADRD patients and their families is limited. Synthesis across included studies points to the importance for future research to differentiate between types of live discharge-revocation vsversus decertification-as these are vastly different experiences in choice and circumstances.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"228-239"},"PeriodicalIF":1.5,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10763573/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9253278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessment of Feelings Towards Advanced Care Planning in the Latino Community. 评估拉丁裔社区对晚期护理规划的感受。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-02-01 Epub Date: 2023-05-09 DOI: 10.1177/10499091231173413
Holden Caplan, Jasmine Santos, Mariya Bershad, Kathleen Spritzer, John Liantonio
{"title":"Assessment of Feelings Towards Advanced Care Planning in the Latino Community.","authors":"Holden Caplan, Jasmine Santos, Mariya Bershad, Kathleen Spritzer, John Liantonio","doi":"10.1177/10499091231173413","DOIUrl":"10.1177/10499091231173413","url":null,"abstract":"<p><strong>Background: </strong>Previous studies have noted that participation in advanced care planning (ACP) and end-of-life (EOL) discussions remain low among Latino communities. Various studies have found that interventions within Latino communities can positively improve engagement in ACP, however, minimal research exists regarding patient satisfaction of ACP discussions with healthcare providers outside of preorganized educational interventions. Our study aims to understand how conversations about ACP are perceived by Latino patients in a primary care setting.</p><p><strong>Methods: </strong>Subjects were identified from the institution's family medicine clinic from October 2021 to October 2022. Participants were those over the age of 50 who identified as Latino and were available at the clinic on the day of survey administration. An 8-question, 5-point, Likert scale survey assessed perceptions about ACP planning and gauged satisfaction of conversations with health care providers. The survey concluded with a multiple-choice question inquiring about individuals whom patients have spoken to regarding ACP/EOL wishes. Survey data was gathered through Qualtrics.</p><p><strong>Results: </strong>Of the 33 patients, the majority have at least <i>somewhat</i> thought about their EOL wishes (avg = 3.48/5). Most <i>usually</i> felt they were given enough time with their doctor (avg = 4.12/5) and comfortable speaking about ACP and EOL decisions (avg = 4.55/5). Generally, participants felt <i>somewhat</i> happy with how their doctor has spoken about ACP/EOL care (avg = 3.24/5). However, patients only felt <i>a little</i> to <i>somewhat</i> satisfied with the explanation of ACP/EOL from providers (avg = 2.82/5) and <i>a little</i> to <i>somewhat</i> confident in having the proper forms in place (avg = 2.76/5). Religious officials were <i>a little</i> to <i>somewhat</i> important to these conversations (avg = 2.55/5). Overall, patients have discussed ACP more frequently with family members and friends than health care providers, lawyers, or religious leaders.</p><p><strong>Conclusions: </strong>The initial data demonstrates that many Latino patients are engaging in ACP conversations, both with healthcare providers and loved ones. Patients largely feel comfortable discussing EOL wishes with their doctor suggesting a trustful relationship. However, patients are only somewhat happy with these ACP conversations. Our study highlights a need for enhanced ACP education to improve satisfaction and confidence in formal documentation. Physicians should continue to engage and individualize ACP discussions to increase EOL preparedness among Latino patients.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"187-192"},"PeriodicalIF":1.9,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9431828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Need for Improved End-of-Life Care Medical Education: Causes, Consequences, and Strategies for Enhancement and Integration. 改善临终关怀医学教育的必要性:原因、后果以及加强和整合战略。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-02-28 DOI: 10.1177/10499091231161605
Rahim Hirani, Hassan Khuram, Aria Elahi, Parker Alan Maddox, Maya Pandit, Ali Issani, Mill Etienne
{"title":"The Need for Improved End-of-Life Care Medical Education: Causes, Consequences, and Strategies for Enhancement and Integration.","authors":"Rahim Hirani, Hassan Khuram, Aria Elahi, Parker Alan Maddox, Maya Pandit, Ali Issani, Mill Etienne","doi":"10.1177/10499091231161605","DOIUrl":"10.1177/10499091231161605","url":null,"abstract":"<p><p>End-of-life (EOL) care is a unique area of medicine that emphasizes holistic patient-centered care. It requires clinicians to consider a patients' mental, emotional, spiritual, social and physical comforts and engage patients and their families in complex discussions and decisions. It is an area of medicine that requires sensitivity in communication in order to respond to a wide range of emotions from patients and their families. Given these intricacies, it is essential that healthcare professional trainees are exposed early in their careers so they can be better equipped to address EOL situations effectively. While many medical schools have integrated this important element in pre-clinical education, a formalized and standardized curriculum could allow for students to better engage in EOLcare scenarios that they will face as future physicians. In this editorial, we discuss potential strategies to incorporate EOL care didactics and experiential learning earlier in medical education as well as the consequences of inadequate EOL care education, particularly in medical schools, in its current state.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"5-7"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10806492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Burden of having to Wonder: Hospice Caregiving Experiences of LGBTQ+ Cancer Family Caregivers. 不得不怀疑的负担:LGBTQ+ 癌症家庭照顾者的临终关怀经历。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-02-23 DOI: 10.1177/10499091231159089
Kristin G Cloyes, Miranda Reynaga, Marilisa Vega, Megan C Thomas Hebdon, Casidee Thompson, Susan J Rosenkranz, Djin Tay, Maija Reblin, Lee Ellington
{"title":"The Burden of having to Wonder: Hospice Caregiving Experiences of LGBTQ+ Cancer Family Caregivers.","authors":"Kristin G Cloyes, Miranda Reynaga, Marilisa Vega, Megan C Thomas Hebdon, Casidee Thompson, Susan J Rosenkranz, Djin Tay, Maija Reblin, Lee Ellington","doi":"10.1177/10499091231159089","DOIUrl":"10.1177/10499091231159089","url":null,"abstract":"<p><strong>Background and objectives: </strong>LGBTQ+ people are more likely to be caregivers for family and friends with life-limiting illnesses than non-LGBTQ+ people. LGBTQ+ caregivers may also experience stigma, bias, and discrimination, in addition to caregiving stress. Yet few studies have elicited LGBTQ+ family caregivers' perspectives on their end-of-life (EOL) experiences of home hospice.</p><p><strong>Research design and methods: </strong>We conducted semi-structured interviews with LGBTQ+ family caregivers of home hospice patients (N = 20). Following an interpretive descriptive approach, interview data were audio recorded, transcribed, and iteratively coded, and themes were developed and synthesized.</p><p><strong>Results: </strong>The burden of having to wonder expressed caregivers' uncertainty and concern about whether their negative experiences were common to all EOL caregivers or stemmed from cultural stigma and provider bias. Participants described how invisibility vs. risks of disclosure, anticipatory anxiety, perceived microaggressions, and protective vigilance increased stress and complicated caregiver-provider communication. Navigating EOL universalities vs. minority realities depicted underlying tensions between commonly assumed universalities of EOL caregiving and LGBTQ+-specific experiences. Providers' discomfort, awkward communication, lack of access to culturally competent EOL support resources, and broader structural and cultural discrimination eroded their sense of connectedness and safety. Together, these themes characterized the impact of minority stress at EOL.</p><p><strong>Discussion and implications: </strong>Our findings suggest that LGBTQ+ hospice caregivers are at risk for minority stress in addition to more common sources of EOL caregiving pressures and thus have specific support and communication needs. Providers must understand this to deliver effective EOL care for all families.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"56-62"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10827280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Communication of Bad News in Palliative Care: The View of Professionals in Spain. 姑息关怀中的坏消息沟通:西班牙专业人士的观点。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-03-21 DOI: 10.1177/10499091231163323
Antonio Ramos Sánchez, María Jesús Martínez Beltrán, Juan Manuel Arribas Marín, Julio C de la Torre-Montero, Beatriz Blanco Gil, María Del Carmen Massé García, Ana Sofia Fernandes Ribeiro
{"title":"The Communication of Bad News in Palliative Care: The View of Professionals in Spain.","authors":"Antonio Ramos Sánchez, María Jesús Martínez Beltrán, Juan Manuel Arribas Marín, Julio C de la Torre-Montero, Beatriz Blanco Gil, María Del Carmen Massé García, Ana Sofia Fernandes Ribeiro","doi":"10.1177/10499091231163323","DOIUrl":"10.1177/10499091231163323","url":null,"abstract":"BACKGROUND Communication is one of the central axes around which end-of-life care revolves in the context of palliative care. Communication of bad news is reported as one of the most difficult and stressful tasks by palliative care professionals. Therefore, the aim of this study is to identify aspects related to the communication of bad news in palliative care in Spain. METHODS Descriptive cross-sectional study. An ad hoc questionnaire was designed and sent by e-mail to all palliative care teams in Spain. RESULTS Overall, 206 professionals (102 nurses, 88 physicians and 16 psychologists) completed the questionnaire. A total of 60.2% considered their communication of bad news skills to be good or very good. This was related to older age, experience in both the profession and palliative care, and to having received specific postgraduate training (P < .001). Around 42.2% perform communication of bad news with the patient first, which is associated with lower skill (P = .013). About 78.15% of the professionals do not use any specific protocol. CONCLUSION This study suggests that patients access palliative care with little information about their diagnosis and prognosis. The barriers identified in the communication of bad news are the lack of specific education and training in protocol management, the difficult balance between hope and honesty, the young age of the patient, and the family.","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"26-37"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9141567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementation Costs of Technology-Enhanced Transitional Palliative Care for Rural Caregivers. 为农村护理人员提供的技术增强型过渡性姑息关怀的实施成本。
IF 1.5 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-02-16 DOI: 10.1177/10499091231156145
Brystana G Kaufman, Diane E Holland, Catherine E Vanderboom, Cory Ingram, Ellen M Wild, Ann Marie Dose, Carole Stiles, Allison M Gustavson, Alice Chun, Erica M Langan, Henry A Baer-Benson, Jay Mandrekar, Joan M Griffin
{"title":"Implementation Costs of Technology-Enhanced Transitional Palliative Care for Rural Caregivers.","authors":"Brystana G Kaufman, Diane E Holland, Catherine E Vanderboom, Cory Ingram, Ellen M Wild, Ann Marie Dose, Carole Stiles, Allison M Gustavson, Alice Chun, Erica M Langan, Henry A Baer-Benson, Jay Mandrekar, Joan M Griffin","doi":"10.1177/10499091231156145","DOIUrl":"10.1177/10499091231156145","url":null,"abstract":"<p><strong>Objectives: </strong>Compared to urban family caregivers (FCG), rural FCG experience greater burdens accessing coordinated care for their loved ones during and after hospitalization. The impact of technology-enhanced transitional palliative care (TPC) on caregiver outcomes is currently being evaluated in a randomized control trial. This study evaluates resource use and health system costs of this FCG-focused TPC intervention and potential Medicare reimbursement mechanisms.</p><p><strong>Methods: </strong>Rural caregivers of hospitalized patients were randomized into an 8-week intervention consisting of video visits conducted by a registered nurse certified in palliative care, supplemented with phone calls and texts (n = 215), or attentional control. Labor costs were estimated for a registered nurse and compared to scenario analyses using a nurse practitioner or social worker wages. Medicare reimbursement scenarios included Transitional Care Management (TCM) and Chronic Care Management (CCM) CPT codes.</p><p><strong>Results: </strong>In the base case, TPC cost was $395 per FCG facilitated by a registered nurse, compared to $337 and $585 if facilitated by a social worker or nurse practitioner, respectively. Mean Medicare reimbursement in the TCM-only scenario was $322 and $260 for high or moderate complexity patients, respectively. Reimbursement in the CCM only scenario was $348 and $274 for complex and non-complex patients, respectively. Reimbursement in the TCM+CCM scenario was $496 and $397, for high/complex and moderate/non-complex patients, respectively.</p><p><strong>Conclusion: </strong>TPC is a feasible, low cost and sustainable strategy to enhance FCG support in rural areas. Potential reimbursement mechanisms are available to offset the costs to the health system for providing transitional palliative care to caregivers of patients recently hospitalized.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"38-44"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10427729/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10019297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Extreme Symptom Burden for Patients With COVID-19 at the End of Life; Extrapolation of Knowledge Gained to Achieve Sustained Comfort and Dignity for all Patients in Their Last Days of Life1. 生命末期 COVID-19 患者的极端症状负担;推断所获得的知识,以实现所有患者在生命最后几天的持续舒适和尊严1。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-03-13 DOI: 10.1177/10499091231164135
Dympna Waldron, Christine Eileen Mc Carthy, David Murphy, Janusz Krawczyk, Lisa Kelly, Fiona Walsh, Eileen Mannion
{"title":"Extreme Symptom Burden for Patients With COVID-19 at the End of Life; Extrapolation of Knowledge Gained to Achieve Sustained Comfort and Dignity for all Patients in Their Last Days of Life<sup>1</sup>.","authors":"Dympna Waldron, Christine Eileen Mc Carthy, David Murphy, Janusz Krawczyk, Lisa Kelly, Fiona Walsh, Eileen Mannion","doi":"10.1177/10499091231164135","DOIUrl":"10.1177/10499091231164135","url":null,"abstract":"<p><strong>Background: </strong>We describe two complex cases in the setting of COVID-19 at the End of Life, to enhance learning for all patients.</p><p><strong>Case presentation: </strong>Maintenance of sustained comfort in two cases required multiple drugs, specifically selected for symptoms that necessitated three separate pumps delivering continuous 24-hour subcutaneous infusion.</p><p><strong>Case management: </strong>Management of sustained comfort included opioid, midazolam, anti-secretory, diclofenac for intractable temperature, phenobarbital for extreme agitation, in one, where seizure activity was present, while insomnia, was a prominent feature of another. Management of Akatasia was also required.</p><p><strong>Case outcome: </strong>Attention to each individual patient's rapidly evolving symptoms, during the dying phase, with a thorough differential diagnosis, wa s vitally important in the context of a 'Good Death'. This was achieved in both cases, reflected by evidence at the bedside of comfort and a minimum need for 'as required' drugs in the last days of life.</p><p><strong>Conclusions: </strong>COVID-19 being a new illness, we need to prospectively study the symptom burden/clustering at End of Life and learn from management of this new disease for other illnesses also. Further research is required to develop protocols on; when does Midazolam dose reach tolerance and when should an alternative drug such as phenobarbital for sustained Gamma-Aminobutyric Acid effects be initiated; examine the optimal approach to sustained temperature control; be cognisant of extrapyramidal side effects of drugs used at End of Life and consider looking at a lack of need for 'as required' drugs in the last days of life as an outcome measure of sustained comfort.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"113-118"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10014480/pdf/10.1177_10499091231164135.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9122193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospice Patients' End-of-Life Dreams and Visions: A Systematic Review of Qualitative Studies. 临终关怀患者的临终梦想与愿景:定性研究的系统回顾。
IF 1.9 4区 医学
American Journal of Hospice & Palliative Medicine Pub Date : 2024-01-01 Epub Date: 2023-03-22 DOI: 10.1177/10499091231163571
Elisa Rabitti, Silvio Cavuto, Matías Eduardo Díaz Crescitelli, Maria Chiara Bassi, Luca Ghirotto
{"title":"Hospice Patients' End-of-Life Dreams and Visions: A Systematic Review of Qualitative Studies.","authors":"Elisa Rabitti, Silvio Cavuto, Matías Eduardo Díaz Crescitelli, Maria Chiara Bassi, Luca Ghirotto","doi":"10.1177/10499091231163571","DOIUrl":"10.1177/10499091231163571","url":null,"abstract":"<p><p>When conscious, about 50% to 60% of hospice patients report a \"visitation\" by someone who is not there while they dream or are awake: a phenomenon known as End-of-Life Dreams and Visions (ELDVs). Since the dying process is frequently complicated by delirium, ELDVs risk being misidentified as such by professionals and caregivers. To observe these phenomena from patients' perspectives, we conducted a systematic review to aggregate and synthesize the findings from the qualitative studies about ELDVs of patients assisted in hospices to indicate future directions for research and care. MEDLINE/PubMed, Embase, CINAHL, PsycINFO, Scopus, and Web of Science databases were searched, yielding 293 documents after duplicates were removed. Six qualitative articles reporting on five unique studies conducted in hospice settings were included in the meta-synthesis. We generated three main categories: i) typologies of ELDVs reported, ii) emotional consequences, and iii) intersubjective meaning-making. The ELDVs reported were experiences that remained intimate and unsocialized and thus preventing participants from defining a shared sense in their relationships. Training healthcare professionals to recognize ELDVs and take advantage of them in the care relationship is desirable. We also encourage the patient's family members to listen and understand ELDVs when they occur actively. For caregivers to know how to interpret these phenomena may provide them with additional strategies for supporting, reassuring, and strengthening their relationships with their loved ones. The review allowed us to inform healthcare professionals and caregivers about how to help patients share their emotional and identity-related experiences and meaning-making in end-of-life.</p>","PeriodicalId":50810,"journal":{"name":"American Journal of Hospice & Palliative Medicine","volume":" ","pages":"99-112"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10710003/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9247455","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信